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Marcel W. M. Post - One of the best experts on this subject based on the ideXlab platform.
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Physical activity in wheelchair users with spinal cord injury: prerequisites for and effects of an Active Lifestyle
Nederlands Tijdschrift voor Geneeskunde, 2020Co-Authors: De Groot S, Linda Valent, Rogier Broeksteeg, Marcel W. M. Post, Van Koppenhagen Cf, Van Der Woude LhAbstract:: Wheelchair users with spinal cord injury generally have a relatively inActive Lifestyle. Several studies have shown that an inActive Lifestyle is associated with a lower fitness level, poorer health, reduced social participation and a lower quality of life for wheelchair users. There are a number of ways in which wheelchair users can remain Active in daily life, for instance, by using a wheelchair or handbike for mobility instead of taking the car, and by participating in sports or wheelchair sports. Some prerequisites should be met to enable wheelchair users to have a more Active Lifestyle: the wheelchair should be optimally adjusted and the everyday environment, including sport facilities, should be easily accessible. An Active Lifestyle often also requires a change in attitude or behaviour. General practitioners, other primary healthcare providers and rehabilitation professionals can help in this respect.
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effectiveness of a self management intervention to promote an Active Lifestyle in persons with long term spinal cord injury the habits randomized clinical trial
Neurorehabilitation and Neural Repair, 2017Co-Authors: Hedwig Kooijmans, Marcel W. M. Post, Helma M H Bongersjanssen, Henk J Stam, Lucas H V Van Der Woude, Dorien C M Spijkerman, Govert J Snoek, C F Van Koppenhagen, Jos W R Twisk, Johannes B J BussmannAbstract:BACKGROUND: Most people with long-term spinal cord injury (SCI) have a very inActive Lifestyle. Higher activity levels have been associated with health benefits and enhanced quality of life. Consequently, encouraging an Active Lifestyle is important and behavioral interventions are needed to establish durable Lifestyle changes. OBJECTIVE: The Healthy Active Behavioral Intervention in SCI (HABITS) study was aimed to evaluate the effectiveness of a structured self-management intervention to promote an Active Lifestyle in inActive persons with long-term SCI. METHODS: This assessor-blinded randomized controlled trial was conducted at 4 specialized SCI units in the Netherlands. Sixty-four individuals with long-term SCI (>10 years), wheelchair-user and physically inActive, were included. Participants were randomized to either a 16-week self-management intervention consisting of group meetings and individual counseling and a book, or to a control group that only received information about Active Lifestyle by one group meeting and a book. Measurements were performed at baseline, 16 weeks, and 42 weeks. Primary outcome measures were self-reported physical activity and minutes per day spent in wheelchair driving. Secondary outcomes included perceived behavioral control (exercise self-efficacy, proActive coping), stages of change concerning exercise, and attitude toward exercise. RESULTS: Mixed models analyses adjusted for age, sex, level of SCI, time since injury, baseline body mass index, and location did not show significant differences between the intervention and control groups on the primary and secondary outcomes ( P ≥ .05). CONCLUSIONS: A structured 16-week self-management intervention was not effective to change behavior toward a more Active Lifestyle and to improve perceived behavioral control, stages of change, and attitude.
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Active Lifestyle rehabilitation interventions in aging spinal cord injury allrisc a multicentre research program
Disability and Rehabilitation, 2013Co-Authors: L H V Van Der Woude, S De Groot, Klaas Postema, Johannes B J Bussmann, Thomas W J Janssen, Marcel W. M. PostAbstract:BACKGROUND: With today's specialized medical care, life expectancy of persons with a spinal cord injury (SCI) has considerably improved. With increasing age and time since injury, many individuals with SCI, however, show a serious inActive Lifestyle, associated with deconditioning and secondary health conditions (SHCs) (e.g. pressure sores, urinary and respiratory tract infections, osteoporosis, upper-extremity pain, obesity, diabetes, cardiovascular disease) and resulting in reduced participation and quality of life (QoL). Avoiding this downward spiral, is crucial. OBJECTIVES: To understand possible deconditioning and SHCs in persons aging with a SCI in the context of Active Lifestyle, fitness, participation and QoL and to examine interventions that enhance Active Lifestyle, fitness, participation and QoL and help prevent some of the SHCs. METHODS: A multicentre multidisciplinary research program (Active Lifestyle Rehabilitation Interventions in aging Spinal Cord injury, ALLRISC) in the setting of the long-standing Dutch SCI-rehabilitation clinical research network. RESULTS: ALLRISC is a four-study research program addressing inActive Lifestyle, deconditioning, and SHCs and their associations in people aging with SCI. The program consists of a cross-sectional study (n = 300) and three randomized clinical trials. All studies share a focus on fitness, Active Lifestyle, SHCs and deconditioning and outcome measures on these and other (participation, QoL) domains. It is hypothesized that a self-management program, low-intensity wheelchair exercise and hybrid functional electrical stimulation-supported leg and handcycling are effective interventions to enhance Active life style and fitness, help to prevent some of the important SHCs in chronic SCI and improve participation and QoL. CONCLUSION: ALLRISC aims to provide evidence-based preventive components of a rehabilitation aftercare system that preserves functioning in aging persons with SCI.
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Rolstoelgebruikers met een dwarslaesie in beweging. Effecten van en voorwaarden voor een actieve leefstijl
Nederlands Tijdschrift voor Geneeskunde, 2013Co-Authors: Sonja De Groot, Linda Valent, Casper F. Van Koppenhagen, Rogier Broeksteeg, Marcel W. M. Post, Lucas H. V. Van Der WoudeAbstract:Wheelchair users with spinal cord injury generally have a relatively inActive Lifestyle. Several studies have shown that an inActive Lifestyle is associated with a lower fitness level, poorer health, reduced social participation and a lower quality of life for wheelchair users. There are a number of ways in which wheelchair users can remain Active in daily life, for instance, by using a wheelchair or handbike for mobility instead of taking the car, and by participating in sports or wheelchair sports. Some prerequisites should be met to enable wheelchair users to have a more Active Lifestyle: the wheelchair should be optimally adjusted and the everyday environment, including sport facilities, should be easily accessible. An Active Lifestyle often also requires a change in attitude or behaviour. General practitioners, other primary healthcare providers and rehabilitation professionals can help in this respect.
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is manual wheelchair satisfaction related to Active Lifestyle and participation in people with a spinal cord injury
Spinal Cord, 2011Co-Authors: S De Groot, Marcel W. M. Post, Helma M H Bongersjanssen, J H Bloemenvrencken, L H V Van Der WoudeAbstract:STUDY DESIGN: Cross-sectional study. OBJECTIVES: To describe the satisfaction of the manual wheelchair user with hand rim wheelchair-related aspects (for example, dimensions, weight and comfort) and wheelchair service-related aspects and to determine the relationship between wheelchair users' satisfaction, personal and lesion characteristics, and Active Lifestyle and participation in persons with a spinal cord injury (SCI). SETTING: Eight Dutch rehabilitation centers with a specialized SCI unit. METHODS: The Dutch version of the Quebec user evaluation of satisfaction with assistive technology (D-QUEST) was filled out by 109 participants 1 year after discharge from inpatient SCI rehabilitation. Relationships between the D-QUEST scores and personal and lesion characteristics, and Active Lifestyle and participation (physical activity scale for individuals with physical disabilities (PASIPD), Utrecht activity list (UAL), mobility range and social behavior subscales of the SIP68 (SIPSOC)) were determined. RESULTS: A high level of satisfaction was found with wheelchair-related aspects. The participants were less satisfied with the service-related aspects. Participants with an incomplete lesion were slightly more satisfied regarding both aspects than those with a complete lesion. A higher satisfaction regarding wheelchair dimensions and a higher overall satisfaction were related to a more Active Lifestyle. Persons who were more satisfied with the simplicity of use of the wheelchair had a better participation score. CONCLUSION: Dutch persons with SCI are in general quite satisfied with their hand rim wheelchair. Some aspects of the wheelchair (dimensions and simplicity of use) are important to optimize as these are related to an Active Lifestyle and participation.
Johannes B J Bussmann - One of the best experts on this subject based on the ideXlab platform.
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effectiveness of a self management intervention to promote an Active Lifestyle in persons with long term spinal cord injury the habits randomized clinical trial
Neurorehabilitation and Neural Repair, 2017Co-Authors: Hedwig Kooijmans, Marcel W. M. Post, Helma M H Bongersjanssen, Henk J Stam, Lucas H V Van Der Woude, Dorien C M Spijkerman, Govert J Snoek, C F Van Koppenhagen, Jos W R Twisk, Johannes B J BussmannAbstract:BACKGROUND: Most people with long-term spinal cord injury (SCI) have a very inActive Lifestyle. Higher activity levels have been associated with health benefits and enhanced quality of life. Consequently, encouraging an Active Lifestyle is important and behavioral interventions are needed to establish durable Lifestyle changes. OBJECTIVE: The Healthy Active Behavioral Intervention in SCI (HABITS) study was aimed to evaluate the effectiveness of a structured self-management intervention to promote an Active Lifestyle in inActive persons with long-term SCI. METHODS: This assessor-blinded randomized controlled trial was conducted at 4 specialized SCI units in the Netherlands. Sixty-four individuals with long-term SCI (>10 years), wheelchair-user and physically inActive, were included. Participants were randomized to either a 16-week self-management intervention consisting of group meetings and individual counseling and a book, or to a control group that only received information about Active Lifestyle by one group meeting and a book. Measurements were performed at baseline, 16 weeks, and 42 weeks. Primary outcome measures were self-reported physical activity and minutes per day spent in wheelchair driving. Secondary outcomes included perceived behavioral control (exercise self-efficacy, proActive coping), stages of change concerning exercise, and attitude toward exercise. RESULTS: Mixed models analyses adjusted for age, sex, level of SCI, time since injury, baseline body mass index, and location did not show significant differences between the intervention and control groups on the primary and secondary outcomes ( P ≥ .05). CONCLUSIONS: A structured 16-week self-management intervention was not effective to change behavior toward a more Active Lifestyle and to improve perceived behavioral control, stages of change, and attitude.
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Active Lifestyle rehabilitation interventions in aging spinal cord injury allrisc a multicentre research program
Disability and Rehabilitation, 2013Co-Authors: L H V Van Der Woude, S De Groot, Klaas Postema, Johannes B J Bussmann, Thomas W J Janssen, Marcel W. M. PostAbstract:BACKGROUND: With today's specialized medical care, life expectancy of persons with a spinal cord injury (SCI) has considerably improved. With increasing age and time since injury, many individuals with SCI, however, show a serious inActive Lifestyle, associated with deconditioning and secondary health conditions (SHCs) (e.g. pressure sores, urinary and respiratory tract infections, osteoporosis, upper-extremity pain, obesity, diabetes, cardiovascular disease) and resulting in reduced participation and quality of life (QoL). Avoiding this downward spiral, is crucial. OBJECTIVES: To understand possible deconditioning and SHCs in persons aging with a SCI in the context of Active Lifestyle, fitness, participation and QoL and to examine interventions that enhance Active Lifestyle, fitness, participation and QoL and help prevent some of the SHCs. METHODS: A multicentre multidisciplinary research program (Active Lifestyle Rehabilitation Interventions in aging Spinal Cord injury, ALLRISC) in the setting of the long-standing Dutch SCI-rehabilitation clinical research network. RESULTS: ALLRISC is a four-study research program addressing inActive Lifestyle, deconditioning, and SHCs and their associations in people aging with SCI. The program consists of a cross-sectional study (n = 300) and three randomized clinical trials. All studies share a focus on fitness, Active Lifestyle, SHCs and deconditioning and outcome measures on these and other (participation, QoL) domains. It is hypothesized that a self-management program, low-intensity wheelchair exercise and hybrid functional electrical stimulation-supported leg and handcycling are effective interventions to enhance Active life style and fitness, help to prevent some of the important SHCs in chronic SCI and improve participation and QoL. CONCLUSION: ALLRISC aims to provide evidence-based preventive components of a rehabilitation aftercare system that preserves functioning in aging persons with SCI.
Leslie R Morse - One of the best experts on this subject based on the ideXlab platform.
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Active Lifestyle is associated with reduced dyspnea and greater life satisfaction in spinal cord injury
Archives of Physical Medicine and Rehabilitation, 2016Co-Authors: Eric Garshick, Sara J Mulroy, Daniel E Graves, Karen Greenwald, John A Horton, Leslie R MorseAbstract:Abstract Objective To assess the relations between measures of activity with dyspnea and satisfaction with life in chronic spinal cord injury (SCI). Design Cross-sectional survey. Setting Five SCI centers. Participants Between July 2012 and March 2015, subjects (N=347) with traumatic SCI ≥1 year after injury who used a manual wheelchair or walked with or without an assistive device reported hours spent away from home or yard on the previous 3 days, sports participation, and planned exercise. Interventions Not applicable. Main Outcome Measures Satisfaction with Life Scale (SWLS) and dyspnea. Dyspnea was defined as shortness of breath when hurrying on the level or going up a slight hill, going slower than people the same age on the level because of breathlessness, or stopping for breath when going at your own pace, or after about 100yd (or after a few minutes) on the level. Results Dyspnea prevalence was 30%. Adjusting for asthma or chronic obstructive pulmonary disease, mobility mode, race, and season, there was a significant linear trend between greater SWLS scores and quartiles of time spent away from the home or yard ( P =.0002). SWLS score was greater if participating in organized sports ( P =.01), although was not significantly greater with planned exercise ( P =.093). Planned exercise was associated with a reduced odds ratio (OR) of dyspnea (.57; 95% confidence interval [CI], .34–.95; P =.032), but organized sports was not ( P =.265). Dyspnea was not significantly increased in persons who spent the fewest hours outside their home or yard (≤7h) compared with people who spent the most hours outside their home or yard (>23h) (OR=1.69; 95% CI, 0.83–3.44; P =.145). Conclusions In SCI, a planned exercise program is associated with less dyspnea. An Active Lifestyle characterized by greater time spent away from home or yard and sports participation is associated with greater SWLS scores.
Ilse De Bourdeaudhuij - One of the best experts on this subject based on the ideXlab platform.
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efficacy of a self regulation based electronic and mobile health intervention targeting an Active Lifestyle in adults having type 2 diabetes and in adults aged 50 years or older two randomized controlled trials
Journal of Medical Internet Research, 2019Co-Authors: Louise Poppe, Ilse De Bourdeaudhuij, Maite Verloigne, Samyah Shadid, Jelle Van Cauwenberg, Sofie Compernolle, Geert CrombezAbstract:BACKGROUND: Adopting an Active Lifestyle plays a key role in the prevention and management of chronic diseases such as type 2 diabetes mellitus (T2DM). Web-based interventions are able to alter health behaviors and show stronger effects when they are informed by a behavior change theory. MyPlan 2.0 is a fully automated electronic health (eHealth) and mobile health (mHealth) intervention targeting physical activity (PA) and sedentary behavior (SB) based on the Health Action Process Approach (HAPA). OBJECTIVE: This study aimed to test the short-term effect of MyPlan 2.0 in altering levels of PA and SB and in changing personal determinants of behavior in adults with T2DM and in adults aged ≥50 years. METHODS: The study comprised two randomized controlled trials (RCTs) with an identical design. RCT 1 was conducted with adults with T2DM. RCT 2 was performed in adults aged ≥50 years. Data were collected via face-to-face assessments. The participants decided either to increase their level of PA or to decrease their level of SB. The participants were randomly allocated with a 2:1 ratio to the intervention group or the waiting-list control group. They were not blinded for their group allocation. The participants in the intervention group were instructed to go through MyPlan 2.0, comprising 5 sessions with an interval of 1 week between each session. The primary outcomes were objectively measured and self-reported PA (ie, light PA, moderate-to-vigorous PA, total PA, number of steps, and domain-specific [eg, transport-related] PA) and SB (ie, sitting time, number of breaks from sitting time, and length of sitting bouts). Secondary outcomes were self-reported behavioral determinants for PA and SB (eg, self-efficacy). Separate linear mixed models were performed to analyze the effects of MyPlan 2.0 in the two samples. RESULTS: In RCT 1 (n=54), the PA intervention group showed, in contrast to the control group, a decrease in self-reported time spent sitting (P=.09) and an increase in accelerometer-measured moderate (P=.05) and moderate-to-vigorous PA (P=.049). The SB intervention group displayed an increase in accelerometer-assessed breaks from sedentary time in comparison with the control group (P=.005). A total of 14 participants of RCT 1 dropped out. In RCT 2 (n=63), the PA intervention group showed an increase for self-reported total PA in comparison with the control group (P=.003). Furthermore, in contrast to the control group, the SB intervention group decreased their self-reported time spent sitting (P=.08) and increased their accelerometer-assessed moderate (P=.06) and moderate-to-vigorous PA (P=.07). A total of 8 participants of RCT 2 dropped out. CONCLUSIONS: For both the samples, the HAPA-based eHealth and mHealth intervention, MyPlan 2.0, was able to improve only some of the primary outcomes. TRIAL REGISTRATION: ClinicalTrials.gov NCT03291171; http://clinicaltrials.gov/ct2/show/NCT03291171. ClinicalTrials.gov NCT03799146; http://clinicaltrials.gov/ct2/show/NCT03799146. INTERNATIONAL REGISTERED REPORT IDENTIFIER (IRRID): RR2-10.2196/12413.
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a self regulation based ehealth and mhealth intervention for an Active Lifestyle in adults with type 2 diabetes protocol for a randomized controlled trial
JMIR Research Protocols, 2018Co-Authors: Louise Poppe, Ilse De Bourdeaudhuij, Maite Verloigne, Laurent Degroote, Samyah Shadid, Geert CrombezAbstract:Background Adoption of an Active Lifestyle plays an important role in the management of type 2 diabetes. Online interventions targeting Lifestyle changes in adults with type 2 diabetes have provided mixed results. Previous research highlights the importance of creating theory-based interventions adapted to the population's specific needs. The online intervention "MyPlan 2.0" targets physical activity and sedentary behavior in adults with type 2 diabetes. This intervention is grounded in the self-regulation framework and, by incorporating the feedback of users with type 2 diabetes, iteratively adapted to its target population. Objective The aim of this paper is to thoroughly describe "MyPlan 2.0" and the study protocol that will be used to test the effectiveness of this intervention to alter patients' levels of physical activity and sedentary behavior. Methods A two-arm superiority randomized controlled trial will be performed. Physical activity and sedentary behavior will be measured using accelerometers and questionnaires. Furthermore, using questionnaires and diaries, patients' stressors and personal determinants for change will be explored in depth. To evaluate the primary outcomes of the intervention, multilevel analyses will be conducted. Results The randomized controlled trial started in January 2018. As participants can start at different moments, we aim to finish all testing by July 2019. Conclusions This study will increase our understanding about whether and how a theory-based online intervention can help adults with type 2 diabetes increase their level of physical activity and decrease their sedentary time. International registered report identifier (irrid) DERR1-10.2196/12413.
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effect and process evaluation of a smartphone app to promote an Active Lifestyle in lower educated working young adults cluster randomized controlled trial
Jmir mhealth and uhealth, 2018Co-Authors: Dorien Simons, Ilse De Bourdeaudhuij, Peter Clarys, Katrien De Cocker, Corneel Vandelanotte, Benedicte DeforcheAbstract:BACKGROUND: Mobile technologies have great potential to promote an Active Lifestyle in lower educated working young adults, an underresearched target group at a high risk of low activity levels. OBJECTIVE: The objective of our study was to examine the effect and process evaluation of the newly developed evidence- and theory-based smartphone app 'Active Coach' on the objectively measured total daily physical activity; self-reported, context-specific physical activity; and self-reported psychosocial variables among lower educated working young adults. METHODS: We recruited 130 lower educated working young adults in this 2-group cluster randomized controlled trial and assessed outcomes at baseline, posttest (baseline+9 weeks), and follow-up (posttest+3 months). Intervention participants (n=60) used the Active Coach app (for 9 weeks) combined with a Fitbit activity tracker. Personal goals, practical tips, and educational facts were provided to encourage physical activity. The control group received print-based generic physical activity information. Both groups wore accelerometers for objective measurement of physical activity, and individual interviews were conducted to assess the psychosocial variables and context-specific physical activity. Furthermore, intervention participants were asked process evaluation questions and generalized linear mixed models and descriptive statistics were applied. RESULTS: No significant intervention effects were found for objectively measured physical activity, self-reported physical activity, and self-reported psychosocial variables (all P>.05). Intervention participants evaluated the Active Coach app and the combined use with the Fitbit wearable as self-explanatory (36/51, 70.6%), user friendly (40/51, 78.4%), and interesting (34/51, 66.7%). Throughout the intervention, we observed a decrease in the frequency of viewing graphical displays in the app (P<.001); reading the tips, facts, and goals (P<.05); and wearing the Fitbit wearable (P<.001). Few intervention participants found the tips and facts motivating (10/41, 24.4%), used them to be physically Active (8/41, 19.6%), and thought they were tailored to their Lifestyle (7/41, 17.1%). CONCLUSIONS: The lack of significant intervention effects might be due to low continuous user engagement. Advice or feedback that was not perceived as adequately tailored and the difficulty to compete with many popular commercial apps on young people's smartphones may be responsible for a decrease in the engagement. A stand-alone app does not seem sufficient to promote an Active Lifestyle among lower educated working young adults; therefore, multicomponent interventions (using both technological and human support), as well as context-specific sensing to provide tailored advice, might be needed in this population. TRIAL REGISTRATION: ClinicalTrials.gov NCT02948803; https://clinicaltrials.gov/ct2/show/results/NCT02948803 (Archived by WebCite at http://www.webcitation.org/71OPFwaoA).
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a smartphone app to promote an Active Lifestyle in lower educated working young adults development usability acceptability and feasibility study
Jmir mhealth and uhealth, 2018Co-Authors: Dorien Simons, Ilse De Bourdeaudhuij, Peter Clarys, Katrien De Cocker, Corneel Vandelanotte, Benedicte DeforcheAbstract:BACKGROUND: Physical activity (PA) levels are problematic in lower-educated working young adults (18-26 years). To promote PA, smartphone apps have great potential, but there is no evidence for their effectiveness in this population. To increase the likelihood that a newly developed app will be effective, formative research and user testing are required. OBJECTIVE: The aim of this study was to describe the development, usability, acceptability, and feasibility of a new theory- and evidence-based smartphone app to promote an Active Lifestyle in lower-educated working young adults. METHODS: The new app was developed by applying 4 steps. First, determinants important to promote an Active Lifestyle in this population were selected. Second, evidence-based behavior change techniques were selected to convert the determinants into practical applications. Third, a new smartphone app was developed. Fourth, volunteers (n=11, both lower and higher educated) tested the app on usability, and lower-educated working young adults (n=16) tested its acceptability and feasibility via (think aloud) interviews, a questionnaire, and Google Analytics. The app was accordingly adapted for the final version. RESULTS: A new Android app, Active Coach, was developed that focused on knowledge, attitude, social support, and self-efficacy (based on outcomes from step 1), and that applied self-regulation techniques (based on outcomes from step 2). The app consists of a 9-week program with personal goals, practical tips, and scientific facts to encourage an Active Lifestyle. To ensure all-day and automatic self-monitoring of the activity behavior, the Active Coach app works in combination with a wearable activity tracker, the Fitbit Charge. Issues detected by the usability test (eg, text errors, wrong messages) were all fixed. The acceptability and feasibility test showed that participants found the app clear, understandable, and motivating, although some aspects needed to be more personal. CONCLUSIONS: By applying a stepwise, user-centered approach that regularly consulted the target group, the new app is adapted to their specific needs and preferences. The Active Coach app was overall positively evaluated by the lower-educated working young adults at the end of the development process.
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motivational profiles for secondary school physical education and its relationship to the adoption of a physically Active Lifestyle among university students
European Physical Education Review, 2010Co-Authors: Leen Haerens, David Kirk, Greet Cardon, Ilse De Bourdeaudhuij, Maarten VansteenkisteAbstract:The promotion of an Active Lifestyle is one of the central aims of physical education (PE). The present study aimed at investigating the relation between students' motivation for PE and activity levels using self-determination theory as a guiding framework. A retrospective design was used involving 2617 university students, of which 878 (33.5 percent) were male (age 20.6 1.9). Validated questionnaires were used to measure motivation for PE, self-reported concurrent (activity levels at secondary school) and delayed transfer (activity levels at university). A combination of hierarchical and non-hierarchical cluster analyses was used to generate motivational profiles for PE. Differences in activity levels were analysed using MANCOVAS. The results revealed that students with more optimal (i.e. more autonomous) motivational profiles reported more transfer and reported being more Active at secondary school and in early adulthood. Implementing strategies that enhance self-determined motivation might result in more students' adopting an Active Lifestyle.
L H V Van Der Woude - One of the best experts on this subject based on the ideXlab platform.
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Active Lifestyle rehabilitation interventions in aging spinal cord injury allrisc a multicentre research program
Disability and Rehabilitation, 2013Co-Authors: L H V Van Der Woude, S De Groot, Klaas Postema, Johannes B J Bussmann, Thomas W J Janssen, Marcel W. M. PostAbstract:BACKGROUND: With today's specialized medical care, life expectancy of persons with a spinal cord injury (SCI) has considerably improved. With increasing age and time since injury, many individuals with SCI, however, show a serious inActive Lifestyle, associated with deconditioning and secondary health conditions (SHCs) (e.g. pressure sores, urinary and respiratory tract infections, osteoporosis, upper-extremity pain, obesity, diabetes, cardiovascular disease) and resulting in reduced participation and quality of life (QoL). Avoiding this downward spiral, is crucial. OBJECTIVES: To understand possible deconditioning and SHCs in persons aging with a SCI in the context of Active Lifestyle, fitness, participation and QoL and to examine interventions that enhance Active Lifestyle, fitness, participation and QoL and help prevent some of the SHCs. METHODS: A multicentre multidisciplinary research program (Active Lifestyle Rehabilitation Interventions in aging Spinal Cord injury, ALLRISC) in the setting of the long-standing Dutch SCI-rehabilitation clinical research network. RESULTS: ALLRISC is a four-study research program addressing inActive Lifestyle, deconditioning, and SHCs and their associations in people aging with SCI. The program consists of a cross-sectional study (n = 300) and three randomized clinical trials. All studies share a focus on fitness, Active Lifestyle, SHCs and deconditioning and outcome measures on these and other (participation, QoL) domains. It is hypothesized that a self-management program, low-intensity wheelchair exercise and hybrid functional electrical stimulation-supported leg and handcycling are effective interventions to enhance Active life style and fitness, help to prevent some of the important SHCs in chronic SCI and improve participation and QoL. CONCLUSION: ALLRISC aims to provide evidence-based preventive components of a rehabilitation aftercare system that preserves functioning in aging persons with SCI.
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is manual wheelchair satisfaction related to Active Lifestyle and participation in people with a spinal cord injury
Spinal Cord, 2011Co-Authors: S De Groot, Marcel W. M. Post, Helma M H Bongersjanssen, J H Bloemenvrencken, L H V Van Der WoudeAbstract:STUDY DESIGN: Cross-sectional study. OBJECTIVES: To describe the satisfaction of the manual wheelchair user with hand rim wheelchair-related aspects (for example, dimensions, weight and comfort) and wheelchair service-related aspects and to determine the relationship between wheelchair users' satisfaction, personal and lesion characteristics, and Active Lifestyle and participation in persons with a spinal cord injury (SCI). SETTING: Eight Dutch rehabilitation centers with a specialized SCI unit. METHODS: The Dutch version of the Quebec user evaluation of satisfaction with assistive technology (D-QUEST) was filled out by 109 participants 1 year after discharge from inpatient SCI rehabilitation. Relationships between the D-QUEST scores and personal and lesion characteristics, and Active Lifestyle and participation (physical activity scale for individuals with physical disabilities (PASIPD), Utrecht activity list (UAL), mobility range and social behavior subscales of the SIP68 (SIPSOC)) were determined. RESULTS: A high level of satisfaction was found with wheelchair-related aspects. The participants were less satisfied with the service-related aspects. Participants with an incomplete lesion were slightly more satisfied regarding both aspects than those with a complete lesion. A higher satisfaction regarding wheelchair dimensions and a higher overall satisfaction were related to a more Active Lifestyle. Persons who were more satisfied with the simplicity of use of the wheelchair had a better participation score. CONCLUSION: Dutch persons with SCI are in general quite satisfied with their hand rim wheelchair. Some aspects of the wheelchair (dimensions and simplicity of use) are important to optimize as these are related to an Active Lifestyle and participation.
