The Experts below are selected from a list of 6918 Experts worldwide ranked by ideXlab platform
Samar M Aoun - One of the best experts on this subject based on the ideXlab platform.
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The Evolving Landscape: Funerals, Cemeteries, Memorialization, and Bereavement Support.
Omega, 2020Co-Authors: Bruce Rumbold, Jennifer Lowe, Samar M AounAbstract:The aim of this study was to provide a better understanding of current memorialization practices and their influence on grief due to Bereavement and to explore ways of improving Bereavement outcomes. The qualitative research design incorporated two phases, a scoping literature review, followed by in-depth interviews with eight service providers from the funeral, cemetery, and crematorium industries across Australia. The trend toward informal memorialization practices blurs the roles of community members and formal industry service providers. A public health approach to Bereavement Support that encompasses both groups is recommended as the most appropriate response to the evolving landscape. This approach focuses on building partnerships between industry service providers and other community organizations involved in end-of-life issues. We propose that reframing the role of formal industry service providers as educators and facilitators partnered within compassionate communities will Support improved outcomes for the bereaved.
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what sources of Bereavement Support are perceived helpful by bereaved people and why empirical evidence for the compassionate communities approach
Palliative Medicine, 2018Co-Authors: Samar M Aoun, Lauren J Breen, Bruce Rumbold, Ishta White, Allan KellehearAbstract:Aims:To determine who provides Bereavement Support in the community, what sources are perceived to be the most or least helpful and for what reason, and to identify the empirical elements for optim...
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Bereavement Support for family caregivers the gap between guidelines and practice in palliative care
PLOS ONE, 2017Co-Authors: Samar M Aoun, Bruce Rumbold, Denise Howting, Amanda Bolleter, Lauren J BreenAbstract:Background Standards for Bereavement care propose that Support should be matched to risk and need. However, studies in many countries demonstrate that palliative care services continue to adopt a generic approach in offering Support to bereaved families. Objective To identify patterns of Bereavement Support in palliative care services based upon the experience of bereaved people from a population based survey and in relation to clinical practice guidelines. Design An anonymous postal survey collected information from clients of six funeral providers in four Australian states (2014–15), 6 to 24 months after the death of their family member or friend, with 1,139 responding. Responses from 506 bereaved relatives of people who had terminal illnesses were analysed. Of these, 298 had used palliative care services and 208 had not. Results More people with cancer (64%) had received palliative care in comparison to other illnesses such as heart disease, dementia and organ failure (4–10%). The Support for family caregivers before and after their relative’s death was not considered optimal. Only 39.4% of the bereaved reported being specifically asked about their emotional/ psychological distress pre-Bereavement, and just half of the bereaved perceived they had enough Support from palliative care services. Half of the bereaved had a follow up contact from the service at 3–6 weeks, and a quarter had a follow-up at 6 months. Their qualitative feedback underlined the limited helpfulness of the blanket approach to Bereavement Support, which was often described as “not personal” or “generic”, or “just standard practice”. Conclusions Timeliness and consistency of relationship is crucial to building rapport and trust in the service’s ability to help at post-Bereavement as well as a focus on the specific rather than the generic needs of the bereaved. In light of these limitations, palliative care services might do better investing their efforts principally in assessing and Supporting family caregivers during the pre-Bereavement period and developing community capacity and referral pathways for Bereavement care. Our findings suggest that Bereavement Support in Australian palliative care services has only a tenuous relationship with guidelines and assessment tools, a conclusion also drawn in studies from other countries, emphasizing the international implications of our study.
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Building community capacity in Bereavement Support: lessons learnt from bereaved caregivers
The American journal of hospice & palliative care, 2016Co-Authors: Lauren J Breen, Samar M Aoun, Bruce Rumbold, Denise Howting, Beverley Mcnamara, Vincent ManciniAbstract:Background:Most bereaved people do not require specialist intervention, yet building community capacity in providing Bereavement Support is underdeveloped. While family caregivers indicate a need for more information about Bereavement, there is little evidence to guide what this information might contain.Objective:The study’s purpose was to inform Bereavement Support by determining the advice people bereaved through expected deaths in palliative care have for others in that situation.Design:Four funeral providers posted a questionnaire to previous clients who had used their services 6 to 24 months prior and 678 bereaved people responded.Setting/Participants:The sample size for this study comprised 265 bereaved people whose relative used palliative care services.Measurements:The questionnaire comprised 82 questions about caregiving, Bereavement Support, current Bereavement-related distress, and 2 open-ended questions concerning their Bereavement, one of them on advice they have to other people in the same ...
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Who Needs Bereavement Support? A Population Based Survey of Bereavement Risk and Support Need
PloS one, 2015Co-Authors: Samar M Aoun, Lauren J Breen, Bruce Rumbold, Denise Howting, Beverley Mcnamara, Desley HegneyAbstract:This study identifies and describes the profiles of Bereavement risk and Support needs of a community sample in Australia and tests the fit of the data with the three-tiered public health model for Bereavement Support. Family members who were bereaved 6–24 months prior to the survey and who were clients of four funeral providers participated (May-July 2013). A postal survey was used to collect information about bereaved people’s experience of caring and perceived satisfaction with any Bereavement Support provided. The questionnaire included a validated risk assessment screening measure for Prolonged Grief Disorder (PG-13). A total of 678 bereaved people responded. The model predicted that 60% of the sample would be low risk, 30% moderate risk, and 10% high risk. Actual figures were very close at 58.4%, 35.2% and 6.4% respectively. The analysis of the demographic characteristics, experience and impact of caring and Bereavement, and satisfaction with Support received from a variety of sources revealed differential experiences and needs that align with the expectation of low, moderate, and high Bereavement Support need, as articulated in the public health model. This is the first empirical test of the public health model of Bereavement Support. As there is a lack of clear evidence to guide development and allocation of Bereavement Support programs, the findings have the potential to inform the ability of services, community organizations and informal networks to prioritize care according to each level of Bereavement need. This is essential to achieve cost-effective and equitable resource allocation.
Bruce Rumbold - One of the best experts on this subject based on the ideXlab platform.
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The Evolving Landscape: Funerals, Cemeteries, Memorialization, and Bereavement Support.
Omega, 2020Co-Authors: Bruce Rumbold, Jennifer Lowe, Samar M AounAbstract:The aim of this study was to provide a better understanding of current memorialization practices and their influence on grief due to Bereavement and to explore ways of improving Bereavement outcomes. The qualitative research design incorporated two phases, a scoping literature review, followed by in-depth interviews with eight service providers from the funeral, cemetery, and crematorium industries across Australia. The trend toward informal memorialization practices blurs the roles of community members and formal industry service providers. A public health approach to Bereavement Support that encompasses both groups is recommended as the most appropriate response to the evolving landscape. This approach focuses on building partnerships between industry service providers and other community organizations involved in end-of-life issues. We propose that reframing the role of formal industry service providers as educators and facilitators partnered within compassionate communities will Support improved outcomes for the bereaved.
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what sources of Bereavement Support are perceived helpful by bereaved people and why empirical evidence for the compassionate communities approach
Palliative Medicine, 2018Co-Authors: Samar M Aoun, Lauren J Breen, Bruce Rumbold, Ishta White, Allan KellehearAbstract:Aims:To determine who provides Bereavement Support in the community, what sources are perceived to be the most or least helpful and for what reason, and to identify the empirical elements for optim...
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Bereavement Support for family caregivers the gap between guidelines and practice in palliative care
PLOS ONE, 2017Co-Authors: Samar M Aoun, Bruce Rumbold, Denise Howting, Amanda Bolleter, Lauren J BreenAbstract:Background Standards for Bereavement care propose that Support should be matched to risk and need. However, studies in many countries demonstrate that palliative care services continue to adopt a generic approach in offering Support to bereaved families. Objective To identify patterns of Bereavement Support in palliative care services based upon the experience of bereaved people from a population based survey and in relation to clinical practice guidelines. Design An anonymous postal survey collected information from clients of six funeral providers in four Australian states (2014–15), 6 to 24 months after the death of their family member or friend, with 1,139 responding. Responses from 506 bereaved relatives of people who had terminal illnesses were analysed. Of these, 298 had used palliative care services and 208 had not. Results More people with cancer (64%) had received palliative care in comparison to other illnesses such as heart disease, dementia and organ failure (4–10%). The Support for family caregivers before and after their relative’s death was not considered optimal. Only 39.4% of the bereaved reported being specifically asked about their emotional/ psychological distress pre-Bereavement, and just half of the bereaved perceived they had enough Support from palliative care services. Half of the bereaved had a follow up contact from the service at 3–6 weeks, and a quarter had a follow-up at 6 months. Their qualitative feedback underlined the limited helpfulness of the blanket approach to Bereavement Support, which was often described as “not personal” or “generic”, or “just standard practice”. Conclusions Timeliness and consistency of relationship is crucial to building rapport and trust in the service’s ability to help at post-Bereavement as well as a focus on the specific rather than the generic needs of the bereaved. In light of these limitations, palliative care services might do better investing their efforts principally in assessing and Supporting family caregivers during the pre-Bereavement period and developing community capacity and referral pathways for Bereavement care. Our findings suggest that Bereavement Support in Australian palliative care services has only a tenuous relationship with guidelines and assessment tools, a conclusion also drawn in studies from other countries, emphasizing the international implications of our study.
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Building community capacity in Bereavement Support: lessons learnt from bereaved caregivers
The American journal of hospice & palliative care, 2016Co-Authors: Lauren J Breen, Samar M Aoun, Bruce Rumbold, Denise Howting, Beverley Mcnamara, Vincent ManciniAbstract:Background:Most bereaved people do not require specialist intervention, yet building community capacity in providing Bereavement Support is underdeveloped. While family caregivers indicate a need for more information about Bereavement, there is little evidence to guide what this information might contain.Objective:The study’s purpose was to inform Bereavement Support by determining the advice people bereaved through expected deaths in palliative care have for others in that situation.Design:Four funeral providers posted a questionnaire to previous clients who had used their services 6 to 24 months prior and 678 bereaved people responded.Setting/Participants:The sample size for this study comprised 265 bereaved people whose relative used palliative care services.Measurements:The questionnaire comprised 82 questions about caregiving, Bereavement Support, current Bereavement-related distress, and 2 open-ended questions concerning their Bereavement, one of them on advice they have to other people in the same ...
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Who Needs Bereavement Support? A Population Based Survey of Bereavement Risk and Support Need
PloS one, 2015Co-Authors: Samar M Aoun, Lauren J Breen, Bruce Rumbold, Denise Howting, Beverley Mcnamara, Desley HegneyAbstract:This study identifies and describes the profiles of Bereavement risk and Support needs of a community sample in Australia and tests the fit of the data with the three-tiered public health model for Bereavement Support. Family members who were bereaved 6–24 months prior to the survey and who were clients of four funeral providers participated (May-July 2013). A postal survey was used to collect information about bereaved people’s experience of caring and perceived satisfaction with any Bereavement Support provided. The questionnaire included a validated risk assessment screening measure for Prolonged Grief Disorder (PG-13). A total of 678 bereaved people responded. The model predicted that 60% of the sample would be low risk, 30% moderate risk, and 10% high risk. Actual figures were very close at 58.4%, 35.2% and 6.4% respectively. The analysis of the demographic characteristics, experience and impact of caring and Bereavement, and satisfaction with Support received from a variety of sources revealed differential experiences and needs that align with the expectation of low, moderate, and high Bereavement Support need, as articulated in the public health model. This is the first empirical test of the public health model of Bereavement Support. As there is a lack of clear evidence to guide development and allocation of Bereavement Support programs, the findings have the potential to inform the ability of services, community organizations and informal networks to prioritize care according to each level of Bereavement need. This is essential to achieve cost-effective and equitable resource allocation.
Lauren J Breen - One of the best experts on this subject based on the ideXlab platform.
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what sources of Bereavement Support are perceived helpful by bereaved people and why empirical evidence for the compassionate communities approach
Palliative Medicine, 2018Co-Authors: Samar M Aoun, Lauren J Breen, Bruce Rumbold, Ishta White, Allan KellehearAbstract:Aims:To determine who provides Bereavement Support in the community, what sources are perceived to be the most or least helpful and for what reason, and to identify the empirical elements for optim...
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Bereavement Support for family caregivers the gap between guidelines and practice in palliative care
PLOS ONE, 2017Co-Authors: Samar M Aoun, Bruce Rumbold, Denise Howting, Amanda Bolleter, Lauren J BreenAbstract:Background Standards for Bereavement care propose that Support should be matched to risk and need. However, studies in many countries demonstrate that palliative care services continue to adopt a generic approach in offering Support to bereaved families. Objective To identify patterns of Bereavement Support in palliative care services based upon the experience of bereaved people from a population based survey and in relation to clinical practice guidelines. Design An anonymous postal survey collected information from clients of six funeral providers in four Australian states (2014–15), 6 to 24 months after the death of their family member or friend, with 1,139 responding. Responses from 506 bereaved relatives of people who had terminal illnesses were analysed. Of these, 298 had used palliative care services and 208 had not. Results More people with cancer (64%) had received palliative care in comparison to other illnesses such as heart disease, dementia and organ failure (4–10%). The Support for family caregivers before and after their relative’s death was not considered optimal. Only 39.4% of the bereaved reported being specifically asked about their emotional/ psychological distress pre-Bereavement, and just half of the bereaved perceived they had enough Support from palliative care services. Half of the bereaved had a follow up contact from the service at 3–6 weeks, and a quarter had a follow-up at 6 months. Their qualitative feedback underlined the limited helpfulness of the blanket approach to Bereavement Support, which was often described as “not personal” or “generic”, or “just standard practice”. Conclusions Timeliness and consistency of relationship is crucial to building rapport and trust in the service’s ability to help at post-Bereavement as well as a focus on the specific rather than the generic needs of the bereaved. In light of these limitations, palliative care services might do better investing their efforts principally in assessing and Supporting family caregivers during the pre-Bereavement period and developing community capacity and referral pathways for Bereavement care. Our findings suggest that Bereavement Support in Australian palliative care services has only a tenuous relationship with guidelines and assessment tools, a conclusion also drawn in studies from other countries, emphasizing the international implications of our study.
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Building community capacity in Bereavement Support: lessons learnt from bereaved caregivers
The American journal of hospice & palliative care, 2016Co-Authors: Lauren J Breen, Samar M Aoun, Bruce Rumbold, Denise Howting, Beverley Mcnamara, Vincent ManciniAbstract:Background:Most bereaved people do not require specialist intervention, yet building community capacity in providing Bereavement Support is underdeveloped. While family caregivers indicate a need for more information about Bereavement, there is little evidence to guide what this information might contain.Objective:The study’s purpose was to inform Bereavement Support by determining the advice people bereaved through expected deaths in palliative care have for others in that situation.Design:Four funeral providers posted a questionnaire to previous clients who had used their services 6 to 24 months prior and 678 bereaved people responded.Setting/Participants:The sample size for this study comprised 265 bereaved people whose relative used palliative care services.Measurements:The questionnaire comprised 82 questions about caregiving, Bereavement Support, current Bereavement-related distress, and 2 open-ended questions concerning their Bereavement, one of them on advice they have to other people in the same ...
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Who Needs Bereavement Support? A Population Based Survey of Bereavement Risk and Support Need
PloS one, 2015Co-Authors: Samar M Aoun, Lauren J Breen, Bruce Rumbold, Denise Howting, Beverley Mcnamara, Desley HegneyAbstract:This study identifies and describes the profiles of Bereavement risk and Support needs of a community sample in Australia and tests the fit of the data with the three-tiered public health model for Bereavement Support. Family members who were bereaved 6–24 months prior to the survey and who were clients of four funeral providers participated (May-July 2013). A postal survey was used to collect information about bereaved people’s experience of caring and perceived satisfaction with any Bereavement Support provided. The questionnaire included a validated risk assessment screening measure for Prolonged Grief Disorder (PG-13). A total of 678 bereaved people responded. The model predicted that 60% of the sample would be low risk, 30% moderate risk, and 10% high risk. Actual figures were very close at 58.4%, 35.2% and 6.4% respectively. The analysis of the demographic characteristics, experience and impact of caring and Bereavement, and satisfaction with Support received from a variety of sources revealed differential experiences and needs that align with the expectation of low, moderate, and high Bereavement Support need, as articulated in the public health model. This is the first empirical test of the public health model of Bereavement Support. As there is a lack of clear evidence to guide development and allocation of Bereavement Support programs, the findings have the potential to inform the ability of services, community organizations and informal networks to prioritize care according to each level of Bereavement need. This is essential to achieve cost-effective and equitable resource allocation.
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Reported experiences of Bereavement Support in Western Australia: a pilot study
Australian and New Zealand journal of public health, 2014Co-Authors: Samar M Aoun, Lauren J Breen, Bruce Rumbold, Denise HowtingAbstract:Objective: This article describes the pilot testing of a community survey to ascertain the experiences and needs of people who were bereaved 6–24 months before the survey. The pilot study aimed to assess the feasibility and acceptability of the survey and test the theoretical public health model for Bereavement Support. Methods: A postal survey was used to collect information from clients of three funeral providers in Western Australia in 2012. Results: The findings confirmed the feasibility and acceptability of the survey questions. The analysis of the demographic characteristics, experience of Bereavement and satisfaction with Support revealed differential needs that align with the expectation of low, moderate and high risk, as articulated in the public health model. Conclusions: The data provided tentative empirical Support for the public health model of Bereavement Support. This is the first empirical test of this model nationally and internationally. Implications: Considering the lack of evidence to guide development and allocation of Bereavement programs in Australia, a larger survey will enable us to determine how the Support needs of each of the three groups of bereaved people should be serviced. This is important for cost-effective and equitable resource allocation.
Jane Groom - One of the best experts on this subject based on the ideXlab platform.
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OA13 Developing sustainable community partnerships to provide ongoing Bereavement Support
BMJ Supportive & Palliative Care, 2015Co-Authors: Jane GroomAbstract:Background This project was developed within an urban home-based palliative care service. It commenced in response to the recognition that acutely grieving people needed long term, broad-based community Support, and the need for death education in the community. Aim It was hoped that Bereavement Support groups could be relocated from a clinical environment to the community, so that bereaved people could access Support in their neighbourhoods, develop Supportive local connexions and be introduced to a variety of resources. This would result in developing community partnerships, provide death education, assist in normalising death, dying and grief and in redressing the ‘death taboo’ in society. Method Once the concept was approved by the community palliative care service, local community centres were identified, connexions made and discussions held regarding building partnerships to provide Bereavement Support. Two community centres responded enthusiastically and partnerships have slowly developed. Results After 2 years, feedback from bereaved carers has consistently endorsed the move to community centres. Staff at one centre have now offered administrative Support, requested ‘open’ grief Support groups and grief education sessions. Staff from the other centre have requested a joint memorial service and training in loss and grief for staff. Conclusion Developing sustainable community partnerships takes time and has required Significant evolutional learning. In particular, it must not become dependent on the specific personnel driving the project and there is a need to develop further protocols and ‘embed’ the practice. This is an organic process which will continue to grow in response to further development of the partnership.
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OA13 Developing sustainable community partnerships to provide ongoing Bereavement Support.
BMJ supportive & palliative care, 2015Co-Authors: Jane GroomAbstract:This project was developed within an urban home-based palliative care service. It commenced in response to the recognition that acutely grieving people needed long term, broad-based community Support, and the need for death education in the community. It was hoped that Bereavement Support groups could be relocated from a clinical environment to the community, so that bereaved people could access Support in their neighbourhoods, develop Supportive local connexions and be introduced to a variety of resources. This would result in developing community partnerships, provide death education, assist in normalising death, dying and grief and in redressing the 'death taboo' in society. Once the concept was approved by the community palliative care service, local community centres were identified, connexions made and discussions held regarding building partnerships to provide Bereavement Support. Two community centres responded enthusiastically and partnerships have slowly developed. After 2 years, feedback from bereaved carers has consistently endorsed the move to community centres. Staff at one centre have now offered administrative Support, requested 'open' grief Support groups and grief education sessions. Staff from the other centre have requested a joint memorial service and training in loss and grief for staff. Developing sustainable community partnerships takes time and has required Significant evolutional learning. In particular, it must not become dependent on the specific personnel driving the project and there is a need to develop further protocols and 'embed' the practice. This is an organic process which will continue to grow in response to further development of the partnership. © 2015, Published by the BMJ Publishing Group Limited. For permission to use (where not already granted under a licence) please go to http://group.bmj.com/group/rights-licensing/permissions.
Melody J. Cunningham - One of the best experts on this subject based on the ideXlab platform.
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Experiences of patients in the presence of the Bereavement Support after a perinatal loss
Pediatrics, 2019Co-Authors: Madhu Bagaria, Amy L. Weaver, Kristina Grunzke, Emily Shields, Yvonne S. Butler Tobah, Melody J. CunninghamAbstract:Background: Perinatal loss, either as miscarriage or stillbirth, is arguably one of the most devastating complications of pregnancy. Whether occurring early or late in pregnancy, it can have substantial psychological impact on the expectant parents and their families. It is important to address the psychological consequences of grieving parents as it Supports them to take care of their present and subsequent children. At our institution, ongoing Bereavement Support is commonly offered. However, its role in assisting patients cope with their loss has not been extensively studied. This is a descriptive …