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Kerstin Tham - One of the best experts on this subject based on the ideXlab platform.

  • combined life satisfaction of persons with stroke and their Caregivers associations with Caregiver Burden and the impact of stroke
    Health and Quality of Life Outcomes, 2011
    Co-Authors: Aileen Bergstrom, Gunilla Eriksson, Lena Von Koch, Kerstin Tham
    Abstract:

    Little is known about the life satisfaction of the person with stroke combined with their Caregiver, i.e. the dyad, despite the fact that life satisfaction is an important rehabilitation outcome. The aim of this study was to describe the dyads combined life satisfaction and to understand this in relationship to the perceived impact of stroke in everyday life and Caregiver Burden. In this cross-sectional study, the life satisfaction of persons and their informal Caregivers was measured in 81 dyads one year post stroke. Their global life satisfaction, measured with LiSat-11, was combined to a dyad score and the dyads were then categorized as satisfied, dissatisfied or discordant. The groups were compared and analyzed regarding levels of Caregiver Burden, measured with the Caregiver Burden scale, and the perceived impact of stroke in everyday life, measured with the Stroke Impact Scale (SIS). The satisfied dyads comprised 40%, dissatisfied 26% and those that were discordant 34%. The satisfied dyads reported a significantly lower impact of the stroke in everyday life compared with the dyads that were not satisfied. As expected, dyads that were not satisfied reported a significantly greater Caregiver Burden compared with the satisfied dyads. The discordant group was further broken down into a group of dissatisfied and satisfied Caregivers. The Caregivers that were not satisfied in the discordant group perceived a significantly greater level of Caregiver Burden compared with the satisfied group. Even Caregivers who were satisfied with life but whose care recipients were not satisfied reported Caregiver Burden. Measuring combined life satisfaction provides a unique focus and appears to be a feasible way of attaining the dyads' perspective. The findings suggest that those dyads with a discordant life satisfaction could be vulnerable because of the Caregivers' reported Caregiver Burden. These findings support the importance of a dyadic perspective and add to the understanding of the reciprocal influences between the Caregiver and recipient. This knowledge has clinical implications and contributes to the identification of possible vulnerable dyads in need of tailored support.

  • combined life satisfaction of persons with stroke and their Caregivers associations with Caregiver Burden and the impact of stroke
    Health and Quality of Life Outcomes, 2011
    Co-Authors: Aileen Bergstrom, Gunilla Eriksson, Lena Von Koch, Kerstin Tham
    Abstract:

    Background Little is known about the life satisfaction of the person with stroke combined with their Caregiver, i.e. the dyad, despite the fact that life satisfaction is an important rehabilitation outcome. The aim of this study was to describe the dyads combined life satisfaction and to understand this in relationship to the perceived impact of stroke in everyday life and Caregiver Burden.

Cesar Gonzalezgonzalez - One of the best experts on this subject based on the ideXlab platform.

  • original a rticle e pidemiology clinical p ractice a nd h ealth Caregiver Burden of mexican dementia patients the role of dysexecutive syndrome sleep disorders schooling and Caregiver depression
    2014
    Co-Authors: Oscar Rosascarrasco, Maria De Guadalupe Guerrasilla, Laura Del Pilar Torresarreola, Carmen Garciapena, Cristopher Isaac Escamillajimenez, Cesar Gonzalezgonzalez
    Abstract:

    Results: The results showed that patient variables have a greater impact on Caregiver Burden than Caregiverassociated variables. Dysexecutive syndrome, sleep disorders, schooling and Caregiver depression are associated with a higher level of Caregiver Burden. Conclusions: Caregiver Burden is a complex phenomenon. The results of the present study showed the need to implement multifactorial interventions targeting the Caregiver to reduce the Burden, strengthen the skills for patient management to avoid depression, improve patient health, and diminish functional dependence and future hospitalization. Geriatr Gerontol Int 2014; 14: 146–152.

  • Caregiver Burden of mexican dementia patients the role of dysexecutive syndrome sleep disorders schooling and Caregiver depression
    Geriatrics & Gerontology International, 2014
    Co-Authors: Oscar Rosascarrasco, Maria De Guadalupe Guerrasilla, Laura Del Pilar Torresarreola, Carmen Garciapena, Cristopher Isaac Escamillajimenez, Cesar Gonzalezgonzalez
    Abstract:

    Aims As a result of the accelerated growth of the elderly population, reconfiguration of families and member roles, and the increase of mental disorders, it is necessary to investigate the effects of this set of factors on the Caregivers of patients with dementia in Mexico. Mental disorders of individuals have a negative impact on their physical and emotional quality of life, leading to greater dependence and making the caring experience a heavy Burden. Several studies (none in Mexico) have used either the characteristics of the patient or Caregiver to determine the Burden, but few studies have included both profiles within a single study. The objective of the present study was to analyze the characteristics of the patients and Caregivers associated with Caregiver Burden. Methods A multicenter study was carried out in six health institutions located in Mexico City, including 175 patients (and their Caregivers) diagnosed with different types of dementia. We used the Spanish Caregiver Burden Screen. Descriptive analysis and logistic regressions were used to estimate the effect of the covariates on the Caregiver Burden. Results The results showed that patient variables have a greater impact on Caregiver Burden than Caregiver-associated variables. Dysexecutive syndrome, sleep disorders, schooling and Caregiver depression are associated with a higher level of Caregiver Burden. Conclusions Caregiver Burden is a complex phenomenon. The results of the present study showed the need to implement multifactorial interventions targeting the Caregiver to reduce the Burden, strengthen the skills for patient management to avoid depression, improve patient health, and diminish functional dependence and future hospitalization. Geriatr Gerontol Int 2014; 14: 146–152.

John R Hodges - One of the best experts on this subject based on the ideXlab platform.

  • the impact of dementia severity on Caregiver Burden in frontotemporal dementia and alzheimer disease
    Alzheimer Disease & Associated Disorders, 2013
    Co-Authors: Eneida Mioshi, John R Hodges, David Foxe, Felicity Leslie, Sharon Savage, Sharpley Hsieh, Laurie A Miller, Olivier Piguet
    Abstract:

    Caregiver Burden is greater in frontotemporal dementia (FTD) than in Alzheimer disease (AD). However, little is known of the impact of the 3 main clinical variants of FTD- behavioral-variant frontotemporal dementia (bvFTD), semantic dementia (SemDem), and progressive nonfluent aphasia (PNFA)-or the role of disease severity in Caregiver Burden. The Zarit Burden Inventory was used to measure Caregiver Burden of bvFTD (n=17), SemDem (n=20), PNFA (n=20), and AD (n=19) patients. Symptom duration, Caregiver age, and relationship type were matched across groups. Moreover, a number of Caregiver (mood, social network) and patient variables (functional disability, behavioral changes, relationship with Caregiver, and dementia stage) were addressed to investigate their impact on Caregiver Burden. Caregivers of bvFTD patients reported the highest Burden, whereas SemDem and PNFA Caregivers reported Burden similar to AD. A regression analysis revealed that Caregiver Burden in FTD, regardless of subtype, was explained by a model combining disease staging, relationship changes, and Caregiver depression. Burden increased with disease severity in FTD. This study is the first to show that Caregivers of SemDem, PNFA, and AD patients show similar Burden, while confirming that bvFTD Caregivers show higher Burden than AD Caregivers. More importantly, this study demonstrates that Burden worsens with disease progression in FTD.

  • Caregiver Burden in amyotrophic lateral sclerosis is more dependent on patients behavioral changes than physical disability a comparative study
    BMC Neurology, 2012
    Co-Authors: Patricia Lillo, Eneida Mioshi, John R Hodges
    Abstract:

    Background Behavioral changes in patients with amyotrophic lateral sclerosis (ALS) mirror those found in frontotemporal dementia (FTD). Considering the high rate of neuropsychiatric symptoms found in ALS patients, this paper examines whether Caregiver Burden is associated with behavioral changes over and above the physical disability of patients with ALS, and if the presence of Caregivers’ depression, anxiety and stress also impacts on Caregiver Burden.

Patricia Lillo - One of the best experts on this subject based on the ideXlab platform.

Oscar Rosascarrasco - One of the best experts on this subject based on the ideXlab platform.

  • original a rticle e pidemiology clinical p ractice a nd h ealth Caregiver Burden of mexican dementia patients the role of dysexecutive syndrome sleep disorders schooling and Caregiver depression
    2014
    Co-Authors: Oscar Rosascarrasco, Maria De Guadalupe Guerrasilla, Laura Del Pilar Torresarreola, Carmen Garciapena, Cristopher Isaac Escamillajimenez, Cesar Gonzalezgonzalez
    Abstract:

    Results: The results showed that patient variables have a greater impact on Caregiver Burden than Caregiverassociated variables. Dysexecutive syndrome, sleep disorders, schooling and Caregiver depression are associated with a higher level of Caregiver Burden. Conclusions: Caregiver Burden is a complex phenomenon. The results of the present study showed the need to implement multifactorial interventions targeting the Caregiver to reduce the Burden, strengthen the skills for patient management to avoid depression, improve patient health, and diminish functional dependence and future hospitalization. Geriatr Gerontol Int 2014; 14: 146–152.

  • Caregiver Burden of mexican dementia patients the role of dysexecutive syndrome sleep disorders schooling and Caregiver depression
    Geriatrics & Gerontology International, 2014
    Co-Authors: Oscar Rosascarrasco, Maria De Guadalupe Guerrasilla, Laura Del Pilar Torresarreola, Carmen Garciapena, Cristopher Isaac Escamillajimenez, Cesar Gonzalezgonzalez
    Abstract:

    Aims As a result of the accelerated growth of the elderly population, reconfiguration of families and member roles, and the increase of mental disorders, it is necessary to investigate the effects of this set of factors on the Caregivers of patients with dementia in Mexico. Mental disorders of individuals have a negative impact on their physical and emotional quality of life, leading to greater dependence and making the caring experience a heavy Burden. Several studies (none in Mexico) have used either the characteristics of the patient or Caregiver to determine the Burden, but few studies have included both profiles within a single study. The objective of the present study was to analyze the characteristics of the patients and Caregivers associated with Caregiver Burden. Methods A multicenter study was carried out in six health institutions located in Mexico City, including 175 patients (and their Caregivers) diagnosed with different types of dementia. We used the Spanish Caregiver Burden Screen. Descriptive analysis and logistic regressions were used to estimate the effect of the covariates on the Caregiver Burden. Results The results showed that patient variables have a greater impact on Caregiver Burden than Caregiver-associated variables. Dysexecutive syndrome, sleep disorders, schooling and Caregiver depression are associated with a higher level of Caregiver Burden. Conclusions Caregiver Burden is a complex phenomenon. The results of the present study showed the need to implement multifactorial interventions targeting the Caregiver to reduce the Burden, strengthen the skills for patient management to avoid depression, improve patient health, and diminish functional dependence and future hospitalization. Geriatr Gerontol Int 2014; 14: 146–152.