The Experts below are selected from a list of 360 Experts worldwide ranked by ideXlab platform
David Clark - One of the best experts on this subject based on the ideXlab platform.
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Cicely saunders a life and legacy
2018Co-Authors: David ClarkAbstract:Born at the end of World War One into a prosperous London family, Cicely Saunders struggled at school before gaining entry to Oxford University to read Politics, Philosophy and Economics. As World War Two gained momentum, she quit academic study to train as a nurse, thereby igniting her lifelong interest in caring for others. Following a back injury, she became a medical social worker, and then in her late 30s, qualified as a physician. By now her focus was on a hugely neglected area of modern health services: the care of the dying. When she opened the world's first modern hospice in 1967 a quiet revolution got underway. Education, research, and clinical practice were combined in a model of 'total care' for terminally ill patients and their families that quickly had a massive impact. In Cicely Saunders: A Life and Legacy, David Clark draws on interviews, correspondence, and the publications of Cicely Saunders to tell the remarkable story of how she pursued her goals through the complexity of her personal life, the skepticism of others, and the pervasive influence of her religious faith. When she died in 2005, her legacy was firmly established in the growing field of hospice and palliative care, which had now gained global recognition.
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Cicely saunders founder of the hospice movement selected letters 1959 1999
2002Co-Authors: David ClarkAbstract:Acknowledgements Introduction 1. Realising a vision (1959 - 1967) 2. The expansive years (1968 - 1985) 3. An exacting joy (1986 - 1999) Index
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total pain the work of Cicely saunders and the hospice movement
2000Co-Authors: David ClarkAbstract:There can be little doubt that when Cicely Saunders first used the term “total pain” in the early 1960s, she was in the process of bequeathing to medicine and health care a concept of enduring clinical and conceptual interest. In recent years we have gained a clear picture of the early evolution of the notion of total pain (Clark, 1999). Certainly, it emerged from Cicely Saunders’ unique experience as nurse, social worker, and physician—the remarkable multidisciplinary platform from which she launched the hospice movement. It also reflected her willingness to acknowledge the spiritual suffering of the patient and to see this in relation to physical problems. Crucially, total pain was tied to a sense of narrative and biography, emphasizing the importance of listening to the patient’s story and of understanding the experience of suffering in a multifaceted way. This was an approach that saw pain as a key to unlocking other problems and as something requiring multiple interventions for its resolution. Thus was formulated the idea of total pain as incorporating physical, psychological, social, emotional, and spiritual elements (Saunders, 1964).
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total pain disciplinary power and the body in the work of Cicely saunders 1958 1967
Social Science & Medicine, 1999Co-Authors: David ClarkAbstract:Pain first emerged as an area of clinical specialisation in the 1950s, but more recently has attracted wider interest from social scientists and clinicians who seek to expand its understanding to incorporate ideas about meaning, embodiment and culture. So far there have been few empirical studies which focus on how ideas and practices about pain are changing in modern healthcare. This paper addresses these issues through a specific case study of the early writings of Cicely Saunders in the period 1958–1967. A professional training in the three disciplines of nursing, social work and medicine, coupled with a strong personal religious faith, provided the biographical context for the development of Cicely Saunders' concern with pain. Through these influences we find in her work with dying patients an emphasis on pain as a key which unlocks other problems and as something which requires multiple interventions for its resolution. From here the concept of `total pain' is formulated, to include physical, psychological, social, emotional and spiritual elements. This concept, which proved so important to the development of hospice clinical practice, is shown to have paradoxical and conflicting implications. Adopting current ideas about the social theory of the body, `total pain' may be formulated either as a nomenclature of inscription, or as a nomenclature of facilitation. It is suggested that both of these may be at work in the discourse of `total pain' and that an appreciation of each enhances our understanding of the concept.
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an annotated bibliography of the publications of Cicely saunders 1 1958 67
Palliative Medicine, 1998Co-Authors: David ClarkAbstract:Surprisingly, there is no full bibliography of the work of the acknowledged founder of the modern hospice movement, who celebrates her eightieth birthday this year. This, therefore, is the first paper in a series which will have two purposes. Firstly, it is an attempt to assemble a complete bibliography of the published writings of Dame Cicely Saunders, from 1958 to the present day; it will be published in four parts, each covering a period of 10 years. Secondly, the bibliography has been annotated with a view to providing an introduction to some of the key points contained in these works. It is intended to serve as a guide to students, practitioners and scholars interested in better understanding the work of Cicely Saunders. The bibliography is not, of course, to be viewed as a substitute for reading the original works. Indeed it is hoped that it will serve to make these more accessible to interested readers who wish to pursue the material in greater depth. It is anticipated that the bibliography will further inform the recognition of Cicely Saunders’ remarkable and multi-faceted contribution to the work of hospice and palliative care, stimulating further commentary and discussion.
Lisbeth Thoresen - One of the best experts on this subject based on the ideXlab platform.
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a reflection on Cicely saunders views on a good death through the philosophy of charles taylor
International Journal of Palliative Nursing, 2003Co-Authors: Lisbeth ThoresenAbstract:In her writings, Cicely Saunders has developed a total framework of caring for seriously ill people. Saunders’ reaction to what she has experienced as bad contemporary post-war health care is to be found in her hospice philosophy. In this article this philosophy is analysed through the writings of Charles Taylor. Taylor is a Canadian philosopher who has delivered important views on what it means to live a ‘good’ and ‘authentic’ life in a modern society. By focusing on Saunders’ writings from Taylor’s perspective it becomes apparent that Saunders has created a very modern theory. The author has found that different aspects of a good and authentic life are important values in Saunders’ good and authentic death. These findings are followed by one question: is Saunders’ hospice philosophy too focused on values like individuality, control and autonomy, giving too little attention to fragility and dependency?
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a reflection on Cicely saunders views on a good death through the philosophy of charles taylor
International Journal of Palliative Nursing, 2003Co-Authors: Lisbeth ThoresenAbstract:In her writings, Cicely Saunders has developed a total framework of caring for seriously ill people. Saunders' reaction to what she has experienced as bad contemporary post-war health care is to be found in her hospice philosophy. In this article this philosophy is analysed through the writings of Charles Taylor. Taylor is a Canadian philosopher who has delivered important views on what it means to live a 'good' and 'authentic' life in a modern society. By focusing on Saunders' writings from Taylor's perspective it becomes apparent that Saunders has created a very modern theory. The author has found that different aspects of a good and authentic life are important values in Saunders' good and authentic death. These findings are followed by one question: is Saunders' hospice philosophy too focused on values such as individuality, control and autonomy, giving too little attention to fragility and dependency?
Peter Whan - One of the best experts on this subject based on the ideXlab platform.
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palliative care knowledge system a case study of Cicely saunders pioneering role
2007Co-Authors: Peter WhanAbstract:IntroductionDame Cicely Saunders (1918-2005) is widely acknowledged as "founder of the modemhospice movement". However, her pioneering work in direct care often overshadowsher role as pioneer of the related palliative care knowledge system. The researchreported here investigates and highlights that role, by undertaking an extended "casestudy" of her knowledge work.Methods and conceptual frameworkAfter introducing Cicely Saunders and the field of care which she founded, this researchoutlines the nature of knowledge system studies, and their place within hospice andpalliative care research; and introduces the concepts literature-based studies andliterature-oriented studies.It then goes on to utilise multiple biblio-analytic methodologies (bibliographic,bibliometric, citation, citation-context, citation-context-content-analytic), and draws onelectronic and print bibliographic resources together with material such as biographies,interviews and correspondence.General findingsThe thesis provides a descriptive citation and non-citation-based bibliometric overviewof the journal literature of palliative care, which:• demonstrates how this has grown to encompass many contributors from manydisciplinary, organisational, geographical, cultural and linguistic backgrounds• identifies the most prolific producers of knowledge: authors, journals,publishers, organisations and countries, and their associations• explores patterns of authorship, especially in terms of number, order and rank• identifies the most-frequently cited authors and individual items• identifies technical issues which need to be considered in undertakingbibliometric, citation-based studies in this area. It also collates the most comprehensive list to date ofknowledge products for whichCicely Saunders had sole or significant responsibility, and undertakes a bibliometricanalysis of these items to show how she contributed to the development of knowledgeand a knowledge system, which in turn supported and developed the kind of care whichshe pioneered.It reveals the impact and influence of a representative portion ofCicely Saunders'knowledge work by analysing in turn: identifiable citations to the first three editions ofher textbook "The management of terminal disease"; the contexts of those citations, andthe contents of those contexts.Finally, it shows how the thematic structure of Cicely Saunders' work is coherent withthat of the rest ofthe palliative care literature, while retaining distinctive emphases suchas "total pain".Cicely Saunders' role: significant themesCicely Saunders blended three personae in her knowledge pioneering role: pathfinder,consolidator and (in her own words) "elder statesman". These correspond broadly to theearly (1958-1967), middle (1968-1987) and later (1988-2005) phases of her career,without sharp division or complete dominance of anyone persona, and are exemplifiedby findings such as the following:• Her output has three identifiable "waves" ofproduction, corresponding to theabove periods.• From the 1960s to 90s she was often published in the earliest issues of new(generalist and specialist) journals.• She contributed widely to the growing hospice and palliative care knowledgesystem, helping to create and contributing to conferences, textbooks andjournals. This included (co)editing three editions of the first major textbook inher field.• Later in her career, she was invited to contribute many forewords and prefaces toa wide spectrum of books in her field, including major textbooks.Cicely Saunders' role: bibliometric summaryA total of 341 works by her are identified, 133 of which have not been reported inprevious bibliographies. While 313 have been formally published, 28 remain intypescript or other unpublished formats. Although 322 have been published or presentedin English and 226 in the UK, the rest have been translated into eight other languagesand published in 18 other countries. The bibliography contains 108 journal articles, 58book chapters, 37 prefaces, 27 conference contributions, 21 letters to journals, 18 booksor booklets (co)written by her, 13 books or booklets (co) edited by her, seven bookreviews, seven editorial comments in books, and four journal editorials. She waspublished in 98 different periodicals, 60 ofthem leading journals, and served on theboards of three of these.Bibliographic databases reveal that the first and subsequent editions of the book sheedited, "The management of terminal disease" were her most-cited works. The mostfrequently-cited concepts contributed by her included total pain, total care, opioidanalgesia, holistic goals of care, history and philosophy of hospice and palliative care,cure vs. care, communication and opposition to euthanasia.ConclusionThose who continue the kind of care which Cicely Saunders inaugurated need to engagein the creation, dissemination, discovery, evaluation and use of knowledge relevant tothat care. As they do so, they continue to benefit from her efforts in pioneering thesystem within which they carry out such knowledge work.This research provides the first explicit comprehensive analysis of the nature, breadthand depth of Cicely Saunders' role as knowledge pioneer. It will hopefully stimulateparallel investigations into similar pioneering work by others, and ongoingbibliographic and bibliometric investigation of the knowledge system of palliative care.
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pioneer of more than care a bibliometric tribute to the role of dame Cicely saunders 1918 2005 in the formation of knowledge systems and structures for palliative care
4th Research Forum of the European Association for Palliative Care: "Collaborate to Catalyse Research", 2006Co-Authors: Peter WhanAbstract:AimCicely Saunders is acknowledged as ‘‘founder of the modern hospice movement’’. However, her pioneering work in direct care often obscures her role as pioneer of related knowledge systems and structures. This research aimed to investigate and highlight that role.ConclusionThose who carry on the kind of care which Cicely Saunders inaugurated continue to benefit from her efforts in pioneering the structures and systems associated with the knowledge they create, discover, disseminate or use in the course of their work.© 2006 Edward Arnold (Publishers) Ltd
Richard Carter - One of the best experts on this subject based on the ideXlab platform.
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Cicely saunders founder of the hospice movement selected letters 1959 1999
Journal of the Royal Society of Medicine, 2003Co-Authors: Richard CarterAbstract:‘The main duty of one who edits another's letters,’ writes Professor David Clark, ‘is to intrude as little as possible upon what they have to tell us.’ In editing the letters of Dame Cicely Saunders he sets out his conditions of working with such clarity that it is appropriate to begin a review by considering his own contribution.
David Carey - One of the best experts on this subject based on the ideXlab platform.
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vocal traditions Cicely berry and the central school tradition
Voice and Speech Review, 2020Co-Authors: David CareyAbstract:Vocal Traditions is a series in the Voice and Speech Review that highlights historically important voice teachers and schools of thought in the world of vocal pedagogy. This article explores the hi...
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remembering Cicely berry
Voice and Speech Review, 2019Co-Authors: David CareyAbstract:Cicely Berry was perhaps the most influential voice teacher of the last 50 years. From her ground-breaking books on voice and text to her radical work with theatre companies, schools, and communiti...