The Experts below are selected from a list of 19629 Experts worldwide ranked by ideXlab platform

Paul Dieppe - One of the best experts on this subject based on the ideXlab platform.

  • Consumer Involvement in setting the health services research agenda persistent questions of value
    Journal of Health Services Research & Policy, 2008
    Co-Authors: Vikki Entwistle, Michael Calnan, Paul Dieppe
    Abstract:

    Interest in Consumer Involvement in health services research started to gain momentum at around the same time that the MRC Health Services Research Collaboration (HSRC) was established. Consumer Involvement was not the focus of a formal research programme within the HSRC, but HSRC members took opportunities to conduct three projects relating to Consumer Involvement in research agenda-setting activities. These were: (1) a comparison of the focus of published research relating to the management of osteoarthritis of the knee with clinicians' and patients' ideas about research priorities; (2) a survey that examined the Consumer Involvement policies of public- and voluntary-sector organizations that fund health services research in the UK; and (3) a citizens' jury that was convened to develop priorities for research relating to primary health and social care in the Bristol area. This paper reviews the findings of these projects and highlights the continued need for attention to underlying values in the development and evaluation of future efforts to involve Consumers in research agenda setting. Journal of Health Services Research & Policy Vol 13 Suppl 3, 2008: 76-81 (C) The Royal Society of Medicine Press Ltd 2008

  • Consumer Involvement in setting the health services research agenda: persistent questions of value.
    Journal of health services research & policy, 2008
    Co-Authors: Vikki Entwistle, Michael Calnan, Paul Dieppe
    Abstract:

    Interest in Consumer Involvement in health services research started to gain momentum at around the same time that the MRC Health Services Research Collaboration (HSRC) was established. Consumer Involvement was not the focus of a formal research programme within the HSRC, but HSRC members took opportunities to conduct three projects relating to Consumer Involvement in research agenda-setting activities. These were: (1) a comparison of the focus of published research relating to the management of osteoarthritis of the knee with clinicians' and patients' ideas about research priorities; (2) a survey that examined the Consumer Involvement policies of public- and voluntary-sector organizations that fund health services research in the UK; and (3) a citizens' jury that was convened to develop priorities for research relating to primary health and social care in the Bristol area. This paper reviews the findings of these projects and highlights the continued need for attention to underlying values in the development and evaluation of future efforts to involve Consumers in research agenda setting.

  • Consumer Involvement in research is essential.
    BMJ (Clinical research ed.), 2000
    Co-Authors: Debbie Tallon, Jiri Chard, Paul Dieppe
    Abstract:

    EDITOR—We agree with Goodare and Lockwood that Consumer Involvement in the research process is lacking.1 Our work on osteoarthritis has shown the potential benefit of involving Consumers when trying to prioritise the research agenda. In a survey of 112 people with osteoarthritis of the knee we found that a wider range of treatment options was being used by patients than the research literature would suggest. From a recent systematic …

Vikki Entwistle - One of the best experts on this subject based on the ideXlab platform.

  • Consumer Involvement in setting the health services research agenda persistent questions of value
    Journal of Health Services Research & Policy, 2008
    Co-Authors: Vikki Entwistle, Michael Calnan, Paul Dieppe
    Abstract:

    Interest in Consumer Involvement in health services research started to gain momentum at around the same time that the MRC Health Services Research Collaboration (HSRC) was established. Consumer Involvement was not the focus of a formal research programme within the HSRC, but HSRC members took opportunities to conduct three projects relating to Consumer Involvement in research agenda-setting activities. These were: (1) a comparison of the focus of published research relating to the management of osteoarthritis of the knee with clinicians' and patients' ideas about research priorities; (2) a survey that examined the Consumer Involvement policies of public- and voluntary-sector organizations that fund health services research in the UK; and (3) a citizens' jury that was convened to develop priorities for research relating to primary health and social care in the Bristol area. This paper reviews the findings of these projects and highlights the continued need for attention to underlying values in the development and evaluation of future efforts to involve Consumers in research agenda setting. Journal of Health Services Research & Policy Vol 13 Suppl 3, 2008: 76-81 (C) The Royal Society of Medicine Press Ltd 2008

  • Consumer Involvement in setting the health services research agenda: persistent questions of value.
    Journal of health services research & policy, 2008
    Co-Authors: Vikki Entwistle, Michael Calnan, Paul Dieppe
    Abstract:

    Interest in Consumer Involvement in health services research started to gain momentum at around the same time that the MRC Health Services Research Collaboration (HSRC) was established. Consumer Involvement was not the focus of a formal research programme within the HSRC, but HSRC members took opportunities to conduct three projects relating to Consumer Involvement in research agenda-setting activities. These were: (1) a comparison of the focus of published research relating to the management of osteoarthritis of the knee with clinicians' and patients' ideas about research priorities; (2) a survey that examined the Consumer Involvement policies of public- and voluntary-sector organizations that fund health services research in the UK; and (3) a citizens' jury that was convened to develop priorities for research relating to primary health and social care in the Bristol area. This paper reviews the findings of these projects and highlights the continued need for attention to underlying values in the development and evaluation of future efforts to involve Consumers in research agenda setting.

  • Consumer Involvement in research projects: the activities of research funders.
    Health policy (Amsterdam Netherlands), 2004
    Co-Authors: Maire O'donnell, Vikki Entwistle
    Abstract:

    This paper reports findings from a postal questionnaire survey and in-depth interviews with UK funders of health-related research that explored whether, why and how they promote Consumer Involvement in research projects. Many UK funders of health-related research are adopting a policy of promoting Consumer Involvement in research projects. Telephone interviews revealed they have several reasons for doing so, and that they vary in the ways they encourage and support researchers to involve Consumers. For some, descriptions of Consumer Involvement in a research proposal are important for project funding decisions. They recognized a need for flexibility when assessing Consumer Involvement in different contexts. We suggest that funders should continue to work to clarify what they consider to be the parameters of acceptability in terms of Consumer Involvement and ensure that ‘flexible’ criteria are fairly applied. Researchers should be aware of particular funders’ views when applying for project funding. © 2004 Elsevier Ireland Ltd. All rights reserved.

  • Supporting Consumer Involvement in decision making: what constitutes quality in Consumer health information?
    International journal for quality in health care : journal of the International Society for Quality in Health Care, 1996
    Co-Authors: Vikki Entwistle, Trevor A Sheldon, Amanda Sowden, Ian Watt
    Abstract:

    The promotion of Consumer Involvement in decisions about individual health care is now high on many health policy agendas, but the structures to support it are not all in place. While it is generally accepted that information to support Consumer Involvement should be of good quality, the question of what constitutes quality in such information packages is far from settled. Debate around this issue should consider the various theoretical perspectives which relate to the nature and purpose of Consumer Involvement in health care decision making, and the contexts in which information is used. If we are to judge the quality of information within a consequentialist framework, we need empirical research evidence about the effects of information provision. Until such evidence becomes available, we can only hypothesize about what makes for quality. In this paper we discuss some dimensions of quality which are suggested by a consequentialist perspective.

Michael Calnan - One of the best experts on this subject based on the ideXlab platform.

  • Consumer Involvement in setting the health services research agenda persistent questions of value
    Journal of Health Services Research & Policy, 2008
    Co-Authors: Vikki Entwistle, Michael Calnan, Paul Dieppe
    Abstract:

    Interest in Consumer Involvement in health services research started to gain momentum at around the same time that the MRC Health Services Research Collaboration (HSRC) was established. Consumer Involvement was not the focus of a formal research programme within the HSRC, but HSRC members took opportunities to conduct three projects relating to Consumer Involvement in research agenda-setting activities. These were: (1) a comparison of the focus of published research relating to the management of osteoarthritis of the knee with clinicians' and patients' ideas about research priorities; (2) a survey that examined the Consumer Involvement policies of public- and voluntary-sector organizations that fund health services research in the UK; and (3) a citizens' jury that was convened to develop priorities for research relating to primary health and social care in the Bristol area. This paper reviews the findings of these projects and highlights the continued need for attention to underlying values in the development and evaluation of future efforts to involve Consumers in research agenda setting. Journal of Health Services Research & Policy Vol 13 Suppl 3, 2008: 76-81 (C) The Royal Society of Medicine Press Ltd 2008

  • Consumer Involvement in setting the health services research agenda: persistent questions of value.
    Journal of health services research & policy, 2008
    Co-Authors: Vikki Entwistle, Michael Calnan, Paul Dieppe
    Abstract:

    Interest in Consumer Involvement in health services research started to gain momentum at around the same time that the MRC Health Services Research Collaboration (HSRC) was established. Consumer Involvement was not the focus of a formal research programme within the HSRC, but HSRC members took opportunities to conduct three projects relating to Consumer Involvement in research agenda-setting activities. These were: (1) a comparison of the focus of published research relating to the management of osteoarthritis of the knee with clinicians' and patients' ideas about research priorities; (2) a survey that examined the Consumer Involvement policies of public- and voluntary-sector organizations that fund health services research in the UK; and (3) a citizens' jury that was convened to develop priorities for research relating to primary health and social care in the Bristol area. This paper reviews the findings of these projects and highlights the continued need for attention to underlying values in the development and evaluation of future efforts to involve Consumers in research agenda setting.

Cindy Cooper - One of the best experts on this subject based on the ideXlab platform.

  • critical perspectives on Consumer Involvement in health research epistemological dissonance and the know do gap
    Journal of Sociology, 2010
    Co-Authors: Paul Ward, Jonathan Boote, Cindy Cooper, Rosemary Barber, Jill Thompson, Christopher J Armitage, Georgina Jones
    Abstract:

    Researchers in the area of health and social care (both in Australia and internationally) are encouraged to involve Consumers throughout the research process, often on ethical, political and methodological grounds, or simply as ‘good practice’. This article presents findings from a qualitative study in the UK of researchers’ experiences and views of Consumer Involvement in health research. Two main themes are presented. First, we explore the ‘know—do gap’ which relates to the tensions between researchers’ perceptions of the potential benefits of, and their actual practices in relation to, Consumer Involvement. Second, we focus on one of the reasons for this ‘know—do gap’, namely epistemological dissonance. Findings are linked to issues around Consumerism in research, lay/professional knowledges, the (re)production of professional and Consumer identities and the maintenance of boundaries between Consumers and researchers.

  • principles and indicators of successful Consumer Involvement in nhs research results of a delphi study and subgroup analysis
    Health Policy, 2006
    Co-Authors: Jonathan Boote, Rosemary Barber, Cindy Cooper
    Abstract:

    Consumer Involvement in NHS research is Department of Health policy within the UK. Despite the existence of policy directives and guidance, until recently there has been no consensus among Consumers and researchers about what it means to involve Consumers successfully in NHS research. This paper discusses the value of consensus research in this policy area, and presents the detailed findings of a Delphi study carried out to reach consensus on principles and indicators of successful Consumer Involvement in NHS research. Study participants, comprising Consumers, researchers and Consumer–researchers, were identified using a purposive sampling strategy. Consensus was reached on eight clear and valid principles of successful Consumer Involvement in NHS research, with each principle having at least one clear and valid indicator. Subgroup analysis revealed few significant differences in how Consumers, researchers and Consumer–researchers rated the principles and indicators. The implications and limitations of the study are discussed. Further research is needed to assess: (1) the usefulness of the principles and indicators for differing models of Consumer Involvement, health research methodologies, and subject areas within health research; and (2) the impact of ‘successful’ Consumer Involvement on health research processes and outcomes.

  • Consumer Involvement in health research fact or fiction
    British Journal of Clinical Governance, 2002
    Co-Authors: Rosemary Telford, Cindy Cooper, Catherine Beverley, Jonathan Boote
    Abstract:

    Consumer Involvement is now firmly established as National Health Service (NHS) R&D policy. This study identified the range and diversity of current NHS research projects involving Consumers within an NHS region, to investigate the extent to which the policy is being implemented. Trust R&D directors and managers were surveyed and the National Research Register scrutinized. Researchers were found to be involving Consumers in research in less than a third of trusts in the region. Difficulties were encountered in categorising research activities and the level of Consumer Involvement, suggesting that more precision in describing Consumer Involvement in the research process is necessary. Researchers had concerns about the practicalities of involving Consumers and expressed a need for more direction and resources. Makes recommendations for trust management to facilitate more active Involvement of Consumers in research.

  • Consumer Involvement in health research: a review and research agenda.
    Health policy (Amsterdam Netherlands), 2002
    Co-Authors: Jonathan Boote, Rosemary Telford, Cindy Cooper
    Abstract:

    The Involvement of Consumers in health research is now Department of Health policy within the UK. Despite the existence of policy directives, there is a dearth of knowledge on the effects of such Involvement. This paper critically reviews the state of our knowledge on this issue, and maps out a research agenda with the aim of stimulating systematic, empirical inquiry into Consumer Involvement in health research. The paper discusses definitions of ‘the Consumer’; considers why Consumer Involvement is believed to be important to health research; traces the development of the policy; analyses the epistemological and methodological implications of the policy; discusses the various levels of Consumer Involvement in research; and outlines the objections to the policy that have been put forward by clinicians and researchers. Four questions were identified during the review as being in need of theoretical and empirical attention: (1) how can Consumer Involvement in health research be further conceptualised? (2) how and why does Consumer Involvement influence health research? (3) how can the influence of Consumers in health research be measured and evaluated? and (4) what factors are associated with ‘successful’ Consumer Involvement in health research?

Jonathan Boote - One of the best experts on this subject based on the ideXlab platform.

  • critical perspectives on Consumer Involvement in health research epistemological dissonance and the know do gap
    Journal of Sociology, 2010
    Co-Authors: Paul Ward, Jonathan Boote, Cindy Cooper, Rosemary Barber, Jill Thompson, Christopher J Armitage, Georgina Jones
    Abstract:

    Researchers in the area of health and social care (both in Australia and internationally) are encouraged to involve Consumers throughout the research process, often on ethical, political and methodological grounds, or simply as ‘good practice’. This article presents findings from a qualitative study in the UK of researchers’ experiences and views of Consumer Involvement in health research. Two main themes are presented. First, we explore the ‘know—do gap’ which relates to the tensions between researchers’ perceptions of the potential benefits of, and their actual practices in relation to, Consumer Involvement. Second, we focus on one of the reasons for this ‘know—do gap’, namely epistemological dissonance. Findings are linked to issues around Consumerism in research, lay/professional knowledges, the (re)production of professional and Consumer identities and the maintenance of boundaries between Consumers and researchers.

  • principles and indicators of successful Consumer Involvement in nhs research results of a delphi study and subgroup analysis
    Health Policy, 2006
    Co-Authors: Jonathan Boote, Rosemary Barber, Cindy Cooper
    Abstract:

    Consumer Involvement in NHS research is Department of Health policy within the UK. Despite the existence of policy directives and guidance, until recently there has been no consensus among Consumers and researchers about what it means to involve Consumers successfully in NHS research. This paper discusses the value of consensus research in this policy area, and presents the detailed findings of a Delphi study carried out to reach consensus on principles and indicators of successful Consumer Involvement in NHS research. Study participants, comprising Consumers, researchers and Consumer–researchers, were identified using a purposive sampling strategy. Consensus was reached on eight clear and valid principles of successful Consumer Involvement in NHS research, with each principle having at least one clear and valid indicator. Subgroup analysis revealed few significant differences in how Consumers, researchers and Consumer–researchers rated the principles and indicators. The implications and limitations of the study are discussed. Further research is needed to assess: (1) the usefulness of the principles and indicators for differing models of Consumer Involvement, health research methodologies, and subject areas within health research; and (2) the impact of ‘successful’ Consumer Involvement on health research processes and outcomes.

  • Consumer Involvement in health research fact or fiction
    British Journal of Clinical Governance, 2002
    Co-Authors: Rosemary Telford, Cindy Cooper, Catherine Beverley, Jonathan Boote
    Abstract:

    Consumer Involvement is now firmly established as National Health Service (NHS) R&D policy. This study identified the range and diversity of current NHS research projects involving Consumers within an NHS region, to investigate the extent to which the policy is being implemented. Trust R&D directors and managers were surveyed and the National Research Register scrutinized. Researchers were found to be involving Consumers in research in less than a third of trusts in the region. Difficulties were encountered in categorising research activities and the level of Consumer Involvement, suggesting that more precision in describing Consumer Involvement in the research process is necessary. Researchers had concerns about the practicalities of involving Consumers and expressed a need for more direction and resources. Makes recommendations for trust management to facilitate more active Involvement of Consumers in research.

  • Consumer Involvement in health research: a review and research agenda.
    Health policy (Amsterdam Netherlands), 2002
    Co-Authors: Jonathan Boote, Rosemary Telford, Cindy Cooper
    Abstract:

    The Involvement of Consumers in health research is now Department of Health policy within the UK. Despite the existence of policy directives, there is a dearth of knowledge on the effects of such Involvement. This paper critically reviews the state of our knowledge on this issue, and maps out a research agenda with the aim of stimulating systematic, empirical inquiry into Consumer Involvement in health research. The paper discusses definitions of ‘the Consumer’; considers why Consumer Involvement is believed to be important to health research; traces the development of the policy; analyses the epistemological and methodological implications of the policy; discusses the various levels of Consumer Involvement in research; and outlines the objections to the policy that have been put forward by clinicians and researchers. Four questions were identified during the review as being in need of theoretical and empirical attention: (1) how can Consumer Involvement in health research be further conceptualised? (2) how and why does Consumer Involvement influence health research? (3) how can the influence of Consumers in health research be measured and evaluated? and (4) what factors are associated with ‘successful’ Consumer Involvement in health research?