The Experts below are selected from a list of 19785 Experts worldwide ranked by ideXlab platform
Tracey Stone - One of the best experts on this subject based on the ideXlab platform.
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public health and Data Protection an inevitable collision or potential for a meeting of minds
International Journal of Epidemiology, 2001Co-Authors: Debbie A Lawlor, Tracey StoneAbstract:This quote from a publication on Data Protection surprisingly, but not uniquely omits ‘the public’ from the public health arena. Recently it has been suggested that changes in Data Protection Legislation may jeopardize public health practice and research. In this paper we summarize current Data Protection Legislation and guidance and discuss the implications of these for public health practice. In addition we discuss recent changes to Legislation and guidance in relation to established medical ethical principles and argue for a greater involvement of the public in the debates that will inform development of Legislation in this area.
Astrid Mager - One of the best experts on this subject based on the ideXlab platform.
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Search engine imaginary: Visions and values in the co-production of search technology and Europe
Social Studies of Science, 2017Co-Authors: Astrid MagerAbstract:This article discusses the co-production of search technology and a European identity in the context of the EU Data Protection reform. The negotiations of the EU Data Protection Legislation ran from 2012 until 2015 and resulted in a unified Data Protection Legislation directly binding for all European member states. I employ a discourse analysis to examine EU policy documents and Austrian media materials related to the reform process. Using the concept ‘sociotechnical imaginary’, I show how a European imaginary of search engines is forming in the EU policy domain, how a European identity is constructed in the envisioned politics of control, and how national specificities contribute to the making and unmaking of a European identity. I discuss the roles that national technopolitical identities play in shaping both search technology and Europe, taking as an example Austria, a small country with a long history in Data Protection and a tradition of restrained technology politics.
Debbie A Lawlor - One of the best experts on this subject based on the ideXlab platform.
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public health and Data Protection an inevitable collision or potential for a meeting of minds
International Journal of Epidemiology, 2001Co-Authors: Debbie A Lawlor, Tracey StoneAbstract:This quote from a publication on Data Protection surprisingly, but not uniquely omits ‘the public’ from the public health arena. Recently it has been suggested that changes in Data Protection Legislation may jeopardize public health practice and research. In this paper we summarize current Data Protection Legislation and guidance and discuss the implications of these for public health practice. In addition we discuss recent changes to Legislation and guidance in relation to established medical ethical principles and argue for a greater involvement of the public in the debates that will inform development of Legislation in this area.
Walter Devillé - One of the best experts on this subject based on the ideXlab platform.
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The European Data Protection Legislation and its consequences for public health monitoring: a plea for action.
European journal of public health, 2008Co-Authors: Marieke Verschuuren, Gérard Badeyan, Javier Carnicero, Mika Gissler, Renzo Pace Asciak, Luule Sakkeus, Magnus Stenbeck, Walter DevilléAbstract:The Network of Competent Authorities (NCA) is one of the implementing structures of the Health Information and Knowledge Strand of the EU Public Health Programme 2003–08.1 The NCA became aware of problems in the field of European public health monitoring related to Data Protection Legislation, and established in 2005, on a voluntary basis, a Work Group on Data Protection, consisting of six members of the NCA with a specific interest in the topic, and two staff members from the NCA's Scientific Assistance Office.2 The Work Group carried out an explorative survey among researchers in the European public health field, experts on health Data Protection and the national Data Protection Offices. This exercise resulted in a (non-exhaustive) overview of problems encountered in public health monitoring, and of major differences between national Data Protection systems regarding possibilities for using person identifiable health Data for public health purposes. The major conclusions that can be drawn from this overview is that the legal possibilities for such usage differ to great extents between the Member States, and that this diversity can be traced back to the improper transposition of the EU Directive on Data Protection (Directive 95/46/EC).3 EU directives are addressed to the Member States, who are obliged to transpose the directive into national law. By now, all Member States indeed have transposed Directive 95/46/EC,4 though, as the results of the inventory of the Work Group showed, not in a harmonized way; for instance, Article 8 on the processing of sensitive Data (e.g. health Data), has not been fully transposed by all Member States. This …
Megan Prictor - One of the best experts on this subject based on the ideXlab platform.
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United Kingdom: transfers of genomic Data to third countries.
Human genetics, 2018Co-Authors: Mark J. Taylor, Susan E Wallace, Megan PrictorAbstract:In the United Kingdom (UK), transfer of genomic Data to third countries is regulated by Data Protection Legislation. This is a composite of domestic and European Union (EU) law, with EU law to be adopted as domestic law when Brexit takes place. In this paper we consider the content of Data Protection Legislation and the likely impact of Brexit on transfers of genomic Data from the UK to other countries. We examine the advice by regulators not to rely upon consent as a lawful basis for processing under Data Protection law, at least not when personal Data are used for research purposes, and consider some of the other ways in which the research context can qualify an individual’s ability to exercise control over processing operations. We explain how the process of pseudonymization is to be understood in the context of transfer of genomic Data to third parties, as well as how adequacy of Data Protection in a third country is to be determined in general terms. We conclude with reflections on the future direction of UK Data Protection law post Brexit with the reclassification of the UK itself as a third country.
