The Experts below are selected from a list of 126 Experts worldwide ranked by ideXlab platform
Rachael Hough - One of the best experts on this subject based on the ideXlab platform.
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Understanding care when cure is not likely for young adults who Face Cancer: a realist analysis of data from patients, families and healthcare professionals.
BMJ open, 2019Co-Authors: Charlotte Kenten, Nothando Ngwenya, Faith Gibson, Mary Flatley, Louise Jones, Susie Pearce, Geoff Wong, Kath M Black, Sue Haig, Rachael HoughAbstract:© 2019 Author(s) (or their employer(s)). Objectives To understand the experiences of young adults with Cancer for whom cure is not likely, in particular what may be specific for people aged 16-40 years and how this might affect care. Design We used data from multiple sources (semi-structured interviews with people with Cancer, nominated family members and healthcare professionals, and workshops) informed by a preliminary programme theory: realist analysis of data within these themes enabled revision of our theory. A realist logic of analysis explored contexts and mechanisms affecting outcomes of care. Setting Three Cancer centres and associated palliative care services across England. Participants We aimed for a purposive sample of 45 people with Cancer from two groups: those aged 16-24 years for whom there may be specialist Cancer centres and those 16-40 years cared for through general adult services; each could nominate for interview one family member and one healthcare professional. We interviewed three people aged 16-24 years and 30 people 25-40 years diagnosed with Cancer (carcinomas; blood Cancers; sarcoma; central nervous system tumours) with a clinician-estimated prognosis of
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understanding care when cure is not likely for young adults who Face Cancer a realist analysis of data from patients families and healthcare professionals
BMJ Open, 2019Co-Authors: Charlotte Kenten, Nothando Ngwenya, Faith Gibson, Mary Flatley, Louise Jones, Susie Pearce, Geoff Wong, Kath M Black, Sue Haig, Rachael HoughAbstract:© 2019 Author(s) (or their employer(s)). Objectives To understand the experiences of young adults with Cancer for whom cure is not likely, in particular what may be specific for people aged 16-40 years and how this might affect care. Design We used data from multiple sources (semi-structured interviews with people with Cancer, nominated family members and healthcare professionals, and workshops) informed by a preliminary programme theory: realist analysis of data within these themes enabled revision of our theory. A realist logic of analysis explored contexts and mechanisms affecting outcomes of care. Setting Three Cancer centres and associated palliative care services across England. Participants We aimed for a purposive sample of 45 people with Cancer from two groups: those aged 16-24 years for whom there may be specialist Cancer centres and those 16-40 years cared for through general adult services; each could nominate for interview one family member and one healthcare professional. We interviewed three people aged 16-24 years and 30 people 25-40 years diagnosed with Cancer (carcinomas; blood Cancers; sarcoma; central nervous system tumours) with a clinician-estimated prognosis of <12 months along with nominated family carers and healthcare professionals. 19 bereaved family members and 47 healthcare professionals participated in workshops. Results Data were available from 69 interviews (33 people with Cancer, 14 family carers, 22 healthcare professionals) and six workshops. Qualitative analysis revealed seven key themes: loss of control; maintenance of normal life; continuity of care; support for professionals; support for families; importance of language chosen by professionals; and financial concerns. Conclusions Current care towards end of life for young adults with Cancer and their families does not meet needs and expectations. We identified challenges specific to those aged 16-40 years. The burden that care delivery imposes on healthcare professionals must be recognised. These findings can inform recommendations for measures to be incorporated into services.
Thomas Hardie - One of the best experts on this subject based on the ideXlab platform.
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Depression in Internet and Face-to-Face Cancer support groups: a pilot study.
Oncology nursing forum, 2002Co-Authors: Paula Klemm, Thomas HardieAbstract:To examine depression in Internet Cancer support groups as compared to traditional (Face-to-Face) Cancer support groups and to explore the relationship between Internet use and levels of depression. Exploratory, descriptive. Traditional (Face-to-Face) and Internet Cancer support groups. Convenience sample of 40 patients with Cancer, 14 from traditional Face-to-Face groups and 26 from an Internet support group, with different Cancer diagnoses. Traditional paper or Internet surveys consisting of an investigator-developed questionnaire including demographic information, brief medical history, support group history, and the Center for Epidemiologic Studies Depression Scale (CES-D). Depression scores on the CES-D. Participants in the Face-to-Face groups were 100% male. The online group was 56% male and 44% female. Groups did not differ significantly by income, health insurance status, or days since initial diagnosis. Groups differed significantly on level of depression. The traditional (Face-to-Face) group had a CES-D mean score of 1.86 (SD = 2.69), and the online group had a mean score of 29.27 (SD = 11.89, p less than 0.000). A comparison of CES-D scores of men in the Face-to-Face and Internet groups revealed that they differed significantly on level of depression. Men in the traditional group had a mean score of 1.86 (SD = 2.69), and men in the online group had a mean score of 27.42 (SD = 112.69, p less than 0.000). These data suggest that more depressed patients with Cancer use Internet support groups instead of Face-to-Face support. Before online interventions can be implemented effectively, their efficacy needs to be evaluated. Patients with Cancer are at increased risk for developing depression. This should be a consideration during nursing assessments. Traditional Cancer support groups can help people cope with their Cancer, but the efficacy of Internet Cancer support groups in providing psychoeducation and psychotherapeutic intervention remains to be proven.
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Depression in Internet and Face-to-Face Cancer support groups: a pilot study.
Oncology Nursing Forum, 2002Co-Authors: Paula Klemm, Thomas HardieAbstract:PURPOSE/OBJECTIVES To examine depression in Internet Cancer support groups as compared to traditional (Face-to-Face) Cancer support groups and to explore the relationship between Internet use and levels of depression. DESIGN Exploratory, descriptive. SETTING Traditional (Face-to-Face) and Internet Cancer support groups. SAMPLE Convenience sample of 40 patients with Cancer, 14 from traditional Face-to-Face groups and 26 from an Internet support group, with different Cancer diagnoses. METHODS Traditional paper or Internet surveys consisting of an investigator-developed questionnaire including demographic information, brief medical history, support group history, and the Center for Epidemiologic Studies Depression Scale (CES-D). MAIN RESEARCH VARIABLE Depression scores on the CES-D. FINDINGS Participants in the Face-to-Face groups were 100% male. The online group was 56% male and 44% female. Groups did not differ significantly by income, health insurance status, or days since initial diagnosis. Groups differed significantly on level of depression. The traditional (Face-to-Face) group had a CES-D mean score of 1.86 (SD = 2.69), and the online group had a mean score of 29.27 (SD = 11.89, p less than 0.000). A comparison of CES-D scores of men in the Face-to-Face and Internet groups revealed that they differed significantly on level of depression. Men in the traditional group had a mean score of 1.86 (SD = 2.69), and men in the online group had a mean score of 27.42 (SD = 112.69, p less than 0.000). CONCLUSIONS These data suggest that more depressed patients with Cancer use Internet support groups instead of Face-to-Face support. Before online interventions can be implemented effectively, their efficacy needs to be evaluated. IMPLICATIONS FOR NURSING Patients with Cancer are at increased risk for developing depression. This should be a consideration during nursing assessments. Traditional Cancer support groups can help people cope with their Cancer, but the efficacy of Internet Cancer support groups in providing psychoeducation and psychotherapeutic intervention remains to be proven.
Charlotte Kenten - One of the best experts on this subject based on the ideXlab platform.
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Understanding care when cure is not likely for young adults who Face Cancer: a realist analysis of data from patients, families and healthcare professionals.
BMJ open, 2019Co-Authors: Charlotte Kenten, Nothando Ngwenya, Faith Gibson, Mary Flatley, Louise Jones, Susie Pearce, Geoff Wong, Kath M Black, Sue Haig, Rachael HoughAbstract:© 2019 Author(s) (or their employer(s)). Objectives To understand the experiences of young adults with Cancer for whom cure is not likely, in particular what may be specific for people aged 16-40 years and how this might affect care. Design We used data from multiple sources (semi-structured interviews with people with Cancer, nominated family members and healthcare professionals, and workshops) informed by a preliminary programme theory: realist analysis of data within these themes enabled revision of our theory. A realist logic of analysis explored contexts and mechanisms affecting outcomes of care. Setting Three Cancer centres and associated palliative care services across England. Participants We aimed for a purposive sample of 45 people with Cancer from two groups: those aged 16-24 years for whom there may be specialist Cancer centres and those 16-40 years cared for through general adult services; each could nominate for interview one family member and one healthcare professional. We interviewed three people aged 16-24 years and 30 people 25-40 years diagnosed with Cancer (carcinomas; blood Cancers; sarcoma; central nervous system tumours) with a clinician-estimated prognosis of
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understanding care when cure is not likely for young adults who Face Cancer a realist analysis of data from patients families and healthcare professionals
BMJ Open, 2019Co-Authors: Charlotte Kenten, Nothando Ngwenya, Faith Gibson, Mary Flatley, Louise Jones, Susie Pearce, Geoff Wong, Kath M Black, Sue Haig, Rachael HoughAbstract:© 2019 Author(s) (or their employer(s)). Objectives To understand the experiences of young adults with Cancer for whom cure is not likely, in particular what may be specific for people aged 16-40 years and how this might affect care. Design We used data from multiple sources (semi-structured interviews with people with Cancer, nominated family members and healthcare professionals, and workshops) informed by a preliminary programme theory: realist analysis of data within these themes enabled revision of our theory. A realist logic of analysis explored contexts and mechanisms affecting outcomes of care. Setting Three Cancer centres and associated palliative care services across England. Participants We aimed for a purposive sample of 45 people with Cancer from two groups: those aged 16-24 years for whom there may be specialist Cancer centres and those 16-40 years cared for through general adult services; each could nominate for interview one family member and one healthcare professional. We interviewed three people aged 16-24 years and 30 people 25-40 years diagnosed with Cancer (carcinomas; blood Cancers; sarcoma; central nervous system tumours) with a clinician-estimated prognosis of <12 months along with nominated family carers and healthcare professionals. 19 bereaved family members and 47 healthcare professionals participated in workshops. Results Data were available from 69 interviews (33 people with Cancer, 14 family carers, 22 healthcare professionals) and six workshops. Qualitative analysis revealed seven key themes: loss of control; maintenance of normal life; continuity of care; support for professionals; support for families; importance of language chosen by professionals; and financial concerns. Conclusions Current care towards end of life for young adults with Cancer and their families does not meet needs and expectations. We identified challenges specific to those aged 16-40 years. The burden that care delivery imposes on healthcare professionals must be recognised. These findings can inform recommendations for measures to be incorporated into services.
Paula Klemm - One of the best experts on this subject based on the ideXlab platform.
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Depression in Internet and Face-to-Face Cancer support groups: a pilot study.
Oncology nursing forum, 2002Co-Authors: Paula Klemm, Thomas HardieAbstract:To examine depression in Internet Cancer support groups as compared to traditional (Face-to-Face) Cancer support groups and to explore the relationship between Internet use and levels of depression. Exploratory, descriptive. Traditional (Face-to-Face) and Internet Cancer support groups. Convenience sample of 40 patients with Cancer, 14 from traditional Face-to-Face groups and 26 from an Internet support group, with different Cancer diagnoses. Traditional paper or Internet surveys consisting of an investigator-developed questionnaire including demographic information, brief medical history, support group history, and the Center for Epidemiologic Studies Depression Scale (CES-D). Depression scores on the CES-D. Participants in the Face-to-Face groups were 100% male. The online group was 56% male and 44% female. Groups did not differ significantly by income, health insurance status, or days since initial diagnosis. Groups differed significantly on level of depression. The traditional (Face-to-Face) group had a CES-D mean score of 1.86 (SD = 2.69), and the online group had a mean score of 29.27 (SD = 11.89, p less than 0.000). A comparison of CES-D scores of men in the Face-to-Face and Internet groups revealed that they differed significantly on level of depression. Men in the traditional group had a mean score of 1.86 (SD = 2.69), and men in the online group had a mean score of 27.42 (SD = 112.69, p less than 0.000). These data suggest that more depressed patients with Cancer use Internet support groups instead of Face-to-Face support. Before online interventions can be implemented effectively, their efficacy needs to be evaluated. Patients with Cancer are at increased risk for developing depression. This should be a consideration during nursing assessments. Traditional Cancer support groups can help people cope with their Cancer, but the efficacy of Internet Cancer support groups in providing psychoeducation and psychotherapeutic intervention remains to be proven.
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Depression in Internet and Face-to-Face Cancer support groups: a pilot study.
Oncology Nursing Forum, 2002Co-Authors: Paula Klemm, Thomas HardieAbstract:PURPOSE/OBJECTIVES To examine depression in Internet Cancer support groups as compared to traditional (Face-to-Face) Cancer support groups and to explore the relationship between Internet use and levels of depression. DESIGN Exploratory, descriptive. SETTING Traditional (Face-to-Face) and Internet Cancer support groups. SAMPLE Convenience sample of 40 patients with Cancer, 14 from traditional Face-to-Face groups and 26 from an Internet support group, with different Cancer diagnoses. METHODS Traditional paper or Internet surveys consisting of an investigator-developed questionnaire including demographic information, brief medical history, support group history, and the Center for Epidemiologic Studies Depression Scale (CES-D). MAIN RESEARCH VARIABLE Depression scores on the CES-D. FINDINGS Participants in the Face-to-Face groups were 100% male. The online group was 56% male and 44% female. Groups did not differ significantly by income, health insurance status, or days since initial diagnosis. Groups differed significantly on level of depression. The traditional (Face-to-Face) group had a CES-D mean score of 1.86 (SD = 2.69), and the online group had a mean score of 29.27 (SD = 11.89, p less than 0.000). A comparison of CES-D scores of men in the Face-to-Face and Internet groups revealed that they differed significantly on level of depression. Men in the traditional group had a mean score of 1.86 (SD = 2.69), and men in the online group had a mean score of 27.42 (SD = 112.69, p less than 0.000). CONCLUSIONS These data suggest that more depressed patients with Cancer use Internet support groups instead of Face-to-Face support. Before online interventions can be implemented effectively, their efficacy needs to be evaluated. IMPLICATIONS FOR NURSING Patients with Cancer are at increased risk for developing depression. This should be a consideration during nursing assessments. Traditional Cancer support groups can help people cope with their Cancer, but the efficacy of Internet Cancer support groups in providing psychoeducation and psychotherapeutic intervention remains to be proven.
Kath M Black - One of the best experts on this subject based on the ideXlab platform.
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Understanding care when cure is not likely for young adults who Face Cancer: a realist analysis of data from patients, families and healthcare professionals.
BMJ open, 2019Co-Authors: Charlotte Kenten, Nothando Ngwenya, Faith Gibson, Mary Flatley, Louise Jones, Susie Pearce, Geoff Wong, Kath M Black, Sue Haig, Rachael HoughAbstract:© 2019 Author(s) (or their employer(s)). Objectives To understand the experiences of young adults with Cancer for whom cure is not likely, in particular what may be specific for people aged 16-40 years and how this might affect care. Design We used data from multiple sources (semi-structured interviews with people with Cancer, nominated family members and healthcare professionals, and workshops) informed by a preliminary programme theory: realist analysis of data within these themes enabled revision of our theory. A realist logic of analysis explored contexts and mechanisms affecting outcomes of care. Setting Three Cancer centres and associated palliative care services across England. Participants We aimed for a purposive sample of 45 people with Cancer from two groups: those aged 16-24 years for whom there may be specialist Cancer centres and those 16-40 years cared for through general adult services; each could nominate for interview one family member and one healthcare professional. We interviewed three people aged 16-24 years and 30 people 25-40 years diagnosed with Cancer (carcinomas; blood Cancers; sarcoma; central nervous system tumours) with a clinician-estimated prognosis of
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understanding care when cure is not likely for young adults who Face Cancer a realist analysis of data from patients families and healthcare professionals
BMJ Open, 2019Co-Authors: Charlotte Kenten, Nothando Ngwenya, Faith Gibson, Mary Flatley, Louise Jones, Susie Pearce, Geoff Wong, Kath M Black, Sue Haig, Rachael HoughAbstract:© 2019 Author(s) (or their employer(s)). Objectives To understand the experiences of young adults with Cancer for whom cure is not likely, in particular what may be specific for people aged 16-40 years and how this might affect care. Design We used data from multiple sources (semi-structured interviews with people with Cancer, nominated family members and healthcare professionals, and workshops) informed by a preliminary programme theory: realist analysis of data within these themes enabled revision of our theory. A realist logic of analysis explored contexts and mechanisms affecting outcomes of care. Setting Three Cancer centres and associated palliative care services across England. Participants We aimed for a purposive sample of 45 people with Cancer from two groups: those aged 16-24 years for whom there may be specialist Cancer centres and those 16-40 years cared for through general adult services; each could nominate for interview one family member and one healthcare professional. We interviewed three people aged 16-24 years and 30 people 25-40 years diagnosed with Cancer (carcinomas; blood Cancers; sarcoma; central nervous system tumours) with a clinician-estimated prognosis of <12 months along with nominated family carers and healthcare professionals. 19 bereaved family members and 47 healthcare professionals participated in workshops. Results Data were available from 69 interviews (33 people with Cancer, 14 family carers, 22 healthcare professionals) and six workshops. Qualitative analysis revealed seven key themes: loss of control; maintenance of normal life; continuity of care; support for professionals; support for families; importance of language chosen by professionals; and financial concerns. Conclusions Current care towards end of life for young adults with Cancer and their families does not meet needs and expectations. We identified challenges specific to those aged 16-40 years. The burden that care delivery imposes on healthcare professionals must be recognised. These findings can inform recommendations for measures to be incorporated into services.
