The Experts below are selected from a list of 45 Experts worldwide ranked by ideXlab platform
Jeffrey V Rosenfeld - One of the best experts on this subject based on the ideXlab platform.
-
identifying factors contributing to child and Family Outcome 30 months after traumatic brain injury in children
Journal of Neurology Neurosurgery and Psychiatry, 2005Co-Authors: Vicki Anderson, Cathy Catroppa, Flora Haritou, Sue A Morse, Jeffrey V RosenfeldAbstract:Objective: To examine the contributions of injury severity, physical and cognitive disability, child and Family function to Outcome 30 months after traumatic brain injury (TBI) in children. Design: A prospective, longitudinal, between group design, comparing function before and after injury across three levels of injury severity. Subjects: One hundred and fifty children, 3.0–12.11 years old, admitted to hospital with a diagnosis of TBI. The sample was divided according to injury severity: mild (n = 42), moderate (n = 70), severe (n = 38). Children with a history of neurological, developmental, and psychiatric disorders were excluded from participation. Main Outcome measures: Post injury physical function, cognitive ability (incorporating intellect, memory, and attention), behavioural and Family functioning, and level of Family burden. Results: A dose–response relation was identified for injury severity and physical and cognitive Outcome, with significant recovery documented from acute to six months after TBI. Behavioural functioning was not related to injury severity, and where problems were identified, little recovery was noted over time. Family functioning remained unchanged from preinjury to post injury assessments. The level of Family burden was high at both six and 30 months after injury, and was predicted by injury severity, functional impairment, and post injury child behavioural disturbance. Conclusions: These results suggest ongoing problems for the child and significant Family burden 30 months after TBI. The nature and severity of the physical and cognitive problems are closely related to injury severity, with child and Family function predicted by psychosocial and premorbid factors.
-
predictors of acute child and Family Outcome following traumatic brain injury in children
Pediatric Neurosurgery, 2001Co-Authors: Vicki Anderson, Cathy Catroppa, Flora Haritou, Sue A Morse, Linda Pentland, Jeffrey V Rosenfeld, Robyn StargattAbstract:Objective: To examine the relative contributions of injury severity, level of physical and cognitive disability, child behavior and Family function to short-term Outcome 6 months fo
Vicki Anderson - One of the best experts on this subject based on the ideXlab platform.
-
identifying factors contributing to child and Family Outcome 30 months after traumatic brain injury in children
Journal of Neurology Neurosurgery and Psychiatry, 2005Co-Authors: Vicki Anderson, Cathy Catroppa, Flora Haritou, Sue A Morse, Jeffrey V RosenfeldAbstract:Objective: To examine the contributions of injury severity, physical and cognitive disability, child and Family function to Outcome 30 months after traumatic brain injury (TBI) in children. Design: A prospective, longitudinal, between group design, comparing function before and after injury across three levels of injury severity. Subjects: One hundred and fifty children, 3.0–12.11 years old, admitted to hospital with a diagnosis of TBI. The sample was divided according to injury severity: mild (n = 42), moderate (n = 70), severe (n = 38). Children with a history of neurological, developmental, and psychiatric disorders were excluded from participation. Main Outcome measures: Post injury physical function, cognitive ability (incorporating intellect, memory, and attention), behavioural and Family functioning, and level of Family burden. Results: A dose–response relation was identified for injury severity and physical and cognitive Outcome, with significant recovery documented from acute to six months after TBI. Behavioural functioning was not related to injury severity, and where problems were identified, little recovery was noted over time. Family functioning remained unchanged from preinjury to post injury assessments. The level of Family burden was high at both six and 30 months after injury, and was predicted by injury severity, functional impairment, and post injury child behavioural disturbance. Conclusions: These results suggest ongoing problems for the child and significant Family burden 30 months after TBI. The nature and severity of the physical and cognitive problems are closely related to injury severity, with child and Family function predicted by psychosocial and premorbid factors.
-
predictors of acute child and Family Outcome following traumatic brain injury in children
Pediatric Neurosurgery, 2001Co-Authors: Vicki Anderson, Cathy Catroppa, Flora Haritou, Sue A Morse, Linda Pentland, Jeffrey V Rosenfeld, Robyn StargattAbstract:Objective: To examine the relative contributions of injury severity, level of physical and cognitive disability, child behavior and Family function to short-term Outcome 6 months fo
Yfke Huber-mollema - One of the best experts on this subject based on the ideXlab platform.
-
EURAP & Development: Study Protocol of a Dutch Prospective Observational Study into Fetal Antiepileptic Drug Exposure and Long-term Neurocognitive, Behavioral and Family Outcomes
2018Co-Authors: Yfke Huber-mollema, L. Van Iterson, Frans J. Oort, Dick Lindhout, Roos RodenburgAbstract:Background: Children exposed to antiepileptic drugs (AEDs) in utero are at higher risk for congenital malformations. Less is known about the long-term association with neurocognition and behavior. Research into Family factors related to long-term developmental Outcomes of children of women with epilepsy is also rare. We present a protocol to investigate the neurocognitive and behavioral development in children of mothers with epilepsy from a Family perspective. Methods: This is a prospective observational longitudinal study, of children exposed in utero to monotherapy carbamazepine, lamotrigine, valproate or levetiracetam whose mother were previously included in the European Registry of Antiepileptic Drugs and Pregnancy (EURAP-NL) database. Children are tested at age six or seven years (T1) and at eight or nine years (T2). Children, mothers and fathers are asked to undergo neuropsychological assessments and to complete questionnaires on behavioral functioning and distinct Family factors. Discussion: This study contributes to future counseling of women with epilepsy who have children or wishes to start a Family. Strengths are the inclusion of levetiracetam, the longitudinal design, and alongside neurocognition, the inclusion of differential behavioral and Family Outcome measures. Anticipated limitations are discussed.
-
EURAP & Development : Study protocol of a Dutch prospective observational study into fetal Antiepileptic Drug exposure and long-term neurocognitive, behavioral and Family Outcomes
2018Co-Authors: Yfke Huber-mollema, L. Van Iterson, Frans J. Oort, Dick Lindhout, H.r. RodenburgAbstract:Background: Children exposed to antiepileptic drugs (AEDs) in utero are at higher risk for congenital malformations. Less is known about the long-term association with neurocognition and behavior. Research into Family factors related to long-term developmental Outcomes of children of women with epilepsy is also rare. We present a protocol to investigate the neurocognitive and behavioral development in children of mothers with epilepsy from a Family perspective. Methods: This is a prospective observational longitudinal study, of children exposed in utero to monotherapy carbamazepine, lamotrigine, valproate or levetiracetam whose mother were previously included in the European Registry of Antiepileptic Drugs and Pregnancy (EURAP-NL) database. Children are tested at age six or seven years (T1) and at eight or nine years (T2). Children, mothers and fathers are asked to undergo neuropsychological assessments and to complete questionnaires on behavioral functioning and distinct Family factors. Discussion: This study contributes to future counseling of women with epilepsy who have children or wishes to start a Family. Strengths are the inclusion of levetiracetam, the longitudinal design, and alongside neurocognition, the inclusion of differential behavioral and Family Outcome measures. Anticipated limitations are discussed.
Mijna Hadders-algra - One of the best experts on this subject based on the ideXlab platform.
-
LEARN2MOVE 0–2 years, a randomized early intervention trial for infants at very high risk of cerebral palsy: Family Outcome and infant’s functional Outcome
Disability and rehabilitation, 2019Co-Authors: Tjitske Hielkema, Anke G. Boxum, Elisa G. Hamer, Sacha La Bastide-van Gemert, Tineke Dirks, Heleen A. Reinders-messelink, Carel G. B. Maathuis, Johannes Verheijden, Jan H. B. Geertzen, Mijna Hadders-algraAbstract:Purpose: To compare Family and functional Outcome in infants at very high risk of cerebral palsy, after receiving the Family centred programme "Coping with and Caring for infants with special needs (COPCA)" or typical infant physiotherapy.Materials and methods: Forty-three infants at very high risk were included before 9 months corrected age and randomly assigned to one year COPCA (n = 23) or typical infant physiotherapy (n = 20). Family and infant Outcome were assessed before and during the intervention. Physiotherapy intervention sessions were analysed quantitatively for process analysis. Outcome was evaluated with non-parametric tests and linear mixed-effect models.Results: Between-group comparisons revealed no differences in Family and infant Outcomes. Within-group analysis showed that Family's quality of life improved over time in the COPCA-group. Family empowerment was positively associated with intervention elements, including "caregiver coaching."Conclusions: One year of COPCA or typical infant physiotherapy resulted in similar Family and functional Outcomes. Yet, specific intervention elements, e.g., coaching, may increase empowerment of families of very high risk infants and may influence quality of life, which emphasizes the importance of Family centred services.Implications for rehabilitationOne year of the Family centred programme "Coping with and a Caring for infants with special needs" compared with typical infant physiotherapy resulted in similar Family Outcome and similar functional Outcome for the infants at very high risk for cerebral palsy.Specific contents of intervention, such as caregiver coaching, are associated with more Family empowerment and increased quality of life.Emphasis on Family needs is important in early intervention for infants at very high risk for cerebral palsy.
Donald B. Bailey - One of the best experts on this subject based on the ideXlab platform.
-
Psychometric validation of the Family Outcome Survey-Revised in Singapore.
Research in developmental disabilities, 2014Co-Authors: Kenneth K. Poon, Nona Ooi, Rebecca Bull, Donald B. BaileyAbstract:According to a revision of Japan's Basic Law for Persons with Disabilities in 2011, Article 17 stipulated the government's obligation to provide early intervention to children with disabilities. However, the concept of Family Outcomes in early intervention has not really been considered in Japan yet. This article describes the development and validation of the Japanese version of the Family Outcomes Survey Revised (FOS-R). Our goal was to determine whether this survey for assessing how families of children with disabilities are affected by early intervention would be appropriate for use in early intervention in Japan. Both the Japanese version of the FOS-R and an anonymous, self-administered questionnaire about background factors were given to 394 mothers of children who were either currently using or had in the past year used early intervention at an early intervention facility or medical institution. Survey responses were obtained from 335 mothers (response rate of 85.0%). The total number of subjects in the analysis was 301 mothers who answered the Japanese version of the FOS-R completely. To assess content validity, another survey was given to 115 experts involved in supporting children with disabilities and their families. The Family Outcomes indicator items as well as the helpfulness indicators items showed good psychometric properties. Although the components of the FOS-R worked better as individual subscales than as a single scale, we confirmed that a total score was also psychometrically valid. We also confirmed both content validity and external validity. The Japanese version of the FOS-R appears to be a valid tool for assessing the benefits experienced by families as a result of services received, but further research is needed to determine the nature of practices most likely to lead to positive Family Outcomes.
