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Lisa G Suter - One of the best experts on this subject based on the ideXlab platform.
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systematic review and appraisal of the cross cultural validity of Functional Status Assessment measures in rheumatoid arthritis
Arthritis Care and Research, 2020Co-Authors: Stephanie Kulhawywibe, Joann Zell, Jinoos Yazdany, Aileen M Davis, Laura C Cappelli, Linda Ehrlichjones, Donna Everix, Carter J Thorne, Kaleb Michaud, Lisa G SuterAbstract:Author(s): Kulhawy-Wibe, Stephanie C; Zell, JoAnn; Michaud, Kaleb; Yazdany, Jinoos; Davis, Aileen M; Ehrlich-Jones, Linda; Thorne, J Carter; Everix, Donna; Cappelli, Laura C; Suter, Lisa G; Limanni, Alex; Barber, Claire EH | Abstract: ObjectiveWe conducted a systematic review and appraisal of the cross-cultural adaptation and cross-cultural validity of the Health Assessment Questionnaire (HAQ) and its derivatives, and of the more recent Patient-Reported Outcomes Measurement Information System (PROMIS) Functional Status Assessment measures (FSAMs) in rheumatoid arthritis.MethodsFour electronic medical databases were searched from inception until April 4, 2018 according to the Consensus-Based Standards for the Selection of Health Measurement Instruments (COSMIN) group search strategy. Included studies were evaluated using the COSMIN tool for cross-cultural validity and were scored as excellent, good, fair, or poor.ResultsOf 58 articles identified by our search strategy and 3 by manual search, 39 were included: 29 described the translation, cultural adaptation, or cross-cultural validity of the HAQ disability index, 8 other HAQ derivatives, and 2 PROMIS measures, representing 22 languages. Of the 39 articles reviewed, 3 examined the cross-cultural validity of translated versions. These studies were rated as follows: 2 as excellent, 3 good, 13 fair, and 21 poor. Two studies examining cross-cultural validity noted differential item functioning (DIF) between Dutch and US populations for the HAQ-II and PROMIS measures, and a third study found DIF between Turkish and UK populations on the HAQ, indicating cultural differences in questionnaire response.ConclusionThis review highlights a paucity of data on the cross-cultural validity of FSAMs and the mostly poor- or fair-quality methods by which they were translated and adapted, which needs to be considered when using these measures for multinational clinical trials and for day-to-day use in clinical practice.
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2019 american college of rheumatology recommended patient reported Functional Status Assessment measures in rheumatoid arthritis
Arthritis Care and Research, 2019Co-Authors: Claire E H Barber, Joann Zell, Jinoos Yazdany, Aileen M Davis, Laura C Cappelli, Linda Ehrlichjones, Donna Everix, Carter J Thorne, Victoria Bohm, Lisa G SuterAbstract:Objective To develop American College of Rheumatology (ACR) recommendations for patient-reported Functional Status Assessment Measures (FSAMs) for use in routine clinical practice in patients with rheumatoid arthritis (RA). Methods We convened a workgroup to conduct a systematic review of published literature through March 16, 2017 and abstract FSAM properties. Based upon initial search results and clinical input, we focused on the following FSAMs appropriate for routine clinical use: the Health Assessment Questionnaire (HAQ) and derived measures and the Patient-Reported Outcomes Measurement Information System (PROMIS) tool. We used the Consensus-Based Standards for the Selection of Health Measurement Instruments (COSMIN) 4-point scoring method to evaluate each FSAM, allowing for overall level of evidence Assessment. We identified FSAMs fulfilling a predefined minimum standard and, through a modified Delphi process, selected preferred FSAMs for regular use in most clinic settings. Results The search identified 11,835 articles, of which 56 were included in the review. Descriptions of the measures, properties, study quality, level of evidence, and feasibility were abstracted and scored. Following a modified Delphi process, 7 measures fulfilled the minimum standard for regular use in most clinic settings, and 3 measures were recommended: the PROMIS physical function 10-item short form (PROMIS PF10a), the HAQ-II, and the Multidimensional HAQ. Conclusion This work establishes ACR recommendations for preferred RA FSAMs for regular use in most clinic settings. These results will inform clinical practice and can support future ACR quality measure development as well as highlight ongoing research needs.
Jinoos Yazdany - One of the best experts on this subject based on the ideXlab platform.
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systematic review and appraisal of the cross cultural validity of Functional Status Assessment measures in rheumatoid arthritis
Arthritis Care and Research, 2020Co-Authors: Stephanie Kulhawywibe, Joann Zell, Jinoos Yazdany, Aileen M Davis, Laura C Cappelli, Linda Ehrlichjones, Donna Everix, Carter J Thorne, Kaleb Michaud, Lisa G SuterAbstract:Author(s): Kulhawy-Wibe, Stephanie C; Zell, JoAnn; Michaud, Kaleb; Yazdany, Jinoos; Davis, Aileen M; Ehrlich-Jones, Linda; Thorne, J Carter; Everix, Donna; Cappelli, Laura C; Suter, Lisa G; Limanni, Alex; Barber, Claire EH | Abstract: ObjectiveWe conducted a systematic review and appraisal of the cross-cultural adaptation and cross-cultural validity of the Health Assessment Questionnaire (HAQ) and its derivatives, and of the more recent Patient-Reported Outcomes Measurement Information System (PROMIS) Functional Status Assessment measures (FSAMs) in rheumatoid arthritis.MethodsFour electronic medical databases were searched from inception until April 4, 2018 according to the Consensus-Based Standards for the Selection of Health Measurement Instruments (COSMIN) group search strategy. Included studies were evaluated using the COSMIN tool for cross-cultural validity and were scored as excellent, good, fair, or poor.ResultsOf 58 articles identified by our search strategy and 3 by manual search, 39 were included: 29 described the translation, cultural adaptation, or cross-cultural validity of the HAQ disability index, 8 other HAQ derivatives, and 2 PROMIS measures, representing 22 languages. Of the 39 articles reviewed, 3 examined the cross-cultural validity of translated versions. These studies were rated as follows: 2 as excellent, 3 good, 13 fair, and 21 poor. Two studies examining cross-cultural validity noted differential item functioning (DIF) between Dutch and US populations for the HAQ-II and PROMIS measures, and a third study found DIF between Turkish and UK populations on the HAQ, indicating cultural differences in questionnaire response.ConclusionThis review highlights a paucity of data on the cross-cultural validity of FSAMs and the mostly poor- or fair-quality methods by which they were translated and adapted, which needs to be considered when using these measures for multinational clinical trials and for day-to-day use in clinical practice.
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2019 american college of rheumatology recommended patient reported Functional Status Assessment measures in rheumatoid arthritis
Arthritis Care and Research, 2019Co-Authors: Claire E H Barber, Joann Zell, Jinoos Yazdany, Aileen M Davis, Laura C Cappelli, Linda Ehrlichjones, Donna Everix, Carter J Thorne, Victoria Bohm, Lisa G SuterAbstract:Objective To develop American College of Rheumatology (ACR) recommendations for patient-reported Functional Status Assessment Measures (FSAMs) for use in routine clinical practice in patients with rheumatoid arthritis (RA). Methods We convened a workgroup to conduct a systematic review of published literature through March 16, 2017 and abstract FSAM properties. Based upon initial search results and clinical input, we focused on the following FSAMs appropriate for routine clinical use: the Health Assessment Questionnaire (HAQ) and derived measures and the Patient-Reported Outcomes Measurement Information System (PROMIS) tool. We used the Consensus-Based Standards for the Selection of Health Measurement Instruments (COSMIN) 4-point scoring method to evaluate each FSAM, allowing for overall level of evidence Assessment. We identified FSAMs fulfilling a predefined minimum standard and, through a modified Delphi process, selected preferred FSAMs for regular use in most clinic settings. Results The search identified 11,835 articles, of which 56 were included in the review. Descriptions of the measures, properties, study quality, level of evidence, and feasibility were abstracted and scored. Following a modified Delphi process, 7 measures fulfilled the minimum standard for regular use in most clinic settings, and 3 measures were recommended: the PROMIS physical function 10-item short form (PROMIS PF10a), the HAQ-II, and the Multidimensional HAQ. Conclusion This work establishes ACR recommendations for preferred RA FSAMs for regular use in most clinic settings. These results will inform clinical practice and can support future ACR quality measure development as well as highlight ongoing research needs.
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development of the american college of rheumatology s rheumatoid arthritis electronic clinical quality measures
Arthritis Care and Research, 2016Co-Authors: Jinoos Yazdany, Mark L Robbins, Gabriela Schmajuk, Sonali Desai, Diane Lacaille, Tuhina Neogi, Jasvinder A Singh, Mark C Genovese, Rachel Myslinski, Natalie FiskAbstract:Background: Electronic clinical quality measures (eCQMs) rely on computer algorithms to extract data from electronic health records (EHRs). On behalf of the American College of Rheumatology (ACR), we sought to develop and test eCQMs for rheumatoid arthritis (RA). Methods: Drawing from published ACR guidelines, a working group developed candidate RA process measures and subsequently assessed face validity through an interdisciplinary panel of health care stakeholders. A public comment period followed. Measures that passed these levels of review were electronically specified using the Quality Data Model, which provides standard nomenclature for data elements (category, datatype, value sets) obtained through an EHR. For each eCQM, 3 clinical sites using different EHR systems tested the scientific feasibility and validity of measures. Measures appropriate for accountability were presented for national endorsement. Results: Expert panel validity ratings were high for all measures (median 8-9 out of 9). Health system performance on the eCQMs was 53.6% for RA disease activity Assessment, 69.1% for Functional Status Assessment, 93.1% for disease modifying drug (DMARD) use and 72.8% for tuberculosis screening. Kappa statistics, evaluating whether the eCQM validly captured data obtained from manual EHR chart review, demonstrated moderate to substantial agreement (0.54 for Functional Status Assessment, 0.73 for tuberculosis screening, 0.84 for disease activity, and 0.85 for DMARD use). Conclusion: Four eCQMs for RA have achieved national endorsement and are recommended for use in federal quality reporting programs. Implementation and further refinement of these measures is ongoing in the ACR's registry, the Rheumatology Informatics System for Effectiveness (RISE). This article is protected by copyright. All rights reserved.
Sergio Federico Robbiati - One of the best experts on this subject based on the ideXlab platform.
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pretreatment quality of life and Functional Status Assessment significantly predict survival of elderly patients with advanced non small cell lung cancer receiving chemotherapy a prognostic analysis of the multicenter italian lung cancer in the elderly study
Journal of Clinical Oncology, 2005Co-Authors: Paolo Maione, Francesco Perrone, Ciro Gallo, Luigi Manzione, Francovito Piantedosi, S Barbera, S Cigolari, Francesco Rosetti, E Piazza, Sergio Federico RobbiatiAbstract:Purpose To study the prognostic value for overall survival of baseline Assessment of Functional Status, comorbidity, and quality of life (QoL) in elderly patients with advanced non—small-cell lung cancer treated with chemotherapy. Patients and Methods Data from 566 patients enrolled onto the phase III randomized Multicenter Italian Lung Cancer in the Elderly Study (MILES) study were analyzed. Functional Status was measured as activities of daily living (ADL) and instrumental ADL (IADL). The presence of comorbidity was assessed with a checklist of 33 items; items 29 and 30 of the European Organisation for Research and Treatment of Cancer (EORTC) core questionnaire QLQ-C30 (EORTC QLQ-C30) were used to estimate QoL. ADL was dichotomized as none versus one or more dependency. For IADL and QoL, three categories were defined using first and third quartiles as cut points. Comorbidity was summarized using the Charlson scale. Analysis was performed by Cox model, and stratified by treatment arm. Results Better valu...
Jane Mccusker - One of the best experts on this subject based on the ideXlab platform.
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item analysis of the Functional Status Assessment of seniors in the emergency department
Disability and Rehabilitation, 2009Co-Authors: Nathalie Veillette, Louise Demers, Elisabeth Dutil, Jane MccuskerAbstract:Purpose. To report some psychometric properties of the Functional Status Assessment of seniors in the emergency department (FSAS-ED) at item level. This 40-item tool addresses the person's Functional Status prior to and following the decision to consult in ED.Method. A sample of 150 community-living elderly individuals who consulted the ED was recruited. Two evaluators administered the FSAS-ED in the ED and scored it independently. Three measurement properties were considered relevant for the item analysis: response distribution, inter-rater reliability and the ability to indicate a change between before and following the decision to consult ED. Criteria related to these properties were established to classify items as being excellent, acceptable or weak.Results. The response distributions were excellent or acceptable for 36 items (90%). Results pertaining to inter-rater reliability showed 39 excellent or acceptable items (97.5%). Comparison of the responses between before and following the decision to co...
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development of a Functional Status Assessment of seniors visiting emergency department
Archives of Gerontology and Geriatrics, 2009Co-Authors: Nathalie Veillette, Louise Demers, Elisabeth Dutil, Jane MccuskerAbstract:The purpose of this paper is to describe the development and initial piloting of a Functional Status Assessment of Seniors in Emergency Department (FSAS-ED). The methodology of development of the tool included (1) specifying the underlying construct based on the conceptual framework of the International Classification of Functioning, Disability and Health (ICF), (2) deciding on an interview-based format appropriate for addressing functioning pre- and post-ED, (3) developing an initial 63-item pool and reviewing it through a consensus group with seven experts, (4) piloting the prototype with 23 subjects (mean age = 76 years) and (5) subsequently revising its rating scales. The final 40 items tool consists of three theoretically derived components. First, activity and participation (n = 23 items) address nine ICF domains using a 4-level scale combining levels of difficulty and help required. Second, body functions (n = 10 items) cover eight ICF domains with a 3-level scale of impairment. And third, environmental factors (n = 7 items) address four ICF domains assessed as facilitators or barriers. In conclusion, the FSAS-ED provides a clinical Assessment of senior's Functional Status that is feasible to use in ED. It has potential utility for identifying unmet needs and obstacles for a safe return to the community.
Carter J Thorne - One of the best experts on this subject based on the ideXlab platform.
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systematic review and appraisal of the cross cultural validity of Functional Status Assessment measures in rheumatoid arthritis
Arthritis Care and Research, 2020Co-Authors: Stephanie Kulhawywibe, Joann Zell, Jinoos Yazdany, Aileen M Davis, Laura C Cappelli, Linda Ehrlichjones, Donna Everix, Carter J Thorne, Kaleb Michaud, Lisa G SuterAbstract:Author(s): Kulhawy-Wibe, Stephanie C; Zell, JoAnn; Michaud, Kaleb; Yazdany, Jinoos; Davis, Aileen M; Ehrlich-Jones, Linda; Thorne, J Carter; Everix, Donna; Cappelli, Laura C; Suter, Lisa G; Limanni, Alex; Barber, Claire EH | Abstract: ObjectiveWe conducted a systematic review and appraisal of the cross-cultural adaptation and cross-cultural validity of the Health Assessment Questionnaire (HAQ) and its derivatives, and of the more recent Patient-Reported Outcomes Measurement Information System (PROMIS) Functional Status Assessment measures (FSAMs) in rheumatoid arthritis.MethodsFour electronic medical databases were searched from inception until April 4, 2018 according to the Consensus-Based Standards for the Selection of Health Measurement Instruments (COSMIN) group search strategy. Included studies were evaluated using the COSMIN tool for cross-cultural validity and were scored as excellent, good, fair, or poor.ResultsOf 58 articles identified by our search strategy and 3 by manual search, 39 were included: 29 described the translation, cultural adaptation, or cross-cultural validity of the HAQ disability index, 8 other HAQ derivatives, and 2 PROMIS measures, representing 22 languages. Of the 39 articles reviewed, 3 examined the cross-cultural validity of translated versions. These studies were rated as follows: 2 as excellent, 3 good, 13 fair, and 21 poor. Two studies examining cross-cultural validity noted differential item functioning (DIF) between Dutch and US populations for the HAQ-II and PROMIS measures, and a third study found DIF between Turkish and UK populations on the HAQ, indicating cultural differences in questionnaire response.ConclusionThis review highlights a paucity of data on the cross-cultural validity of FSAMs and the mostly poor- or fair-quality methods by which they were translated and adapted, which needs to be considered when using these measures for multinational clinical trials and for day-to-day use in clinical practice.
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2019 american college of rheumatology recommended patient reported Functional Status Assessment measures in rheumatoid arthritis
Arthritis Care and Research, 2019Co-Authors: Claire E H Barber, Joann Zell, Jinoos Yazdany, Aileen M Davis, Laura C Cappelli, Linda Ehrlichjones, Donna Everix, Carter J Thorne, Victoria Bohm, Lisa G SuterAbstract:Objective To develop American College of Rheumatology (ACR) recommendations for patient-reported Functional Status Assessment Measures (FSAMs) for use in routine clinical practice in patients with rheumatoid arthritis (RA). Methods We convened a workgroup to conduct a systematic review of published literature through March 16, 2017 and abstract FSAM properties. Based upon initial search results and clinical input, we focused on the following FSAMs appropriate for routine clinical use: the Health Assessment Questionnaire (HAQ) and derived measures and the Patient-Reported Outcomes Measurement Information System (PROMIS) tool. We used the Consensus-Based Standards for the Selection of Health Measurement Instruments (COSMIN) 4-point scoring method to evaluate each FSAM, allowing for overall level of evidence Assessment. We identified FSAMs fulfilling a predefined minimum standard and, through a modified Delphi process, selected preferred FSAMs for regular use in most clinic settings. Results The search identified 11,835 articles, of which 56 were included in the review. Descriptions of the measures, properties, study quality, level of evidence, and feasibility were abstracted and scored. Following a modified Delphi process, 7 measures fulfilled the minimum standard for regular use in most clinic settings, and 3 measures were recommended: the PROMIS physical function 10-item short form (PROMIS PF10a), the HAQ-II, and the Multidimensional HAQ. Conclusion This work establishes ACR recommendations for preferred RA FSAMs for regular use in most clinic settings. These results will inform clinical practice and can support future ACR quality measure development as well as highlight ongoing research needs.
