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S. Robin Cohen - One of the best experts on this subject based on the ideXlab platform.
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The Development and Validation of a Shorter Version of the Canadian Health Care Evaluation Project Questionnaire (CANHELP Lite): A Novel Tool to Measure Patient and Family Satisfaction With End-of-Life Care
Journal of pain and symptom management, 2012Co-Authors: Daren K. Heyland, Xuran Jiang, Andrew G. Day, S. Robin CohenAbstract:Abstract Context The recently developed Canadian Health Care Evaluation Project (CANHELP) questionnaire, which can be used to assess both patient and family satisfaction with end-of-life Care, takes 40–60 minutes to complete. The length of the interview may limit its uptake and clinical utility; a shorter version would make its use more feasible. Objectives The purpose of this study was to develop and validate a shorter version of the CANHELP questionnaire. Methods Data were collected using a cross-sectional survey of patients with advanced medical diseases and their family members. Participants completed the long version of CANHELP, a global rating of satisfaction with Care (GRS), the FAMCare scale (family members only), and a quality-of-life (QOL) questionnaire. We reduced the items on the long version based on their relationship to the GRS, the frequency of missing data, the distribution of responses, the redundancy of the items, and focus groups with frontline users. With the remaining items, we assessed internal consistency using Cronbach's alpha, and evaluated construct validity by describing the correlation of the new CANHELP Lite with the full version of CANHELP, GRS, FAMCare, and the QOL questionnaire scores. Results A total of 363 patients and 193 family members participated in this study. The patient version was reduced from 37 items to 20 items and the Caregiver version was reduced from 38 items to 21 items. Cronbach's alphas ranged from 0.68 to 0.93 for all domains of both the patient and Caregiver questionnaires. We observed a high degree of correlation between CANHELP Lite domains and overall scores and the same domains and overall scores for the full version of CANHELP. In addition, we observed moderate to strong correlation between the CANHELP Lite overall satisfaction scores and the GRS questions. There was moderate correlation between the overall family member CANHELP Lite score and overall FAMCare score (r = 0.45) and this was similar to the correlation between the full version of CANHELP and FAMCare scores (r = 0.41). CANHELP Lite correlated more strongly with the QOL subscale on Health Care than the other QOL subscales. Conclusion The CANHELP Lite questionnaire is a valid and internally consistent instrument to measure satisfaction with end-of-life Care.
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The development and validation of a novel questionnaire to measure patient and family satisfaction with end-of-life Care: the Canadian Health Care Evaluation Project (CANHELP) Questionnaire
Palliative medicine, 2010Co-Authors: Daren K. Heyland, Deborah J. Cook, Graeme M. Rocker, Peter Dodek, Demetrios J. Kutsogiannis, Yoanna Skrobik, Xuran Jiang, Andrew G. Day, S. Robin CohenAbstract:The purpose of this study was to further validate a novel instrument to measure satisfaction with end-of-life Care, called the Canadian Health Care Evaluation Project (CANHELP) questionnaire. Data were collected by a cross-sectional survey of patients who had advanced, life-limiting illnesses and their family Caregivers, and who completed CANHELP, a global rating of satisfaction, and a quality of life questionnaire. We conducted factor analysis, assessed internal consistency using Cronbach's alpha, and evaluated construct validity by describing the correlation amongst CANHELP, global rating of satisfaction and the quality of life questionnaire scores. There were 361 patient and 193 family questionnaires available for analysis. In the factor analysis, we identified six easily interpretable factors which explained 55.4% and 60.2% of the variance for the patient and Caregiver questionnaire, respectively. For the patient version, the subscales derived from these factors were Relationship with Doctors, Illness Management, Communication, Decision-Making, Role of the Family, and Your Well-being. For the family questionnaire, the factors were Relationship with Doctors, Characteristics of Doctors and Nurses, Illness Management, Communication and Decision-Making, Your Involvement, and Your Well-being. Each subscale for each questionnaire had acceptable to excellent internal consistency (Cronbach's alpha ranged from 0.69-0.94). We observed good correlations between the CANHELP overall satisfaction score and global rating of satisfaction (correlation coefficient 0.49 and 0.63 for patient and family, respectively) which was greater than the correlations between CANHELP and the quality of life instruments. We conclude that the CANHELP Questionnaire is a valid and internally consistent instrument to measure satisfaction with end-of-life Care.
Daren K. Heyland - One of the best experts on this subject based on the ideXlab platform.
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The Development and Validation of a Shorter Version of the Canadian Health Care Evaluation Project Questionnaire (CANHELP Lite): A Novel Tool to Measure Patient and Family Satisfaction With End-of-Life Care
Journal of pain and symptom management, 2012Co-Authors: Daren K. Heyland, Xuran Jiang, Andrew G. Day, S. Robin CohenAbstract:Abstract Context The recently developed Canadian Health Care Evaluation Project (CANHELP) questionnaire, which can be used to assess both patient and family satisfaction with end-of-life Care, takes 40–60 minutes to complete. The length of the interview may limit its uptake and clinical utility; a shorter version would make its use more feasible. Objectives The purpose of this study was to develop and validate a shorter version of the CANHELP questionnaire. Methods Data were collected using a cross-sectional survey of patients with advanced medical diseases and their family members. Participants completed the long version of CANHELP, a global rating of satisfaction with Care (GRS), the FAMCare scale (family members only), and a quality-of-life (QOL) questionnaire. We reduced the items on the long version based on their relationship to the GRS, the frequency of missing data, the distribution of responses, the redundancy of the items, and focus groups with frontline users. With the remaining items, we assessed internal consistency using Cronbach's alpha, and evaluated construct validity by describing the correlation of the new CANHELP Lite with the full version of CANHELP, GRS, FAMCare, and the QOL questionnaire scores. Results A total of 363 patients and 193 family members participated in this study. The patient version was reduced from 37 items to 20 items and the Caregiver version was reduced from 38 items to 21 items. Cronbach's alphas ranged from 0.68 to 0.93 for all domains of both the patient and Caregiver questionnaires. We observed a high degree of correlation between CANHELP Lite domains and overall scores and the same domains and overall scores for the full version of CANHELP. In addition, we observed moderate to strong correlation between the CANHELP Lite overall satisfaction scores and the GRS questions. There was moderate correlation between the overall family member CANHELP Lite score and overall FAMCare score (r = 0.45) and this was similar to the correlation between the full version of CANHELP and FAMCare scores (r = 0.41). CANHELP Lite correlated more strongly with the QOL subscale on Health Care than the other QOL subscales. Conclusion The CANHELP Lite questionnaire is a valid and internally consistent instrument to measure satisfaction with end-of-life Care.
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The development and validation of a novel questionnaire to measure patient and family satisfaction with end-of-life Care: the Canadian Health Care Evaluation Project (CANHELP) Questionnaire
Palliative medicine, 2010Co-Authors: Daren K. Heyland, Deborah J. Cook, Graeme M. Rocker, Peter Dodek, Demetrios J. Kutsogiannis, Yoanna Skrobik, Xuran Jiang, Andrew G. Day, S. Robin CohenAbstract:The purpose of this study was to further validate a novel instrument to measure satisfaction with end-of-life Care, called the Canadian Health Care Evaluation Project (CANHELP) questionnaire. Data were collected by a cross-sectional survey of patients who had advanced, life-limiting illnesses and their family Caregivers, and who completed CANHELP, a global rating of satisfaction, and a quality of life questionnaire. We conducted factor analysis, assessed internal consistency using Cronbach's alpha, and evaluated construct validity by describing the correlation amongst CANHELP, global rating of satisfaction and the quality of life questionnaire scores. There were 361 patient and 193 family questionnaires available for analysis. In the factor analysis, we identified six easily interpretable factors which explained 55.4% and 60.2% of the variance for the patient and Caregiver questionnaire, respectively. For the patient version, the subscales derived from these factors were Relationship with Doctors, Illness Management, Communication, Decision-Making, Role of the Family, and Your Well-being. For the family questionnaire, the factors were Relationship with Doctors, Characteristics of Doctors and Nurses, Illness Management, Communication and Decision-Making, Your Involvement, and Your Well-being. Each subscale for each questionnaire had acceptable to excellent internal consistency (Cronbach's alpha ranged from 0.69-0.94). We observed good correlations between the CANHELP overall satisfaction score and global rating of satisfaction (correlation coefficient 0.49 and 0.63 for patient and family, respectively) which was greater than the correlations between CANHELP and the quality of life instruments. We conclude that the CANHELP Questionnaire is a valid and internally consistent instrument to measure satisfaction with end-of-life Care.
Andrew G. Day - One of the best experts on this subject based on the ideXlab platform.
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The Development and Validation of a Shorter Version of the Canadian Health Care Evaluation Project Questionnaire (CANHELP Lite): A Novel Tool to Measure Patient and Family Satisfaction With End-of-Life Care
Journal of pain and symptom management, 2012Co-Authors: Daren K. Heyland, Xuran Jiang, Andrew G. Day, S. Robin CohenAbstract:Abstract Context The recently developed Canadian Health Care Evaluation Project (CANHELP) questionnaire, which can be used to assess both patient and family satisfaction with end-of-life Care, takes 40–60 minutes to complete. The length of the interview may limit its uptake and clinical utility; a shorter version would make its use more feasible. Objectives The purpose of this study was to develop and validate a shorter version of the CANHELP questionnaire. Methods Data were collected using a cross-sectional survey of patients with advanced medical diseases and their family members. Participants completed the long version of CANHELP, a global rating of satisfaction with Care (GRS), the FAMCare scale (family members only), and a quality-of-life (QOL) questionnaire. We reduced the items on the long version based on their relationship to the GRS, the frequency of missing data, the distribution of responses, the redundancy of the items, and focus groups with frontline users. With the remaining items, we assessed internal consistency using Cronbach's alpha, and evaluated construct validity by describing the correlation of the new CANHELP Lite with the full version of CANHELP, GRS, FAMCare, and the QOL questionnaire scores. Results A total of 363 patients and 193 family members participated in this study. The patient version was reduced from 37 items to 20 items and the Caregiver version was reduced from 38 items to 21 items. Cronbach's alphas ranged from 0.68 to 0.93 for all domains of both the patient and Caregiver questionnaires. We observed a high degree of correlation between CANHELP Lite domains and overall scores and the same domains and overall scores for the full version of CANHELP. In addition, we observed moderate to strong correlation between the CANHELP Lite overall satisfaction scores and the GRS questions. There was moderate correlation between the overall family member CANHELP Lite score and overall FAMCare score (r = 0.45) and this was similar to the correlation between the full version of CANHELP and FAMCare scores (r = 0.41). CANHELP Lite correlated more strongly with the QOL subscale on Health Care than the other QOL subscales. Conclusion The CANHELP Lite questionnaire is a valid and internally consistent instrument to measure satisfaction with end-of-life Care.
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The development and validation of a novel questionnaire to measure patient and family satisfaction with end-of-life Care: the Canadian Health Care Evaluation Project (CANHELP) Questionnaire
Palliative medicine, 2010Co-Authors: Daren K. Heyland, Deborah J. Cook, Graeme M. Rocker, Peter Dodek, Demetrios J. Kutsogiannis, Yoanna Skrobik, Xuran Jiang, Andrew G. Day, S. Robin CohenAbstract:The purpose of this study was to further validate a novel instrument to measure satisfaction with end-of-life Care, called the Canadian Health Care Evaluation Project (CANHELP) questionnaire. Data were collected by a cross-sectional survey of patients who had advanced, life-limiting illnesses and their family Caregivers, and who completed CANHELP, a global rating of satisfaction, and a quality of life questionnaire. We conducted factor analysis, assessed internal consistency using Cronbach's alpha, and evaluated construct validity by describing the correlation amongst CANHELP, global rating of satisfaction and the quality of life questionnaire scores. There were 361 patient and 193 family questionnaires available for analysis. In the factor analysis, we identified six easily interpretable factors which explained 55.4% and 60.2% of the variance for the patient and Caregiver questionnaire, respectively. For the patient version, the subscales derived from these factors were Relationship with Doctors, Illness Management, Communication, Decision-Making, Role of the Family, and Your Well-being. For the family questionnaire, the factors were Relationship with Doctors, Characteristics of Doctors and Nurses, Illness Management, Communication and Decision-Making, Your Involvement, and Your Well-being. Each subscale for each questionnaire had acceptable to excellent internal consistency (Cronbach's alpha ranged from 0.69-0.94). We observed good correlations between the CANHELP overall satisfaction score and global rating of satisfaction (correlation coefficient 0.49 and 0.63 for patient and family, respectively) which was greater than the correlations between CANHELP and the quality of life instruments. We conclude that the CANHELP Questionnaire is a valid and internally consistent instrument to measure satisfaction with end-of-life Care.
Xuran Jiang - One of the best experts on this subject based on the ideXlab platform.
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The Development and Validation of a Shorter Version of the Canadian Health Care Evaluation Project Questionnaire (CANHELP Lite): A Novel Tool to Measure Patient and Family Satisfaction With End-of-Life Care
Journal of pain and symptom management, 2012Co-Authors: Daren K. Heyland, Xuran Jiang, Andrew G. Day, S. Robin CohenAbstract:Abstract Context The recently developed Canadian Health Care Evaluation Project (CANHELP) questionnaire, which can be used to assess both patient and family satisfaction with end-of-life Care, takes 40–60 minutes to complete. The length of the interview may limit its uptake and clinical utility; a shorter version would make its use more feasible. Objectives The purpose of this study was to develop and validate a shorter version of the CANHELP questionnaire. Methods Data were collected using a cross-sectional survey of patients with advanced medical diseases and their family members. Participants completed the long version of CANHELP, a global rating of satisfaction with Care (GRS), the FAMCare scale (family members only), and a quality-of-life (QOL) questionnaire. We reduced the items on the long version based on their relationship to the GRS, the frequency of missing data, the distribution of responses, the redundancy of the items, and focus groups with frontline users. With the remaining items, we assessed internal consistency using Cronbach's alpha, and evaluated construct validity by describing the correlation of the new CANHELP Lite with the full version of CANHELP, GRS, FAMCare, and the QOL questionnaire scores. Results A total of 363 patients and 193 family members participated in this study. The patient version was reduced from 37 items to 20 items and the Caregiver version was reduced from 38 items to 21 items. Cronbach's alphas ranged from 0.68 to 0.93 for all domains of both the patient and Caregiver questionnaires. We observed a high degree of correlation between CANHELP Lite domains and overall scores and the same domains and overall scores for the full version of CANHELP. In addition, we observed moderate to strong correlation between the CANHELP Lite overall satisfaction scores and the GRS questions. There was moderate correlation between the overall family member CANHELP Lite score and overall FAMCare score (r = 0.45) and this was similar to the correlation between the full version of CANHELP and FAMCare scores (r = 0.41). CANHELP Lite correlated more strongly with the QOL subscale on Health Care than the other QOL subscales. Conclusion The CANHELP Lite questionnaire is a valid and internally consistent instrument to measure satisfaction with end-of-life Care.
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The development and validation of a novel questionnaire to measure patient and family satisfaction with end-of-life Care: the Canadian Health Care Evaluation Project (CANHELP) Questionnaire
Palliative medicine, 2010Co-Authors: Daren K. Heyland, Deborah J. Cook, Graeme M. Rocker, Peter Dodek, Demetrios J. Kutsogiannis, Yoanna Skrobik, Xuran Jiang, Andrew G. Day, S. Robin CohenAbstract:The purpose of this study was to further validate a novel instrument to measure satisfaction with end-of-life Care, called the Canadian Health Care Evaluation Project (CANHELP) questionnaire. Data were collected by a cross-sectional survey of patients who had advanced, life-limiting illnesses and their family Caregivers, and who completed CANHELP, a global rating of satisfaction, and a quality of life questionnaire. We conducted factor analysis, assessed internal consistency using Cronbach's alpha, and evaluated construct validity by describing the correlation amongst CANHELP, global rating of satisfaction and the quality of life questionnaire scores. There were 361 patient and 193 family questionnaires available for analysis. In the factor analysis, we identified six easily interpretable factors which explained 55.4% and 60.2% of the variance for the patient and Caregiver questionnaire, respectively. For the patient version, the subscales derived from these factors were Relationship with Doctors, Illness Management, Communication, Decision-Making, Role of the Family, and Your Well-being. For the family questionnaire, the factors were Relationship with Doctors, Characteristics of Doctors and Nurses, Illness Management, Communication and Decision-Making, Your Involvement, and Your Well-being. Each subscale for each questionnaire had acceptable to excellent internal consistency (Cronbach's alpha ranged from 0.69-0.94). We observed good correlations between the CANHELP overall satisfaction score and global rating of satisfaction (correlation coefficient 0.49 and 0.63 for patient and family, respectively) which was greater than the correlations between CANHELP and the quality of life instruments. We conclude that the CANHELP Questionnaire is a valid and internally consistent instrument to measure satisfaction with end-of-life Care.
Mary Ann Muckaden - One of the best experts on this subject based on the ideXlab platform.
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RELEVANCE OF CANADIAN Health Care Evaluation PROJECT (CANHELP) QUESTIONNAIRE FOR PATIENTS ON HOMECare IN MUMBAI
BMJ Supportive & Palliative Care, 2014Co-Authors: Arunangshu Ghoshal, Manjiri Dighe, Jayita Deodhar, Sunil Dhiliwal, Anuja Damani, Mary Ann MuckadenAbstract:Background The Palliative Care unit at Tata Memorial Hospital has a multidisciplinary home Care team serving Mumbai based population for over a decade. Objective Study the relevance of Canadian Health Care Evaluation Project (CANHELP) questionnaire in Mumbai based patients and families registered with Palliative Medicine Department, Tata Memorial Centre who are being presently provided with homeCare services and to identify unmet needs of Care provided at end-of-life. Methods CANHELP Questionnaire assesses importance of end of life Care provision and satisfaction derived, on a scale of 1–5 (ascending scale).There are 38 patient centred questions and 40 family questions/per unit; divided into subscales by authors. In this cross-sectional IRB approved study, the CANHELP questionnaire was served on 20 such patients and their families from September to November 2012 after taking informed consent in their preferred language. Data were collected and analyzed using SPSS. Conclusions The mean value calculated for Importance reflects that both the patients and families found end of life Care provision to be very important and the CANHELP questionnaire to be relevant. Satisfaction reflects that both groups were somewhat satisfied with end of life Care services provided. The families were somewhat satisfied with their own involvement in Care at the end of life for their patients. They feel that they can contribute more towards it. The patients were not very satisfied with their participation in deciding the Care process at the end of life. A closer look reveals that this is particularly regarding discussions with doctor about the place of management and the use of life sustaining technologies at the end of life and there is a need for further discussions regarding this.
