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Amber Armstead - One of the best experts on this subject based on the ideXlab platform.
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Addressing the Gap: Occupational Therapy in Hospice Care.
Occupational therapy in health care, 2021Co-Authors: Emily Mueller, Paul Arthur, Mack Ivy, Loree Pryor, Amber ArmsteadAbstract:Patients receiving Hospice Care have a host of occupational challenges, though few are being seen in occupational therapy for treatment. Occupational therapy can help those receiving Hospice Care l...
Jones A - One of the best experts on this subject based on the ideXlab platform.
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The National Home and Hospice Care Survey: 1996 summary.
Vital and health statistics. Series 13 Data from the National Health Survey, 1999Co-Authors: Jones AAbstract:OBJECTIVE This report presents data about agencies providing home and Hospice Care, their current patients, and their discharges. The data are presented in 159 tables according to standard sets of descriptive variables. The tables are grouped into five categories: agencies, home health Care current patients, home health Care discharges, Hospice Care current patients, and Hospice Care discharges. Data are presented on agency characteristics, demographic characteristics, utilization measures, and health and functional status of current patients and discharges. METHODS The data used for this report are from the National Center for Health Statistics' 1996 National Home and Hospice Care Survey. This is a sample survey through which data are collected on the use of home health and Hospice Care agencies in the United States. The data were collected by personal interview using three questionnaires and two sampling lists.
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The National Home and Hospice Care Survey; 1993 summary
Vital and health statistics. Series 13 Data from the National Health Survey, 1996Co-Authors: Jones A, Strahan GAbstract:Data collected in the 1993 National Home and Hospice Care Survey are presented in 61 tables according to standard sets of descriptive variables. The tables on patients are grouped into four categories: home health Care current patients, home health Care discharges, current Hospice Care patients, and Hospice Care discharges. Data are presented on agency characteristics, demographic characteristics, utilization measures, and health and functional status of current patients and discharges.
Joan M. Teno - One of the best experts on this subject based on the ideXlab platform.
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Hospice Care Experiences Among Cancer Patients and Their Caregivers
Journal of General Internal Medicine, 2021Co-Authors: Layla Parast, Anagha A. Tolpadi, Joan M. Teno, Marc N. Elliott, Rebecca Anhang PriceAbstract:Background Little is known about the current quality of Care for Hospice cancer patients and how it varies across Hospice programs in the USA. Objective To examine Hospice Care experiences among decedents with a primary cancer diagnosis and their family Caregivers, comparing quality across settings of Hospice Care. Design We analyzed data from the Consumer Assessment of HealthCare Providers and Systems Hospice Survey (32% response rate). Top-box outcomes (0-100) were calculated overall and by Care setting, adjusting for survey mode and patient case mix. Participants Two hundred seventeen thousand five hundred ninety-six Caregiver respondents whose family member had a primary cancer diagnosis and died in 2017 or 2018 while receiving Hospice Care from 2,890 Hospices nationwide. Main Measures Outcomes (0–100 scale) included 8 National Quality Forum-endorsed quality measures, as well as responses to 4 survey questions assessing whether needs were met for specific symptoms (pain, dyspnea, constipation, anxiety/sadness). Key Results Quality measure scores ranged from 74.9 (Getting Hospice Care Training measure) to 89.5 (Treating Family Member with Respect measure). The overall score for Getting Help for Symptoms was 75.1 with item scores within this measure ranging from 60.6 (getting needed help for feelings of anxiety or sadness) to 84.5 (getting needed help for pain). Measure scores varied significantly across settings and differences were large in magnitude, with Caregivers of decedents who received Care in a nursing home (NH) or assisted living facility (ALF) setting consistently reporting poorer quality of Care. Conclusions Important opportunities exist to improve Hospice Care for symptom palliation and providing training for Caregivers when their family members are at home or in an ALF setting. Efforts to improve Care for cancer patients in the NH and ALF setting are especially needed.
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bereaved family members evaluation of Hospice Care what factors influence overall satisfaction with services
Journal of Pain and Symptom Management, 2008Co-Authors: Ramona L Rhodes, Susan C. Miller, Susan L. Mitchell, Stephen R. Connor, Joan M. TenoAbstract:Abstract As patients near the end of life, bereaved family members provide an important source of evaluation of the Care they receive. A study was conducted to identify which processes of Care were associated with greater satisfaction with Hospice services from the perception of bereaved family members. A total of 116,974 surveys from 819 Hospices in the United States were obtained via the 2005 Family Evaluation of Hospice Care, an online repository of surveys of bereaved family members' perceptions of the quality of Hospice Care maintained by the National Hospice and Palliative Care Organization. Overall satisfaction was dichotomized as "excellent" vs. "other" (very good, good, fair, and poor). Using multivariate logistic regression, the association between overall satisfaction and the individual item problem scores that compose the Family Evaluation of Hospice Care were examined. Bereaved family members were more likely to rate overall satisfaction with Hospice services as "excellent" if they were regularly informed about their loved one's condition (adjusted odds ratio [AOR]=3.76, 95% confidence interval [CI]=3.61–3.91), they felt the Hospice team provided the right amount of emotional support to them (AOR=2.21, 95% CI=2.07–2.38), they felt that the Hospice team provided them with accurate information about the patient's medical treatment (AOR=2.16, 95% CI=2.06–2.27), and they could identify one nurse as being in charge of their loved one's Care (AOR=2.02, CI=1.92–2.13). These four key processes of Care appear to significantly influence an "excellent" rating of overall satisfaction with Hospice Care.
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Hospice Care for patients with dementia.
Journal of pain and symptom management, 2007Co-Authors: Susan L. Mitchell, Dan K. Kiely, Susan C. Miller, Stephen R. Connor, Carol Spence, Joan M. TenoAbstract:Dementia is a leading cause of death in the USA. Although guidelines exist to determine Hospice eligibility for dementia, only a small percentage of patients dying with this condition receive Hospice Care. Hospice recipients with dementia have not been well characterized, and little is known about the quality of Care they receive. The Family Evaluation of Hospice Care (FEHC) survey was adopted by the National Hospice and Palliative Care Organization (NHPCO) in 2003 as a standard benchmarking tool. The FEHC collects data from bereaved families regarding the quality of Hospice Care. An online repository of 2005 FEHC data was used to describe Hospice recipients over 65 years of age who died with dementia and to examine their families' evaluation of Hospice Care. Decedents with cancer and chronic terminal conditions were also analyzed for comparison purposes. A total of 77,123 surveys submitted by 796 Hospices nationwide met the study's eligibility criteria. Decedent diagnoses were as follows: dementia, n = 8,686 (11.3%); cancer, n = 35,693 (46.3%); and other chronic diseases, n = 32,744 (42.4%). Decedents with dementia were more likely to be >85 years, female, and have length of stays >180 days. Evaluation of Care in all FEHC domains did not significantly differ between groups. Approximately three-quarters of bereaved family members of decedents in all groups perceived the overall quality of Care as excellent; however, opportunities to improve Care were also identified. These data suggest that the evaluation of Hospice Care for older patients is generally high, and does not vary with respect to terminal diagnoses.
Emily Mueller - One of the best experts on this subject based on the ideXlab platform.
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Addressing the Gap: Occupational Therapy in Hospice Care.
Occupational therapy in health care, 2021Co-Authors: Emily Mueller, Paul Arthur, Mack Ivy, Loree Pryor, Amber ArmsteadAbstract:Patients receiving Hospice Care have a host of occupational challenges, though few are being seen in occupational therapy for treatment. Occupational therapy can help those receiving Hospice Care l...
Susan C. Miller - One of the best experts on this subject based on the ideXlab platform.
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bereaved family members evaluation of Hospice Care what factors influence overall satisfaction with services
Journal of Pain and Symptom Management, 2008Co-Authors: Ramona L Rhodes, Susan C. Miller, Susan L. Mitchell, Stephen R. Connor, Joan M. TenoAbstract:Abstract As patients near the end of life, bereaved family members provide an important source of evaluation of the Care they receive. A study was conducted to identify which processes of Care were associated with greater satisfaction with Hospice services from the perception of bereaved family members. A total of 116,974 surveys from 819 Hospices in the United States were obtained via the 2005 Family Evaluation of Hospice Care, an online repository of surveys of bereaved family members' perceptions of the quality of Hospice Care maintained by the National Hospice and Palliative Care Organization. Overall satisfaction was dichotomized as "excellent" vs. "other" (very good, good, fair, and poor). Using multivariate logistic regression, the association between overall satisfaction and the individual item problem scores that compose the Family Evaluation of Hospice Care were examined. Bereaved family members were more likely to rate overall satisfaction with Hospice services as "excellent" if they were regularly informed about their loved one's condition (adjusted odds ratio [AOR]=3.76, 95% confidence interval [CI]=3.61–3.91), they felt the Hospice team provided the right amount of emotional support to them (AOR=2.21, 95% CI=2.07–2.38), they felt that the Hospice team provided them with accurate information about the patient's medical treatment (AOR=2.16, 95% CI=2.06–2.27), and they could identify one nurse as being in charge of their loved one's Care (AOR=2.02, CI=1.92–2.13). These four key processes of Care appear to significantly influence an "excellent" rating of overall satisfaction with Hospice Care.
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Hospice Care for patients with dementia.
Journal of pain and symptom management, 2007Co-Authors: Susan L. Mitchell, Dan K. Kiely, Susan C. Miller, Stephen R. Connor, Carol Spence, Joan M. TenoAbstract:Dementia is a leading cause of death in the USA. Although guidelines exist to determine Hospice eligibility for dementia, only a small percentage of patients dying with this condition receive Hospice Care. Hospice recipients with dementia have not been well characterized, and little is known about the quality of Care they receive. The Family Evaluation of Hospice Care (FEHC) survey was adopted by the National Hospice and Palliative Care Organization (NHPCO) in 2003 as a standard benchmarking tool. The FEHC collects data from bereaved families regarding the quality of Hospice Care. An online repository of 2005 FEHC data was used to describe Hospice recipients over 65 years of age who died with dementia and to examine their families' evaluation of Hospice Care. Decedents with cancer and chronic terminal conditions were also analyzed for comparison purposes. A total of 77,123 surveys submitted by 796 Hospices nationwide met the study's eligibility criteria. Decedent diagnoses were as follows: dementia, n = 8,686 (11.3%); cancer, n = 35,693 (46.3%); and other chronic diseases, n = 32,744 (42.4%). Decedents with dementia were more likely to be >85 years, female, and have length of stays >180 days. Evaluation of Care in all FEHC domains did not significantly differ between groups. Approximately three-quarters of bereaved family members of decedents in all groups perceived the overall quality of Care as excellent; however, opportunities to improve Care were also identified. These data suggest that the evaluation of Hospice Care for older patients is generally high, and does not vary with respect to terminal diagnoses.
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The role of Hospice Care in the nursing home setting.
Journal of palliative medicine, 2002Co-Authors: Susan C. Miller, Vince MorAbstract:The last days of life for a substantial proportion of dying older adults are spent in nursing homes. Considering this, the provision of MediCare Hospice Care in nursing homes would appear to be an equitable use of MediCare expenditures as well as a valid investment in improving the quality of life for dying nursing home residents. However, government concerns regarding possible abuse of the Hospice benefit in nursing homes, as well as suggestion that the payment for the benefit in nursing homes may be excessive, has perhaps slowed the adoption of Hospice services into the nursing home setting. Currently, access to Hospice Care in nursing homes is inequitable across facilities, and across geographic areas. In nursing homes where Hospice is available and present, however, recent research documents superior outcomes for residents enrolled in Hospice, and perhaps for nonHospice residents. Still, more research is needed, particularly research focusing on the government costs associated with the provision of Hospice Care in nursing homes. If subsequent research continues to support the "added value" of Hospice Care in nursing homes and at the same or less total costs, the issue of foremost concern becomes how equitable access to MediCare Hospice Care in nursing homes can be achieved. Access may be increased to some extent by changing government policies, and conflicting regulations and interpretive guidelines, so they support and encourage the nursing home/Hospice collaboration.