Patient Support Group

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Stephen Morris - One of the best experts on this subject based on the ideXlab platform.

  • women s and health professionals preferences for prenatal tests for down syndrome a discrete choice experiment to contrast noninvasive prenatal diagnosis with current invasive tests
    Genetics in Medicine, 2012
    Co-Authors: Melissa Hill, Jane Fisher, Lyn S Chitty, Stephen Morris
    Abstract:

    PURPOSE: To compare the preferences of women and health professionals for key attributes of noninvasive prenatal diagnosis for Down syndrome relative to current invasive tests. METHODS: A questionnaire incorporating a discrete choice experiment was used to obtain participants' stated preference for diagnostic tests that varied according to four attributes: accuracy, time of test, risk of miscarriage, and provision of information about Down syndrome only or Down syndrome and other conditions. Women and health professionals were recruited from five maternity services in England and a Patient Support Group. RESULTS: Questionnaires from 335 women and 181 health professionals were analyzed. Safe tests, conducted early in pregnancy, with high accuracy and information about Down syndrome and other conditions were preferred. The key attribute affecting women's preferences for testing was no risk of miscarriage, whereas for health professionals it was accuracy. CONCLUSIONS: Policies for implementing noninvasive prenatal diagnosis must consider the differences between women's and health professionals' preferences to ensure the needs of all stakeholders are met. Women's strong preference for tests with no risk of miscarriage demonstrates that consideration for safety of the fetus is paramount in decision making. Effective pretest counseling is therefore essential to ensure women understand the possible implications of results.

Melissa Hill - One of the best experts on this subject based on the ideXlab platform.

  • women s and health professionals preferences for prenatal tests for down syndrome a discrete choice experiment to contrast noninvasive prenatal diagnosis with current invasive tests
    Genetics in Medicine, 2012
    Co-Authors: Melissa Hill, Jane Fisher, Lyn S Chitty, Stephen Morris
    Abstract:

    PURPOSE: To compare the preferences of women and health professionals for key attributes of noninvasive prenatal diagnosis for Down syndrome relative to current invasive tests. METHODS: A questionnaire incorporating a discrete choice experiment was used to obtain participants' stated preference for diagnostic tests that varied according to four attributes: accuracy, time of test, risk of miscarriage, and provision of information about Down syndrome only or Down syndrome and other conditions. Women and health professionals were recruited from five maternity services in England and a Patient Support Group. RESULTS: Questionnaires from 335 women and 181 health professionals were analyzed. Safe tests, conducted early in pregnancy, with high accuracy and information about Down syndrome and other conditions were preferred. The key attribute affecting women's preferences for testing was no risk of miscarriage, whereas for health professionals it was accuracy. CONCLUSIONS: Policies for implementing noninvasive prenatal diagnosis must consider the differences between women's and health professionals' preferences to ensure the needs of all stakeholders are met. Women's strong preference for tests with no risk of miscarriage demonstrates that consideration for safety of the fetus is paramount in decision making. Effective pretest counseling is therefore essential to ensure women understand the possible implications of results.

Saira Hameed - One of the best experts on this subject based on the ideXlab platform.

  • beyond weight loss establishing a postbariatric surgery Patient Support Group what do Patients want
    Journal of Obesity, 2018
    Co-Authors: Saira Hameed, Victoria Salem, Alma Collins, Krishna Shah, Samantha Scholtz, Ahmed R Ahmed, Harvinder Chahal
    Abstract:

    Purpose. There are limited resources for long-term specialist follow-up after bariatric surgery. In selected centres, Patients can access a postoperative Support Group, but there is no clear evidence to guide their delivery. Materials and Methods. A retrospective study of bariatric surgery Patients (n = 152) who had been discharged from specialist follow-up (mean time since surgery 5.5 years), covering weight history, physical and psychosocial comorbidities, and the need for a postoperative bariatric Support Group. Results. Fifty-eight percent wanted a postbariatric surgery Patient Support Group. This was not associated with operation type or the amount of weight lost or regained. However, those who wanted a Support Group were significantly more likely to be struggling to keep the weight off, to be unhappy with the way they look, or to be experiencing difficulties returning to work. Conclusions. These data point to an unmet Patient requirement for a postoperative Support Group that is independent of weight loss success. More research is required to ascertain how such a Group should be delivered, but our data would suggest that Supporting Patients with weight loss maintenance, body image, and return to work is an important part of postoperative care, and these needs extend well beyond the immediate period of specialist follow-up.

Meshia Adams - One of the best experts on this subject based on the ideXlab platform.

  • the renal Patient Support Group Supporting Patients with chronic kidney disease through social media
    Journal of Renal Care, 2014
    Co-Authors: Shahid Muhammad, Michelle Allan, Magda Bonacina, Meshia Adams
    Abstract:

    SUMMARY Background The Renal Patient Support Group (RPSG) is a voluntary Facebook Group that was developed in 2009 in the UK. The RPSG now has in excess of 5000 members. Objective To highlight the work of the RPSG and to describe how the use of social media has helped raise awareness of chronic kidney disease (CKD). The RPSG offers online peer Support internationally, with members sharing their experiences. Methods Since the RPSG is mainly a Facebook platform, this medium has lent itself to raising CKD awareness, also allowing Group members to share real-life stories. Conclusion The RPSG continues to expand and invites health professionals to gain opportunities provided by social media networks to improve the health of their Patients by facilitating and getting involved in ‘real’ discussions.

Lyn S Chitty - One of the best experts on this subject based on the ideXlab platform.

  • women s and health professionals preferences for prenatal tests for down syndrome a discrete choice experiment to contrast noninvasive prenatal diagnosis with current invasive tests
    Genetics in Medicine, 2012
    Co-Authors: Melissa Hill, Jane Fisher, Lyn S Chitty, Stephen Morris
    Abstract:

    PURPOSE: To compare the preferences of women and health professionals for key attributes of noninvasive prenatal diagnosis for Down syndrome relative to current invasive tests. METHODS: A questionnaire incorporating a discrete choice experiment was used to obtain participants' stated preference for diagnostic tests that varied according to four attributes: accuracy, time of test, risk of miscarriage, and provision of information about Down syndrome only or Down syndrome and other conditions. Women and health professionals were recruited from five maternity services in England and a Patient Support Group. RESULTS: Questionnaires from 335 women and 181 health professionals were analyzed. Safe tests, conducted early in pregnancy, with high accuracy and information about Down syndrome and other conditions were preferred. The key attribute affecting women's preferences for testing was no risk of miscarriage, whereas for health professionals it was accuracy. CONCLUSIONS: Policies for implementing noninvasive prenatal diagnosis must consider the differences between women's and health professionals' preferences to ensure the needs of all stakeholders are met. Women's strong preference for tests with no risk of miscarriage demonstrates that consideration for safety of the fetus is paramount in decision making. Effective pretest counseling is therefore essential to ensure women understand the possible implications of results.