The Experts below are selected from a list of 174 Experts worldwide ranked by ideXlab platform

Andrea Ferrari - One of the best experts on this subject based on the ideXlab platform.

Stacy Cooper - One of the best experts on this subject based on the ideXlab platform.

  • The “Day Zero Talk”: the Initial Communication of a Pediatric Oncology Diagnosis by Primary Care Physicians and Other Primary Care Providers
    Journal of Cancer Education, 2020
    Co-Authors: Bernadette Wharton, Dori Michelle Beeler, Stacy Cooper
    Abstract:

    While much is known about the initial communication of a definitive Pediatric cancer diagnosis by the child’s Pediatric Oncologist, little is known about the discussions leading up to this formal conversation, which are often had with nonOncologists. We sought to describe these initial conversations regarding the possibility of a child’s oncologic diagnosis, from the perspective of both the patient/family as well as the provider. Semistructured interviews were performed with individuals involved with a child with recently diagnosed cancer at a quaternary care institution in an urban, mid-Atlantic city. Interviews were recorded, transcribed, and analyzed using qualitative thematic analysis. In total, 71 people were interviewed, representing the experiences of 29 unique Pediatric patients. Patient and caregiver themes included recognition of the urgency of the situation and variety of terms used to indicate the potential of cancer. Physician themes included the impact of health literacy on the discussion and varying opinions on how direct to be regarding the possibility of a cancer diagnosis. The initial discussions of the possibility of a Pediatric cancer diagnosis often occur with nonOncologists, and this day zero talk is critical in laying the groundwork for future communication with providers.

Kremer, Leontien C. M. - One of the best experts on this subject based on the ideXlab platform.

  • Current variations in childhood cancer supportive care in the Netherlands
    2016
    Co-Authors: Loeffen, Erik A. H., Mulder, Renée L., Van De Wetering, Marianne D., Font-gonzalez Anna, Abbink, Floor C. H., Ball, Lynne M., Loeffen, Jan L. C. M., Michiels, Erna M. C., Segers Heidi, Kremer, Leontien C. M.
    Abstract:

    BACKGROUNDCurrent treatment strategies in Pediatric oncology are intensive and lead to high survival rates but also to treatment-related complications. Therefore, supportive care plays an increasingly important role. This study was designed to evaluate variations in supportive care practice in children with cancer in the Netherlands and adherence to selected existing international guidelines through an in-depth review of local guidelines and protocols at all 6 Dutch Pediatric cancer centers. METHODSBased on shared expert opinion, a questionnaire regarding current supportive care practice was compiled. For each center, the required information was extracted from local supportive care guidelines, and the list was sent to a Pediatric Oncologist of that center to verify its correspondence with local daily practice. Subsequently, it was determined whether clinical practice was concordant (same in5 of 6 centers), partly concordant (highly overlapping in5 of 6 centers), or discordant (same in RESULTSThe questionnaire comprised 67 questions regarding supportive care practice. Concordance was observed for 11 of 67 practice items (16%), partial concordance was observed for 6 of 67 practice items (9%), and discordance was observed for 50 of 67 practice items (75%). Adherence to strong recommendations of 4 high-quality, evidence-based guidelines varied but was generally low. CONCLUSIONSLarge variations exist in Pediatric oncology supportive care practice, and this could negatively influence care. Adherence to existing evidence-based guidelines and the development and implementation of new clinical practice guidelines have the potential of standardizing supportive care practice and thereby improving outcomes for children with cancer. (c) 2015 American Cancer Society

  • Current variations in childhood cancer supportive care in the Netherlands
    2016
    Co-Authors: Loeffen, Erik A. H., Mulder, Renée L., Van De Wetering, Marianne D., Font-gonzalez Anna, Abbink, Floor C. H., Ball, Lynne M., Loeffen, Jan L. C. M., Michiels, Erna M. C., Segers Heidi, Kremer, Leontien C. M.
    Abstract:

    BACKGROUND: Current treatment strategies in Pediatric oncology are intensive and lead to high survival rates but also to treatment-related complications. Therefore, supportive care plays an increasingly important role. This study was designed to evaluate variations in supportive care practice in children with cancer in the Netherlands and adherence to selected existing international guidelines through an in-depth review of local guidelines and protocols at all 6 Dutch Pediatric cancer centers. METHODS: Based on shared expert opinion, a questionnaire regarding current supportive care practice was compiled. For each center, the required information was extracted from local supportive care guidelines, and the list was sent to a Pediatric Oncologist of that center to verify its correspondence with local daily practice. Subsequently, it was determined whether clinical practice was concordant (same in ≥ 5 of 6 centers), partly concordant (highly overlapping in ≥ 5 of 6 centers), or discordant (same in 

  • Current variations in childhood cancer supportive care in the Netherlands
    2016
    Co-Authors: Loeffen, Erik A. H., Mulder, Renée L., Van De Wetering, Marianne D., Font-gonzalez Anna, Abbink, Floor C. H., Ball, Lynne M., Loeffen, Jan L. C. M., Michiels, Erna M. C., Segers Heidi, Kremer, Leontien C. M.
    Abstract:

    Current treatment strategies in Pediatric oncology are intensive and lead to high survival rates but also to treatment-related complications. Therefore, supportive care plays an increasingly important role. This study was designed to evaluate variations in supportive care practice in children with cancer in the Netherlands and adherence to selected existing international guidelines through an in-depth review of local guidelines and protocols at all 6 Dutch Pediatric cancer centers. Based on shared expert opinion, a questionnaire regarding current supportive care practice was compiled. For each center, the required information was extracted from local supportive care guidelines, and the list was sent to a Pediatric Oncologist of that center to verify its correspondence with local daily practice. Subsequently, it was determined whether clinical practice was concordant (same in ≥ 5 of 6 centers), partly concordant (highly overlapping in ≥ 5 of 6 centers), or discordant (same in 

Giacomo Giulio Baldi - One of the best experts on this subject based on the ideXlab platform.

Bernadette Wharton - One of the best experts on this subject based on the ideXlab platform.

  • The “Day Zero Talk”: the Initial Communication of a Pediatric Oncology Diagnosis by Primary Care Physicians and Other Primary Care Providers
    Journal of Cancer Education, 2020
    Co-Authors: Bernadette Wharton, Dori Michelle Beeler, Stacy Cooper
    Abstract:

    While much is known about the initial communication of a definitive Pediatric cancer diagnosis by the child’s Pediatric Oncologist, little is known about the discussions leading up to this formal conversation, which are often had with nonOncologists. We sought to describe these initial conversations regarding the possibility of a child’s oncologic diagnosis, from the perspective of both the patient/family as well as the provider. Semistructured interviews were performed with individuals involved with a child with recently diagnosed cancer at a quaternary care institution in an urban, mid-Atlantic city. Interviews were recorded, transcribed, and analyzed using qualitative thematic analysis. In total, 71 people were interviewed, representing the experiences of 29 unique Pediatric patients. Patient and caregiver themes included recognition of the urgency of the situation and variety of terms used to indicate the potential of cancer. Physician themes included the impact of health literacy on the discussion and varying opinions on how direct to be regarding the possibility of a cancer diagnosis. The initial discussions of the possibility of a Pediatric cancer diagnosis often occur with nonOncologists, and this day zero talk is critical in laying the groundwork for future communication with providers.