The Experts below are selected from a list of 996 Experts worldwide ranked by ideXlab platform
Gielen Joris - One of the best experts on this subject based on the ideXlab platform.
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Education in care ethics: a way to increase palliative care awareness in India
Springer, 2016Co-Authors: Gielen JorisAbstract:In India, the private healthcare sector is rapidly growing. The focus on profit and curative treatment in this sector carries the danger of overtreatment and lack of attention to types of care where the margin of profit is limited, such as palliative care. Since further expansion of the private healthcare sector is unavoidable and even necessary due to limited government spending on healthcare in India, ways to promote palliative care awareness in such an environment need to be found. An important step towards this goal is the development of healthcare ethics education with a focus on those ethical theories which are most appropriate from a socio-cultural perspective. Principlism, the dominant model in Western healthcare ethics which applies the principles autonomy, beneficence, nonmaleficence and justice to ethical cases, may not be most suited to the Indian context. Principlism very strongly focuses on individualistic autonomy. Although autonomy can obviously not be neglected in Indian healthcare, ethical theories which pay more attention to relational aspects may be more appropriate. In this context, Care Ethics appears as a valuable ethical theory. Moreover, the focus on caring relationships in Care Ethics clearly points to the need of palliative care. Development of socio-culturally appropriate healthcare ethics education can inculcate ethical sensitivity which will benefit palliative care in India.status: publishe
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Education in Healthcare Ethics: A Way to Increase Palliative Care Awareness
2015Co-Authors: Gielen JorisAbstract:In India, the private healthcare industry is rapidly expanding. The focus on profit in this industry carries the danger of overtreatment and lack of attention to types of care where the margin of profit is limited, such as palliative care. Since further expansion of the private healthcare industry is unavoidable and even necessary due to limited government spending on healthcare in India, ways to promote palliative care awareness in such an environment need to be found. An important step towards this goal is the development of health care ethics education with a focus on those ethical theories which are most appropriate from a socio-cultural perspective. In this paper I develop the argument that Principlism, the dominant model in Western healthcare ethics, may not be most suited to the Indian context. Principlism very strongly focuses on autonomy. Although this principle can obviously not be neglected in Indian healthcare, ethical theories which pay more attention to relational aspects may be more appropriate. In this context, care ethics appears as a valuable ethical theory. Moreover, the focus on caring relationships in care ethics clearly points to the need of palliative care. Development of socio-culturally appropriate healthcare ethics education can inculcate ethical sensitivity which will benefit palliative care in India.status: publishe
Katie Watson - One of the best experts on this subject based on the ideXlab platform.
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documenting moral agency a qualitative analysis of abortion decision making for fetal indications
Contraception, 2017Co-Authors: Lori M Gawron, Katie WatsonAbstract:Abstract Objectives We explored whether the decision-making process of women aborting a pregnancy for a fetal indication fit common medical ethical frameworks. Study design We applied three ethical frameworks (Principlism, care ethics, and narrative ethics) in a secondary analysis of 30 qualitative interviews from women choosing 2nd trimester abortion for fetal indications. Results All 30 women offered reasoning consistent with one or more ethical frameworks. Principlism themes included avoidance of personal suffering (autonomy), and sparing a child a poor quality of life and painful medical interventions (beneficence/non-maleficence). Care ethics reasoning included relational considerations of family needs and resources, and narrative ethics reasoning contextualized this experience into the patient's life story. Conclusions This population's universal application of commonly accepted medical ethical frameworks supports the position that patients choosing fetal indication abortions should be treated as moral decision-makers and given the same respect as patients making decisions about other medical procedures. Implications These findings suggest recent political efforts blocking abortion access should be reframed as attempts to undermine the moral decision-making of women.
Devin Murphy - One of the best experts on this subject based on the ideXlab platform.
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preserving the right to future children an ethical case analysis
American Journal of Bioethics, 2012Co-Authors: Gwendolyn P Quinn, Daniel K Stearsman, Lisa Campoengelstein, Devin MurphyAbstract:We report on the case of a 2-year-old female, the youngest person ever to undergo ovarian tissue cryopreservation (OTC). This patient was diagnosed with a rare form of sickle cell disease, which required a bone-marrow transplant, and late effects included high risk of future infertility or complete sterility. Ethical concerns are raised, as the patient's mother made the decision for OTC on the patient's behalf with the intention that this would secure the option of biological childbearing in the future. Based on Beauchamp and Childress's Principlism approach of respect for autonomy, nonmaleficence, beneficence, and justice, pursing OTC was ethically justified.
Xiaoling Jin - One of the best experts on this subject based on the ideXlab platform.
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Exploring the Moderating Effects of Commitment and Perceived Value of Knowledge in Explaining Knowledge Contribution in Virtual Communities
2016Co-Authors: Huaping Chen, Xiaoling JinAbstract:Motivating people to contribute knowledge to others has become a major challenge in knowledge management. To help understand knowledge contribution in virtual communities (VCs)—a popular area for knowledge sharing, this study investigates individuals ’ motivations to contribute knowledge based on the nature of knowledge contribution behavior. In particular, the influences of two key moderating variables which have been neglected in most previous studies are examined. The theoretical model is empirically tested using data collected from 363 VC members. We find that reciprocity, reputation, knowledge self-efficacy, enjoyment in helping others and commitment are key factors of four kinds (egoism, altruism, collectivism and Principlism) that significantl
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Exploring the Moderating Effects of Commitment and Perceived Value of Knowledge in Explaining Knowledge Contribution in Virtual Communities
2015Co-Authors: Huaping Chen, Xiaoling JinAbstract:Motivating people to contribute knowledge to others has become a major challenge in knowledge management. To help understand knowledge contribution in virtual communities (VCs)—a popular area for knowledge sharing, this study investigates individuals ’ motivations to contribute knowledge based on the nature of knowledge contribution behavior. In particular, the influences of two key moderating variables which have been neglected in most previous studies are examined. The theoretical model is empirically tested using data collected from 363 VC members. We find that reciprocity, reputation, knowledge self-efficacy, enjoyment in helping others and commitment are key factors of four kinds (egoism, altruism, collectivism and Principlism) that significantly and directly influence individuals ’ knowledge contribution intention in VCs. Perceived value of knowledge (PVK) is found to be an important moderator of the relationships between reciprocity, enjoyment in helping others and knowledge contribution intention. We confirm that commitment reduces the impact of reputation on knowledge contribution intention. Implications for both researchers and practitioners are discussed
Ulnicane Inga - One of the best experts on this subject based on the ideXlab platform.
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Beyond Research Ethics: Dialogues in Neuro-ICT Research
'Frontiers Media SA', 2019Co-Authors: Stahl, Bernd Carsten 1968-, Akintoye Simisola, Guerrero Manuel, Fothergill B. Tyr, Ulnicane Inga, Knight WilliamAbstract:open access articleThe increasing use of information and communication technologies (ICTs) to help facilitate neuroscience adds a new level of complexity to the question of how ethical issues of such research can be identified and addressed. Current research ethics practice, based on ethics reviews by institutional review boards (IRB) and underpinned by ethical Principlism, has been widely criticized. In this article, we develop an alternative way of approaching ethics in neuro-ICT research, based on discourse ethics, which implements Responsible Research and Innovation (RRI) through dialogues. We draw on our work in Ethics Support, using the Human Brain Project (HBP) as empirical evidence of the viability of this approach
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Beyond research ethics: Dialogues in neuro-ICT research
'Frontiers Media SA', 2019Co-Authors: Stahl, Bernd Carsten, Akintoye Simisola, Guerrero Manuel, Fothergill B. Tyr, Knight Will, Ulnicane IngaAbstract:The increasing use of information and communication technologies (ICTs) to help facilitate neuroscience adds a new level of complexity to the question of how ethical issues of such research can be identified and addressed. Current research ethics practice, based on ethics reviews by institutional review boards (IRB) and underpinned by ethical Principlism, has been widely criticized. In this article, we develop an alternative way of approaching ethics in neuro-ICT research, based on discourse ethics, which implements Responsible Research and Innovation (RRI) through dialogues. We draw on our work in Ethics Support, using the Human Brain Project (HBP) as empirical evidence of the viability of this approach