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Anna Börjesson - One of the best experts on this subject based on the ideXlab platform.
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health related quality of life and scar satisfaction in a cohort of children operated on for Sacrococcygeal Teratoma
Health and Quality of Life Outcomes, 2020Co-Authors: Mette Hambraeus, Einar Arnbjörnsson, Anna Börjesson, Lars Hagander, Pernilla StenstromAbstract:The aims of this study were to evaluate health-related quality of life (HRQoL) in children with Sacrococcygeal Teratoma and to explore the effect of the scar on physical, emotional and behavioral aspects. A cohort of children operated on for Sacrococcygeal Teratoma between 2000 and 2013 at Lund University Hospital, Sweden, and their parents were interviewed. HRQoL was evaluated with PedsQL, and scar satisfaction was estimated through Patient Observer Scar Assessment Score (POSA). All eligible children (n = 17) were included (100% response rate). Median age was 7.3 years (range 3.5–16.0). Mean total PedsQL score was 92.3 (range 72.0 to 99.0). Patients with comorbidity scored lower (87.5) than those without (95.0) (p 8 years. No children reported that they avoided situations due to the scar, and most (80% of children and 90% of parents) reported absent or only mild negative emotions when considering the scar. Children with Sacrococcygeal Teratoma had a good overall HRQoL, but comorbidity reduced the outcome. A few children reported scar-related impact on physical, behavioral and emotional aspects.
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long term outcome of Sacrococcygeal Teratoma a controlled cohort study of urinary tract and bowel dysfunction and predictors of poor outcome
The Journal of Pediatrics, 2018Co-Authors: Mette Hambraeus, Einar Arnbjörnsson, Lars Hagander, Pernilla Stenstrom, Anna BörjessonAbstract:Objective To evaluate urinary tract and bowel function in children with Sacrococcygeal Teratoma, compare the findings with healthy children, and assess predictors of poor outcome. Study design This was a controlled cohort study of all patients operated for Sacrococcygeal Teratoma at a tertiary pediatric surgery center, 2000-2013. Urinary and bowel function were compared with healthy control patients matched for age and sex. Perioperative and histopathologic risk factors were analyzed. Results In total, 17 patients with Sacrococcygeal Teratoma and 85 healthy control patients were included in the study. Patients with Sacrococcygeal Teratoma more often were reported to have uncontrolled voiding (12% vs 0%, P Conclusions Uncontrolled voiding, difficulty in bladder emptying, pyelonephritis, and constipation were more common in patients with Sacrococcygeal Teratoma than in healthy children. Dysfunctional outcome was more prevalent in children with large and immature Teratomas.
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Sacrococcygeal Teratoma: A population-based study of incidence and prenatal prognostic factors.
Journal of pediatric surgery, 2015Co-Authors: Mette Hambraeus, Einar Arnbjörnsson, Anna Börjesson, K. Å. Salvesen, Lars HaganderAbstract:Sacrococcygeal Teratoma (SCT) is a rare congenital tumor associated with high rates of perinatal mortality and morbidity. This study evaluated the incidence, prenatal detection rate, and early predictors of a complicated outcome following diagnosis of SCT.
Mette Hambraeus - One of the best experts on this subject based on the ideXlab platform.
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health related quality of life and scar satisfaction in a cohort of children operated on for Sacrococcygeal Teratoma
Health and Quality of Life Outcomes, 2020Co-Authors: Mette Hambraeus, Einar Arnbjörnsson, Anna Börjesson, Lars Hagander, Pernilla StenstromAbstract:The aims of this study were to evaluate health-related quality of life (HRQoL) in children with Sacrococcygeal Teratoma and to explore the effect of the scar on physical, emotional and behavioral aspects. A cohort of children operated on for Sacrococcygeal Teratoma between 2000 and 2013 at Lund University Hospital, Sweden, and their parents were interviewed. HRQoL was evaluated with PedsQL, and scar satisfaction was estimated through Patient Observer Scar Assessment Score (POSA). All eligible children (n = 17) were included (100% response rate). Median age was 7.3 years (range 3.5–16.0). Mean total PedsQL score was 92.3 (range 72.0 to 99.0). Patients with comorbidity scored lower (87.5) than those without (95.0) (p 8 years. No children reported that they avoided situations due to the scar, and most (80% of children and 90% of parents) reported absent or only mild negative emotions when considering the scar. Children with Sacrococcygeal Teratoma had a good overall HRQoL, but comorbidity reduced the outcome. A few children reported scar-related impact on physical, behavioral and emotional aspects.
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long term outcome of Sacrococcygeal Teratoma a controlled cohort study of urinary tract and bowel dysfunction and predictors of poor outcome
The Journal of Pediatrics, 2018Co-Authors: Mette Hambraeus, Einar Arnbjörnsson, Lars Hagander, Pernilla Stenstrom, Anna BörjessonAbstract:Objective To evaluate urinary tract and bowel function in children with Sacrococcygeal Teratoma, compare the findings with healthy children, and assess predictors of poor outcome. Study design This was a controlled cohort study of all patients operated for Sacrococcygeal Teratoma at a tertiary pediatric surgery center, 2000-2013. Urinary and bowel function were compared with healthy control patients matched for age and sex. Perioperative and histopathologic risk factors were analyzed. Results In total, 17 patients with Sacrococcygeal Teratoma and 85 healthy control patients were included in the study. Patients with Sacrococcygeal Teratoma more often were reported to have uncontrolled voiding (12% vs 0%, P Conclusions Uncontrolled voiding, difficulty in bladder emptying, pyelonephritis, and constipation were more common in patients with Sacrococcygeal Teratoma than in healthy children. Dysfunctional outcome was more prevalent in children with large and immature Teratomas.
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Sacrococcygeal Teratoma: A population-based study of incidence and prenatal prognostic factors.
Journal of pediatric surgery, 2015Co-Authors: Mette Hambraeus, Einar Arnbjörnsson, Anna Börjesson, K. Å. Salvesen, Lars HaganderAbstract:Sacrococcygeal Teratoma (SCT) is a rare congenital tumor associated with high rates of perinatal mortality and morbidity. This study evaluated the incidence, prenatal detection rate, and early predictors of a complicated outcome following diagnosis of SCT.
Pernilla Stenstrom - One of the best experts on this subject based on the ideXlab platform.
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health related quality of life and scar satisfaction in a cohort of children operated on for Sacrococcygeal Teratoma
Health and Quality of Life Outcomes, 2020Co-Authors: Mette Hambraeus, Einar Arnbjörnsson, Anna Börjesson, Lars Hagander, Pernilla StenstromAbstract:The aims of this study were to evaluate health-related quality of life (HRQoL) in children with Sacrococcygeal Teratoma and to explore the effect of the scar on physical, emotional and behavioral aspects. A cohort of children operated on for Sacrococcygeal Teratoma between 2000 and 2013 at Lund University Hospital, Sweden, and their parents were interviewed. HRQoL was evaluated with PedsQL, and scar satisfaction was estimated through Patient Observer Scar Assessment Score (POSA). All eligible children (n = 17) were included (100% response rate). Median age was 7.3 years (range 3.5–16.0). Mean total PedsQL score was 92.3 (range 72.0 to 99.0). Patients with comorbidity scored lower (87.5) than those without (95.0) (p 8 years. No children reported that they avoided situations due to the scar, and most (80% of children and 90% of parents) reported absent or only mild negative emotions when considering the scar. Children with Sacrococcygeal Teratoma had a good overall HRQoL, but comorbidity reduced the outcome. A few children reported scar-related impact on physical, behavioral and emotional aspects.
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long term outcome of Sacrococcygeal Teratoma a controlled cohort study of urinary tract and bowel dysfunction and predictors of poor outcome
The Journal of Pediatrics, 2018Co-Authors: Mette Hambraeus, Einar Arnbjörnsson, Lars Hagander, Pernilla Stenstrom, Anna BörjessonAbstract:Objective To evaluate urinary tract and bowel function in children with Sacrococcygeal Teratoma, compare the findings with healthy children, and assess predictors of poor outcome. Study design This was a controlled cohort study of all patients operated for Sacrococcygeal Teratoma at a tertiary pediatric surgery center, 2000-2013. Urinary and bowel function were compared with healthy control patients matched for age and sex. Perioperative and histopathologic risk factors were analyzed. Results In total, 17 patients with Sacrococcygeal Teratoma and 85 healthy control patients were included in the study. Patients with Sacrococcygeal Teratoma more often were reported to have uncontrolled voiding (12% vs 0%, P Conclusions Uncontrolled voiding, difficulty in bladder emptying, pyelonephritis, and constipation were more common in patients with Sacrococcygeal Teratoma than in healthy children. Dysfunctional outcome was more prevalent in children with large and immature Teratomas.
Craig T Albanese - One of the best experts on this subject based on the ideXlab platform.
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fetal Sacrococcygeal Teratoma
World Journal of Surgery, 2003Co-Authors: Joy L Graf, Craig T AlbaneseAbstract:Advances in prenatal diagnosis including improvements in ultrasonography have revealed the natural history of fetal Sacrococcygeal Teratomas, and this natural history differs substantially from that for postnatally diagnosed Sacrococcygeal Teratoma. A fetal Sacrococcygeal Teratoma may lead to perinatal morbidity and mortality by a variety of mechanisms. Adverse clinical sequelae of a Sacrococcygeal Teratoma can be prevented by accurate prenatal assessment and appropriate obstetrical and perinatal management. Development of fetal hydrops and/or placentomegaly predicts fetal demise. Fetal surgical intervention has proven successful in highly selected cases.
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radiofrequency ablation of human fetal Sacrococcygeal Teratoma
American Journal of Obstetrics and Gynecology, 2001Co-Authors: Bettina W Paek, Russell W. Jennings, Diana L Farmer, Michael R Harrison, Roy A Filly, Theresa A Tacy, Craig T AlbaneseAbstract:Abstract Objective: Fetuses with solid, highly vascularized Sacrococcygeal Teratomas can die as a result of the vascular steal syndrome. This is the first report in which a percutaneous technique, radiofrequency ablation, was used to interrupt blood flow to a Sacrococcygeal Teratoma in 4 human fetuses. Study Design: A radiofrequency ablation probe was percutaneously inserted into the fetal tumor under ultrasonographic guidance. In 2 fetuses a significant portion of the tumor mass was ablated, whereas in the other 2 fetuses only the major feeding vessels were targeted. Results: Two infants were delivered at 28 and 31 weeks' gestation, respectively, and are doing well. In 2 other cases hemorrhage into the tumor led to an unfavorable fetal outcome. Conclusion: Ablation of a majority of the tumor tissue in Sacrococcygeal Teratoma is not necessary and proved fatal in two instances. Targeted ablation of the feeding tumor vessels diminishes blood flow sufficiently to reverse high-output fetal heart failure. (Am J Obstet Gynecol 2001;184:503-7.)
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sonographic prognostic factors in fetuses with Sacrococcygeal Teratoma
Journal of Pediatric Surgery, 2000Co-Authors: Bettina Westerburg, Michael R Harrison, Vickie A Feldstein, Per L Sandberg, John B Lopoo, Craig T AlbaneseAbstract:Abstract Background: A subset of fetuses with Sacrococcygeal Teratoma (SCT) develops hydrops caused by high-output heart failure. Identification of fetuses at risk for hydrops is important because fetal intervention may reverse the pathophysiology of the disease. To date, no reliable sonographic prognostic factors have been identified. Methods: An experienced sonologist reviewed the sonographic records of 17 fetuses with SCT referred to the authors' institution. Size of the tumor was measured and corrected for fetal size. The appearance of the tumor (solid versus cystic) and its vascularity were graded on a subjective scale of 1 to 5. Results: Only 4 of 12 fetuses that had hydrops survived; of the survivors, 3 had undergone fetal intervention. All nonhydropic fetuses survived. Fetuses with hydrops had tumors that were mainly solid and highly vascular, whereas nonhydropic fetuses had predominantly cystic tumors with comparatively less vascularity. There was no significant difference in tumor size between these 2 groups. Conclusions: Fetuses with SCT that are mainly solid in appearance and are highly vascularized have a higher risk of getting hydrops in utero. Tumor size is not an independent prognostic factor. J Pediatr Surg 35:322-326. Copyright © 2000 by W.B. Saunders Company.
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Successful fetal Sacrococcygeal Teratoma resection in a hydropic fetus.
Journal of pediatric surgery, 2000Co-Authors: Joy L Graf, Russell W. Jennings, Craig T Albanese, Jody A Farrell, Michael R HarrisonAbstract:Abstract Background/Purpose: The development of hydrops in a fetus with a sacroccocygeal Teratoma (SCT) usually is a predictor of fetal demise; in utero resection may offer the only chance of survival. Although the authors had performed this procedure in 3 previous cases, they had no long-term patient survival. The authors report a successful case of in utero resection of a fetal Sacrococcygeal Teratoma. Methods: The authors resected a fetal SCT from a 23-weeks-gestation hydropic fetus, using gradually tightening umbilical tapes at the tumor base, electrocautery, and careful sharp dissection. After a blood transfusion, the fetus suffered cardiac arrest but was resuscitated and returned to the uterus. Results: Postoperatively, residual SCT growth ceased, and hydrops rapidly resolved. Five weeks after the procedure, the infant was delivered because of preterm labor, and, after resection of residual SCT, was discharged home at 3 months of age. She is now a healthy 3 year old. Conclusion: This case shows that successful fetal SCT resection and long-term patient survival is possible. J Pediatr Surg 35:1489-1491. Copyright © 2000 by W.B. Saunders Company.
B Caspi - One of the best experts on this subject based on the ideXlab platform.
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prenatal diagnosis of acute bladder distension associated with fetal Sacrococcygeal Teratoma a case report
Prenatal Diagnosis, 1995Co-Authors: Uriel Elchalal, I Benshachar, M Nadjari, E Gross, Z Appleman, B CaspiAbstract:A case report of Sacrococcygeal Teratoma prenatally diagnosed at 23 weeks of amenorrhea, subsequently causing dilatation of both lower and upper urinary tracts is presented. The importance of repeated ultrasonographic evaluation of fetuses with Sacrococcygeal Teratoma is discussed.
