The Experts below are selected from a list of 150 Experts worldwide ranked by ideXlab platform
Alejandro R. Jadad - One of the best experts on this subject based on the ideXlab platform.
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Experiencing Positive Health, as a Family, While Living With a Rare Complex Disease: Bringing Participatory Medicine Through Collaborative Decision Making Into the Real World.
Journal of Participatory Medicine, 2020Co-Authors: Caridi Family, Annapurna Poduri, Orrin Devinsky, Miriam Tabacinic, Alejandro R. JadadAbstract:Physician-patient collaboration was recognized as a critical core of participatory medicine more than a century ago. However, the subsequent focus on scientific research to enable cures and increased dominance of physicians in health care subordinated patients to a passive role. This paternalistic model weakened in the past 50 years-as women, minorities, and the disabled achieved greater rights, and as incurable chronic diseases and unrelieved pain disorders became more prevalent-promoting a more equitable role for physicians and patients. By 2000, a shared decision-making model became the pinnacle for clinical decisions, despite a dearth of data on health outcomes, or the model's reliance on single patient or Solo Practitioner studies, or evidence that no single model could fit all clinical situations. We report about a young woman with intractable epilepsy due to a congenital brain malformation whose family and medical specialists used a collaborative decision-making approach. This model positioned the health professionals as supporters of the proactive family, and enabled them all to explore and co-create knowledge beyond the clinical realm. Together, they involved other members of the community in the decisions, while harnessing diverse relationships to allow all family members to achieve positive levels of health, despite the resistance of the seizures to medical treatment and the incurable nature of the underlying disease.
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Experiencing Positive Health, as a Family, While Living With a Rare Complex Disease: Bringing Participatory Medicine Through Collaborative Decision Making Into the Real World (Preprint)
2019Co-Authors: Annapurna Poduri, Orrin Devinsky, Miriam Tabacinic, Alejandro R. JadadAbstract:UNSTRUCTURED Physician–patient collaboration was recognized as a critical core of participatory medicine more than a century ago. However, the subsequent focus on scientific research to enable cures and increased dominance of physicians in health care subordinated patients to a passive role. This paternalistic model weakened in the past 50 years—as women, minorities, and the disabled achieved greater rights, and as incurable chronic diseases and unrelieved pain disorders became more prevalent—promoting a more equitable role for physicians and patients. By 2000, a <i>shared decision-making model</i> became the pinnacle for clinical decisions, despite a dearth of data on health outcomes, or the model’s reliance on single patient or Solo Practitioner studies, or evidence that no single model could fit all clinical situations. We report about a young woman with intractable epilepsy due to a congenital brain malformation whose family and medical specialists used a <i>collaborative decision-making approach</i>. This model positioned the health professionals as supporters of the proactive family, and enabled them all to explore and co-create knowledge beyond the clinical realm. Together, they involved other members of the community in the decisions, while harnessing diverse relationships to allow all family members to achieve positive levels of health, despite the resistance of the seizures to medical treatment and the incurable nature of the underlying disease.
Jerome P. Kassirer - One of the best experts on this subject based on the ideXlab platform.
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Managing Care — Should We Adopt a New Ethic?
The New England journal of medicine, 1998Co-Authors: Jerome P. KassirerAbstract:The reorganization of health care is profoundly influencing the roles, responsibilities, and even the loyalties of physicians. The accelerated disappearance of the Solo Practitioner has been matche...
Elizabeth A. Mauger - One of the best experts on this subject based on the ideXlab platform.
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Hormone replacement therapy usage : a 10 year experience of a Solo Practitioner
Maturitas, 1998Co-Authors: Tom Lloyd, Nan Rollings, Wendy Kowalski, Elizabeth A. MaugerAbstract:Abstract The objective of this study was to identify factors affecting hormone replacement therapy (HRT) usage among patients of a single physician. All active patients ( n =330) given a HRT prescription over the past 10 years (1985–1995) by the physician were sent a questionnaire on health knowledge, lifestyle patterns, general medical and reproductive histories, responses to HRT usage and decision-making about HRT use. A total of 214 useful questionnaires were returned giving a response rate of 65%. For this cohort, the length of HRT use for those still taking HRT was 60 months; and for those no longer taking HRT, it was 32 months; and 85% of those ever given an HRT prescription were still using HRT at the time of survey. The educational backgrounds, exercise patterns, health knowledge, medical and reproductive histories of this group were representative of those found among suburban postmenopausal women in central Pennsylvania. Among this cohort, the most important reason for them taking HRT was the physicians’ recommendation.
Kim D. Jones - One of the best experts on this subject based on the ideXlab platform.
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Rational treatment of fibromyalgia for a Solo Practitioner.
Best practice & research. Clinical rheumatology, 2010Co-Authors: Eduardo Dos Santos Paiva, Kim D. JonesAbstract:Fibromyalgia (FM) is a challenging condition, but the management of patients with FM is becoming facilitated by new medications that act in what are thought to be some of most important pathophysiological features in this syndrome. However, it is of pivotal importance that an interdisciplinary approach is used to improve pain, fatigue, sleep and other domains to improve quality of life. Here, we present elements of management that the Solo Practitioner can tackle, focussing in the formally approved drugs for FM and other drugs commonly used in this condition. Further, the elements of an ideal multidisciplinary team are presented, and on how to incorporate their recommendations for the treatment of FM.
Annapurna Poduri - One of the best experts on this subject based on the ideXlab platform.
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Experiencing Positive Health, as a Family, While Living With a Rare Complex Disease: Bringing Participatory Medicine Through Collaborative Decision Making Into the Real World.
Journal of Participatory Medicine, 2020Co-Authors: Caridi Family, Annapurna Poduri, Orrin Devinsky, Miriam Tabacinic, Alejandro R. JadadAbstract:Physician-patient collaboration was recognized as a critical core of participatory medicine more than a century ago. However, the subsequent focus on scientific research to enable cures and increased dominance of physicians in health care subordinated patients to a passive role. This paternalistic model weakened in the past 50 years-as women, minorities, and the disabled achieved greater rights, and as incurable chronic diseases and unrelieved pain disorders became more prevalent-promoting a more equitable role for physicians and patients. By 2000, a shared decision-making model became the pinnacle for clinical decisions, despite a dearth of data on health outcomes, or the model's reliance on single patient or Solo Practitioner studies, or evidence that no single model could fit all clinical situations. We report about a young woman with intractable epilepsy due to a congenital brain malformation whose family and medical specialists used a collaborative decision-making approach. This model positioned the health professionals as supporters of the proactive family, and enabled them all to explore and co-create knowledge beyond the clinical realm. Together, they involved other members of the community in the decisions, while harnessing diverse relationships to allow all family members to achieve positive levels of health, despite the resistance of the seizures to medical treatment and the incurable nature of the underlying disease.
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Experiencing Positive Health, as a Family, While Living With a Rare Complex Disease: Bringing Participatory Medicine Through Collaborative Decision Making Into the Real World (Preprint)
2019Co-Authors: Annapurna Poduri, Orrin Devinsky, Miriam Tabacinic, Alejandro R. JadadAbstract:UNSTRUCTURED Physician–patient collaboration was recognized as a critical core of participatory medicine more than a century ago. However, the subsequent focus on scientific research to enable cures and increased dominance of physicians in health care subordinated patients to a passive role. This paternalistic model weakened in the past 50 years—as women, minorities, and the disabled achieved greater rights, and as incurable chronic diseases and unrelieved pain disorders became more prevalent—promoting a more equitable role for physicians and patients. By 2000, a <i>shared decision-making model</i> became the pinnacle for clinical decisions, despite a dearth of data on health outcomes, or the model’s reliance on single patient or Solo Practitioner studies, or evidence that no single model could fit all clinical situations. We report about a young woman with intractable epilepsy due to a congenital brain malformation whose family and medical specialists used a <i>collaborative decision-making approach</i>. This model positioned the health professionals as supporters of the proactive family, and enabled them all to explore and co-create knowledge beyond the clinical realm. Together, they involved other members of the community in the decisions, while harnessing diverse relationships to allow all family members to achieve positive levels of health, despite the resistance of the seizures to medical treatment and the incurable nature of the underlying disease.