Being in Control

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Tess Harris - One of the best experts on this subject based on the ideXlab platform.

  • living well with kidney disease by patient and care partner empowerment kidney health for everyone everywhere
    World Journal of Nephrology and Urology, 2021
    Co-Authors: Kamyar Kalantarzadeh, Ekamol Tantisattamo, Latha Kumaraswami, Vassilios Liakopoulos, Siufai Lui, Ifeoma Ulasi, Sharon Andreoli, Alessandro Balducci, Sophie Dupuis, Tess Harris
    Abstract:

    Living with chronic kidney disease (CKD) is associated with hardships for patients and their care-partners. Empowering patients and their care-partners, including family members or friends involved in their care, may help minimize the burden and consequences of CKD-related symptoms to enable life participation. There is a need to broaden the focus on living well with kidney disease and re-engagement in life, including an emphasis on patients Being in Control. The World Kidney Day (WKD) Joint Steering Committee has declared 2021 the year of “Living Well with Kidney Disease” in an effort to increase education and awareness on the important goal of patient empowerment and life participation. This calls for the development and implementation of validated patient-reported outcome measures to assess and address areas of life participation in routine care. It could be supported by regulatory agencies as a metric for quality care or to support labeling claims for medicines and devices. Funding agencies could establish targeted calls for research that address the priorities of patients. Patients with kidney disease and their care-partners should feel supported to live well through concerted efforts by kidney care communities including during pandemics. in the overall wellness program for kidney disease patients, the need for prevention should be reiterated. Early detection with a prolonged course of wellness despite kidney disease, after effective secondary and tertiary prevention programs, should be promoted. WKD 2021 continues to call for increased awareness of the importance of preventive measures throughout populations, professionals and policy makers, applicable to both developed and developing countries. World J Nephrol Urol. 2021;000(000):000-000 doi: https://doi.org/10.14740/wjnu420

  • living well with kidney disease by patient and care partner empowerment kidney health for everyone everywhere
    Nefrologia, 2021
    Co-Authors: Kamyar Kalantarzadeh, Ekamol Tantisattamo, Latha Kumaraswami, Vassilios Liakopoulos, Siufai Lui, Ifeoma Ulasi, Sharon Andreoli, Alessandro Balducci, Sophie Dupuis, Tess Harris
    Abstract:

    Living with chronic kidney disease (CKD) is associated with hardships for patients and their care-partners. Empowering patients and their care-partners, including family members or friends involved in their care, may help minimize the burden and consequences of CKD related symptoms to enable life participation. There is a need to broaden the focus on living well with kidney disease and re-engagement in life, including an emphasis on patients Being in Control. The World Kidney Day (WKD) Joint Steering Committee has declared 2021 the year of "Living Well with Kidney Disease" in an effort to increase education and awareness on the important goal of patient empowerment and life participation. This calls for the development and implementation of validated patient-reported outcome measures to assess and address areas of life participation in routine care. It could be supported by regulatory agencies as a metric for quality care or to support labelling claims for medicines and devices. Funding agencies could establish targeted calls for research that address the priorities of patients. Patients with kidney disease and their care-partners should feel supported to live well through concerted efforts by kidney care communities including during pandemics. in the overall wellness programme for kidney disease patients, the need for prevention should be reiterated. Early detection with a prolonged course of wellness despite kidney disease, after effective secondary and tertiary prevention programmes, should be promoted. WKD 2021 continues to call for increased awareness of the importance of preventive measures throughout populations, professionals, and policy makers, applicable to both developed and developing countries.

  • living well with kidney disease by patient and care partner empowerment kidney health for everyone everywhere
    Nephron, 2021
    Co-Authors: Kamyar Kalantarzadeh, Ekamol Tantisattamo, Latha Kumaraswami, Vassilios Liakopoulos, Siufai Lui, Ifeoma Ulasi, Sharon Andreoli, Alessandro Balducci, Sophie Dupuis, Tess Harris
    Abstract:

    Living with chronic kidney disease (CKD) is associated with hardships for patients and their care-partners. Empowering patients and their care-partners, including family members or friends involved in their care, may help minimize the burden and consequences of CKD-related symptoms to enable life participation. There is a need to broaden the focus on living well with kidney disease and re-engagement in life, including an emphasis on patients Being in Control. The World Kidney Day (WKD) Joint Steering Committee has declared 2021 the year of "Living Well with Kidney Disease" in an effort to increase education and awareness on the important goal of patient empowerment and life participation. This calls for the development and implementation of validated patient-reported outcome measures to assess and address areas of life participation in routine care. It could be supported by regulatory agencies as a metric for quality care or to support labelling claims for medicines and devices. Funding agencies could establish targeted calls for research that address the priorities of patients. Patients with kidney disease and their care-partners should feel supported to live well through concerted efforts by kidney care communities, including during pandemics. in the overall wellness program for kidney disease patients, the need for prevention should be reiterated. Early detection with a prolonged course of wellness despite kidney disease, after effective secondary and tertiary prevention programs, should be promoted. WKD 2021 continues to call for increased awareness of the importance of preventive measures throughout populations, professionals, and policy makers, applicable to both developed and developing countries.

Thomas Goschke - One of the best experts on this subject based on the ideXlab platform.

  • unconscious modulation of the conscious experience of voluntary Control
    Cognition, 2007
    Co-Authors: Katrin Linser, Thomas Goschke
    Abstract:

    How does the brain generate our experience of Being in Control over our actions and their effects? Here, we argue that the perception of events as self-caused emerges from a comparison between anticipated and actual action-effects: if the representation of an event that follows an action is activated before the action, the event is experienced as caused by one's own action, whereas in the case of a mismatch it will be attributed to an external cause rather than to the self. in a subliminal priming paradigm we show that participants overestimated how much Control they had over objectively unControllable stimuli, which appeared after free- or forced-choice actions, when a masked prime activated a representation of the stimuli immediately before each action. This prime-induced Control-illusion was independent from whether primes were consciously perceived. Results indicate that the conscious experience of Control is modulated by unconscious anticipations of action-effects.

Kamyar Kalantarzadeh - One of the best experts on this subject based on the ideXlab platform.

  • living well with kidney disease by patient and care partner empowerment kidney health for everyone everywhere
    World Journal of Nephrology and Urology, 2021
    Co-Authors: Kamyar Kalantarzadeh, Ekamol Tantisattamo, Latha Kumaraswami, Vassilios Liakopoulos, Siufai Lui, Ifeoma Ulasi, Sharon Andreoli, Alessandro Balducci, Sophie Dupuis, Tess Harris
    Abstract:

    Living with chronic kidney disease (CKD) is associated with hardships for patients and their care-partners. Empowering patients and their care-partners, including family members or friends involved in their care, may help minimize the burden and consequences of CKD-related symptoms to enable life participation. There is a need to broaden the focus on living well with kidney disease and re-engagement in life, including an emphasis on patients Being in Control. The World Kidney Day (WKD) Joint Steering Committee has declared 2021 the year of “Living Well with Kidney Disease” in an effort to increase education and awareness on the important goal of patient empowerment and life participation. This calls for the development and implementation of validated patient-reported outcome measures to assess and address areas of life participation in routine care. It could be supported by regulatory agencies as a metric for quality care or to support labeling claims for medicines and devices. Funding agencies could establish targeted calls for research that address the priorities of patients. Patients with kidney disease and their care-partners should feel supported to live well through concerted efforts by kidney care communities including during pandemics. in the overall wellness program for kidney disease patients, the need for prevention should be reiterated. Early detection with a prolonged course of wellness despite kidney disease, after effective secondary and tertiary prevention programs, should be promoted. WKD 2021 continues to call for increased awareness of the importance of preventive measures throughout populations, professionals and policy makers, applicable to both developed and developing countries. World J Nephrol Urol. 2021;000(000):000-000 doi: https://doi.org/10.14740/wjnu420

  • living well with kidney disease by patient and care partner empowerment kidney health for everyone everywhere
    Nefrologia, 2021
    Co-Authors: Kamyar Kalantarzadeh, Ekamol Tantisattamo, Latha Kumaraswami, Vassilios Liakopoulos, Siufai Lui, Ifeoma Ulasi, Sharon Andreoli, Alessandro Balducci, Sophie Dupuis, Tess Harris
    Abstract:

    Living with chronic kidney disease (CKD) is associated with hardships for patients and their care-partners. Empowering patients and their care-partners, including family members or friends involved in their care, may help minimize the burden and consequences of CKD related symptoms to enable life participation. There is a need to broaden the focus on living well with kidney disease and re-engagement in life, including an emphasis on patients Being in Control. The World Kidney Day (WKD) Joint Steering Committee has declared 2021 the year of "Living Well with Kidney Disease" in an effort to increase education and awareness on the important goal of patient empowerment and life participation. This calls for the development and implementation of validated patient-reported outcome measures to assess and address areas of life participation in routine care. It could be supported by regulatory agencies as a metric for quality care or to support labelling claims for medicines and devices. Funding agencies could establish targeted calls for research that address the priorities of patients. Patients with kidney disease and their care-partners should feel supported to live well through concerted efforts by kidney care communities including during pandemics. in the overall wellness programme for kidney disease patients, the need for prevention should be reiterated. Early detection with a prolonged course of wellness despite kidney disease, after effective secondary and tertiary prevention programmes, should be promoted. WKD 2021 continues to call for increased awareness of the importance of preventive measures throughout populations, professionals, and policy makers, applicable to both developed and developing countries.

  • living well with kidney disease by patient and care partner empowerment kidney health for everyone everywhere
    Nephron, 2021
    Co-Authors: Kamyar Kalantarzadeh, Ekamol Tantisattamo, Latha Kumaraswami, Vassilios Liakopoulos, Siufai Lui, Ifeoma Ulasi, Sharon Andreoli, Alessandro Balducci, Sophie Dupuis, Tess Harris
    Abstract:

    Living with chronic kidney disease (CKD) is associated with hardships for patients and their care-partners. Empowering patients and their care-partners, including family members or friends involved in their care, may help minimize the burden and consequences of CKD-related symptoms to enable life participation. There is a need to broaden the focus on living well with kidney disease and re-engagement in life, including an emphasis on patients Being in Control. The World Kidney Day (WKD) Joint Steering Committee has declared 2021 the year of "Living Well with Kidney Disease" in an effort to increase education and awareness on the important goal of patient empowerment and life participation. This calls for the development and implementation of validated patient-reported outcome measures to assess and address areas of life participation in routine care. It could be supported by regulatory agencies as a metric for quality care or to support labelling claims for medicines and devices. Funding agencies could establish targeted calls for research that address the priorities of patients. Patients with kidney disease and their care-partners should feel supported to live well through concerted efforts by kidney care communities, including during pandemics. in the overall wellness program for kidney disease patients, the need for prevention should be reiterated. Early detection with a prolonged course of wellness despite kidney disease, after effective secondary and tertiary prevention programs, should be promoted. WKD 2021 continues to call for increased awareness of the importance of preventive measures throughout populations, professionals, and policy makers, applicable to both developed and developing countries.

Genia Kostka - One of the best experts on this subject based on the ideXlab platform.

  • big data dreams and reality in shenzhen an investigation of smart city implementation in china
    Social Science Research Network, 2021
    Co-Authors: Jelena Grosebley, Genia Kostka
    Abstract:

    Chinese cities are increasingly using digital technologies to address urban problems and govern society. However, little is known about how this digital turn has been implemented. This study explores the introduction of digital governance in Shenzhen, one of China’s most praised smart cities. We show that, at the local level, the successful implementation of digital systems faces numerous hurdles in long-standing data management and bureaucratic practices that are at least as challenging as the technical problems. Furthermore, the study finds that the digital systems in Shenzhen entail a creeping centralisation of data that potentially turns lower administrative government units into mere users of the city-level smart platforms rather than Being in Control of their own data resources. Smart city development and big data ambitions thereby imply shifting stakeholder relations at the local level and also pull non-governmental stakeholders, such as IT companies and research institutions, closer to new data flows and smart governance systems. The findings add to the discussion of big data–driven smart systems and their implications for governance processes in an authoritarian context.

Patrick Haggard - One of the best experts on this subject based on the ideXlab platform.

  • acting without Being in Control exploring volition in parkinson s disease with impulsive compulsive behaviours
    Parkinsonism & Related Disorders, 2017
    Co-Authors: Lucia Ricciardi, Patrick Haggard, Lieke De Boer, Chiara Sorbera, Maxphilipp Stenner, Francesca Morgante, Mark J Edwards
    Abstract:

    Abstract Background Several aspects of volitional Control of action may be relevant in the pathophysiology of impulsive-compulsive behaviours (ICB) in Parkinson's disease (PD). We aimed to explore multiple aspects of action Control, assessing reward-related behaviour, inhibition (externally and internally triggered) and sense of agency in PD patients, with and without ICB compared to healthy subjects. Methods Nineteen PD patients with ICB (PD-ICB), 19 PD without ICB (PD-no-ICB) and 19 healthy Controls (HC) underwent a battery of tests including: intentional Binding task which measures sense of agency; Stop Signal Reaction Time (SSRT) measuring capacity for reactive inhibition; the Marble task, assessing intentional inhibition; Balloon Analog Risk Task for reward sensitivity. Results One-way ANOVA showed significant main effect of group for action binding (p = 0.004, F = 6.27). Post hoc analysis revealed that PD-ICB had significantly stronger action binding than HC (p = 0.004), and PD-no-ICB (p = 0.04). There was no difference between PD-no-ICB and HC. SSRT did not differ between PD groups, whereas a significant difference between PD-no-ICB and HC was detected (p = 0.01). No other differences were found among groups in the other tasks. Conclusions PD patients with ICB have abnormal performance on a psychophysical task assessing sense of agency, which might be related to a deficit in action representation at cognitive/experiential level. Yet, they have no deficit on tasks evaluating externally and internally triggered inhibitory Control, or in reward-based decision-making. We conclude that impaired sense of agency may be a factor contributing to ICB in PD patients.

  • endogenous action selection processes in dorsolateral prefrontal cortex contribute to sense of agency a meta analysis of tdcs studies of intentional binding
    Brain Stimulation, 2016
    Co-Authors: Nima Khalighinejad, Steven Di Costa, Patrick Haggard
    Abstract:

    Abstract Background Sense of agency is the experience of Being in Control of one's own actions and their consequences. The role of frontal cortex in this aspect of action Control and awareness remains unclear. Objective/hypothesis Given the role of dorsolateral prefrontal cortex (DLPFC) in action selection, we predicted that DLPFC may contribute to sense of agency when participants select between multiple actions. Methods We performed a series of experiments by manipulating a range of task parameters related to action selection and action outcomes while participants were exposed to tDCS stimulation of the left DLPFC. We measured the temporal association between a voluntary action and its outcome using the intentional binding effect, as an implicit measure of sense of agency. Results Fixed-effect meta-analysis of our primary data showed a trend towards a frontal tDCS, together with considerable heterogeneity between our experiments. Classifying the experiments into subsets of studies, according to whether participants endogenously selected between alternative actions or not, explained 71% of this heterogeneity. Anodal stimulation of DLPFC increased the temporal binding of actions towards tones in the subset of studies involving endogenous action selection, but not in the other studies. Conclusions DLPFC may contribute to sense of agency when participants selected between multiple actions. This enhanced feeling of Control over voluntary actions could be related to the observed therapeutic effects of frontal tDCS in depression.

  • coercion changes the sense of agency in the human brain
    Current Biology, 2016
    Co-Authors: Axel Cleeremans, Emilie Caspar, Julia F Christensen, Patrick Haggard
    Abstract:

    People may deny responsibility for negative consequences of their actions by claiming that they were "only obeying orders." The "Nuremberg defense" offers one extreme example, though it is often dismissed as merely an attempt to avoid responsibility. Milgram's classic laboratory studies reported widespread obedience to an instruction to harm, suggesting that social coercion may alter mechanisms of voluntary agency, and hence abolish the normal experience of Being in Control of one's own actions. However, Milgram's and other studies relied on dissembling and on explicit measures of agency, which are known to be biased by social norms. Here, we combined coercive instructions to administer harm to a co-participant, with implicit measures of sense of agency, based on perceived compression of time intervals between voluntary actions and their outcomes, and with electrophysiological recordings. in two experiments, an experimenter ordered a volunteer to make a key-press action that caused either financial penalty or demonstrably painful electric shock to their co-participant, thereby increasing their own financial gain. Coercion increased the perceived interval between action and outcome, relative to a situation where participants freely chose to inflict the same harms. interestingly, coercion also reduced the neural processing of the outcomes of one's own action. Thus, people who obey orders may subjectively experience their actions as closer to passive movements than fully voluntary actions. Our results highlight the complex relation between the brain mechanisms that generate the subjective experience of voluntary actions and social constructs, such as responsibility.