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Martin B. Delatycki - One of the best experts on this subject based on the ideXlab platform.

  • high school tay sachs Disease Carrier screening 5 to 11 year follow up
    Journal of Community Genetics, 2014
    Co-Authors: Helen Curd, Vicki Petrou, Agnes Bankier, Sharon Lewis, Ivan Macciocca, Margaret Sahhar, Sari Lieberman, Ephrat Levylahad, Martin B. Delatycki
    Abstract:

    The Melbourne high school Tay–Sachs Disease (TSD) Carrier screening program began in 1997. The aim of this study was to assess the outcomes of this screening program among those who had testing more than 5 years ago, to evaluate the long-term impact of screening. A questionnaire was used for data collection and consisted of validated scales and purposively designed questions. Questionnaires were sent to all Carriers and two non-Carriers for each Carrier who were screened in the program between 1999 and 2005. Twenty-four out of 69 (34.8 %) Carriers and 30/138 (21.7 %) non-Carriers completed the questionnaire. Most participants (82 %) retained good knowledge of TSD and there was no evidence of a difference in knowledge between Carriers and non-Carriers. Most participants (83 %) were happy with the timing and setting of screening and thought that education and screening for TSD should be offered during high school. There was no difference between Carriers and non-Carriers in mean scores for the State Trait Anxiety Inventory and Decision Regret Scale. This evaluation indicated that 5–11 years post high school screening, those who were screened are supportive of the program and that negative consequences are rare.

  • evaluation of a multi Disease Carrier screening programme in ashkenazi jewish high schools
    Clinical Genetics, 2010
    Co-Authors: Liane Ioannou, Aa Gason, Sylvia A Metcalfe, Vicki Petrou, Agnes Bankier, Maryanne Aitken, Sharon Lewis, John Massie, Martin B. Delatycki
    Abstract:

    A screening programme for Tay Sachs Disease (TSD) Carrier status was introduced in high schools in Victoria, Australia in 1997, and was expanded to screen for six other genetic conditions common in the Ashkenazi Jewish population in 2008. The aim of this study was to evaluate the current programme and compare it with an evaluation of the programme when screening was offered for TSD alone. All students from Jewish high schools in Melbourne who offered the programme in 2009 were invited to participate in the study. A purpose-designed questionnaire explored the following domains: knowledge (Disease and genetics), reasons for screening, anxiety, and predicted negative feelings if found to be a Carrier. Two hundred and seventy-three students were offered screening, and 272 (99.6%) completed the questionnaire. Only two students chose not to have screening. Two hundred and seventy-one students were in the penultimate year of high school (99.6%) and 222 were of Ashkenazi Jewish descent (82.5%). The main reasons for choosing screening were the desire to know Carrier status and convenience. Knowledge level decreased and negative feelings increased in the current cohort compared to that when screening was offered for TSD alone. We conclude that the current programme is efficient, although increasing the number of conditions resulted in a decrease in knowledge and increase in predicted negative feelings if found to be a Carrier of one of the conditions. This has implications for multi-Disease screening programmes that will increase in frequency as more conditions can be screened for and costs diminish.

  • Tay Sachs Disease Carrier screening in schools: Educational alternatives and cheekbrush sampling
    Genetics in medicine : official journal of the American College of Medical Genetics, 2005
    Co-Authors: Aa Gason, Sylvia A Metcalfe, Martin B. Delatycki, Vicki Petrou, Edith Sheffield, Agnes Bankier, Maryanne Aitken
    Abstract:

    Tay Sachs Disease Carrier screening in schools: Educational alternatives and cheekbrush sampling

Vicki Petrou - One of the best experts on this subject based on the ideXlab platform.

  • high school tay sachs Disease Carrier screening 5 to 11 year follow up
    Journal of Community Genetics, 2014
    Co-Authors: Helen Curd, Vicki Petrou, Agnes Bankier, Sharon Lewis, Ivan Macciocca, Margaret Sahhar, Sari Lieberman, Ephrat Levylahad, Martin B. Delatycki
    Abstract:

    The Melbourne high school Tay–Sachs Disease (TSD) Carrier screening program began in 1997. The aim of this study was to assess the outcomes of this screening program among those who had testing more than 5 years ago, to evaluate the long-term impact of screening. A questionnaire was used for data collection and consisted of validated scales and purposively designed questions. Questionnaires were sent to all Carriers and two non-Carriers for each Carrier who were screened in the program between 1999 and 2005. Twenty-four out of 69 (34.8 %) Carriers and 30/138 (21.7 %) non-Carriers completed the questionnaire. Most participants (82 %) retained good knowledge of TSD and there was no evidence of a difference in knowledge between Carriers and non-Carriers. Most participants (83 %) were happy with the timing and setting of screening and thought that education and screening for TSD should be offered during high school. There was no difference between Carriers and non-Carriers in mean scores for the State Trait Anxiety Inventory and Decision Regret Scale. This evaluation indicated that 5–11 years post high school screening, those who were screened are supportive of the program and that negative consequences are rare.

  • evaluation of a multi Disease Carrier screening programme in ashkenazi jewish high schools
    Clinical Genetics, 2010
    Co-Authors: Liane Ioannou, Aa Gason, Sylvia A Metcalfe, Vicki Petrou, Agnes Bankier, Maryanne Aitken, Sharon Lewis, John Massie, Martin B. Delatycki
    Abstract:

    A screening programme for Tay Sachs Disease (TSD) Carrier status was introduced in high schools in Victoria, Australia in 1997, and was expanded to screen for six other genetic conditions common in the Ashkenazi Jewish population in 2008. The aim of this study was to evaluate the current programme and compare it with an evaluation of the programme when screening was offered for TSD alone. All students from Jewish high schools in Melbourne who offered the programme in 2009 were invited to participate in the study. A purpose-designed questionnaire explored the following domains: knowledge (Disease and genetics), reasons for screening, anxiety, and predicted negative feelings if found to be a Carrier. Two hundred and seventy-three students were offered screening, and 272 (99.6%) completed the questionnaire. Only two students chose not to have screening. Two hundred and seventy-one students were in the penultimate year of high school (99.6%) and 222 were of Ashkenazi Jewish descent (82.5%). The main reasons for choosing screening were the desire to know Carrier status and convenience. Knowledge level decreased and negative feelings increased in the current cohort compared to that when screening was offered for TSD alone. We conclude that the current programme is efficient, although increasing the number of conditions resulted in a decrease in knowledge and increase in predicted negative feelings if found to be a Carrier of one of the conditions. This has implications for multi-Disease screening programmes that will increase in frequency as more conditions can be screened for and costs diminish.

  • Tay Sachs Disease Carrier screening in schools: Educational alternatives and cheekbrush sampling
    Genetics in medicine : official journal of the American College of Medical Genetics, 2005
    Co-Authors: Aa Gason, Sylvia A Metcalfe, Martin B. Delatycki, Vicki Petrou, Edith Sheffield, Agnes Bankier, Maryanne Aitken
    Abstract:

    Tay Sachs Disease Carrier screening in schools: Educational alternatives and cheekbrush sampling

Agnes Bankier - One of the best experts on this subject based on the ideXlab platform.

  • high school tay sachs Disease Carrier screening 5 to 11 year follow up
    Journal of Community Genetics, 2014
    Co-Authors: Helen Curd, Vicki Petrou, Agnes Bankier, Sharon Lewis, Ivan Macciocca, Margaret Sahhar, Sari Lieberman, Ephrat Levylahad, Martin B. Delatycki
    Abstract:

    The Melbourne high school Tay–Sachs Disease (TSD) Carrier screening program began in 1997. The aim of this study was to assess the outcomes of this screening program among those who had testing more than 5 years ago, to evaluate the long-term impact of screening. A questionnaire was used for data collection and consisted of validated scales and purposively designed questions. Questionnaires were sent to all Carriers and two non-Carriers for each Carrier who were screened in the program between 1999 and 2005. Twenty-four out of 69 (34.8 %) Carriers and 30/138 (21.7 %) non-Carriers completed the questionnaire. Most participants (82 %) retained good knowledge of TSD and there was no evidence of a difference in knowledge between Carriers and non-Carriers. Most participants (83 %) were happy with the timing and setting of screening and thought that education and screening for TSD should be offered during high school. There was no difference between Carriers and non-Carriers in mean scores for the State Trait Anxiety Inventory and Decision Regret Scale. This evaluation indicated that 5–11 years post high school screening, those who were screened are supportive of the program and that negative consequences are rare.

  • evaluation of a multi Disease Carrier screening programme in ashkenazi jewish high schools
    Clinical Genetics, 2010
    Co-Authors: Liane Ioannou, Aa Gason, Sylvia A Metcalfe, Vicki Petrou, Agnes Bankier, Maryanne Aitken, Sharon Lewis, John Massie, Martin B. Delatycki
    Abstract:

    A screening programme for Tay Sachs Disease (TSD) Carrier status was introduced in high schools in Victoria, Australia in 1997, and was expanded to screen for six other genetic conditions common in the Ashkenazi Jewish population in 2008. The aim of this study was to evaluate the current programme and compare it with an evaluation of the programme when screening was offered for TSD alone. All students from Jewish high schools in Melbourne who offered the programme in 2009 were invited to participate in the study. A purpose-designed questionnaire explored the following domains: knowledge (Disease and genetics), reasons for screening, anxiety, and predicted negative feelings if found to be a Carrier. Two hundred and seventy-three students were offered screening, and 272 (99.6%) completed the questionnaire. Only two students chose not to have screening. Two hundred and seventy-one students were in the penultimate year of high school (99.6%) and 222 were of Ashkenazi Jewish descent (82.5%). The main reasons for choosing screening were the desire to know Carrier status and convenience. Knowledge level decreased and negative feelings increased in the current cohort compared to that when screening was offered for TSD alone. We conclude that the current programme is efficient, although increasing the number of conditions resulted in a decrease in knowledge and increase in predicted negative feelings if found to be a Carrier of one of the conditions. This has implications for multi-Disease screening programmes that will increase in frequency as more conditions can be screened for and costs diminish.

  • Tay Sachs Disease Carrier screening in schools: Educational alternatives and cheekbrush sampling
    Genetics in medicine : official journal of the American College of Medical Genetics, 2005
    Co-Authors: Aa Gason, Sylvia A Metcalfe, Martin B. Delatycki, Vicki Petrou, Edith Sheffield, Agnes Bankier, Maryanne Aitken
    Abstract:

    Tay Sachs Disease Carrier screening in schools: Educational alternatives and cheekbrush sampling

Sharon Lewis - One of the best experts on this subject based on the ideXlab platform.

  • high school tay sachs Disease Carrier screening 5 to 11 year follow up
    Journal of Community Genetics, 2014
    Co-Authors: Helen Curd, Vicki Petrou, Agnes Bankier, Sharon Lewis, Ivan Macciocca, Margaret Sahhar, Sari Lieberman, Ephrat Levylahad, Martin B. Delatycki
    Abstract:

    The Melbourne high school Tay–Sachs Disease (TSD) Carrier screening program began in 1997. The aim of this study was to assess the outcomes of this screening program among those who had testing more than 5 years ago, to evaluate the long-term impact of screening. A questionnaire was used for data collection and consisted of validated scales and purposively designed questions. Questionnaires were sent to all Carriers and two non-Carriers for each Carrier who were screened in the program between 1999 and 2005. Twenty-four out of 69 (34.8 %) Carriers and 30/138 (21.7 %) non-Carriers completed the questionnaire. Most participants (82 %) retained good knowledge of TSD and there was no evidence of a difference in knowledge between Carriers and non-Carriers. Most participants (83 %) were happy with the timing and setting of screening and thought that education and screening for TSD should be offered during high school. There was no difference between Carriers and non-Carriers in mean scores for the State Trait Anxiety Inventory and Decision Regret Scale. This evaluation indicated that 5–11 years post high school screening, those who were screened are supportive of the program and that negative consequences are rare.

  • evaluation of a multi Disease Carrier screening programme in ashkenazi jewish high schools
    Clinical Genetics, 2010
    Co-Authors: Liane Ioannou, Aa Gason, Sylvia A Metcalfe, Vicki Petrou, Agnes Bankier, Maryanne Aitken, Sharon Lewis, John Massie, Martin B. Delatycki
    Abstract:

    A screening programme for Tay Sachs Disease (TSD) Carrier status was introduced in high schools in Victoria, Australia in 1997, and was expanded to screen for six other genetic conditions common in the Ashkenazi Jewish population in 2008. The aim of this study was to evaluate the current programme and compare it with an evaluation of the programme when screening was offered for TSD alone. All students from Jewish high schools in Melbourne who offered the programme in 2009 were invited to participate in the study. A purpose-designed questionnaire explored the following domains: knowledge (Disease and genetics), reasons for screening, anxiety, and predicted negative feelings if found to be a Carrier. Two hundred and seventy-three students were offered screening, and 272 (99.6%) completed the questionnaire. Only two students chose not to have screening. Two hundred and seventy-one students were in the penultimate year of high school (99.6%) and 222 were of Ashkenazi Jewish descent (82.5%). The main reasons for choosing screening were the desire to know Carrier status and convenience. Knowledge level decreased and negative feelings increased in the current cohort compared to that when screening was offered for TSD alone. We conclude that the current programme is efficient, although increasing the number of conditions resulted in a decrease in knowledge and increase in predicted negative feelings if found to be a Carrier of one of the conditions. This has implications for multi-Disease screening programmes that will increase in frequency as more conditions can be screened for and costs diminish.

Jokstad Asbjørn - One of the best experts on this subject based on the ideXlab platform.

  • Dog-assisted therapy in the dental clinic. Part B. Hazards and assessment of potential risks to the health and safety of the dental therapy dog
    'Wiley', 2019
    Co-Authors: Gussgard, Anne Margrete, Weese J.scott, Hensten Arne, Jokstad Asbjørn
    Abstract:

    Source at https://doi.org/10.1002/cre2.239. Background - A dental therapy dog may help anxious patients in the dental clinic overcome their fear and facilitate the completion of necessary dental care. Dental clinic activities are associated with hazards that may pose potential risks to the health and safety of the dental therapy dog. Objectives - To describe potential hazards associated with risks to health and safety to therapy dogs in dental clinics and to present suggestions for risk minimisation by adopting best practices in dental clinic settings. Materials and method - Literature searches in Medline, Clinicaltrials.gov, and Google Scholar for qualitative and quantitative assessments of occupational hazards and risks in dental clinics, in combination with a review of the reference list of the included studies. Identified hazards and risks were analysed relative to their relevance for the health and welfare of a therapy dog present in a dental clinic setting. Results - Workplace hazards in the dental clinic that apply to both humans and therapy dogs are allergies, sharps injury, eye injury, stress, rhinitis, hearing impairment, and other hazards. Additional concerns associated with risks for the dental therapy dog are situations involving erratic patient behaviour and threats if the patient is an undisclosed Disease Carrier. Risks to the health and safety of the dental therapy dog in the clinics are present but are low if the dental clinical staff and dog handlers comply with best practices. Conclusions - Best practice includes awareness amongst the clinic staff and the dog handler of all potential hazards in the dental clinic and on how to reduce these hazards as well as adverse events that may scare the dental therapy dog. The dental therapy dog team must be specially trained to work in a dental clinic. Each treatment session has to be exclusively tailored to that specific appointment and the individual patient

  • Dog-assisted therapy in the dental clinic. Part B. Hazards and assessment of potential risks to the health and safety of the dental therapy dog
    'Wiley', 2019
    Co-Authors: Gussgard, Anne Margrete, Weese J.scott, Hensten Arne, Jokstad Asbjørn
    Abstract:

    Background - A dental therapy dog may help anxious patients in the dental clinic overcome their fear and facilitate the completion of necessary dental care. Dental clinic activities are associated with hazards that may pose potential risks to the health and safety of the dental therapy dog. Objectives - To describe potential hazards associated with risks to health and safety to therapy dogs in dental clinics and to present suggestions for risk minimisation by adopting best practices in dental clinic settings. Materials and method - Literature searches in Medline, Clinicaltrials.gov, and Google Scholar for qualitative and quantitative assessments of occupational hazards and risks in dental clinics, in combination with a review of the reference list of the included studies. Identified hazards and risks were analysed relative to their relevance for the health and welfare of a therapy dog present in a dental clinic setting. Results - Workplace hazards in the dental clinic that apply to both humans and therapy dogs are allergies, sharps injury, eye injury, stress, rhinitis, hearing impairment, and other hazards. Additional concerns associated with risks for the dental therapy dog are situations involving erratic patient behaviour and threats if the patient is an undisclosed Disease Carrier. Risks to the health and safety of the dental therapy dog in the clinics are present but are low if the dental clinical staff and dog handlers comply with best practices. Conclusions - Best practice includes awareness amongst the clinic staff and the dog handler of all potential hazards in the dental clinic and on how to reduce these hazards as well as adverse events that may scare the dental therapy dog. The dental therapy dog team must be specially trained to work in a dental clinic. Each treatment session has to be exclusively tailored to that specific appointment and the individual patient