The Experts below are selected from a list of 4503 Experts worldwide ranked by ideXlab platform
William E. Haley - One of the best experts on this subject based on the ideXlab platform.
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the transition to Family Caregiving and its effect on biomarkers of inflammation
Proceedings of the National Academy of Sciences of the United States of America, 2020Co-Authors: David L Roth, William E. Haley, Jin Huang, Virginia J Howard, Orla C Sheehan, David J Rhodes, Peter Durda, Jeremy D Walston, Mary CushmanAbstract:Chronic stress has been widely proposed to increase systemic inflammation, a pathway that may link stress with a heightened risk for many diseases. The chronic stress-inflammation relationship has been challenging to study in humans, however, and Family Caregiving has been identified as one type of stressful situation that might lead to increased inflammation. Previous studies of Caregiving and inflammation have generally used small convenience samples, compared caregivers with poorly characterized control participants, and assessed inflammation only after caregivers provided care for extended periods of time. In the current project, changes over a 9-y period were examined on six circulating biomarkers of inflammation for 480 participants from a large population-based study. All participants reported no involvement in Caregiving prior to the first biomarker assessment, and 239 participants then took on extensive and prolonged Family Caregiving responsibilities at some point prior to the second biomarker assessment. Incident caregivers were individually matched on multiple demographic and health history variables with participants who reported no Caregiving responsibilities. Of the six biomarkers examined, only tumor necrosis factor alpha receptor 1 showed a significantly greater increase in caregivers compared with controls. This effect was small (d = 0.14), and no effects were found for a subset of 45 caregivers who were living with a spouse with dementia. These results are consistent with recent meta-analytic findings and challenge the widespread belief that Caregiving is a substantial risk factor for increased inflammation. Future research is warranted on factors that may account for stress resilience in Family caregivers.
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Coping with cognitive impairment and Family Caregiving: Introduction to the special section.
Psychology and Aging, 2020Co-Authors: Sheung-tak Cheng, William E. HaleyAbstract:: Consistent with the long history within Psychology and Aging of publishing high impact articles on Family Caregiving, the current Special Section includes 5 articles that provide important advances, in knowledge and in methodological sophistication, to the study of cognitive difficulty, impairment and Family Caregiving. One study used daily diary data over 14 days to conduct microlongitudinal analyses of the prospective impact of everyday memory failures on negative affect and marital interactions in older couples. Also relying on dyadic data, 2 other articles addressed the impact of Caregiving on Family members, including a study of the effects of transitioning to Family Caregiving over time on well-being in older husbands and wives, and a comparison of primary and secondary caregivers. Together, these articles represent important methodological advances in terms of the use of longitudinal data to study the effects of transition to cognitive impairment and spousal Caregiving within the couple, and the inclusion of multiple caregivers to illustrate the impacts of Caregiving in the broader Family. In addition, two articles examined issues in clinical intervention for caregivers. Both articles offer new insights about the effectiveness of caregiver interventions, with the former focusing on the relative merits of offering intervention components in a flexible way over the manualized approach, and the latter a comprehensive systematic review and meta-analysis to tease out the relative utility of different intervention characteristics and approaches, with a new lens to look at psychoeducational programs. The implications of these articles for Family Caregiving and further research advances are discussed. (PsycINFO Database Record (c) 2020 APA, all rights reserved).
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transitions to Family Caregiving over a 12 year period in the national regards study
Innovation in Aging, 2018Co-Authors: David L Roth, Jin Huang, Virginia J Howard, J D Rhodes, Orla C Sheehan, Nancy S Jenny, William E. HaleyAbstract:AbstractMost studies of Family Caregiving use convenience samples of persons who are already caregivers before enrollment. Population-based studies of those who prospectively transition into Family Caregiving roles are rare and needed. Participants in the REasons for Geographic and Racial Differences in Stroke (REGARDS) study were asked on two occasions if they were providing care to a Family member or friend with a chronic illness or disability: at the REGARDS baseline telephone interview and at a 2nd interview 9–14 years later (M = 12 years). Those who transitioned into a significant Caregiving role were recruited to participate in the Caregiving Transitions Study (CTS), which is examining health and serum biomarker responses to Caregiving. Of 9,863 REGARDS participants who were not caregivers at baseline, 1073 (11%) transitioned into a Family Caregiving role. Of these caregivers, 251 (23%) met eligibility criteria for the CTS and were enrolled along with 251 demographically-matched nonCaregiving controls. Enrolled caregivers are 65% female; 36% African American; 69.1 + 7.8 years of age; caring for a spouse/partner (52%), parent (25%), or another person (23%); and 46% are caring for a person with dementia. Initial longitudinal comparisons reveal that depressive symptoms increased (d = 1.12 standard deviation units (SDUs), p < .0001) and health-related quality of life decreased (d = 0.35 SDUs, p < .0001) over the 12-year period for those who became caregivers. A unique sample of incident caregivers and matched controls has been assembled and analyses are currently examining changes on self-report and serum biomarker indicators of health.
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abstract mp102 Family Caregiving is associated with increased stroke risk among strained spouse caregivers
Circulation, 2016Co-Authors: Sindhu Lakkur, William E. Haley, Virginia J Howard, Suzanne E Judd, David L RothAbstract:Background: As the American population ages, the number of Family caregivers is expected to increase. Consequently, understanding the effects Family Caregiving has on the cardiovascular health of c...
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Family Caregiving at the End-of-Life: Current Status and Future Directions
Caregiving Across the Lifespan, 2012Co-Authors: William E. HaleyAbstract:Family Caregiving has been widely studied throughout the life course, but there has been relatively little attention paid in the Caregiving literature to the special problems of caregivers at the end-of-life. Families providing care at the end-of-life face unique challenges and rewards. The care that they provide can be a precious gift for a loved one facing death, and can be among the most rewarding experiences of life. End-of-life care can also be extremely stressful and associated with great difficulties not only while providing care, but also during the ensuing bereavement.
David L Roth - One of the best experts on this subject based on the ideXlab platform.
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the transition to Family Caregiving and its effect on biomarkers of inflammation
Proceedings of the National Academy of Sciences of the United States of America, 2020Co-Authors: David L Roth, William E. Haley, Jin Huang, Virginia J Howard, Orla C Sheehan, David J Rhodes, Peter Durda, Jeremy D Walston, Mary CushmanAbstract:Chronic stress has been widely proposed to increase systemic inflammation, a pathway that may link stress with a heightened risk for many diseases. The chronic stress-inflammation relationship has been challenging to study in humans, however, and Family Caregiving has been identified as one type of stressful situation that might lead to increased inflammation. Previous studies of Caregiving and inflammation have generally used small convenience samples, compared caregivers with poorly characterized control participants, and assessed inflammation only after caregivers provided care for extended periods of time. In the current project, changes over a 9-y period were examined on six circulating biomarkers of inflammation for 480 participants from a large population-based study. All participants reported no involvement in Caregiving prior to the first biomarker assessment, and 239 participants then took on extensive and prolonged Family Caregiving responsibilities at some point prior to the second biomarker assessment. Incident caregivers were individually matched on multiple demographic and health history variables with participants who reported no Caregiving responsibilities. Of the six biomarkers examined, only tumor necrosis factor alpha receptor 1 showed a significantly greater increase in caregivers compared with controls. This effect was small (d = 0.14), and no effects were found for a subset of 45 caregivers who were living with a spouse with dementia. These results are consistent with recent meta-analytic findings and challenge the widespread belief that Caregiving is a substantial risk factor for increased inflammation. Future research is warranted on factors that may account for stress resilience in Family caregivers.
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transitions to Family Caregiving over a 12 year period in the national regards study
Innovation in Aging, 2018Co-Authors: David L Roth, Jin Huang, Virginia J Howard, J D Rhodes, Orla C Sheehan, Nancy S Jenny, William E. HaleyAbstract:AbstractMost studies of Family Caregiving use convenience samples of persons who are already caregivers before enrollment. Population-based studies of those who prospectively transition into Family Caregiving roles are rare and needed. Participants in the REasons for Geographic and Racial Differences in Stroke (REGARDS) study were asked on two occasions if they were providing care to a Family member or friend with a chronic illness or disability: at the REGARDS baseline telephone interview and at a 2nd interview 9–14 years later (M = 12 years). Those who transitioned into a significant Caregiving role were recruited to participate in the Caregiving Transitions Study (CTS), which is examining health and serum biomarker responses to Caregiving. Of 9,863 REGARDS participants who were not caregivers at baseline, 1073 (11%) transitioned into a Family Caregiving role. Of these caregivers, 251 (23%) met eligibility criteria for the CTS and were enrolled along with 251 demographically-matched nonCaregiving controls. Enrolled caregivers are 65% female; 36% African American; 69.1 + 7.8 years of age; caring for a spouse/partner (52%), parent (25%), or another person (23%); and 46% are caring for a person with dementia. Initial longitudinal comparisons reveal that depressive symptoms increased (d = 1.12 standard deviation units (SDUs), p < .0001) and health-related quality of life decreased (d = 0.35 SDUs, p < .0001) over the 12-year period for those who became caregivers. A unique sample of incident caregivers and matched controls has been assembled and analyses are currently examining changes on self-report and serum biomarker indicators of health.
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abstract mp102 Family Caregiving is associated with increased stroke risk among strained spouse caregivers
Circulation, 2016Co-Authors: Sindhu Lakkur, William E. Haley, Virginia J Howard, Suzanne E Judd, David L RothAbstract:Background: As the American population ages, the number of Family caregivers is expected to increase. Consequently, understanding the effects Family Caregiving has on the cardiovascular health of c...
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positive aspects of Family Caregiving for dementia differential item functioning by race
Journals of Gerontology Series B-psychological Sciences and Social Sciences, 2015Co-Authors: David L Roth, Peggye Dilworthanderson, Jin Huang, Alden L Gross, Laura N GitlinAbstract:Objectives. Due to increasing interest in the positive experiences associated with Family Caregiving, potential demographic group differences were examined on the Positive Aspects of Caregiving (PAC) scale at both the item and scale levels.
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Family Caregiving and emotional strain associations with quality of life in a large national sample of middle aged and older adults
Quality of Life Research, 2009Co-Authors: David L Roth, Martinique Perkins, Virginia G Wadley, Ella Temple, William E. HaleyAbstract:Purpose This study examined the quality of life correlates of Family Caregiving and Caregiving strain in a large national epidemiological sample.
Julie Kostineuk - One of the best experts on this subject based on the ideXlab platform.
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dementia care in rural and remote settings a systematic review of informal Family Caregiving
Maturitas, 2011Co-Authors: Anthea Innes, Debra Morgan, Julie KostineukAbstract:Abstract Objectives The purpose of this review is to critically evaluate the available evidence from the published scientific literature on informal/Family dementia care in rural and remote settings to assess the current state of knowledge, identify support implications, and make recommendations for future research. Methods A systemic review of the literature indexed in ISI Web of Knowledge, PsychInfo, Medline, Healthstar, CINAHL, EMBASE, and Sociological Abstracts was conducted. Data were extracted from papers meeting inclusion criteria: peer-reviewed papers that focused on dementia or Alzheimer's Disease (AD), and examined informal or Family Caregiving in relation to persons with AD or dementia in remote or rural locations. Results The search identified 872 articles for review, reduced to 72 after removing duplicates and articles not meeting inclusion criteria. Of the 72 remaining, 26 are included in this review focusing on informal/Family Caregiving. A previous review focused on the 46 studies on formal/paid care. Four themes that correspond to the current state of knowledge about rural informal/Family dementia Caregiving in the 26 included studies were: service use, carer experience, support and education, and rural perceptions of dementia . Conclusions Despite the growing body of evidence over the 20 years of this review, and the widespread interest in Family dementia Caregiving generally, much of the research exploring Family Caregiving in rural areas focuses on the experience, use and barriers to formal service provision. There is limited work examining the experiences of rural caregivers and their education and support needs. More research is needed about the impact of rurality on Caregiving and the education and support needs of rural informal Family caregivers.
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Dementia care in rural and remote settings: A systematic review of informal/Family Caregiving
Maturitas, 2010Co-Authors: Anthea Innes, Debra Morgan, Julie KostineukAbstract:Abstract Objectives The purpose of this review is to critically evaluate the available evidence from the published scientific literature on informal/Family dementia care in rural and remote settings to assess the current state of knowledge, identify support implications, and make recommendations for future research. Methods A systemic review of the literature indexed in ISI Web of Knowledge, PsychInfo, Medline, Healthstar, CINAHL, EMBASE, and Sociological Abstracts was conducted. Data were extracted from papers meeting inclusion criteria: peer-reviewed papers that focused on dementia or Alzheimer's Disease (AD), and examined informal or Family Caregiving in relation to persons with AD or dementia in remote or rural locations. Results The search identified 872 articles for review, reduced to 72 after removing duplicates and articles not meeting inclusion criteria. Of the 72 remaining, 26 are included in this review focusing on informal/Family Caregiving. A previous review focused on the 46 studies on formal/paid care. Four themes that correspond to the current state of knowledge about rural informal/Family dementia Caregiving in the 26 included studies were: service use, carer experience, support and education, and rural perceptions of dementia . Conclusions Despite the growing body of evidence over the 20 years of this review, and the widespread interest in Family dementia Caregiving generally, much of the research exploring Family Caregiving in rural areas focuses on the experience, use and barriers to formal service provision. There is limited work examining the experiences of rural caregivers and their education and support needs. More research is needed about the impact of rurality on Caregiving and the education and support needs of rural informal Family caregivers.
Anthea Innes - One of the best experts on this subject based on the ideXlab platform.
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dementia care in rural and remote settings a systematic review of informal Family Caregiving
Maturitas, 2011Co-Authors: Anthea Innes, Debra Morgan, Julie KostineukAbstract:Abstract Objectives The purpose of this review is to critically evaluate the available evidence from the published scientific literature on informal/Family dementia care in rural and remote settings to assess the current state of knowledge, identify support implications, and make recommendations for future research. Methods A systemic review of the literature indexed in ISI Web of Knowledge, PsychInfo, Medline, Healthstar, CINAHL, EMBASE, and Sociological Abstracts was conducted. Data were extracted from papers meeting inclusion criteria: peer-reviewed papers that focused on dementia or Alzheimer's Disease (AD), and examined informal or Family Caregiving in relation to persons with AD or dementia in remote or rural locations. Results The search identified 872 articles for review, reduced to 72 after removing duplicates and articles not meeting inclusion criteria. Of the 72 remaining, 26 are included in this review focusing on informal/Family Caregiving. A previous review focused on the 46 studies on formal/paid care. Four themes that correspond to the current state of knowledge about rural informal/Family dementia Caregiving in the 26 included studies were: service use, carer experience, support and education, and rural perceptions of dementia . Conclusions Despite the growing body of evidence over the 20 years of this review, and the widespread interest in Family dementia Caregiving generally, much of the research exploring Family Caregiving in rural areas focuses on the experience, use and barriers to formal service provision. There is limited work examining the experiences of rural caregivers and their education and support needs. More research is needed about the impact of rurality on Caregiving and the education and support needs of rural informal Family caregivers.
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Dementia care in rural and remote settings: A systematic review of informal/Family Caregiving
Maturitas, 2010Co-Authors: Anthea Innes, Debra Morgan, Julie KostineukAbstract:Abstract Objectives The purpose of this review is to critically evaluate the available evidence from the published scientific literature on informal/Family dementia care in rural and remote settings to assess the current state of knowledge, identify support implications, and make recommendations for future research. Methods A systemic review of the literature indexed in ISI Web of Knowledge, PsychInfo, Medline, Healthstar, CINAHL, EMBASE, and Sociological Abstracts was conducted. Data were extracted from papers meeting inclusion criteria: peer-reviewed papers that focused on dementia or Alzheimer's Disease (AD), and examined informal or Family Caregiving in relation to persons with AD or dementia in remote or rural locations. Results The search identified 872 articles for review, reduced to 72 after removing duplicates and articles not meeting inclusion criteria. Of the 72 remaining, 26 are included in this review focusing on informal/Family Caregiving. A previous review focused on the 46 studies on formal/paid care. Four themes that correspond to the current state of knowledge about rural informal/Family dementia Caregiving in the 26 included studies were: service use, carer experience, support and education, and rural perceptions of dementia . Conclusions Despite the growing body of evidence over the 20 years of this review, and the widespread interest in Family dementia Caregiving generally, much of the research exploring Family Caregiving in rural areas focuses on the experience, use and barriers to formal service provision. There is limited work examining the experiences of rural caregivers and their education and support needs. More research is needed about the impact of rurality on Caregiving and the education and support needs of rural informal Family caregivers.
Soonjee Park - One of the best experts on this subject based on the ideXlab platform.
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Implications of smart wear technology for Family Caregiving relationships: focus group perceptions.
Social work in health care, 2020Co-Authors: Scott S. Hall, Jayanthi Kandiah, Diana Saiki, Amy J. Harden, Soonjee ParkAbstract:Technological advances in monitoring vulnerable care-recipients are on the rise. Recent and future development of Smart Wear technology (devices integrated into clothing that monitor care-recipients) might assist Family caregivers with tasks related to caring for young children, relatives with disabilities, and frail spouses or parents. However, the development and use of this technology in Family Caregiving contexts is in its infancy. Focus group interviews of Family caregivers were conducted to explore perspectives regarding the potential integration of Smart Wear technology into their Family Caregiving. Responses were analyzed qualitatively for themes related to perceptions of how Smart Wear could impact relationships between caregivers and care-recipients. Three major themes emerged: quality and quantity of interaction, boundary issues, and implications for anxiety. Implications and recommendations are discussed regarding maximizing the potential benefits of Smart Wear technology in ways that promote and protect healthy relationships among caregivers and care-recipients.
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Implications of Smart Wear Technology for Family Caregiving Relationships: Focus Group Perceptions
Social Work in Health Care, 2014Co-Authors: Scott S. Hall, Jayanthi Kandiah, Diana Saiki, Amy J. Harden, Soonjee ParkAbstract:Technological advances in monitoring vulnerable care-recipients are on the rise. Recent and future development of Smart Wear technology (devices integrated into clothing that monitor care-recipients) might assist Family caregivers with tasks related to caring for young children, relatives with disabilities, and frail spouses or parents. However, the development and use of this technology in Family Caregiving contexts is in its infancy. Focus group interviews of Family caregivers were conducted to explore perspectives regarding the potential integration of Smart Wear technology into their Family Caregiving. Responses were analyzed qualitatively for themes related to perceptions of how Smart Wear could impact relationships between caregivers and care-recipients. Three major themes emerged: quality and quantity of interaction, boundary issues, and implications for anxiety. Implications and recommendations are discussed regarding maximizing the potential benefits of Smart Wear technology in ways that promote ...
