Family Constellations

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The Experts below are selected from a list of 129 Experts worldwide ranked by ideXlab platform

Amanda Reventlid - One of the best experts on this subject based on the ideXlab platform.

Roberta Paikoff - One of the best experts on this subject based on the ideXlab platform.

  • Measurement of the Role of Families in Prevention and Adaptation to HIV/AIDS
    AIDS and Behavior, 2001
    Co-Authors: Willo Pequegnat, Laurie J. Bauman, James H. Bray, Ralph Diclemente, Colleen Diiorio, Sue Keir Hoppe, Loretta Sweet Jemmott, Beatrice Krauss, Margaret Miles, Roberta Paikoff
    Abstract:

    HIV is a Family disease. Family research in HIV is challenging because of complexities of Family measurement, the range of Family Constellations across cultures, and the issues specific to HIV-affected families. A Consortium of NIMH-funded investigators is conducting HIV research on families—defined as networks of mutual commitments. A procedure for identifying the “Family” is proposed. This article reviews assessment strategies from two research traditions, both of which have been greatly concerned with social context: Family assessment tradition—Family membership, parenting, and interactional dynamics; HIV/AIDS research tradition—HIV-relevant constructs generalized to minority families. Initially, a systematic procedure for defining Family membership is provided. Constructs and measures derived from the Family assessment tradition are described, including self-report and observational procedures. Constructs and measures of relevance to Family research that originated in the HIV/AIDS research tradition are described: HIV knowledge, stigma, disclosure, and social support. Constructs presented derive from the Consortium's research on the role of families in prevention and adaptation to HIV/AIDS. Most of the research conducted by the Consortium has taken place with inner-city, minority, heterosexual families. By informing the selection of constructs and measures relevant to investigating the role of families in HIV prevention, and adaptation to living with HIV/AIDS, it is the Consortium's intention to enhance the quality and quantity of research at the intersection of families and HIV/AIDS.

Brigitte Schlegelberger - One of the best experts on this subject based on the ideXlab platform.

  • Genetic testing for familial/hereditary breast cancer—comparison of guidelines and recommendations from the UK, France, the Netherlands and Germany
    Journal of Community Genetics, 2011
    Co-Authors: Dorothea Gadzicki, D. Gareth Evans, Hilary Harris, Claire Julian-reynier, Irmgard Nippert, Jörg Schmidtke, Aad Tibben, Christi J. Asperen, Brigitte Schlegelberger
    Abstract:

    In this review, the national guidelines and recommendations for genetic testing for familial/hereditary breast cancer from the UK, France, the Netherlands and Germany were evaluated as to the inclusion criteria for genetic testing. In all four countries, access to genetic testing relies basically on the Family history of breast and ovarian cancer. Similarities are obvious for most selection criteria. All four guidelines recommend embedding genetic testing within a framework of genetic counselling, and all agree to perform genetic testing first in an affected person. However, there are differences regarding the thresholds based on certain familial Constellations, detailed description of selection criteria, the degree of relatedness between affected individuals and the counsellee, the age of diagnosis, the individual history of early onset breast cancer, bilateral breast cancer, the tumour morphology or the access to intensified surveillance. These differences and open questions not covered by the guidelines, e.g. on how to deal with phenocopies, unclassified variants, genetic variants in newly identified breast cancer susceptibility genes or with Family Constellations not fitting the criteria, are discussed. New evidence is usually slowly integrated into the guidelines. An exchange process towards the harmonization of the guidelines will ensure high quality health care across Europe.

Willo Pequegnat - One of the best experts on this subject based on the ideXlab platform.

  • Measurement of the Role of Families in Prevention and Adaptation to HIV/AIDS
    AIDS and Behavior, 2001
    Co-Authors: Willo Pequegnat, Laurie J. Bauman, James H. Bray, Ralph Diclemente, Colleen Diiorio, Sue Keir Hoppe, Loretta Sweet Jemmott, Beatrice Krauss, Margaret Miles, Roberta Paikoff
    Abstract:

    HIV is a Family disease. Family research in HIV is challenging because of complexities of Family measurement, the range of Family Constellations across cultures, and the issues specific to HIV-affected families. A Consortium of NIMH-funded investigators is conducting HIV research on families—defined as networks of mutual commitments. A procedure for identifying the “Family” is proposed. This article reviews assessment strategies from two research traditions, both of which have been greatly concerned with social context: Family assessment tradition—Family membership, parenting, and interactional dynamics; HIV/AIDS research tradition—HIV-relevant constructs generalized to minority families. Initially, a systematic procedure for defining Family membership is provided. Constructs and measures derived from the Family assessment tradition are described, including self-report and observational procedures. Constructs and measures of relevance to Family research that originated in the HIV/AIDS research tradition are described: HIV knowledge, stigma, disclosure, and social support. Constructs presented derive from the Consortium's research on the role of families in prevention and adaptation to HIV/AIDS. Most of the research conducted by the Consortium has taken place with inner-city, minority, heterosexual families. By informing the selection of constructs and measures relevant to investigating the role of families in HIV prevention, and adaptation to living with HIV/AIDS, it is the Consortium's intention to enhance the quality and quantity of research at the intersection of families and HIV/AIDS.

Dorothea Gadzicki - One of the best experts on this subject based on the ideXlab platform.

  • Genetic testing for familial/hereditary breast cancer—comparison of guidelines and recommendations from the UK, France, the Netherlands and Germany
    Journal of Community Genetics, 2011
    Co-Authors: Dorothea Gadzicki, D. Gareth Evans, Hilary Harris, Claire Julian-reynier, Irmgard Nippert, Jörg Schmidtke, Aad Tibben, Christi J. Asperen, Brigitte Schlegelberger
    Abstract:

    In this review, the national guidelines and recommendations for genetic testing for familial/hereditary breast cancer from the UK, France, the Netherlands and Germany were evaluated as to the inclusion criteria for genetic testing. In all four countries, access to genetic testing relies basically on the Family history of breast and ovarian cancer. Similarities are obvious for most selection criteria. All four guidelines recommend embedding genetic testing within a framework of genetic counselling, and all agree to perform genetic testing first in an affected person. However, there are differences regarding the thresholds based on certain familial Constellations, detailed description of selection criteria, the degree of relatedness between affected individuals and the counsellee, the age of diagnosis, the individual history of early onset breast cancer, bilateral breast cancer, the tumour morphology or the access to intensified surveillance. These differences and open questions not covered by the guidelines, e.g. on how to deal with phenocopies, unclassified variants, genetic variants in newly identified breast cancer susceptibility genes or with Family Constellations not fitting the criteria, are discussed. New evidence is usually slowly integrated into the guidelines. An exchange process towards the harmonization of the guidelines will ensure high quality health care across Europe.