The Experts below are selected from a list of 3138 Experts worldwide ranked by ideXlab platform

A Huysseune - One of the best experts on this subject based on the ideXlab platform.

  • dental agenesis genetic and clinical perspectives
    Journal of Oral Pathology & Medicine, 2008
    Co-Authors: P J De Coster, L Marks, Luc Martens, A Huysseune
    Abstract:

    Dental agenesis is the most common developmental anomaly in humans and is frequently associated with several other oral abnormalities. Whereas the incidence of missing teeth may vary considerably depending on dentition, gender, and demographic or geographic profiles, distinct patterns of agenesis have been detected in the permanent dentition. These frequently involve the last teeth of a class to develop (I2, P2, M3) suggesting a possible link with evolutionary trends. Hypodontia can either occur as an isolated condition (non-syndromic Hypodontia) involving one (80% of cases), a few (less than 10%) or many teeth (less than 1%), or can be associated with a systemic condition or syndrome (syndromic Hypodontia), essentially reflecting the genetically and phenotypically heterogeneity of the condition. Based on our present knowledge of genes and transcription factors that are involved in tooth development, it is assumed that different phenotypic forms are caused by different genes involving different interacting molecular pathways, providing an explanation not only for the wide variety in agenesis patterns but also for associations of dental agenesis with other oral anomalies. At present, the list of genes involved in human non-syndromic Hypodontia includes not only those encoding a signaling molecule (TGFA) and transcription factors (MSX1 and PAX9) that play critical roles during early craniofacial development, but also genes coding for a protein involved in canonical Wnt signaling (AXIN2), and a transmembrane receptor of fibroblast growth factors (FGFR1). Our objective was to review the current literature on the molecular mechanisms that are responsible for selective dental agenesis in humans and to present a detailed overview of syndromes with Hypodontia and their causative genes. These new perspectives and future challenges in the field of identification of possible candidate genes involved in dental agenesis are discussed.

Meads D. - One of the best experts on this subject based on the ideXlab platform.

  • Can the current Hypodontia care pathway promote shared decision-making?
    'SAGE Publications', 2019
    Co-Authors: Barber S., Pavitt S., Khambay B., Meads D., Bekker H.
    Abstract:

    Objective: To determine the extent to which the current care pathway in Hypodontia promotes shared decision-making (SDM). Design: Exploratory cross-sectional study using qualitative methods. Setting: Orthodontic department of two NHS teaching hospitals in Yorkshire. Participants: Young people aged 12–16 years with Hypodontia of any severity and at any stage of treatment, and their parents and guardians. Methods: (1) Observation and audio-recording of interdisciplinary consultation in Hypodontia clinics (n = 5) without any researcher interference; (2) short, structured interviews with young people with Hypodontia (n = 8) and their parent (n = 8) using a topic guide to explore themes around decision-making. Audio-recordings were transcribed and analysed using a thematic framework. Results: Consultations were used as an opportunity for interdisciplinary discussion, information provision and treatment planning. Evidence of good communication was observed but patient engagement was low. The decision to be made was usually stated and treatment options discussed, but time constraints limited the scope for adequate information exchange and assessment of understanding. No methods were used to establish patient and family preferences or values. Interviews suggested parents expect the dental team to make decisions and young people rely on parental advocacy. Despite little evidence of SDM, participants reported satisfaction with their treatment. Conclusions: The current care pathway for Hypodontia does not support clinicians in the steps of SDM. Recommendations for improving SDM processes include support to identify preference-based decisions, greater access to comprehensive and accessible patient information to enable preparation for consultation, alternative methods for effective communication of complex information and use of preference elicitation tools to aid value-driven decision-making

  • Development of a Discrete-Choice Experiment (DCE) to Elicit Adolescent and Parent Preferences for Hypodontia Treatment.
    'Springer Science and Business Media LLC', 2019
    Co-Authors: Barber S., Bekker H., Marti J., Pavitt S., Khambay B., Meads D.
    Abstract:

    Our objective was to develop and test a discrete-choice experiment (DCE) survey to elicit adolescent and parent preferences for dental care for Hypodontia (a developmental condition where one or more teeth fail to develop). This was a mixed-methods study. Participants were adolescents (aged 12-16 years) with Hypodontia and their parents and the dentists providing Hypodontia care. Stage one entailed attribute development, as follows. (1) Attribute identification: systematic review of Hypodontia literature; interviews with adolescents with Hypodontia (n = 8) and parents (n = 8); observation of Hypodontia clinical consultations (n = 5); environmental scan of Hypodontia patient information resources (n = 30); and systematic analysis of social media posts (n = 176). (2) Attribute selection: stakeholder consultation to develop items for a questionnaire; rating and ranking questionnaire for adolescents with Hypodontia and parents (n = 18); further stakeholder consultation. Stage two involved the development of the DCE survey, and stage three included the pre-testing using cognitive interviews with adolescents (n = 12) and parents (n = 8) to assess face and content validity. The attribute long list included 27 attributes focusing on service delivery and treatment outcome, from which seven 'important' attributes were selected for pre-testing. Cognitive interviewing suggested adolescents found the DCE choice tasks challenging to understand; the survey was modified to enhance its acceptability. One attribute was excluded as it showed poor validity with adolescents. Pre-testing suggested DCE choice tasks encouraged thinking and discussion about preferences for treatment. Including the target respondent group in all stages of DCE development ensured the final DCE survey was valid and acceptable. DCE methods appear to be a useful tool for exploring joint decision making alongside conventional preference elicitation

  • Development of a Discrete-Choice Experiment (DCE) to Elicit Adolescent and Parent Preferences for Hypodontia Treatment
    'Springer Science and Business Media LLC', 2019
    Co-Authors: Barber S., Bekker H., Marti J., Pavitt S., Khambay B., Meads D.
    Abstract:

    Objective: Our objective was to develop and test a discrete-choice experiment (DCE) survey to elicit adolescent and parent preferences for dental care for Hypodontia (a developmental condition where one or more teeth fail to develop). Methods: This was a mixed-methods study. Participants were adolescents (aged 12–16 years) with Hypodontia and their parents and the dentists providing Hypodontia care. Stage one entailed attribute development, as follows. (1) Attribute identification: systematic review of Hypodontia literature; interviews with adolescents with Hypodontia (n = 8) and parents (n = 8); observation of Hypodontia clinical consultations (n = 5); environmental scan of Hypodontia patient information resources (n = 30); and systematic analysis of social media posts (n = 176). (2) Attribute selection: stakeholder consultation to develop items for a questionnaire; rating and ranking questionnaire for adolescents with Hypodontia and parents (n = 18); further stakeholder consultation. Stage two involved the development of the DCE survey, and stage three included the pre-testing using cognitive interviews with adolescents (n = 12) and parents (n = 8) to assess face and content validity. Results: The attribute long list included 27 attributes focusing on service delivery and treatment outcome, from which seven ‘important’ attributes were selected for pre-testing. Cognitive interviewing suggested adolescents found the DCE choice tasks challenging to understand; the survey was modified to enhance its acceptability. One attribute was excluded as it showed poor validity with adolescents. Pre-testing suggested DCE choice tasks encouraged thinking and discussion about preferences for treatment. Conclusions: Including the target respondent group in all stages of DCE development ensured the final DCE survey was valid and acceptable. DCE methods appear to be a useful tool for exploring joint decision making alongside conventional preference elicitation

  • Assessment of information resources for people with Hypodontia
    'Springer Science and Business Media LLC', 2018
    Co-Authors: Barber S., Pavitt S., Khambay B., Meads D., Bekker H.
    Abstract:

    Aim: To assess the adequacy of patient information to support understanding and decision-making for people affected by Hypodontia. Methods: 1) Questionnaire to understand the provision of patient information by dentists; 2) Systematic search to identify online open-access patient information; 3) Quality assessment of written patient information. Results: Questionnaire response rate was 49% (319/649); 91% examined and/or treated people with Hypodontia. Most general dentists referred patients to specialist services without providing written Hypodontia information. The majority of dental specialists provide patient leaflets but less than a third used web-resources. Only 19% of respondents felt current resources were fit-for-purpose. Thirty-one patient resources (18 leaflets and 13 online) were assessed against quality criteria. The aim of the resource was seldom explicit, the content was often incomplete and variation in readability scores indicated high levels of literacy were required. Discussion: Access to, and quality of, patient information for Hypodontia is inadequate. Current resources are not sufficiently comprehensive to prepare young patients to engage in shared dental care decisions with their parents and/or dental professionals. Conclusion: There is a need for improved access to, and provision of, information about Hypodontia if dental professionals want to meet best practice guidance and involve patients in shared decision-making

  • Identification and appraisal of outcome measures used to evaluate Hypodontia care: A systematic review
    'Elsevier BV', 2018
    Co-Authors: Barber S., Pavitt S., Meads D., Hl Bekker, Khambay B.
    Abstract:

    Introduction: Identification and appraisal of the outcome measures that have been used to evaluate Hypodontia treatment and deliver services are essential for improving care. A lack of alignment between outcomes and patient values can limit the scope for patient-centered care. Our objectives were to identify and appraise the outcomes selected to evaluate Hypodontia care. Methods: Data sources included 10 electronic databases and grey literature, searched using terms for Hypodontia and its treatment methods. Study eligibility included mixed study designs to ensure comprehensive identification of outcomes, excluding case reports and case series with fewer than 10 participants and nonsystematic reviews. Participants and interventions involved people with Hypodontia receiving any dental treatment to manage their Hypodontia. Simulated treatment, purely laboratory-based interventions, and future treatments still in development were excluded. Research outcomes were identified and synthesised into 4 categories: clinical indicators, and patient-reported, clinician-reported, and lay-reported outcomes. No synthesis of efficacy data was planned, and consequently no methodologic quality appraisal of the studies was undertaken. Results: The search identified 497 abstracts, from which 106 eligible articles were retrieved in full. Fifty-six studies and 8 quality-improvement reports were included. Clinical indicators were reported in 49 studies (88%) including appearance, function, dental health, treatment longevity, treatment success and service delivery. Patient-reported outcomes were given in 22 studies (39%) including oral health-related quality of life, appearance, function, symptoms of temporomandibular dysfunction, and patient experience. Clinician-reported outcomes were limited to appearance. Variability was seen in the tools used for measuring outcomes. Conclusions: There is a lack of rationale and consistency in the selection of outcome measures used to evaluate Hypodontia care. Outcomes are largely clinician and researcher-driven with little evidence of their relevance to patients. There was a paucity of outcomes measuring access to care, quality of care, and cost. Evidence from Hypodontia research is clinician-focused and likely to have limited value to support patients during decision making. Attempts to synthesise the evidence base for translation into practice will be challenging. There is a need for a core outcomes set with a patient-centric approach to drive improvements in health services

Arife Kapdan - One of the best experts on this subject based on the ideXlab platform.

  • dental anomalies in the primary dentition of turkish children
    European Journal of Dentistry, 2012
    Co-Authors: Burak Buldur, Alper Kustarci, Dilara Arslan, Arife Kapdan
    Abstract:

    OBJECTIVE: The aim of this study was to determine the prevalence of double teeth, Hypodontia, microdontia, and hyperdontia of primary teeth in Turkish children. METHODS: The study group comprised 1149 children (554 girls, 595 boys). The children were examined in twelve local nurseries in Sivas, Turkiye. Clinical data were collected by four dentists according to Kreiborg criteria; which includes double teeth, Hypodontia, microdontia, and supernumerary teeth. Statistical analysis of the data was performed using the chi-square test. RESULTS: Dental anomalies were found in 2.0% of children. The distribution of dental anomalies were significantly more frequent (P=.023) in boys (2.9%, n=17) than in girls (1.1%, n=6). In relation to anomaly frequencies at different ages, no difference was found (P = .760). CONCLUSION: Double teeth were the most frequently (1.3%) observed anomaly. The other anomalies followed as; 0.3% supernumerary teeth, 0.3% microdontia, 0.2% Hypodontia. Identification of dental anomalies in the anterior region at an early age is of great importance for esthetic and orthodontic treatment planning.

Barber S. - One of the best experts on this subject based on the ideXlab platform.

  • Can the current Hypodontia care pathway promote shared decision-making?
    'SAGE Publications', 2019
    Co-Authors: Barber S., Pavitt S., Khambay B., Meads D., Bekker H.
    Abstract:

    Objective: To determine the extent to which the current care pathway in Hypodontia promotes shared decision-making (SDM). Design: Exploratory cross-sectional study using qualitative methods. Setting: Orthodontic department of two NHS teaching hospitals in Yorkshire. Participants: Young people aged 12–16 years with Hypodontia of any severity and at any stage of treatment, and their parents and guardians. Methods: (1) Observation and audio-recording of interdisciplinary consultation in Hypodontia clinics (n = 5) without any researcher interference; (2) short, structured interviews with young people with Hypodontia (n = 8) and their parent (n = 8) using a topic guide to explore themes around decision-making. Audio-recordings were transcribed and analysed using a thematic framework. Results: Consultations were used as an opportunity for interdisciplinary discussion, information provision and treatment planning. Evidence of good communication was observed but patient engagement was low. The decision to be made was usually stated and treatment options discussed, but time constraints limited the scope for adequate information exchange and assessment of understanding. No methods were used to establish patient and family preferences or values. Interviews suggested parents expect the dental team to make decisions and young people rely on parental advocacy. Despite little evidence of SDM, participants reported satisfaction with their treatment. Conclusions: The current care pathway for Hypodontia does not support clinicians in the steps of SDM. Recommendations for improving SDM processes include support to identify preference-based decisions, greater access to comprehensive and accessible patient information to enable preparation for consultation, alternative methods for effective communication of complex information and use of preference elicitation tools to aid value-driven decision-making

  • Development of a Discrete-Choice Experiment (DCE) to Elicit Adolescent and Parent Preferences for Hypodontia Treatment.
    'Springer Science and Business Media LLC', 2019
    Co-Authors: Barber S., Bekker H., Marti J., Pavitt S., Khambay B., Meads D.
    Abstract:

    Our objective was to develop and test a discrete-choice experiment (DCE) survey to elicit adolescent and parent preferences for dental care for Hypodontia (a developmental condition where one or more teeth fail to develop). This was a mixed-methods study. Participants were adolescents (aged 12-16 years) with Hypodontia and their parents and the dentists providing Hypodontia care. Stage one entailed attribute development, as follows. (1) Attribute identification: systematic review of Hypodontia literature; interviews with adolescents with Hypodontia (n = 8) and parents (n = 8); observation of Hypodontia clinical consultations (n = 5); environmental scan of Hypodontia patient information resources (n = 30); and systematic analysis of social media posts (n = 176). (2) Attribute selection: stakeholder consultation to develop items for a questionnaire; rating and ranking questionnaire for adolescents with Hypodontia and parents (n = 18); further stakeholder consultation. Stage two involved the development of the DCE survey, and stage three included the pre-testing using cognitive interviews with adolescents (n = 12) and parents (n = 8) to assess face and content validity. The attribute long list included 27 attributes focusing on service delivery and treatment outcome, from which seven 'important' attributes were selected for pre-testing. Cognitive interviewing suggested adolescents found the DCE choice tasks challenging to understand; the survey was modified to enhance its acceptability. One attribute was excluded as it showed poor validity with adolescents. Pre-testing suggested DCE choice tasks encouraged thinking and discussion about preferences for treatment. Including the target respondent group in all stages of DCE development ensured the final DCE survey was valid and acceptable. DCE methods appear to be a useful tool for exploring joint decision making alongside conventional preference elicitation

  • Development of a Discrete-Choice Experiment (DCE) to Elicit Adolescent and Parent Preferences for Hypodontia Treatment
    'Springer Science and Business Media LLC', 2019
    Co-Authors: Barber S., Bekker H., Marti J., Pavitt S., Khambay B., Meads D.
    Abstract:

    Objective: Our objective was to develop and test a discrete-choice experiment (DCE) survey to elicit adolescent and parent preferences for dental care for Hypodontia (a developmental condition where one or more teeth fail to develop). Methods: This was a mixed-methods study. Participants were adolescents (aged 12–16 years) with Hypodontia and their parents and the dentists providing Hypodontia care. Stage one entailed attribute development, as follows. (1) Attribute identification: systematic review of Hypodontia literature; interviews with adolescents with Hypodontia (n = 8) and parents (n = 8); observation of Hypodontia clinical consultations (n = 5); environmental scan of Hypodontia patient information resources (n = 30); and systematic analysis of social media posts (n = 176). (2) Attribute selection: stakeholder consultation to develop items for a questionnaire; rating and ranking questionnaire for adolescents with Hypodontia and parents (n = 18); further stakeholder consultation. Stage two involved the development of the DCE survey, and stage three included the pre-testing using cognitive interviews with adolescents (n = 12) and parents (n = 8) to assess face and content validity. Results: The attribute long list included 27 attributes focusing on service delivery and treatment outcome, from which seven ‘important’ attributes were selected for pre-testing. Cognitive interviewing suggested adolescents found the DCE choice tasks challenging to understand; the survey was modified to enhance its acceptability. One attribute was excluded as it showed poor validity with adolescents. Pre-testing suggested DCE choice tasks encouraged thinking and discussion about preferences for treatment. Conclusions: Including the target respondent group in all stages of DCE development ensured the final DCE survey was valid and acceptable. DCE methods appear to be a useful tool for exploring joint decision making alongside conventional preference elicitation

  • Assessment of information resources for people with Hypodontia
    'Springer Science and Business Media LLC', 2018
    Co-Authors: Barber S., Pavitt S., Khambay B., Meads D., Bekker H.
    Abstract:

    Aim: To assess the adequacy of patient information to support understanding and decision-making for people affected by Hypodontia. Methods: 1) Questionnaire to understand the provision of patient information by dentists; 2) Systematic search to identify online open-access patient information; 3) Quality assessment of written patient information. Results: Questionnaire response rate was 49% (319/649); 91% examined and/or treated people with Hypodontia. Most general dentists referred patients to specialist services without providing written Hypodontia information. The majority of dental specialists provide patient leaflets but less than a third used web-resources. Only 19% of respondents felt current resources were fit-for-purpose. Thirty-one patient resources (18 leaflets and 13 online) were assessed against quality criteria. The aim of the resource was seldom explicit, the content was often incomplete and variation in readability scores indicated high levels of literacy were required. Discussion: Access to, and quality of, patient information for Hypodontia is inadequate. Current resources are not sufficiently comprehensive to prepare young patients to engage in shared dental care decisions with their parents and/or dental professionals. Conclusion: There is a need for improved access to, and provision of, information about Hypodontia if dental professionals want to meet best practice guidance and involve patients in shared decision-making

  • Identification and appraisal of outcome measures used to evaluate Hypodontia care: A systematic review
    'Elsevier BV', 2018
    Co-Authors: Barber S., Pavitt S., Meads D., Hl Bekker, Khambay B.
    Abstract:

    Introduction: Identification and appraisal of the outcome measures that have been used to evaluate Hypodontia treatment and deliver services are essential for improving care. A lack of alignment between outcomes and patient values can limit the scope for patient-centered care. Our objectives were to identify and appraise the outcomes selected to evaluate Hypodontia care. Methods: Data sources included 10 electronic databases and grey literature, searched using terms for Hypodontia and its treatment methods. Study eligibility included mixed study designs to ensure comprehensive identification of outcomes, excluding case reports and case series with fewer than 10 participants and nonsystematic reviews. Participants and interventions involved people with Hypodontia receiving any dental treatment to manage their Hypodontia. Simulated treatment, purely laboratory-based interventions, and future treatments still in development were excluded. Research outcomes were identified and synthesised into 4 categories: clinical indicators, and patient-reported, clinician-reported, and lay-reported outcomes. No synthesis of efficacy data was planned, and consequently no methodologic quality appraisal of the studies was undertaken. Results: The search identified 497 abstracts, from which 106 eligible articles were retrieved in full. Fifty-six studies and 8 quality-improvement reports were included. Clinical indicators were reported in 49 studies (88%) including appearance, function, dental health, treatment longevity, treatment success and service delivery. Patient-reported outcomes were given in 22 studies (39%) including oral health-related quality of life, appearance, function, symptoms of temporomandibular dysfunction, and patient experience. Clinician-reported outcomes were limited to appearance. Variability was seen in the tools used for measuring outcomes. Conclusions: There is a lack of rationale and consistency in the selection of outcome measures used to evaluate Hypodontia care. Outcomes are largely clinician and researcher-driven with little evidence of their relevance to patients. There was a paucity of outcomes measuring access to care, quality of care, and cost. Evidence from Hypodontia research is clinician-focused and likely to have limited value to support patients during decision making. Attempts to synthesise the evidence base for translation into practice will be challenging. There is a need for a core outcomes set with a patient-centric approach to drive improvements in health services

Pavitt S. - One of the best experts on this subject based on the ideXlab platform.

  • Can the current Hypodontia care pathway promote shared decision-making?
    'SAGE Publications', 2019
    Co-Authors: Barber S., Pavitt S., Khambay B., Meads D., Bekker H.
    Abstract:

    Objective: To determine the extent to which the current care pathway in Hypodontia promotes shared decision-making (SDM). Design: Exploratory cross-sectional study using qualitative methods. Setting: Orthodontic department of two NHS teaching hospitals in Yorkshire. Participants: Young people aged 12–16 years with Hypodontia of any severity and at any stage of treatment, and their parents and guardians. Methods: (1) Observation and audio-recording of interdisciplinary consultation in Hypodontia clinics (n = 5) without any researcher interference; (2) short, structured interviews with young people with Hypodontia (n = 8) and their parent (n = 8) using a topic guide to explore themes around decision-making. Audio-recordings were transcribed and analysed using a thematic framework. Results: Consultations were used as an opportunity for interdisciplinary discussion, information provision and treatment planning. Evidence of good communication was observed but patient engagement was low. The decision to be made was usually stated and treatment options discussed, but time constraints limited the scope for adequate information exchange and assessment of understanding. No methods were used to establish patient and family preferences or values. Interviews suggested parents expect the dental team to make decisions and young people rely on parental advocacy. Despite little evidence of SDM, participants reported satisfaction with their treatment. Conclusions: The current care pathway for Hypodontia does not support clinicians in the steps of SDM. Recommendations for improving SDM processes include support to identify preference-based decisions, greater access to comprehensive and accessible patient information to enable preparation for consultation, alternative methods for effective communication of complex information and use of preference elicitation tools to aid value-driven decision-making

  • Development of a Discrete-Choice Experiment (DCE) to Elicit Adolescent and Parent Preferences for Hypodontia Treatment.
    'Springer Science and Business Media LLC', 2019
    Co-Authors: Barber S., Bekker H., Marti J., Pavitt S., Khambay B., Meads D.
    Abstract:

    Our objective was to develop and test a discrete-choice experiment (DCE) survey to elicit adolescent and parent preferences for dental care for Hypodontia (a developmental condition where one or more teeth fail to develop). This was a mixed-methods study. Participants were adolescents (aged 12-16 years) with Hypodontia and their parents and the dentists providing Hypodontia care. Stage one entailed attribute development, as follows. (1) Attribute identification: systematic review of Hypodontia literature; interviews with adolescents with Hypodontia (n = 8) and parents (n = 8); observation of Hypodontia clinical consultations (n = 5); environmental scan of Hypodontia patient information resources (n = 30); and systematic analysis of social media posts (n = 176). (2) Attribute selection: stakeholder consultation to develop items for a questionnaire; rating and ranking questionnaire for adolescents with Hypodontia and parents (n = 18); further stakeholder consultation. Stage two involved the development of the DCE survey, and stage three included the pre-testing using cognitive interviews with adolescents (n = 12) and parents (n = 8) to assess face and content validity. The attribute long list included 27 attributes focusing on service delivery and treatment outcome, from which seven 'important' attributes were selected for pre-testing. Cognitive interviewing suggested adolescents found the DCE choice tasks challenging to understand; the survey was modified to enhance its acceptability. One attribute was excluded as it showed poor validity with adolescents. Pre-testing suggested DCE choice tasks encouraged thinking and discussion about preferences for treatment. Including the target respondent group in all stages of DCE development ensured the final DCE survey was valid and acceptable. DCE methods appear to be a useful tool for exploring joint decision making alongside conventional preference elicitation

  • Development of a Discrete-Choice Experiment (DCE) to Elicit Adolescent and Parent Preferences for Hypodontia Treatment
    'Springer Science and Business Media LLC', 2019
    Co-Authors: Barber S., Bekker H., Marti J., Pavitt S., Khambay B., Meads D.
    Abstract:

    Objective: Our objective was to develop and test a discrete-choice experiment (DCE) survey to elicit adolescent and parent preferences for dental care for Hypodontia (a developmental condition where one or more teeth fail to develop). Methods: This was a mixed-methods study. Participants were adolescents (aged 12–16 years) with Hypodontia and their parents and the dentists providing Hypodontia care. Stage one entailed attribute development, as follows. (1) Attribute identification: systematic review of Hypodontia literature; interviews with adolescents with Hypodontia (n = 8) and parents (n = 8); observation of Hypodontia clinical consultations (n = 5); environmental scan of Hypodontia patient information resources (n = 30); and systematic analysis of social media posts (n = 176). (2) Attribute selection: stakeholder consultation to develop items for a questionnaire; rating and ranking questionnaire for adolescents with Hypodontia and parents (n = 18); further stakeholder consultation. Stage two involved the development of the DCE survey, and stage three included the pre-testing using cognitive interviews with adolescents (n = 12) and parents (n = 8) to assess face and content validity. Results: The attribute long list included 27 attributes focusing on service delivery and treatment outcome, from which seven ‘important’ attributes were selected for pre-testing. Cognitive interviewing suggested adolescents found the DCE choice tasks challenging to understand; the survey was modified to enhance its acceptability. One attribute was excluded as it showed poor validity with adolescents. Pre-testing suggested DCE choice tasks encouraged thinking and discussion about preferences for treatment. Conclusions: Including the target respondent group in all stages of DCE development ensured the final DCE survey was valid and acceptable. DCE methods appear to be a useful tool for exploring joint decision making alongside conventional preference elicitation

  • Assessment of information resources for people with Hypodontia
    'Springer Science and Business Media LLC', 2018
    Co-Authors: Barber S., Pavitt S., Khambay B., Meads D., Bekker H.
    Abstract:

    Aim: To assess the adequacy of patient information to support understanding and decision-making for people affected by Hypodontia. Methods: 1) Questionnaire to understand the provision of patient information by dentists; 2) Systematic search to identify online open-access patient information; 3) Quality assessment of written patient information. Results: Questionnaire response rate was 49% (319/649); 91% examined and/or treated people with Hypodontia. Most general dentists referred patients to specialist services without providing written Hypodontia information. The majority of dental specialists provide patient leaflets but less than a third used web-resources. Only 19% of respondents felt current resources were fit-for-purpose. Thirty-one patient resources (18 leaflets and 13 online) were assessed against quality criteria. The aim of the resource was seldom explicit, the content was often incomplete and variation in readability scores indicated high levels of literacy were required. Discussion: Access to, and quality of, patient information for Hypodontia is inadequate. Current resources are not sufficiently comprehensive to prepare young patients to engage in shared dental care decisions with their parents and/or dental professionals. Conclusion: There is a need for improved access to, and provision of, information about Hypodontia if dental professionals want to meet best practice guidance and involve patients in shared decision-making

  • Is social media the way to empower patients to share their experiences of dental care?
    'Elsevier BV', 2018
    Co-Authors: Sk Barber, Lam Y, Tm Hodge, Pavitt S.
    Abstract:

    Background: Social media present opportunities to understand patient experience and information needs. In this study, the authors use Hypodontia as an example to explore social media use by dental patients and how this provides for understanding patient experience. Methods: The cross-sectional survey design involved systematic search of 6 social media online environments with Hypodontia-related terms. The authors categorized records by using a coding system for user, type and theme of post, and target audience. The authors used a thematic framework approach to analyze qualitatively the word content of posts from people affected by Hypodontia (nondentists). Results: The authors searched and identified 571 records and included 467 of them in their study. The authors analyzed the content of records from people affected by Hypodontia (n = 176). Themes emerged about the experience of untreated Hypodontia, treatment experience and outcomes, and decision making. Content analysis provided evidence about peer-to-peer communication, areas of information need, and desire for peer support. Conclusions: Social media communities have responded to the need for information exchange and peer support by the public. Analysis of communications helped identify a need for dissemination of understandable information to patients and improved dentist awareness of patient needs. Practical Implications: Clinicians should reassess understanding and information needs actively throughout treatment and identify support needs. Clinicians should refer patients to quality information sources and peer support groups