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Ad A. Kaptein - One of the best experts on this subject based on the ideXlab platform.
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Illness Perceptions are Associated with Quality of Life in Patients with Fibrous Dysplasia.
Calcified tissue international, 2017Co-Authors: Bas C J Majoor, Ad A. Kaptein, Cornelie D. Andela, C. R. Quispel, M. Rotman, P. D. S. Dijkstra, N.a.t. Hamdy, Natasha M. Appelman-dijkstraAbstract:Fibrous dysplasia (FD) is a rare bone disorder in which normal bone is replaced by fibrous tissue resulting in pain, deformities, pathological fractures or asymptomatic disease. Illness Perceptions are patients’ cognitions and emotions about their Illness and its treatment, which may impact on Quality of Life (QoL). Here, we explore Illness Perceptions in patients with FD compared to other disorders, identify factors associated with Illness Perceptions and evaluate their relationship with QoL. Ninety-seven out of 138 eligible patients from the LUMC FD cohort completed the Illness Perception Questionnaire-Revised (IPQ-R) and the Short Form-36 (SF-36). Age, Gender, Skeletal Burden Score (SBS), FGF-23 levels, type of FD and SF-36 scores were analysed for an association with Illness Perceptions. We observed significant (p < 0.01) differences in patients’ Illness Perceptions between FD subtypes in the domains: identity, timeline acute/chronic and consequences. Patients with craniofacial FD reported to perceive more consequences (p = 0.022). High SBS was associated with perceiving more negative consequences and attributing the cause of FD to psychological factors (p < 0.01), and high FGF-23 levels with attributing more symptoms to the disease and perceiving more consequences (p < 0.01). The IPQ-R domain identity, timeline acute/chronic, timeline cyclical, consequences, emotional representations and treatment control were significantly associated with impairments in QoL. Illness Perceptions in patients with FD relate to QoL, differ from those in patients with other disorders, and are associated with disease severity. Identifying and addressing maladaptive Illness Perceptions may improve quality of life in patients with FD.
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Illness Perceptions and outcomes in patients with inflammatory bowel disease is coping a mediator
International Journal of Behavioral Medicine, 2017Co-Authors: S J H Van Erp, Manja Vollmann, L K M P Brakenhoff, D Van Der Heijde, R A Veenendaal, H Fidder, D W Hommes, Ad A. KapteinAbstract:Patients with inflammatory bowel disease (IBD) often experience severe impairment in different life domains. Psychological factors, such as Illness Perceptions and coping, may play a role in the adjustment to IBD as indicated by mental and physical health, activity, and work impairment. The present study aimed at examining the assumption of the Common Sense Model (CSM) that coping mediates the relationship between Illness Perceptions and adjustment in patients with IBD. In a cross-sectional design, 211 IBD patients (73 % Crohn’s disease, 40 % male, mean age 42.9 ± 12.9 years) attending an outpatient clinic completed questionnaires assessing Illness Perceptions (IPQ-R), coping (CORS), mental and physical health (SF-36), as well as activity and work impairment (WPAI). Multiple mediation analyses were applied that allow estimating the total and direct effects of all Illness perception dimensions and the indirect effects through all coping strategies on the Illness outcomes simultaneously. The analyses yielded significant direct effects of Perceptions regarding the cyclical course, the chronic course, the severity of the consequences, the comprehensibility, and the emotional impact of IBD on study outcomes. Additionally, significant indirect effects were found for the Perceptions regarding the severity of the consequences, the possibility of personal control, and the comprehensibility of IBD on mental and physical health as well as activity impairment through the use of one specific coping strategy, i.e., reduction of activity. The results provide evidence for the assumptions of the CSM and suggest the importance of addressing Illness Perceptions and activity stimulation in quality health care for IBD patients.
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Illness Perceptions in Women with Breast Cancer-a Systematic Literature Review.
Current breast cancer reports, 2015Co-Authors: Ad A. Kaptein, Maarten J. Fischer, Jan W. Schoones, Melissa S. Y. Thong, Judith R. Kroep, Koos J. M. Van Der HoevenAbstract:Women with breast cancer respond to the Illness and its medical management in their own personal way. Their coping behavior and self-management are determined by their views (cognitions) and feelings (emotions) about symptoms and Illness: their Illness Perceptions. This paper reports the results of a systematic literature review of Illness Perceptions and breast cancer. In the 12 studies identified, published between 2012 and 2015, Illness Perceptions were found to be important concomitants of medical and behavioral outcomes: fear of recurrence, distress, quality of life, satisfaction with medical care, use of traditional healers, and risk perception. Intervention studies are called for where the effects are examined of replacing unhelpful Illness Perceptions by more constructive ones. Health care providers do well by incorporating Illness Perceptions in their care for women with breast cancer, as this is instrumental in improving patients’ quality of life.
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Musicians' Illness Perceptions of musculoskeletal complaints.
Clinical rheumatology, 2013Co-Authors: Laura M. Kok, Ad A. Kaptein, Theodora P. M. Vliet Vlieland, Marta Fiocco, Rob G H H NelissenAbstract:The purpose of this study is to know the views of people about their Illness, i.e., Illness Perceptions, determine coping strategies, and outcome. Previous research suggests a higher prevalence and a different perception of musculoskeletal complaints between musicians and nonmusicians. The aim of this study is to compare Illness Perceptions related to musculoskeletal complaints between musicians and nonmusicians. In this cross-sectional study, students from three music academies (n = 345) and one university medical center (n = 2,870) in the Netherlands received an electronic questionnaire concerning questions on sociodemographic characteristics, use of musical instruments, occurrence and characteristics of musculoskeletal complaints in the past year, and the Brief Illness Perception Questionnaire (B-IPQ). Baseline and B-IPQ scores were compared between the samples by means of t tests, chi-square tests, and regression models to adjust for differences in sociodemographic characteristics. Eighty-three music academy students and 494 medical students completed the questionnaire (response rates, 25.5 and 17.6 %, respectively). Seventy-four (89 %) persons in the musician group and 382 (78 %) persons in the nonmusician group reported occurrence of musculoskeletal complaints during the last 12 months. Adjusted for sociodemographic characteristics, the B-IPQ scores of the domains consequences (my Illness is a serious condition), concern (I am extremely concerned about my Illness), and emotions (my Illness makes me scared) were significantly higher among musicians, whereas personal control (there is little I can do to improve my Illness), identity (number of symptoms patient sees as part of Illness) were not significantly different. Music academy students had a significant more positive score on treatment control. Music academy students report more negative Perceptions of their musculoskeletal complaints compared to medical students. Although some selection bias is present, this is supposed to have a minor effect on the outcomes of this study. Addressing Illness Perceptions in musicians with musculoskeletal complaints could have beneficial effects on physical and functional outcomes.
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The impact of Illness Perceptions on sexual functioning in patients with systemic lupus erythematosus
Journal of psychosomatic research, 2012Co-Authors: Gabriëlle M N Daleboudt, Elizabeth Broadbent, Fiona M. Mcqueen, Ad A. KapteinAbstract:Abstract Objective Sexual problems are common in patients with chronic Illnesses. However, few studies have investigated problems with sexual functioning in patients with systemic lupus erythematosus (SLE). The present cross-sectional study assessed the influence of SLE on sexual functioning and its associations with Illness Perceptions and medical and socio-demographic characteristics. Method The study included 106 SLE patients who used at least one immunosuppressive agent to control their SLE. Sexual functioning was measured using the Physical Disability Sexual and Body Esteem and the Medical Impact Scale from the Sexual Functioning Questionnaire. Patients' Illness Perceptions were assessed using the Brief Illness Perception Questionnaire. Results 49.1% of patients agreed that their SLE had a negative influence on their sexual functioning. In addition, treatment for SLE seemed to play an important role in the negative impact on sexual functioning. Patients' Illness Perceptions were more important predictors of sexual functioning than medical and socio-demographic characteristics. SLE patients appear to report a lower sexual functioning than patients with other chronic Illnesses. Conclusion SLE in general and immunosuppressive treatment for SLE specifically have a negative influence on sexual functioning. Patients' Illness Perceptions appear to play a more important role in the negative impact on sexual functioning than medical characteristics such as disease activity. The high prevalence of sexual problems highlights the need to more frequently address and aim to improve sexual functioning in patients with SLE. Patients may benefit from methods such as Illness perception modification and coping style interventions to reduce their sexual problems.
Elizabeth Broadbent - One of the best experts on this subject based on the ideXlab platform.
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Association between Illness Perceptions and return-to-work expectations in workers with common mental health symptoms
Journal of Occupational Rehabilitation, 2014Co-Authors: Camilla Løvvik, Elizabeth Broadbent, Mari Hysing, Simon Øverland, Silje Endresen RemeAbstract:PURPOSE: Mental health symptoms (MHSs) may affect people's work capacity and lead to sickness absence and disability. Expectations and Perceptions of Illness have been shown to influence return to work (RTW) across health conditions, but we know little about Illness Perceptions and RTW-expectations in MHSs. The aim of this study was to investigate the association between Illness Perceptions and RTW-expectations in a group struggling with work participation due to MHSs. METHODS: Cross-sectional associations between Illness Perceptions and return to work expectations at baseline were analyzed for 1,193 participants who reported that MHSs affected their work participation. The study was part of a randomized controlled trial evaluating the effect of job focused Cognitive Behavioral Therapy (CBT) combined with supported employment (IPS). Participants were from a working age population with diverse job status. RESULTS: There was a strong and salient relationship between Illness Perceptions and RTW-expectations. When adjusting for demographic and clinical variables, the components consequences, personal control, identity and Illness concern remained significantly associated with uncertain and negative RTW-expectations. Less Illness understanding remained significantly associated with uncertain RTW-expectations, while timeline and emotional representations remained significantly associated with negative RTW-expectations. In the fully adjusted model only the consequences component (believing that Illness has more severe consequences) remained significantly associated with RTW-expectations. Openly asked, participants reported work, personal relationships and stress as main causes of their Illness. CONCLUSIONS: In people with MHSs who struggle with work participation, Perceptions and beliefs about their problems are strongly associated with their expectations to return to work.
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The impact of Illness Perceptions on sexual functioning in patients with systemic lupus erythematosus
Journal of psychosomatic research, 2012Co-Authors: Gabriëlle M N Daleboudt, Elizabeth Broadbent, Fiona M. Mcqueen, Ad A. KapteinAbstract:Abstract Objective Sexual problems are common in patients with chronic Illnesses. However, few studies have investigated problems with sexual functioning in patients with systemic lupus erythematosus (SLE). The present cross-sectional study assessed the influence of SLE on sexual functioning and its associations with Illness Perceptions and medical and socio-demographic characteristics. Method The study included 106 SLE patients who used at least one immunosuppressive agent to control their SLE. Sexual functioning was measured using the Physical Disability Sexual and Body Esteem and the Medical Impact Scale from the Sexual Functioning Questionnaire. Patients' Illness Perceptions were assessed using the Brief Illness Perception Questionnaire. Results 49.1% of patients agreed that their SLE had a negative influence on their sexual functioning. In addition, treatment for SLE seemed to play an important role in the negative impact on sexual functioning. Patients' Illness Perceptions were more important predictors of sexual functioning than medical and socio-demographic characteristics. SLE patients appear to report a lower sexual functioning than patients with other chronic Illnesses. Conclusion SLE in general and immunosuppressive treatment for SLE specifically have a negative influence on sexual functioning. Patients' Illness Perceptions appear to play a more important role in the negative impact on sexual functioning than medical characteristics such as disease activity. The high prevalence of sexual problems highlights the need to more frequently address and aim to improve sexual functioning in patients with SLE. Patients may benefit from methods such as Illness perception modification and coping style interventions to reduce their sexual problems.
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Illness Perceptions in patients with systemic lupus erythematosus and proliferative lupus nephritis
Lupus, 2011Co-Authors: Gabriëlle M N Daleboudt, Elizabeth Broadbent, Stefan P. Berger, Ad A. KapteinAbstract:This study investigated the Illness Perceptions of patients with systemic lupus erythematosus (SLE) and whether Perceptions are influenced by type of treatment for proliferative lupus nephritis. In addition, the Illness Perceptions of SLE patients were compared with those of patients with other chronic Illnesses. Thirty-two patients who had experienced at least one episode of proliferative lupus nephritis were included. Patients were treated with either a high or low-dose cyclophosphamide (CYC) regimen (National Institutes of Health [NIH] vs. Euro-Lupus protocol). Illness Perceptions were measured with the Brief Illness Perception Questionnaire (B-IPQ) and a drawing assignment. The low-dose CYC group perceived their treatment as more helpful than the high-dose CYC group. In comparison with patients with asthma, SLE patients showed more negative Illness Perceptions on five of the eight Illness perception domains. Drawings of the kidney provided additional information about Perceptions of treatment effectiv...
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Illness Perceptions and Health: Innovations and Clinical Applications
Social and Personality Psychology Compass, 2010Co-Authors: Elizabeth BroadbentAbstract:Using a self-regulatory process, individuals act upon their cognitive and emotional representations of health threats to actively manage their health. Leventhal’s common-sense model describes cognitive representations of Illness that include Perceptions about the identity, timeline, consequences, control and cause of Illness. Research has shown that individuals’ Illness Perceptions predict health behaviours and functional outcomes, particularly when Perceptions are specific. Psychometric assessments of Illness Perceptions need to have the ability to detect specific and idiosyncratic Perceptions and emotions; methods include rating scales and patients’ drawings of their Illness. Recent randomised trials have demonstrated that interventions can change Illness Perceptions and improve health outcomes in patient groups, including those with normal test-results, and that family members also benefit from such interventions. These innovations inform clinical applications for improving patient health.
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Illness Perceptions predict reassurance following a negative exercise stress testing result
Psychology & Health, 2006Co-Authors: Liesje Donkin, Elizabeth Broadbent, Chris Ellis, Rachael Powell, Greg D. Gamble, Keith J. PetrieAbstract:Many patients are not reassured after receiving normal results following cardiac investigations. While previous studies have shown anxiety to be a contributing factor, little research has investigated the influence of patients’ Illness Perceptions on reassurance. In this study we investigated whether Illness Perceptions predicted patients’ reassurance following normal exercise stress test results. Sixty-two chest pain patients without prior diagnosed cardiac pathology completed questionnaires assessing anxiety and Illness Perceptions prior to exercise stress testing. Patients completed a reassurance questionnaire immediately following their appointment and again one month later. Illness Perceptions (consequences, timeline, identity, Illness concern, and emotional effect) but not anxiety, significantly predicted reassurance immediately following testing. We found both state anxiety and Illness Perceptions to predict reassurance one month later. After controlling for anxiety, longer timeline and lower treatment control beliefs predicted lower reassurance. The results suggest that an intervention targeting patients who have high anxiety and negative Illness Perceptions prior to testing may improve reassurance and decrease disability and the subsequent use of medical care.
John Weinman - One of the best experts on this subject based on the ideXlab platform.
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to what extent do disease severity and Illness Perceptions explain depression anxiety and quality of life in hidradenitis suppurativa
British Journal of Dermatology, 2019Co-Authors: Pavon A Blanco, M A Turner, Gabriela Petrof, John WeinmanAbstract:Background Hidradenitis suppurativa (HS) can have significant psychological consequences and affect quality of life (QoL). This has been associated with disease severity. However, it has not been established whether these effects are more strongly related to the severity of the disease, as rated by the clinician, or to the patient's perception of their condition. Objectives To examine the relationships between disease severity and Illness Perceptions, and depression, anxiety and QoL in HS. Methods This study was cross-sectional in design. In total, 211 patients with HS completed the Brief Illness Perception Questionnaire (BIPQ), the Patient's Health Questionnaire-2 (PHQ-2), the Generalized Anxiety Disorder-2 (GAD-2) and the Dermatology Life Quality Index (DLQI). HS severity was assessed by the clinician, using the Hurley staging system. Results Patients with HS perceived their condition as chronic - having many symptoms, severe consequences and a negative emotional influence - and felt low personal control over their Illness. Self-reports showed significant levels of depression, anxiety and impaired QoL, which were strongly associated with Illness Perceptions. Hierarchical regression analyses revealed that Illness Perceptions explained a much greater proportion of variance in depression, anxiety and QoL than the traditional explanatory variable, disease severity. Conclusions HS can severely impair psychological well-being and QoL, which are more strongly associated with the person's beliefs about their Illness than clinicians' severity assessments. Therefore, Illness Perceptions may be useful in the routine assessment of patients with HS and may provide a strong basis for interventions aimed at improving their psychological well-being and QoL.
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Illness Perceptions About Asthma Are Determinants of Outcome
The Journal of asthma : official journal of the Association for the Care of Asthma, 2008Co-Authors: Ad A. Kaptein, John Weinman, Brian M. Hughes, Margreet Scharloo, Maarten J. Fischer, Lucia Snoei, Klaus F. RabeAbstract:This article reviews an emerging area of research on patients with asthma: namely, Illness Perceptions and their relationships with various aspects of outcome. The article briefly introduces the Common Sense Model, outlining the relevance of how "lay" patients conceptualize symptoms, Illness, and treatment. On the basis of a comprehensive literature search, nine empirical studies illustrating the relationships between Illness Perceptions and outcomes are discussed. It is concluded that further research should focus on assessing asthma-specific Illness and treatment beliefs. Also, given the effects of intervention studies in Illness Perceptions in other patient categories, it is recommended that serious consideration be given to intervention studies focusing on eliciting and changing Illness Perceptions in asthma patients, especially in those whose self-management seems to be inadequate.
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Illness Perceptions and COPD: An Emerging Field for COPD Patient Management
The Journal of asthma : official journal of the Association for the Care of Asthma, 2008Co-Authors: Ad A. Kaptein, Margreet Scharloo, Maarten J. Fischer, Lucia Snoei, Klaus F. Rabe, Linda D. Cameron, Jacob K. Sont, John WeinmanAbstract:Objective. Patients with chronic obstructive pulmonary disease have Perceptions of their Illness and its management that determine their coping behaviors (e.g., adherence, self-management) and, consequently, their outcomes. This article reviews the empirical literature on Illness Perceptions in patients with COPD to provide clinicians with information regarding the potential utility of incorporating Illness Perceptions into clinical COPD care. Method. A literature search in PubMed identified 16 studies examining associations between Illness Perceptions and outcomes in patients with COPD. Results. Seven of the 16 papers were from US authors, followed by 3 each from the UK and The Netherlands, and one study each from Australia, Canada, and New Zealand. The first study was published in 1983, and the numbers of patients per study ranged fom 10 to 266. The Illness Perceptions were those delineated by two theoretical models (cognitive behavioral theory and the Common Sense Model), and they were assessed with op...
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Illness Perceptions in dialysis patients and their association with quality of life
Psychology & health, 2008Co-Authors: Lucie Timmers, John Weinman, Melissa S. Y. Thong, Friedo W. Dekker, Elisabeth W. Boeschoten, Monique Heijmans, Mieke Rijken, Ad A. KapteinAbstract:The present study explored Illness Perceptions of end stage renal disease (ESRD) patients on both haemodialysis (HD) and peritoneal dialysis (PD) treatment, and their associations with quality of life. Leventhal's self-regulation model (SRM) was used as a theoretical framework. Illness Perceptions and quality of life were assessed with the IPQ-R and the SF-36 in 91 HD and 42 PD patients participating in the NECOSAD-study. Compared to HD patients, PD patients experienced more personal control and had a better understanding of the Illness. Illness Perceptions explained from 17 to 51% of the variance in quality of life scores. Perception of more symptoms, more consequences and lower personal control were associated with lower well-being. The concept of Illness Perceptions is useful in understanding the impact of ESRD and of dialysis treatment on quality of life. Interventions aimed at providing more knowledge about ESRD and dialysis, and provision of skills to coping with the Illness and its consequences may improve quality of life in dialysis patients.
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do Illness Perceptions predict health outcomes in primary care patients a 2 year follow up study
Journal of Psychosomatic Research, 2007Co-Authors: Lisbeth Frostholm, John Weinman, Eva Oernboel, Kaj Sparle Christensen, Tomas Toft, Frede Olesen, Per FinkAbstract:Abstract Objective Little is known about whether Illness Perceptions affect health outcomes in primary care patients. The aim of this study was to examine if patients' Illness Perceptions were associated with their self-rated health in a 2-year follow-up period. Methods One thousand seven hundred eighty-five primary care patients presenting a new or recurrent health problem completed an adapted version of the Illness perception questionnaire and the Medical Outcomes Study 36-Item Short-Form Health Survey (SF-36) at baseline and 3, 12, and 24 months' follow-up. Linear regressions were performed for (1) all patients, (2) patients without chronic disorders presenting physical disease, and (3) patients presenting medically unexplained symptoms (MUS). Results Negative Illness Perceptions were associated with poor physical and mental health at baseline. They most strongly predicted changes in health status at follow-up for the whole group of patients. Patients presenting with MUS had more negative Illness Perceptions and lower mental and physical components subscale of the SF-36 scores at all time points. Conclusions Patients' perception of a new or recurrent health problem predicts self-reported physical and mental health up to 2 years after consulting the general practitioner and offers an obvious starting point for addressing nonbiomedical aspects of Illness.
Simon R. Knowles - One of the best experts on this subject based on the ideXlab platform.
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Exploring the Impact of Illness Perceptions, Self-efficacy, Coping Strategies, and Psychological Distress on Quality of Life in a Post-stroke Cohort
Journal of Clinical Psychology in Medical Settings, 2020Co-Authors: Catherine Minshall, Chantal F. Ski, Pragalathan Apputhurai, David J. Castle, Zoe Jenkins, David R. Thompson, Simon R. KnowlesAbstract:This study evaluated the mediating role of self-efficacy, coping, depression and anxiety on the relationship between Illness Perceptions and quality of life in stroke survivors ( n = 72; 32 females; mean [SD] age 65.09 [14.14] years; male mean [SD] age 69.83 [11.81]). Illness Perceptions (Brief Illness Perceptions Questionnaire; BIPQ), coping styles (Carver Brief-COPE scale; B-COPE), depression/anxiety (Hospital Anxiety and Depression Scale; HADS), self-efficacy (General Self-Efficacy Scale; GSE) and quality of life (Assessment of quality of life; AQOL-6D) were analysed. Correlation analyses showed Illness perception, maladaptive coping, self-efficacy, depression and anxiety to have a significant negative relationship with quality of life. Mediation analyses showed that while maladaptive coping and self-efficacy did not mediate the relationship between Illness perception and quality of life, depression and anxiety did. The final model explained 76.74% of the variance in quality of life. Although based on a relatively small sample size, these results provide evidence for the important role of psychosocial factors in quality of life in post-stroke cohorts.
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exploration of health status Illness Perceptions coping strategies and psychological morbidity in stoma patients
Journal of Wound Ostomy and Continence Nursing, 2014Co-Authors: Simon R. Knowles, Davina Tribbick, William Connell, David Castle, Michael R Salzberg, Michael A KammAbstract:PURPOSE: We employed the Common Sense Model (CSM) of Illness Perceptions to examine the relative contribution of Illness Perceptions, stoma self-efficacy, and coping strategies in explaining anxiety and depression symptoms in patients with a fecal ostomy. The CSM suggests that the consequences of Illness activity, such as psychological distress, are influenced by an individual's Illness Perceptions as well as what coping strategies they engage in. DESIGN: Descriptive, cross-sectional questionnaire-based study. SUBJECTS AND SETTING: One hundred fifty adults with a stoma (54 males, and 96 females; mean age 44 years) completed an online survey. METHODS: Several instruments were used to measure study outcomes, including the Health Perceptions Questionnaire, Brief Illness Perceptions Questionnaire, Carver Brief Coping Questionnaire, Stoma Self-Efficacy Scale, and the Hospital Anxiety and Depression Scale. Participants were advised of the study through online forums containing a link to the survey. Outcome measures used in the current study are valid and reliable and have been extensively used in medically ill patients. RESULTS: Using structural equation modeling, the final model provided an excellent fit to the data ([chi]223= 16.53, P = .22, [chi]2/N = 1.27, SRMR 0.97, CFI > 0.99). There was a direct pathway from health status to Illness Perceptions months since surgery directly influenced health status, Illness beliefs, and adaptive emotion-focused coping ([beta]= .81, P < .001). Several indirect (mediating) pathways were also identified. Illness Perceptions mediated the relationship between health status and stoma self-efficacy and maladaptive and adaptive emotion-focused coping. Maladaptive coping mediated the relationship between Illness Perceptions and depression and anxiety, and adaptive emotion-focused coping mediated the relationship between Illness perception and depression. The final model provided support for the CSM, in that Illness Perceptions were directly related to Illness status, and that both Illness Perceptions and coping strategies directly influenced anxiety and depression. More specifically, maladaptive coping style (eg, ignore problems) exacerbated depression and anxiety symptoms, while self-efficacy and emotion-focused coping style (eg, seek advice) ameliorate depression, but not anxiety. Months since surgery was associated with improved health status, reduced poorer Illness Perceptions, and increased emotional-focused coping. CONCLUSIONS: Illness Perceptions and coping were found to mediate anxiety and depression. The results confirm that how individuals perceive their Illness and what coping strategies they engage in impacts their psychological well-being. Study findings support the need for designing targeting psychological interventions based on individual Illness Perceptions and self-efficacy rather than exclusively focusing on coping strategies in patients with a stoma.
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Illness Perceptions in ibd influence psychological status sexual health and satisfaction body image and relational functioning a preliminary exploration using structural equation modeling
Journal of Crohns & Colitis, 2013Co-Authors: Simon R. Knowles, C Gass, Finlay A MacraeAbstract:Background and aims: This study aimed to characterize the relationships between Illness Perceptions, body image and self-consciousness, sexual health (sexual problems and sexual satisfaction), anxiety and depression, and marital and family functioning in patients with IBD. Methods: Seventy-fourIBD patients (44 CD, 13 males, 61 females, mean age 38 years) completed an online questionnaire. Illness Perceptions explored with the Brief Illness Perceptions Questionnaire, and anxiety and depression measured using the Hospital Anxiety and Depression Scale, Sexual Problems Scale, Sexual Satisfaction Scale, Marital Functioning Scale, Family Functioning Scale, and Body Image and Self-Consciousness During Intimacy Scale. Results: Exploratory Structural Equation Modeling (SEM) provided a final model with an excellent fit (χ 2 (25)=27.84, p=.32, χ 2 /N=1.11, CFIN0.99, RMSEAb0.04, SRMRb0.07, GFIN0.93). Illness Perceptions had a significant direct influence on depression (β=0.49, pb0.001), anxiety (β=0.55, pb0.001), and family functioning (β=�0.17, pb0.001). Several mediating pathways were also found involving sexual problems, sexual satisfaction, and body image and self-consciousness during intimacy. Being female was associated with increased sexual problems but increased sexual satisfaction. Conclusions: The findings provide further evidence for the adverse impact of patient IBD-related Illness Perceptions on anxiety and depression. The findings also provide the preliminary evidence for the impact of Illness Perceptions and psychological comorbidity in relation to sexual health and relationship and family functioning. These aspectsofpsychological processing provide a framework and direction for further research into the nature of IBD and its influence on the patient and their
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preliminary examination of the relations between disease activity Illness Perceptions coping strategies and psychological morbidity in crohn s disease guided by the common sense model of Illness
Inflammatory Bowel Diseases, 2011Co-Authors: Simon R. Knowles, William Connell, Michael A Kamm, Jarrad WilsonAbstract:Background: An individual's psychological adjustment to Illness is influenced by disease severity, Illness Perceptions, and coping strategies. A more precise understanding of the contribution of each of these factors to a patient's well-being may influence the kind of psychological support required by patients. This study therefore aimed to characterize the contributors to psychological well-being in patients with Crohn's disease (CD). The design was a cross-sectional questionnaire-based study. Methods: Ninety-six CD patients (34 males, 62 females, mean age 38 years) attending a tertiary hospital inflammatory bowel disease outpatient clinic were studied. Disease severity was evaluated according to the Crohn's Disease Activity Index (CDAI), coping styles assessed with the Carver Brief COPE scale, Illness Perceptions explored with the Brief Illness Perceptions Questionnaire (BIPQ), and anxiety and depression measured using the Hospital Anxiety and Depression Scale (HADS). Results: Combining the questionnaire data using structural equation modeling resulted in a final model with an excellent fit (χ2 (7) = 10.42, P = 0.17, χ2/N = 1.49, root mean square error of approximation (RMSEA) 0.97, Goodness-of-fit index (GFI) > 0.97). Disease activity had a significant direct influence on Illness Perceptions (β = 51, P < 0.001). In turn, Illness Perceptions had a significant direct influence on depression and anxiety (β = 41, P < 0.001, β = 0.40, P < 0.001, respectively). Use of emotional coping strategies was associated significantly (P < 0.001) with the presence of anxiety and depression. Conclusions: There is an interrelationship between disease activity, Illness Perceptions, coping strategies, and depression and anxiety. These aspects of psychological processing provide a framework and direction for the psychological support that patients with CD require. (Inflamm Bowel Dis 2011;)
Gabriëlle M N Daleboudt - One of the best experts on this subject based on the ideXlab platform.
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The impact of Illness Perceptions on sexual functioning in patients with systemic lupus erythematosus
Journal of psychosomatic research, 2012Co-Authors: Gabriëlle M N Daleboudt, Elizabeth Broadbent, Fiona M. Mcqueen, Ad A. KapteinAbstract:Abstract Objective Sexual problems are common in patients with chronic Illnesses. However, few studies have investigated problems with sexual functioning in patients with systemic lupus erythematosus (SLE). The present cross-sectional study assessed the influence of SLE on sexual functioning and its associations with Illness Perceptions and medical and socio-demographic characteristics. Method The study included 106 SLE patients who used at least one immunosuppressive agent to control their SLE. Sexual functioning was measured using the Physical Disability Sexual and Body Esteem and the Medical Impact Scale from the Sexual Functioning Questionnaire. Patients' Illness Perceptions were assessed using the Brief Illness Perception Questionnaire. Results 49.1% of patients agreed that their SLE had a negative influence on their sexual functioning. In addition, treatment for SLE seemed to play an important role in the negative impact on sexual functioning. Patients' Illness Perceptions were more important predictors of sexual functioning than medical and socio-demographic characteristics. SLE patients appear to report a lower sexual functioning than patients with other chronic Illnesses. Conclusion SLE in general and immunosuppressive treatment for SLE specifically have a negative influence on sexual functioning. Patients' Illness Perceptions appear to play a more important role in the negative impact on sexual functioning than medical characteristics such as disease activity. The high prevalence of sexual problems highlights the need to more frequently address and aim to improve sexual functioning in patients with SLE. Patients may benefit from methods such as Illness perception modification and coping style interventions to reduce their sexual problems.
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Illness Perceptions in patients with systemic lupus erythematosus and proliferative lupus nephritis
Lupus, 2011Co-Authors: Gabriëlle M N Daleboudt, Elizabeth Broadbent, Stefan P. Berger, Ad A. KapteinAbstract:This study investigated the Illness Perceptions of patients with systemic lupus erythematosus (SLE) and whether Perceptions are influenced by type of treatment for proliferative lupus nephritis. In addition, the Illness Perceptions of SLE patients were compared with those of patients with other chronic Illnesses. Thirty-two patients who had experienced at least one episode of proliferative lupus nephritis were included. Patients were treated with either a high or low-dose cyclophosphamide (CYC) regimen (National Institutes of Health [NIH] vs. Euro-Lupus protocol). Illness Perceptions were measured with the Brief Illness Perception Questionnaire (B-IPQ) and a drawing assignment. The low-dose CYC group perceived their treatment as more helpful than the high-dose CYC group. In comparison with patients with asthma, SLE patients showed more negative Illness Perceptions on five of the eight Illness perception domains. Drawings of the kidney provided additional information about Perceptions of treatment effectiv...
