The Experts below are selected from a list of 360 Experts worldwide ranked by ideXlab platform
Richard Platt - One of the best experts on this subject based on the ideXlab platform.
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syndromic surveillance using minimum transfer of identifiable data the example of the national bioterrorism syndromic surveillance demonstration program
Journal of Urban Health-bulletin of The New York Academy of Medicine, 2003Co-Authors: Richard Platt, Carmella Bocchino, Blake Caldwell, Robert Harmon, Ken Kleinman, Ross Lazarus, Andrew F Nelson, James D NordinAbstract:Several health plants and other organizations are collaborating with the Centers for Disease Control and Prevention to develop a syndromic surveillance system with national coverage that includes more than 20 million people. A principal design feature of this system is reliance on daily reporting of counts of individuals with syndromes of interest in specified geographic regions rather than reporting of individual encounter-level information. On request from public health agencies, health plans and telephone triage services provide additional information regarding individuals who are part of apparent clusters of illness. This reporting framework has several advantages, including less sharing of protected health information, less risk that confidential information will be distributed inappropriately, the prospect of better public acceptance, greater acceptance by health plans, and less effort and cost for both health plans and public health agencies. If successful, this system will allow any organization with appropriate data to contribute vital information to public health syndromic surveillance systems while preserving individuals’ privacy to the greatest extent possible.
James D Nordin - One of the best experts on this subject based on the ideXlab platform.
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syndromic surveillance using minimum transfer of identifiable data the example of the national bioterrorism syndromic surveillance demonstration program
Journal of Urban Health-bulletin of The New York Academy of Medicine, 2003Co-Authors: Richard Platt, Carmella Bocchino, Blake Caldwell, Robert Harmon, Ken Kleinman, Ross Lazarus, Andrew F Nelson, James D NordinAbstract:Several health plants and other organizations are collaborating with the Centers for Disease Control and Prevention to develop a syndromic surveillance system with national coverage that includes more than 20 million people. A principal design feature of this system is reliance on daily reporting of counts of individuals with syndromes of interest in specified geographic regions rather than reporting of individual encounter-level information. On request from public health agencies, health plans and telephone triage services provide additional information regarding individuals who are part of apparent clusters of illness. This reporting framework has several advantages, including less sharing of protected health information, less risk that confidential information will be distributed inappropriately, the prospect of better public acceptance, greater acceptance by health plans, and less effort and cost for both health plans and public health agencies. If successful, this system will allow any organization with appropriate data to contribute vital information to public health syndromic surveillance systems while preserving individuals’ privacy to the greatest extent possible.
Ross Lazarus - One of the best experts on this subject based on the ideXlab platform.
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syndromic surveillance using minimum transfer of identifiable data the example of the national bioterrorism syndromic surveillance demonstration program
Journal of Urban Health-bulletin of The New York Academy of Medicine, 2003Co-Authors: Richard Platt, Carmella Bocchino, Blake Caldwell, Robert Harmon, Ken Kleinman, Ross Lazarus, Andrew F Nelson, James D NordinAbstract:Several health plants and other organizations are collaborating with the Centers for Disease Control and Prevention to develop a syndromic surveillance system with national coverage that includes more than 20 million people. A principal design feature of this system is reliance on daily reporting of counts of individuals with syndromes of interest in specified geographic regions rather than reporting of individual encounter-level information. On request from public health agencies, health plans and telephone triage services provide additional information regarding individuals who are part of apparent clusters of illness. This reporting framework has several advantages, including less sharing of protected health information, less risk that confidential information will be distributed inappropriately, the prospect of better public acceptance, greater acceptance by health plans, and less effort and cost for both health plans and public health agencies. If successful, this system will allow any organization with appropriate data to contribute vital information to public health syndromic surveillance systems while preserving individuals’ privacy to the greatest extent possible.
Lawrence J Cook - One of the best experts on this subject based on the ideXlab platform.
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linked records of children with traumatic brain injury probabilistic linkage without use of protected health information
Methods of Information in Medicine, 2015Co-Authors: Tellen D Bennett, J M Dean, Heather T Keenan, M H Mcglincy, Amanda Thomas, Lawrence J CookAbstract:Objective: Record linkage may create powerful datasets with which investigators can conduct comparative effectiveness studies evaluating the impact of tests or interventions on health. All linkages of health care data files to date have used protected health information (PHI) in their linkage variables. A technique to link datasets without using PHI would be advantageous both to preserve privacy and to increase the number of potential linkages. Methods: We applied probabilistic linkage to records of injured children in the National Trauma Data Bank (NTDB, N = 156,357) and the Pediatric health information Systems (PHIS, N = 104,049) databases from 2007 to 2010. 49 match variables without PHI were used, many of them administrative variables and indicators for procedures recorded as International Classification of Diseases, 9th revision, Clinical Modification codes. We validated the accuracy of the linkage using identified data from a single center that submits to both databases. Results: We accurately linked the PHIS and NTDB records for 69% of children with any injury, and 88% of those with severe traumatic brain injury eligible for a study of intervention effectiveness (positive predictive value of 98%, specificity of 99.99%). Accurate linkage was associated with longer lengths of stay, more severe injuries, and multiple injuries. Conclusion: In populations with substantial illness or injury severity, accurate record linkage may be possible in the absence of PHI. This methodology may enable linkages and, in turn, comparative effectiveness studies that would be unlikely or impossible otherwise.
Nicholson W Price - One of the best experts on this subject based on the ideXlab platform.
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the need for a privacy standard for medical devices that transmit protected health information used in the precision medicine initiative for diabetes and other diseases
Journal of diabetes science and technology, 2017Co-Authors: David C Klonoff, Nicholson W PriceAbstract:Privacy is an important concern for the Precision Medicine Initiative (PMI) because success of this initiative will require the public to be willing to participate by contributing large amounts of genetic/genomic information and sensor data. This sensitive personal information is intended to be used only for specified research purposes. Public willingness to participate will depend on the public’s level of trust that their information will be protected and kept private. Medical devices may constantly provide information. Therefore, assuring privacy for device-generated information may be essential for broad participation in the PMI. Privacy standards for devices should be an important early step in the development of the PMI.
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the need for a privacy standard for medical devices that transmit protected health information used in the precision medicine initiative for diabetes and other diseases
Journal of diabetes science and technology, 2017Co-Authors: David C Klonoff, Nicholson W PriceAbstract:Privacy is an important concern for the Precision Medicine Initiative (PMI) because success of this initiative will require the public to be willing to participate by contributing large amounts of ...
