Psychosocial Care

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Lynne I Wagner - One of the best experts on this subject based on the ideXlab platform.

  • using the science of Psychosocial Care to implement the new american college of surgeons commission on cancer distress screening standard
    Journal of The National Comprehensive Cancer Network, 2013
    Co-Authors: Lynne I Wagner, David Spiegel, Timothy Pearman
    Abstract:

    The American College of Surgeons (ACoS) Commission on Cancer (CoC) has advanced a new patient-centered accreditation standard requiring programs to implement Psychosocial distress screening and referral for Psychosocial Care. The field of Psychosocial oncology has advocated for routine distress screening as an integral component of quality cancer Care since the NCCN Distress Management Panel first recommended this practice in 1999. Accreditation standards have a significant impact on practice patterns and quality of Care. The new ACoS CoC Psychosocial Distress Screening Standard provides a unique opportunity to integrate the science of Psychosocial Care into clinical practice. National organizations, including the American Psychosocial Oncology Society, the Association of Oncology Social Work, the Cancer Support Community, and LIVESTRONG, can offer valuable guidance and resources. This article reviews ACoS CoC requirements, highlighting key research findings and providing practical considerations to guide programs with implementation. Although screening for distress encompasses many domains, this article reviews the evidence linking depression-one aspect of distress-and cancer outcomes to highlight the profound influence Psychosocial Care delivery can have on promoting medical outcomes and quality cancer survivorship. The authors describe distress screening program accomplishments at Northwestern University, including the electronic administration of NIH Patient Reported Outcomes Measurement Information System computerized adaptive testing item banks. Electronic medical record integration facilitates real-time scoring, interpretation, provider notification, and triage for Psychosocial Care. Roughly one-third of patients have requested assistance with Psychosocial needs. As ACoS CoC programs implement Psychosocial distress screening and management, the emerging field of implementation science can guide future clinical program developments and research priorities.

  • a new quality standard the integration of Psychosocial Care into routine cancer Care
    Journal of Clinical Oncology, 2012
    Co-Authors: Paul B Jacobsen, Lynne I Wagner
    Abstract:

    There is a growing consensus that Psychosocial Care should be integrated into the routine Care of patients with cancer. This consensus is consistent with the considerable body of evidence about the deleterious effects of allowing Psychosocial needs to remain unmet and the growing body of evidence about the beneficial effects of providing Psychosocial services to address unmet needs. Despite this evidence, available data suggest that a considerable portion of the population of patients with cancer does not receive needed Psychosocial Care. Three lines of professional activity initiated in recent years have the potential to address this issue in fundamental ways: the formulation of standards of cancer Care that address the Psychosocial component of Care, the issuance of clinical practice guidelines for Psychosocial Care of patients with cancer, and the development and implementation of measurable indicators of the quality of Psychosocial Care in oncology settings. This article provides an overview of accomp...

  • a new quality standard the integration of Psychosocial Care into routine cancer Care
    Journal of Clinical Oncology, 2012
    Co-Authors: Paul B Jacobsen, Lynne I Wagner
    Abstract:

    There is a growing consensus that Psychosocial Care should be integrated into the routine Care of patients with cancer. This consensus is consistent with the considerable body of evidence about the deleterious effects of allowing Psychosocial needs to remain unmet and the growing body of evidence about the beneficial effects of providing Psychosocial services to address unmet needs. Despite this evidence, available data suggest that a considerable portion of the population of patients with cancer does not receive needed Psychosocial Care. Three lines of professional activity initiated in recent years have the potential to address this issue in fundamental ways: the formulation of standards of cancer Care that address the Psychosocial component of Care, the issuance of clinical practice guidelines for Psychosocial Care of patients with cancer, and the development and implementation of measurable indicators of the quality of Psychosocial Care in oncology settings. This article provides an overview of accomplishments in each of these areas; it is designed to ensure that oncologists and other cancer treatment providers are knowledgeable about current standards for Psychosocial Care, existing consensus- and evidenced-based recommendations for clinical practice in this area, and resources and tools for evaluating and, if indicated, improving the quality of the Psychosocial Care their patients are receiving. The article concludes with a critical appraisal of these activities and a consideration of how current efforts might be enhanced.

Paul B Jacobsen - One of the best experts on this subject based on the ideXlab platform.

  • a new quality standard the integration of Psychosocial Care into routine cancer Care
    Journal of Clinical Oncology, 2012
    Co-Authors: Paul B Jacobsen, Lynne I Wagner
    Abstract:

    There is a growing consensus that Psychosocial Care should be integrated into the routine Care of patients with cancer. This consensus is consistent with the considerable body of evidence about the deleterious effects of allowing Psychosocial needs to remain unmet and the growing body of evidence about the beneficial effects of providing Psychosocial services to address unmet needs. Despite this evidence, available data suggest that a considerable portion of the population of patients with cancer does not receive needed Psychosocial Care. Three lines of professional activity initiated in recent years have the potential to address this issue in fundamental ways: the formulation of standards of cancer Care that address the Psychosocial component of Care, the issuance of clinical practice guidelines for Psychosocial Care of patients with cancer, and the development and implementation of measurable indicators of the quality of Psychosocial Care in oncology settings. This article provides an overview of accomp...

  • caring for the whole patient the science of Psychosocial Care
    Journal of Clinical Oncology, 2012
    Co-Authors: Paul B Jacobsen, Jimmie C Holland, David P Steensma
    Abstract:

    Special Series relates to thescienceofPsychosocialCare.Thisseriesisdesignedtoprovideoncol-ogyprofessionalswiththemostrecentinformationaboutthepsycho-logical,psychiatric,andsocialaspectsofcancerCare.TheemergenceofthefieldofPsychosocialCarereflectsgrowingpublicandprofessionalawareness of the potential for cancer and its treatment to have pro-foundeffectsonmanyaspectsoflife.AprincipalgoalofPsychosocialCareistorecognizeandaddresstheeffectsthatcanceranditstreatmenthaveonthementalstatusandemotionalwell-beingofpatients,theirfamily members, and their professional Caregivers. In addition toimproving emotional well-being and mental health,

  • a new quality standard the integration of Psychosocial Care into routine cancer Care
    Journal of Clinical Oncology, 2012
    Co-Authors: Paul B Jacobsen, Lynne I Wagner
    Abstract:

    There is a growing consensus that Psychosocial Care should be integrated into the routine Care of patients with cancer. This consensus is consistent with the considerable body of evidence about the deleterious effects of allowing Psychosocial needs to remain unmet and the growing body of evidence about the beneficial effects of providing Psychosocial services to address unmet needs. Despite this evidence, available data suggest that a considerable portion of the population of patients with cancer does not receive needed Psychosocial Care. Three lines of professional activity initiated in recent years have the potential to address this issue in fundamental ways: the formulation of standards of cancer Care that address the Psychosocial component of Care, the issuance of clinical practice guidelines for Psychosocial Care of patients with cancer, and the development and implementation of measurable indicators of the quality of Psychosocial Care in oncology settings. This article provides an overview of accomplishments in each of these areas; it is designed to ensure that oncologists and other cancer treatment providers are knowledgeable about current standards for Psychosocial Care, existing consensus- and evidenced-based recommendations for clinical practice in this area, and resources and tools for evaluating and, if indicated, improving the quality of the Psychosocial Care their patients are receiving. The article concludes with a critical appraisal of these activities and a consideration of how current efforts might be enhanced.

  • evaluating the quality of Psychosocial Care in outpatient medical oncology settings using performance indicators
    Psycho-oncology, 2011
    Co-Authors: Paul B Jacobsen, David Shibata, Erin M Siegel, Jihyun Lee, William J Fulp, Carlos Alemany, Guillermo Abesadaterk, Richard Brown, Thomas H Cartwright, Douglas Faig
    Abstract:

    Objective: An American Psychosocial Oncology Society workgroup has developed indicators of the quality of Psychosocial Care that can be measured through review of medical records. The present report describes the first large-scale use of these indicators to evaluate Psychosocial Care in outpatient medical oncology settings. Methods: Medical records of 1660 colorectal, breast and non-small cell cancer patients first seen by a medical oncologist in 2006 at 11 practice sites in Florida were reviewed for performance on indicators of the quality of Psychosocial Care. Results: Assessment of emotional well-being was significantly less likely to be documented than assessment of pain (52 vs 87%, po0.001). A problem with emotional well-being was documented in 13% of records and evidence of action taken was documented in 58% of these records. Ten of eleven practice sites performed below an 85% threshold on each indicator of Psychosocial Care. Variability in assessment of emotional-well being was associated (po0.02) with practice site and patient gender and age while variability in assessment of pain was associated (po0.001) with practice site and cancer type. Conclusions: Findings illustrate how use of the Psychosocial Care indicators permits identification of specific practice sites and processes of Care that should be targeted for quality improvement efforts. Additionally, findings demonstrate the extent to which routine assessment of emotional well-being lags behind routine assessment of pain in cancer patients. Copyright r 2010 John Wiley & Sons, Ltd.

Lamia P. Barakat - One of the best experts on this subject based on the ideXlab platform.

  • implementation of family Psychosocial risk assessment in pediatric cancer with the Psychosocial assessment tool pat study protocol for a cluster randomized comparative effectiveness trial
    Implementation Science, 2020
    Co-Authors: Lamia P. Barakat, Anne E Kazak, Janet A Deatrick, Michele A Scialla, Eric Sandler, Rebecca E Madden
    Abstract:

    Childhood cancer affects and is affected by multiple levels of the social ecology, including social and relational determinants of health (e.g., economic stability, housing, childCare, healthCare access, child and family problems). The 2015 Standards of Psychosocial Care in Pediatric Cancer outline optimal Psychosocial Care sensitive to these ecological factors, starting with assessment of Psychosocial healthCare needs to promote medical and Psychosocial outcomes across all children with cancer. To address the first standard of family Psychosocial assessment, the Psychosocial Assessment Tool (PAT) is a validated screener ready for broad implementation. The PAT will be implemented across a national sample of 18 pediatric cancer programs ranging in size (annual new patients) in a mixed methods, comparative effectiveness study, guided by the Interactive Systems Framework for Dissemination and Implementation, comparing two implementation strategies. It is hypothesized that implementation will be more successful at the patient/family, provider, and institutional level when training (strategy I) is combined with implementation expanded resources (strategy II). There are three aims: (1) Refine the two implementation strategies using semi-structured qualitative interviews with 19 stakeholders including parent advocates, providers, pediatric oncology organization representatives, healthCare industry leaders; (2) Compare the two theoretically based and empirically informed strategies to implement the PAT in English and Spanish using a cluster-randomized controlled trial across 18 sites. Stratified by size, sites will be randomized to cohort (3) and strategy (2). Outcomes include adoption and penetration of screening (patient/family), staff job satisfaction/burnout (provider), and cost-effective use of resources consistent with family risk (institution); (3) Based on the results of the trial and feedback from the first and second aim, we will develop and disseminate a web-based PAT Implementation Toolkit. Use of the PAT across children’s cancer programs nationally can achieve the assessment standard and inform equitable delivery of Psychosocial Care matched to family need for all patients. ClinicalTrials.gov , NCT04446728 , registered 23 June 2020

  • Assessing the Psychosocial needs and program preferences of adolescents and young adults with cancer
    Supportive Care in Cancer, 2015
    Co-Authors: Lamia P. Barakat, Liana R. Galtieri, Dava Szalda, Lisa A. Schwartz
    Abstract:

    Purpose Adolescents and young adults (AYA) are a developmentally distinct cancer group, vulnerable to Psychosocial late effects and with a range of unmet Psychosocial needs. We sought to better understand Psychosocial Care needs and program preferences to inform development of more easily accessible and effective AYA Psychosocial programs.

  • screening for Psychosocial risk at pediatric cancer diagnosis the Psychosocial assessment tool
    Journal of Pediatric Hematology Oncology, 2011
    Co-Authors: Anne E Kazak, Lamia P. Barakat, Susan Ditaranto, Daniel Biros, Weiting Hwang, David Beele, Leslie S Kersun, Melissa A Alderfer, Ifigenia Mougianis, Matthew C Hocking
    Abstract:

    BackgroundTo investigate the feasibility of integrating an evidence-based screening tool of Psychosocial risk in pediatric cancer Care at diagnosis.MethodsParents of children newly diagnosed with cancer received either the Psychosocial Assessment Tool (PAT; n=52) or Psychosocial Care as usual (n=47;

Michelle Cororve Fingeret - One of the best experts on this subject based on the ideXlab platform.

  • 2015 president s plenary international psycho oncology society Psychosocial Care as a human rights issue challenges and opportunities
    Psycho-oncology, 2017
    Co-Authors: Luzia Travado, William Breitbart, Luigi Grassi, Daisuke Fujisawa, Andrea Farkas Patenaude, Lea Baider, Stephen Connor, Michelle Cororve Fingeret
    Abstract:

    The International Psycho-Oncology Society (IPOS) Human Rights Task Force has been working since 2008 to raise awareness and support, for the relevance of Psychosocial cancer Care as a human rights issue. In 2014 the "Lisbon Declaration: Psychosocial Cancer Care as a Universal Human Right" was fully endorsed by IPOS. Subsequently, the IPOS Standard on Quality Cancer Care, endorsed by 75 cancer organizations worldwide, has been updated and now includes 3 core principles: Psychosocial cancer Care should be recognised as a universal human right; Quality cancer Care must integrate the Psychosocial domain into routine Care; Distress should be measured as the 6th vital sign. The President's plenary held at the 2015 World Congress of Psycho-Oncology in Washington DC was devoted to discussing Psychosocial Care as a human rights issue. Many challenges and opportunities are illustrated in different continents and contexts: from Africa where resources for basic cancer treatment are scarce and children and their parents face significant difficulties with hospital detention practices; to Europe where for many countries Psychosocial Care is still seen as a luxury; and the Middle East where Muslim women face stigma and a culture of silence over cancer. We further discuss how to move the Lisbon Declaration forward towards its implementation into clinical practice globally, using the successful example of the World Health Assembly resolution supporting palliative Care as a human right which has achieved widespread approval, and identifying the vital role the IPOS Federation of National Psychoncology Societies plays worldwide to move this agenda forward.

  • 2015 President's Plenary International Psycho‐oncology Society: Psychosocial Care as a human rights issue—challenges and opportunities
    Psycho-oncology, 2016
    Co-Authors: Luzia Travado, William Breitbart, Luigi Grassi, Daisuke Fujisawa, Andrea Farkas Patenaude, Lea Baider, Stephen Connor, Michelle Cororve Fingeret
    Abstract:

    The International Psycho-Oncology Society (IPOS) Human Rights Task Force has been working since 2008 to raise awareness and support, for the relevance of Psychosocial cancer Care as a human rights issue. In 2014 the "Lisbon Declaration: Psychosocial Cancer Care as a Universal Human Right" was fully endorsed by IPOS. Subsequently, the IPOS Standard on Quality Cancer Care, endorsed by 75 cancer organizations worldwide, has been updated and now includes 3 core principles: Psychosocial cancer Care should be recognised as a universal human right; Quality cancer Care must integrate the Psychosocial domain into routine Care; Distress should be measured as the 6th vital sign. The President's plenary held at the 2015 World Congress of Psycho-Oncology in Washington DC was devoted to discussing Psychosocial Care as a human rights issue. Many challenges and opportunities are illustrated in different continents and contexts: from Africa where resources for basic cancer treatment are scarce and children and their parents face significant difficulties with hospital detention practices; to Europe where for many countries Psychosocial Care is still seen as a luxury; and the Middle East where Muslim women face stigma and a culture of silence over cancer. We further discuss how to move the Lisbon Declaration forward towards its implementation into clinical practice globally, using the successful example of the World Health Assembly resolution supporting palliative Care as a human right which has achieved widespread approval, and identifying the vital role the IPOS Federation of National Psychoncology Societies plays worldwide to move this agenda forward.

Andrea Farkas Patenaude - One of the best experts on this subject based on the ideXlab platform.

  • 2015 president s plenary international psycho oncology society Psychosocial Care as a human rights issue challenges and opportunities
    Psycho-oncology, 2017
    Co-Authors: Luzia Travado, William Breitbart, Luigi Grassi, Daisuke Fujisawa, Andrea Farkas Patenaude, Lea Baider, Stephen Connor, Michelle Cororve Fingeret
    Abstract:

    The International Psycho-Oncology Society (IPOS) Human Rights Task Force has been working since 2008 to raise awareness and support, for the relevance of Psychosocial cancer Care as a human rights issue. In 2014 the "Lisbon Declaration: Psychosocial Cancer Care as a Universal Human Right" was fully endorsed by IPOS. Subsequently, the IPOS Standard on Quality Cancer Care, endorsed by 75 cancer organizations worldwide, has been updated and now includes 3 core principles: Psychosocial cancer Care should be recognised as a universal human right; Quality cancer Care must integrate the Psychosocial domain into routine Care; Distress should be measured as the 6th vital sign. The President's plenary held at the 2015 World Congress of Psycho-Oncology in Washington DC was devoted to discussing Psychosocial Care as a human rights issue. Many challenges and opportunities are illustrated in different continents and contexts: from Africa where resources for basic cancer treatment are scarce and children and their parents face significant difficulties with hospital detention practices; to Europe where for many countries Psychosocial Care is still seen as a luxury; and the Middle East where Muslim women face stigma and a culture of silence over cancer. We further discuss how to move the Lisbon Declaration forward towards its implementation into clinical practice globally, using the successful example of the World Health Assembly resolution supporting palliative Care as a human right which has achieved widespread approval, and identifying the vital role the IPOS Federation of National Psychoncology Societies plays worldwide to move this agenda forward.

  • 2015 President's Plenary International Psycho‐oncology Society: Psychosocial Care as a human rights issue—challenges and opportunities
    Psycho-oncology, 2016
    Co-Authors: Luzia Travado, William Breitbart, Luigi Grassi, Daisuke Fujisawa, Andrea Farkas Patenaude, Lea Baider, Stephen Connor, Michelle Cororve Fingeret
    Abstract:

    The International Psycho-Oncology Society (IPOS) Human Rights Task Force has been working since 2008 to raise awareness and support, for the relevance of Psychosocial cancer Care as a human rights issue. In 2014 the "Lisbon Declaration: Psychosocial Cancer Care as a Universal Human Right" was fully endorsed by IPOS. Subsequently, the IPOS Standard on Quality Cancer Care, endorsed by 75 cancer organizations worldwide, has been updated and now includes 3 core principles: Psychosocial cancer Care should be recognised as a universal human right; Quality cancer Care must integrate the Psychosocial domain into routine Care; Distress should be measured as the 6th vital sign. The President's plenary held at the 2015 World Congress of Psycho-Oncology in Washington DC was devoted to discussing Psychosocial Care as a human rights issue. Many challenges and opportunities are illustrated in different continents and contexts: from Africa where resources for basic cancer treatment are scarce and children and their parents face significant difficulties with hospital detention practices; to Europe where for many countries Psychosocial Care is still seen as a luxury; and the Middle East where Muslim women face stigma and a culture of silence over cancer. We further discuss how to move the Lisbon Declaration forward towards its implementation into clinical practice globally, using the successful example of the World Health Assembly resolution supporting palliative Care as a human right which has achieved widespread approval, and identifying the vital role the IPOS Federation of National Psychoncology Societies plays worldwide to move this agenda forward.

  • standards for the Psychosocial Care of children with cancer and their families an introduction to the special issue
    Pediatric Blood & Cancer, 2015
    Co-Authors: Lori Wiener, Andrea Farkas Patenaude, Anne E Kazak, Robert B Noll, Mary Jo Kupst
    Abstract:

    Pediatric oncology Psychosocial professionals collaborated with an interdisciplinary group of experts and stakeholders and developed evidence-based standards for pediatric Psychosocial Care. Given the breadth of research evidence and traditions of clinical Care, 15 standards were derived. Each standard is based on a systematic review of relevant literature and used the AGREE II process to evaluate the quality of the evidence. This article describes the methods used to develop the standards and introduces the 15 articles included in this special issue. Established standards help ensure that all children with cancer and their families receive essential Psychosocial Care.

  • pediatric psycho oncology Care standards guidelines and consensus reports
    Psycho-oncology, 2015
    Co-Authors: Lori Wiener, Adrienne Viola, Julia Koretski, Emily Diana Perper, Andrea Farkas Patenaude
    Abstract:

    Objective The aim of this study was to identify existing guidelines, standards, or consensus-based reports for Psychosocial Care of children with cancer and their families. Purpose Psychosocial standards of Care for children with cancer can systematize the approach to Care and create a replicable model that can be utilized in pediatric hospitals around the world. Determining gaps in existing standards in pediatric psycho-oncology can guide development of useful evidence-based and consensus-based standards. Methods The MEDLINE and PubMed databases were searched by investigators at two major pediatric oncology centers for existing guidelines, consensus-based reports, or standards for Psychosocial Care of patients with pediatric cancer and their families published in peer-reviewed journals in English between 1980 and 2013. Results We located 27 articles about Psychosocial Care that met inclusion criteria: 5 set forth standards, 19 were guidelines, and 3 were consensus-based reports. None was sufficiently up to date, comprehensive, specific enough, or evidence- or consensus-based to serve as a current standard for Psychosocial Care for children with cancer and their families. Conclusion Despite calls by a number of international pediatric oncology and psycho-oncology professional organizations about the urgency of addressing the Psychosocial needs of the child with cancer to reduce suffering, there remains a need for development of a widely acceptable, evidence-based and consensus-based, comprehensive standard of Care to guide provision of essential Psychosocial services to all patients with pediatric cancer. Published 2014. This article is a U.S. Government work and is in the public domain in the USA.