The Experts below are selected from a list of 28068 Experts worldwide ranked by ideXlab platform
Michel Wensing - One of the best experts on this subject based on the ideXlab platform.
-
consideration of Sense of Coherence in a structured communication approach with stage iv lung cancer patients and their informal caregivers a qualitative interview study
Supportive Care in Cancer, 2021Co-Authors: Katja Krug, Jasmin Bossert, Lydia Stoos, Anja Siegle, Matthias Villalobos, Laura Hagelskamp, Corinna Jung, Michael Thomas, Michel WensingAbstract:Salutogenetic aspects are valuable for consideration in patient-centred care of advanced oncological diseases with a limited life expectancy. The Milestone Communication Approach (MCA), involving physician-nurse tandems, addresses specific challenges and needs over the disease trajectory of patients with stage IV lung cancer and their informal caregivers. This study aims to explore patients’ and informal caregivers’ salutogenetic experiences with the MCA concept. This qualitative study used face-to-face semi-structured interviews with patients and informal caregivers. All generated data were audio-recorded, pseudonymised and transcribed verbatim. Data were structured using Qualitative Content Analysis. The material was coded deductively into themes related to the components of Sense of Coherence (Aaron Antonovsky) and emerging sub-themes. All data was managed and organised in MAXQDA. In 25 interviews, Sense of Coherence was referred to with all three components: “Comprehensibility” was supported by information conveyed suitably for the patients; “meaningfulness” was addressed as accepting the situation; and “manageability” led to advance care planning the patients were comfortable with. Patients and informal caregivers experienced the interprofessional tandem as an added value for patient care. Participants appreciate the MCA in its support for coping with a life-limiting disease. Considering salutogenetic aspects facilitates prognostic awareness and advance care planning. Nevertheless, individual needs of patients and informal caregivers require an individualised application of the MCA.
-
Consideration of Sense of Coherence in a structured communication approach with stage IV lung cancer patients and their informal caregivers: a qualitative interview study
Supportive Care in Cancer, 2020Co-Authors: Katja Krug, Jasmin Bossert, Anja Siegle, Matthias Villalobos, Laura Hagelskamp, Corinna Jung, Michael Thomas, Lydia Stooß, Michel WensingAbstract:Objective Salutogenetic aspects are valuable for consideration in patient-centred care of advanced oncological diseases with a limited life expectancy. The Milestone Communication Approach (MCA), involving physician-nurse tandems, addresses specific challenges and needs over the disease trajectory of patients with stage IV lung cancer and their informal caregivers. This study aims to explore patients’ and informal caregivers’ salutogenetic experiences with the MCA concept. Methods This qualitative study used face-to-face semi-structured interviews with patients and informal caregivers. All generated data were audio-recorded, pseudonymised and transcribed verbatim. Data were structured using Qualitative Content Analysis. The material was coded deductively into themes related to the components of Sense of Coherence (Aaron Antonovsky) and emerging sub-themes. All data was managed and organised in MAXQDA. Results In 25 interviews, Sense of Coherence was referred to with all three components: “Comprehensibility” was supported by information conveyed suitably for the patients; “meaningfulness” was addressed as accepting the situation; and “manageability” led to advance care planning the patients were comfortable with. Patients and informal caregivers experienced the interprofessional tandem as an added value for patient care. Conclusions Participants appreciate the MCA in its support for coping with a life-limiting disease. Considering salutogenetic aspects facilitates prognostic awareness and advance care planning. Nevertheless, individual needs of patients and informal caregivers require an individualised application of the MCA.
Katja Krug - One of the best experts on this subject based on the ideXlab platform.
-
consideration of Sense of Coherence in a structured communication approach with stage iv lung cancer patients and their informal caregivers a qualitative interview study
Supportive Care in Cancer, 2021Co-Authors: Katja Krug, Jasmin Bossert, Lydia Stoos, Anja Siegle, Matthias Villalobos, Laura Hagelskamp, Corinna Jung, Michael Thomas, Michel WensingAbstract:Salutogenetic aspects are valuable for consideration in patient-centred care of advanced oncological diseases with a limited life expectancy. The Milestone Communication Approach (MCA), involving physician-nurse tandems, addresses specific challenges and needs over the disease trajectory of patients with stage IV lung cancer and their informal caregivers. This study aims to explore patients’ and informal caregivers’ salutogenetic experiences with the MCA concept. This qualitative study used face-to-face semi-structured interviews with patients and informal caregivers. All generated data were audio-recorded, pseudonymised and transcribed verbatim. Data were structured using Qualitative Content Analysis. The material was coded deductively into themes related to the components of Sense of Coherence (Aaron Antonovsky) and emerging sub-themes. All data was managed and organised in MAXQDA. In 25 interviews, Sense of Coherence was referred to with all three components: “Comprehensibility” was supported by information conveyed suitably for the patients; “meaningfulness” was addressed as accepting the situation; and “manageability” led to advance care planning the patients were comfortable with. Patients and informal caregivers experienced the interprofessional tandem as an added value for patient care. Participants appreciate the MCA in its support for coping with a life-limiting disease. Considering salutogenetic aspects facilitates prognostic awareness and advance care planning. Nevertheless, individual needs of patients and informal caregivers require an individualised application of the MCA.
-
Consideration of Sense of Coherence in a structured communication approach with stage IV lung cancer patients and their informal caregivers: a qualitative interview study
Supportive Care in Cancer, 2020Co-Authors: Katja Krug, Jasmin Bossert, Anja Siegle, Matthias Villalobos, Laura Hagelskamp, Corinna Jung, Michael Thomas, Lydia Stooß, Michel WensingAbstract:Objective Salutogenetic aspects are valuable for consideration in patient-centred care of advanced oncological diseases with a limited life expectancy. The Milestone Communication Approach (MCA), involving physician-nurse tandems, addresses specific challenges and needs over the disease trajectory of patients with stage IV lung cancer and their informal caregivers. This study aims to explore patients’ and informal caregivers’ salutogenetic experiences with the MCA concept. Methods This qualitative study used face-to-face semi-structured interviews with patients and informal caregivers. All generated data were audio-recorded, pseudonymised and transcribed verbatim. Data were structured using Qualitative Content Analysis. The material was coded deductively into themes related to the components of Sense of Coherence (Aaron Antonovsky) and emerging sub-themes. All data was managed and organised in MAXQDA. Results In 25 interviews, Sense of Coherence was referred to with all three components: “Comprehensibility” was supported by information conveyed suitably for the patients; “meaningfulness” was addressed as accepting the situation; and “manageability” led to advance care planning the patients were comfortable with. Patients and informal caregivers experienced the interprofessional tandem as an added value for patient care. Conclusions Participants appreciate the MCA in its support for coping with a life-limiting disease. Considering salutogenetic aspects facilitates prognostic awareness and advance care planning. Nevertheless, individual needs of patients and informal caregivers require an individualised application of the MCA.
Karina Huus - One of the best experts on this subject based on the ideXlab platform.
-
health related quality of life family climate and Sense of Coherence of families in which a parent has deafblindness
Frontiers in Education, 2020Co-Authors: Moa Wahlqvis, Maria Jork, Agneta Anderzencarlsso, Karina HuusAbstract:Introduction: The consequences of living with deafblindness can be vast and have been described as concerning difficulties with communication, restrictions in the activities of daily living and a lack of independence. Deafblindness has also been associated with poor health-related quality of life. Little is known about parenting when having deafblindness or how the health and family climate of families in which a parent has deafblindness are affected. Aim: The aim of the study was to describe the health-related quality of life, Sense of Coherence and family climate in families where a parent has a deafblindness. Methods: A total of 38 individuals, of which 14 were parents with deafblindness and 6 were partner to the parent with deafblindness, and 18 children, were included. The participants answered questionnaires about their health-related quality of life, family climate and Sense of Coherence (comprehensibility, manageability and meaningfulness). The Swedish age-relevant versions of the questionnaires were used. Due to the small number of participants, descriptive statistics were used to explore the results from the questionnaires. Results: The results revealed a pattern indicating that the health-related quality of life was affected, parents with deafblindness reported the poorest health-related quality of life. Sense of Coherence was reported by all the family members as either moderate or low. The Family climate questionnaire revealed the positive aspect of closeness across family members, however negative aspects of chaos and expressiveness in the families were reported, mainly by, but not restricted to, the parent with deafblindness. Discussion: This study includes a small sample, too small to draw far-reaching conclusions. However, some interesting results need to be highlighted and discussed. When considering the family as a system, it is reasonable to assume that the family members contribute in different ways to how health and wellbeing is experienced in the family. Deafblindness is a unique disability that affects not only the individual but also the whole family. This fact needs to be considered when support is offered to individuals with deafblindness. All members of families where a parent has deafblindness have to be asked about their needs and about how they experience the situation.
-
health related quality of life family climate and Sense of Coherence in family members in families where a parent has deafblindness
XXXV World Congress of Audiology Warzawa Poland April 19-22 2020. Conference postponed., 2020Co-Authors: Agneta Anderzencarlsso, Moa Wahlqvis, Karina Huus, Maria JorkAbstract:Health related quality of life, family climate and Sense of Coherence in family members in families where a parent has deafblindness
Anja Siegle - One of the best experts on this subject based on the ideXlab platform.
-
consideration of Sense of Coherence in a structured communication approach with stage iv lung cancer patients and their informal caregivers a qualitative interview study
Supportive Care in Cancer, 2021Co-Authors: Katja Krug, Jasmin Bossert, Lydia Stoos, Anja Siegle, Matthias Villalobos, Laura Hagelskamp, Corinna Jung, Michael Thomas, Michel WensingAbstract:Salutogenetic aspects are valuable for consideration in patient-centred care of advanced oncological diseases with a limited life expectancy. The Milestone Communication Approach (MCA), involving physician-nurse tandems, addresses specific challenges and needs over the disease trajectory of patients with stage IV lung cancer and their informal caregivers. This study aims to explore patients’ and informal caregivers’ salutogenetic experiences with the MCA concept. This qualitative study used face-to-face semi-structured interviews with patients and informal caregivers. All generated data were audio-recorded, pseudonymised and transcribed verbatim. Data were structured using Qualitative Content Analysis. The material was coded deductively into themes related to the components of Sense of Coherence (Aaron Antonovsky) and emerging sub-themes. All data was managed and organised in MAXQDA. In 25 interviews, Sense of Coherence was referred to with all three components: “Comprehensibility” was supported by information conveyed suitably for the patients; “meaningfulness” was addressed as accepting the situation; and “manageability” led to advance care planning the patients were comfortable with. Patients and informal caregivers experienced the interprofessional tandem as an added value for patient care. Participants appreciate the MCA in its support for coping with a life-limiting disease. Considering salutogenetic aspects facilitates prognostic awareness and advance care planning. Nevertheless, individual needs of patients and informal caregivers require an individualised application of the MCA.
-
Consideration of Sense of Coherence in a structured communication approach with stage IV lung cancer patients and their informal caregivers: a qualitative interview study
Supportive Care in Cancer, 2020Co-Authors: Katja Krug, Jasmin Bossert, Anja Siegle, Matthias Villalobos, Laura Hagelskamp, Corinna Jung, Michael Thomas, Lydia Stooß, Michel WensingAbstract:Objective Salutogenetic aspects are valuable for consideration in patient-centred care of advanced oncological diseases with a limited life expectancy. The Milestone Communication Approach (MCA), involving physician-nurse tandems, addresses specific challenges and needs over the disease trajectory of patients with stage IV lung cancer and their informal caregivers. This study aims to explore patients’ and informal caregivers’ salutogenetic experiences with the MCA concept. Methods This qualitative study used face-to-face semi-structured interviews with patients and informal caregivers. All generated data were audio-recorded, pseudonymised and transcribed verbatim. Data were structured using Qualitative Content Analysis. The material was coded deductively into themes related to the components of Sense of Coherence (Aaron Antonovsky) and emerging sub-themes. All data was managed and organised in MAXQDA. Results In 25 interviews, Sense of Coherence was referred to with all three components: “Comprehensibility” was supported by information conveyed suitably for the patients; “meaningfulness” was addressed as accepting the situation; and “manageability” led to advance care planning the patients were comfortable with. Patients and informal caregivers experienced the interprofessional tandem as an added value for patient care. Conclusions Participants appreciate the MCA in its support for coping with a life-limiting disease. Considering salutogenetic aspects facilitates prognostic awareness and advance care planning. Nevertheless, individual needs of patients and informal caregivers require an individualised application of the MCA.
Michael Thomas - One of the best experts on this subject based on the ideXlab platform.
-
consideration of Sense of Coherence in a structured communication approach with stage iv lung cancer patients and their informal caregivers a qualitative interview study
Supportive Care in Cancer, 2021Co-Authors: Katja Krug, Jasmin Bossert, Lydia Stoos, Anja Siegle, Matthias Villalobos, Laura Hagelskamp, Corinna Jung, Michael Thomas, Michel WensingAbstract:Salutogenetic aspects are valuable for consideration in patient-centred care of advanced oncological diseases with a limited life expectancy. The Milestone Communication Approach (MCA), involving physician-nurse tandems, addresses specific challenges and needs over the disease trajectory of patients with stage IV lung cancer and their informal caregivers. This study aims to explore patients’ and informal caregivers’ salutogenetic experiences with the MCA concept. This qualitative study used face-to-face semi-structured interviews with patients and informal caregivers. All generated data were audio-recorded, pseudonymised and transcribed verbatim. Data were structured using Qualitative Content Analysis. The material was coded deductively into themes related to the components of Sense of Coherence (Aaron Antonovsky) and emerging sub-themes. All data was managed and organised in MAXQDA. In 25 interviews, Sense of Coherence was referred to with all three components: “Comprehensibility” was supported by information conveyed suitably for the patients; “meaningfulness” was addressed as accepting the situation; and “manageability” led to advance care planning the patients were comfortable with. Patients and informal caregivers experienced the interprofessional tandem as an added value for patient care. Participants appreciate the MCA in its support for coping with a life-limiting disease. Considering salutogenetic aspects facilitates prognostic awareness and advance care planning. Nevertheless, individual needs of patients and informal caregivers require an individualised application of the MCA.
-
Consideration of Sense of Coherence in a structured communication approach with stage IV lung cancer patients and their informal caregivers: a qualitative interview study
Supportive Care in Cancer, 2020Co-Authors: Katja Krug, Jasmin Bossert, Anja Siegle, Matthias Villalobos, Laura Hagelskamp, Corinna Jung, Michael Thomas, Lydia Stooß, Michel WensingAbstract:Objective Salutogenetic aspects are valuable for consideration in patient-centred care of advanced oncological diseases with a limited life expectancy. The Milestone Communication Approach (MCA), involving physician-nurse tandems, addresses specific challenges and needs over the disease trajectory of patients with stage IV lung cancer and their informal caregivers. This study aims to explore patients’ and informal caregivers’ salutogenetic experiences with the MCA concept. Methods This qualitative study used face-to-face semi-structured interviews with patients and informal caregivers. All generated data were audio-recorded, pseudonymised and transcribed verbatim. Data were structured using Qualitative Content Analysis. The material was coded deductively into themes related to the components of Sense of Coherence (Aaron Antonovsky) and emerging sub-themes. All data was managed and organised in MAXQDA. Results In 25 interviews, Sense of Coherence was referred to with all three components: “Comprehensibility” was supported by information conveyed suitably for the patients; “meaningfulness” was addressed as accepting the situation; and “manageability” led to advance care planning the patients were comfortable with. Patients and informal caregivers experienced the interprofessional tandem as an added value for patient care. Conclusions Participants appreciate the MCA in its support for coping with a life-limiting disease. Considering salutogenetic aspects facilitates prognostic awareness and advance care planning. Nevertheless, individual needs of patients and informal caregivers require an individualised application of the MCA.
