The Experts below are selected from a list of 945 Experts worldwide ranked by ideXlab platform
Jespe Dammeye - One of the best experts on this subject based on the ideXlab platform.
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the relation between sensory loss and communicative and cognitive development in children with congenital Deafblindness
British Journal of Visual Impairment, 2020Co-Authors: Flemming H Larse, Jespe DammeyeAbstract:People with congenital Deafblindness (CDB) are a heterogenic group, and CDB is defined in a variety of ways in the scientific literature. In this study, we aim to examine whether some of the hetero...
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sexuality among adults with congenital Deafblindness a cross sectional survey study among primary carers
Sexuality and Disability, 2019Co-Authors: Jespe Dammeye, Christine M Lehane, Madeleine ChapmaAbstract:Research investigating the sexuality of individuals with physical or intellectual disabilities is increasing. However, little is known about the sexuality of people with congenital Deafblindness (CDB). The aim of the current study was to create a profile of the sexuality of adults with CDB in Denmark. Data was collected from the primary carers of 95 adults with CDB by use of a survey with questions about sexual behavior, the object of sexual behavior, level of sexual frustration, and pedagogical support for sexual satisfaction. The data were analyzed with regard to gender, age, severity of Deafblindness, communication, activities of daily living (ADL), cognitive abilities, and carer characteristics. The results revealed that approximately half the number of participants showed sexual behavior while the other half did not. In the majority of cases, sexual behavior was self-stimulation, while, for the rest, sexual behavior was directed toward other people and/or objects. Around one out of ten participants was provided with pedagogical support to help satisfy their sexual needs. Sexual behavior was significantly associated with high scores for communication skills, ADL, and cognitive abilities. Further, high ADL and cognitive abilities were associated with the provision of pedagogical support for sexual satisfaction. Around one out of ten participants, all of whom were men, experienced sexual frustrations. The findings of the current study—the first quantitative study on sexuality among individuals with CDB—are comparable to the findings of studies among individuals with developmental disorders and underline the need for sexuality-related support for individuals with disabilities including those with CDB.
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aetiologies of acquired Deafblindness in a national sample
British Journal of Visual Impairment, 2018Co-Authors: Jonas Henau Teglbjaerg, Hanna Birkbak Hovald, Christine M Lehane, Jespe DammeyeAbstract:The present study provides an overview of aetiologies and co-morbidities of acquired Deafblindness in a Danish national sample of 514 individuals above 50 years of age identified with acquired deaf...
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sexuality and well being among couples living with acquired Deafblindness
Sexuality and Disability, 2017Co-Authors: Christine M Lehane, Jespe Dammeye, Hanna Birkbak Hovald, Pete ElsassAbstract:Sexuality among couples living with acquired Deafblindness (ADB) is an untouched research area, although recent research has reported an association between couples’ sexual activity and vision and hearing loss, respectively. The aim of the current study was to investigate sexuality among couples living with ADB in Denmark and its association with psychological well-being. Deafblind individuals and their partners (n = 45) were recruited from the national institute providing services for the deafblind in Denmark. Partners were asked about sexual activity, reductions in sexual desire and sexual satisfaction over the past year. Both individuals and their partners completed the WHO-5 measure of psychological well-being. Further, information about degree of hearing and vision loss and use of hearing aids was also obtained. Compared to other population based studies, level of sexual activity was low and more participants reported poor psychological well-being. Sexual activity significantly predicted psychological well-being among partners but not individuals with Deafblindness. Gender differences were found indicating that sexual activity was important for male partner’s well-being but satisfaction with sex life was important for female partner’s well-being. Degree of hearing loss and use of hearing aids were also associated with sexual activity and desire among couples where the deafblind individual-partner gender distribution was male–female.
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challenges and praxis in assessment of congenital Deafblindness
Journal of Deafblind Studies on Communication, 2016Co-Authors: Jespe DammeyeAbstract:The different practices and challenges of assessment of congenital Deafblindness have been discussed in the research literature and are reflected in different medical and functional approaches across the world. The aim of this study is to provide an overview of the use of both medical and functional assessment practices in a Danish sample of 95 adults with congenital Deafblindness. Of the participants in this study, 54% reported regular medical assessment of vision loss, 36% reported regular medical assessment of hearing loss, and 43% reported regular functional assessment by use of video-analysis/observation. Variability in assessment frequency was found, ranging from several times per year to less than once per year. Further, gender, age, ADL abilities, deafblind severity and counselling service were each found to be associated with differences in assessment practice. Findings are discussed and compared with assessment guidelines and recommendations from the research literature.
Marcia Finlayso - One of the best experts on this subject based on the ideXlab platform.
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meaning and experiences of participation a phenomenological study with persons with Deafblindness in india
Disability and Rehabilitation, 2020Co-Authors: Atul Jaiswal, Heather Michelle Aldersey, Walte Wittich, Mansha Mirza, Marcia FinlaysoAbstract:Purpose: Deafblindness, also known as dual sensory loss, creates a distinct condition more disabling than either deafness or blindness alone. The participation experiences of persons with deafblind...
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factors that influence the participation of individuals with Deafblindness a qualitative study with rehabilitation service providers in india
British Journal of Visual Impairment, 2020Co-Authors: Atul Jaiswal, Heather Michelle Aldersey, Walte Wittich, Mansha Mirza, Marcia FinlaysoAbstract:Evidence to inform rehabilitation service delivery for individuals with Deafblindness, especially in the Indian context, is inadequate. Rehabilitation professionals often find it challenging to des...
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using the icf to identify contextual factors that influence participation of persons with Deafblindness
Archives of Physical Medicine and Rehabilitation, 2019Co-Authors: Atul Jaiswal, Heather Michelle Aldersey, Walte Wittich, Mansha Mirza, Marcia FinlaysoAbstract:Abstract Objective To identify and describe the contextual factors that influence the participation of people with Deafblindness in India. Design Qualitative study, using directed content analysis approach and the International Classification of Functioning, Disability and Health (ICF) as a framework to analyze the data. Setting Community and social participation settings. Participants Community-dwelling individuals with Deafblindness (N=16). Age ranges from 18-45 years. Interventions Not applicable. Main Outcome Measures Personal and environmental factors that influence the participation of individuals with Deafblindness using the ICF framework. Results Results indicate that the age of onset and nature of impairment (Deafblindness) and willingness to explain the condition (functional consequences of Deafblindness) emerged as important personal factors. Access to resources such as assistive technology, social support, and deafblind-specific services were found to be enablers of participation. Lack of services, systems, and policies specific to Deafblindness along with negative societal attitude toward disability were highly perceived environmental barriers that influence participation of people with Deafblindness in India. Conclusions Professionals must acknowledge aspects of the environment in conducting assessments and delivering interventions and understand the dynamic interactions between environment of the individual and his/her concurrent vision and hearing impairments. Approaches to enable participation require rehabilitation professionals to work with those with Deafblindness to advocate for removal of environmental barriers and ensure provision of appropriate resources from the government to facilitate their participation. Social policy and government must ensure emphasis on awareness about Deafblindness, access to deafblind-specific services, positive societal attitude, and opportunities for full participation for people with Deafblindness in society.
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participation experiences of people with Deafblindness or dual sensory loss a scoping review of global deafblind literature
PLOS ONE, 2018Co-Authors: Atul Jaiswal, Heather Michelle Aldersey, Walte Wittich, Mansha Mirza, Marcia FinlaysoAbstract:Background Deafblindness, also known as dual sensory loss, is a varying combination of visual and hearing impairment in the same individual. Interest in this topic has increased recently due to evidence suggesting an increase in prevalence of this condition among older adults. Persons with Deafblindness frequently experience participation barriers and social isolation. Developing an understanding of their experiences can inform the design of programs and policies to enhance participation of people with Deafblindness in society. Objective To identify and summarize available research literature on participation experiences of people with Deafblindness or dual sensory loss. Methods A comprehensive literature search of eight databases (CINAHL/EBSCO, Embase, ERIC, Global Health, MEDLINE, ProQuest, PsycINFO, PubMed) was performed in accordance with the Preferred Reporting Items for Systematic Reviews (PRISMA) during January 2017 and last updated in June 2017. In addition, non-peer reviewed (grey) literature was also retrieved in the form of online published reports of research projects by 16 deafblind-specific organizations across the globe. To be included, sources had to be published after 1990, had persons with Deafblindness as the focal population, and focused on their participation experiences. Results A total 1172 sources were identified of which 54 studies were included. The findings reveal that persons with Deafblindness, regardless of origin of their impairment, experience difficulty in communication, mobility, daily living functioning, and social interactions. While these experiences may vary between individuals with congenital versus acquired conditions, they generally feel socially isolated, insecure and uncertain about their future. Conclusion Participation experiences of persons with Deafblindness are shaped by dynamic interactions between personal factors (such as onset and type of impairments) and environmental influences (such as attitude, technology, and supports). A better understanding of participation experiences may help professionals in placing emphasis on affected participation domains to design services to enhance participation of people with Deafblindness.
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Participation of persons with Deafblindness.
2018Co-Authors: Atul Jaiswal, Walte Wittich, Mansha Mirza, Heathe Aldersey, Marcia FinlaysoAbstract:Participation of persons with Deafblindness.
Agneta Anderzencarlsso - One of the best experts on this subject based on the ideXlab platform.
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health related quality of life family climate and sense of coherence of families in which a parent has Deafblindness
Frontiers in Education, 2020Co-Authors: Moa Wahlqvis, Maria Jork, Agneta Anderzencarlsso, Karina HuusAbstract:Introduction: The consequences of living with Deafblindness can be vast and have been described as concerning difficulties with communication, restrictions in the activities of daily living and a lack of independence. Deafblindness has also been associated with poor health-related quality of life. Little is known about parenting when having Deafblindness or how the health and family climate of families in which a parent has Deafblindness are affected. Aim: The aim of the study was to describe the health-related quality of life, sense of coherence and family climate in families where a parent has a Deafblindness. Methods: A total of 38 individuals, of which 14 were parents with Deafblindness and 6 were partner to the parent with Deafblindness, and 18 children, were included. The participants answered questionnaires about their health-related quality of life, family climate and sense of coherence (comprehensibility, manageability and meaningfulness). The Swedish age-relevant versions of the questionnaires were used. Due to the small number of participants, descriptive statistics were used to explore the results from the questionnaires. Results: The results revealed a pattern indicating that the health-related quality of life was affected, parents with Deafblindness reported the poorest health-related quality of life. Sense of coherence was reported by all the family members as either moderate or low. The Family climate questionnaire revealed the positive aspect of closeness across family members, however negative aspects of chaos and expressiveness in the families were reported, mainly by, but not restricted to, the parent with Deafblindness. Discussion: This study includes a small sample, too small to draw far-reaching conclusions. However, some interesting results need to be highlighted and discussed. When considering the family as a system, it is reasonable to assume that the family members contribute in different ways to how health and wellbeing is experienced in the family. Deafblindness is a unique disability that affects not only the individual but also the whole family. This fact needs to be considered when support is offered to individuals with Deafblindness. All members of families where a parent has Deafblindness have to be asked about their needs and about how they experience the situation.
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the consequences of Deafblindness rules the family parents lived experiences of family life when the other parent has Deafblindness
British Journal of Visual Impairment, 2020Co-Authors: Moa Wahlqvis, Maria Jork, Karina Huus, Agneta AnderzencarlssoAbstract:Deafblindness is a combined vision and hearing disability that restricts communication, access to information, and mobility, thus limiting a person’s activities and full participation in society. L...
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health related quality of life family climate and sense of coherence in family members in families where a parent has Deafblindness
XXXV World Congress of Audiology Warzawa Poland April 19-22 2020. Conference postponed., 2020Co-Authors: Agneta Anderzencarlsso, Moa Wahlqvis, Karina Huus, Maria JorkAbstract:Health related quality of life, family climate and sense of coherence in family members in families where a parent has Deafblindness
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life strategies and facilitating factors when having Deafblindness due to usher syndrome type 2a
17th Deafblind International World Conference Gold Coast Australia August 12-16 2019., 2019Co-Authors: Claes Molle, Moa Wahlqvis, Agneta AnderzencarlssoAbstract:Life Strategies And Facilitating Factors When Having Deafblindness Due To Usher Syndrome Type 2a
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a qualitative evaluation of the national expert team regarding the assessment and diagnosis of Deafblindness in sweden
Scandinavian Journal of Disability Research, 2017Co-Authors: Agneta AnderzencarlssoAbstract:Deafblindness is a rare condition with multiple causes. Given its rarity, professionals generally have limited knowledge of this condition and insufficient experience managing it. Accordingly, in S ...
Erik Org - One of the best experts on this subject based on the ideXlab platform.
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ready ride ready move and vibrobraille three tactile aids to improve the mobility of persons with deafness blindness or Deafblindness
European Congress of Adapted Physical Activity (EUCAPA) Worcester England 3-5 July 2018, 2018Co-Authors: Parivash Ranjba, Dag Stranneby, Erik OrgAbstract:Ready-Ride, Ready-Move and VibroBraille Three Tactile Aids to Improve the Mobility of Persons with Deafness, Blindness or Deafblindness
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ready ride a tactile communications aid to improve the mobility of persons with Deafblindness in a riding arena
International Journal of Engineering Technology and Scientific Innovation, 2018Co-Authors: Parivash Ranjba, Dag Stranneby, Erik OrgAbstract:Persons with severe visual impairment (VI), blindness (B) and Deafblindness (DB) have difficulties in mobility and thereby poor leisure time. Activities as horseback riding become difficult especia ...
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haptic technical aids distime monitor good vibrations ready ride and vibrobraille for improvement of time perception environmental perception music perception mobility and communication for persons with Deafblindness tactile aids
The 9th DbI European conference on Deafblindness in Denmark Aalborg Denmark September 5-8 2017, 2017Co-Authors: Parivash Ranjba, Dag Stranneby, Erik Org, Cheryl AknerkoleAbstract:There are approx. 1300 people with deafblindnes (DB) in Sweden where about 100 of them are with complete deafness (D) and blindness (B). The number will reach about 30000 if we also include people ...
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haptic technical aids for improvement of time perception environmental perception and mobility in a riding arena and music perception for persons with Deafblindness
NAS International Conference on Audiology 2014. Turku Finland. September 1-3 2014., 2014Co-Authors: Parivash Ranjba, Dag Stranneby, Cheryl Aknerkole, Erik OrgAbstract:Introduction:Persons with Deafblindness have frequently difficulties in e.g. environmental perception, spatial awareness, time perception, social participation and music experience. To experience i ...
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haptic technical aids for environmental perception time perception and mobility in a riding arena for persons with Deafblindness
9th International Conference on Haptics - Neuroscience Devices Modeling and Applications (EuroHaptics) Versailles France June 24-27 2014., 2014Co-Authors: Parivash Ranjba, Dag Stranneby, Cheryl Aknerkole, Erik OrgAbstract:This demonstration presents three vibrotactile aids to support personswith Deafblindness. One aid, Monitor, consists of a microphone that detectssounds from events which are then processed as a sig ...
Walte Wittich - One of the best experts on this subject based on the ideXlab platform.
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meaning and experiences of participation a phenomenological study with persons with Deafblindness in india
Disability and Rehabilitation, 2020Co-Authors: Atul Jaiswal, Heather Michelle Aldersey, Walte Wittich, Mansha Mirza, Marcia FinlaysoAbstract:Purpose: Deafblindness, also known as dual sensory loss, creates a distinct condition more disabling than either deafness or blindness alone. The participation experiences of persons with deafblind...
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factors that influence the participation of individuals with Deafblindness a qualitative study with rehabilitation service providers in india
British Journal of Visual Impairment, 2020Co-Authors: Atul Jaiswal, Heather Michelle Aldersey, Walte Wittich, Mansha Mirza, Marcia FinlaysoAbstract:Evidence to inform rehabilitation service delivery for individuals with Deafblindness, especially in the Indian context, is inadequate. Rehabilitation professionals often find it challenging to des...
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using the icf to identify contextual factors that influence participation of persons with Deafblindness
Archives of Physical Medicine and Rehabilitation, 2019Co-Authors: Atul Jaiswal, Heather Michelle Aldersey, Walte Wittich, Mansha Mirza, Marcia FinlaysoAbstract:Abstract Objective To identify and describe the contextual factors that influence the participation of people with Deafblindness in India. Design Qualitative study, using directed content analysis approach and the International Classification of Functioning, Disability and Health (ICF) as a framework to analyze the data. Setting Community and social participation settings. Participants Community-dwelling individuals with Deafblindness (N=16). Age ranges from 18-45 years. Interventions Not applicable. Main Outcome Measures Personal and environmental factors that influence the participation of individuals with Deafblindness using the ICF framework. Results Results indicate that the age of onset and nature of impairment (Deafblindness) and willingness to explain the condition (functional consequences of Deafblindness) emerged as important personal factors. Access to resources such as assistive technology, social support, and deafblind-specific services were found to be enablers of participation. Lack of services, systems, and policies specific to Deafblindness along with negative societal attitude toward disability were highly perceived environmental barriers that influence participation of people with Deafblindness in India. Conclusions Professionals must acknowledge aspects of the environment in conducting assessments and delivering interventions and understand the dynamic interactions between environment of the individual and his/her concurrent vision and hearing impairments. Approaches to enable participation require rehabilitation professionals to work with those with Deafblindness to advocate for removal of environmental barriers and ensure provision of appropriate resources from the government to facilitate their participation. Social policy and government must ensure emphasis on awareness about Deafblindness, access to deafblind-specific services, positive societal attitude, and opportunities for full participation for people with Deafblindness in society.
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participation experiences of people with Deafblindness or dual sensory loss a scoping review of global deafblind literature
PLOS ONE, 2018Co-Authors: Atul Jaiswal, Heather Michelle Aldersey, Walte Wittich, Mansha Mirza, Marcia FinlaysoAbstract:Background Deafblindness, also known as dual sensory loss, is a varying combination of visual and hearing impairment in the same individual. Interest in this topic has increased recently due to evidence suggesting an increase in prevalence of this condition among older adults. Persons with Deafblindness frequently experience participation barriers and social isolation. Developing an understanding of their experiences can inform the design of programs and policies to enhance participation of people with Deafblindness in society. Objective To identify and summarize available research literature on participation experiences of people with Deafblindness or dual sensory loss. Methods A comprehensive literature search of eight databases (CINAHL/EBSCO, Embase, ERIC, Global Health, MEDLINE, ProQuest, PsycINFO, PubMed) was performed in accordance with the Preferred Reporting Items for Systematic Reviews (PRISMA) during January 2017 and last updated in June 2017. In addition, non-peer reviewed (grey) literature was also retrieved in the form of online published reports of research projects by 16 deafblind-specific organizations across the globe. To be included, sources had to be published after 1990, had persons with Deafblindness as the focal population, and focused on their participation experiences. Results A total 1172 sources were identified of which 54 studies were included. The findings reveal that persons with Deafblindness, regardless of origin of their impairment, experience difficulty in communication, mobility, daily living functioning, and social interactions. While these experiences may vary between individuals with congenital versus acquired conditions, they generally feel socially isolated, insecure and uncertain about their future. Conclusion Participation experiences of persons with Deafblindness are shaped by dynamic interactions between personal factors (such as onset and type of impairments) and environmental influences (such as attitude, technology, and supports). A better understanding of participation experiences may help professionals in placing emphasis on affected participation domains to design services to enhance participation of people with Deafblindness.
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Participation of persons with Deafblindness.
2018Co-Authors: Atul Jaiswal, Walte Wittich, Mansha Mirza, Heathe Aldersey, Marcia FinlaysoAbstract:Participation of persons with Deafblindness.
