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Margaret A. Hainsworth - One of the best experts on this subject based on the ideXlab platform.
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Milestones of Chronic Sorrow: Perspectives of Chronically III and Bereaved Persons and Family Caregivers
Journal of Family Nursing, 1999Co-Authors: Mary L. Burke, Georgene G. Eakes, Margaret A. HainsworthAbstract:Chronic Sorrow is the presence of pervasive grief-related feelings that have been found to occur periodically throughout the lives of individuals with chronic health conditions, their family caregivers, and the bereaved. These feelings emerge in response to an ongoing disparity that results from the loss of the anticipated “normal” lifestyle of these persons. Circumstances and situations shown to trigger chronic Sorrow in a variety of these populations are defined. Similarities and differences of the trigger events among groups and the implications for family nursing practice are discussed. Support that has been identified as helpful when life circumstances evoke chronic Sorrow is described.
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middle range theory of chronic Sorrow
Journal of Nursing Scholarship, 1998Co-Authors: Georgene G. Eakes, Mary L. Burke, Margaret A. HainsworthAbstract:Purpose: To introduce a middle-range nursing theory of chronic Sorrow that presents this Sorrow as a normal response to ongoing disparity due to loss. Chronic Sorrow is the periodic recurrence of permanent, pervasive sadness or other grief related feelings associated with a significant loss. The theory provides a framework for understanding and working with people following a single or ongoing loss. Organizing framework: The model of chronic Sorrow includes antecedents, trigger events, and internal and external management methods. Scope: Theory is useful for analyzing individual responses of people experiencing ongoing disparity due to chronic illness, caregiving responsibilities, loss of the “perfect” child, or bereavement. Sources: The theory was developed using concept analysis, critical review of research, and validation in 10 qualitative studies of various loss situations. Conclusions: Chronic Sorrow has been shown to explain the experience of people across the lifespan who encounter ongoing disparity because of significant loss. Nurses need to view chronic Sorrow as a normal response to loss and, when it is triggered, provide support by fostering positive coping strategies and assuming roles that increase comfort.
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Middle‐Range Theory Of Chronic Sorrow
Image--the journal of nursing scholarship, 1998Co-Authors: Georgene G. Eakes, Mary L. Burke, Margaret A. HainsworthAbstract:Purpose: To introduce a middle-range nursing theory of chronic Sorrow that presents this Sorrow as a normal response to ongoing disparity due to loss. Chronic Sorrow is the periodic recurrence of permanent, pervasive sadness or other grief related feelings associated with a significant loss. The theory provides a framework for understanding and working with people following a single or ongoing loss. Organizing framework: The model of chronic Sorrow includes antecedents, trigger events, and internal and external management methods. Scope: Theory is useful for analyzing individual responses of people experiencing ongoing disparity due to chronic illness, caregiving responsibilities, loss of the “perfect” child, or bereavement. Sources: The theory was developed using concept analysis, critical review of research, and validation in 10 qualitative studies of various loss situations. Conclusions: Chronic Sorrow has been shown to explain the experience of people across the lifespan who encounter ongoing disparity because of significant loss. Nurses need to view chronic Sorrow as a normal response to loss and, when it is triggered, provide support by fostering positive coping strategies and assuming roles that increase comfort.
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HELPING SPOUSES with Chronic Sorrow Related to Multiple Sclerosis
Journal of gerontological nursing, 1995Co-Authors: Margaret A. HainsworthAbstract:1. Chronic Sorrow is defined as a pervasive sadness that is permanent, periodic, and progressive in nature. 2. Milestones or events which caused the Sorrow to recur were major themes in this study. 3. The participants identified what was helpful and not helpful in coping with these feelings, gave practical advice for similar individuals, and offered suggestions for nurses and other caregivers.
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Chronic Sorrow in Women With Chronically Mentally Disabled Husbands
Journal of the American Psychiatric Nurses Association, 1995Co-Authors: Margaret A. Hainsworth, Georgene G. Eakes, Priscilla V. Busch, Mary L. BurkeAbstract:BACKGROUND: Chronic Sorrow was described by Olshansky (1962) to explain a perva sive, psychologic reaction that he observed in parents of mentally retarded children. He believed that the Sorrow was a normal, not a neurotic, response to their situation and relatedly, thought clinicians would intervene differently with these parents if they held a similar belief. The Nursing Consortium for Research on Chronic Sorrow (NCRCS), of which the authors are members, has conducted multiple studies to ex pand the understanding of chronic Sorrow as a normal state associated with chronic or life-threatening conditions, occurring both in the individual with the condition and in family members. These NCRCS investigators have provided evidence supporting the premise that chronic Sorrow is likely to occur in various chronic situations. OBJECTIVES: This study explored whether women with chronically mentally disabled husbands experienced feelings of chronic Sorrow in their lives.DESIGN: Using content analysis, the transcript...
Georgene G. Eakes - One of the best experts on this subject based on the ideXlab platform.
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Milestones of Chronic Sorrow: Perspectives of Chronically III and Bereaved Persons and Family Caregivers
Journal of Family Nursing, 1999Co-Authors: Mary L. Burke, Georgene G. Eakes, Margaret A. HainsworthAbstract:Chronic Sorrow is the presence of pervasive grief-related feelings that have been found to occur periodically throughout the lives of individuals with chronic health conditions, their family caregivers, and the bereaved. These feelings emerge in response to an ongoing disparity that results from the loss of the anticipated “normal” lifestyle of these persons. Circumstances and situations shown to trigger chronic Sorrow in a variety of these populations are defined. Similarities and differences of the trigger events among groups and the implications for family nursing practice are discussed. Support that has been identified as helpful when life circumstances evoke chronic Sorrow is described.
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middle range theory of chronic Sorrow
Journal of Nursing Scholarship, 1998Co-Authors: Georgene G. Eakes, Mary L. Burke, Margaret A. HainsworthAbstract:Purpose: To introduce a middle-range nursing theory of chronic Sorrow that presents this Sorrow as a normal response to ongoing disparity due to loss. Chronic Sorrow is the periodic recurrence of permanent, pervasive sadness or other grief related feelings associated with a significant loss. The theory provides a framework for understanding and working with people following a single or ongoing loss. Organizing framework: The model of chronic Sorrow includes antecedents, trigger events, and internal and external management methods. Scope: Theory is useful for analyzing individual responses of people experiencing ongoing disparity due to chronic illness, caregiving responsibilities, loss of the “perfect” child, or bereavement. Sources: The theory was developed using concept analysis, critical review of research, and validation in 10 qualitative studies of various loss situations. Conclusions: Chronic Sorrow has been shown to explain the experience of people across the lifespan who encounter ongoing disparity because of significant loss. Nurses need to view chronic Sorrow as a normal response to loss and, when it is triggered, provide support by fostering positive coping strategies and assuming roles that increase comfort.
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Middle‐Range Theory Of Chronic Sorrow
Image--the journal of nursing scholarship, 1998Co-Authors: Georgene G. Eakes, Mary L. Burke, Margaret A. HainsworthAbstract:Purpose: To introduce a middle-range nursing theory of chronic Sorrow that presents this Sorrow as a normal response to ongoing disparity due to loss. Chronic Sorrow is the periodic recurrence of permanent, pervasive sadness or other grief related feelings associated with a significant loss. The theory provides a framework for understanding and working with people following a single or ongoing loss. Organizing framework: The model of chronic Sorrow includes antecedents, trigger events, and internal and external management methods. Scope: Theory is useful for analyzing individual responses of people experiencing ongoing disparity due to chronic illness, caregiving responsibilities, loss of the “perfect” child, or bereavement. Sources: The theory was developed using concept analysis, critical review of research, and validation in 10 qualitative studies of various loss situations. Conclusions: Chronic Sorrow has been shown to explain the experience of people across the lifespan who encounter ongoing disparity because of significant loss. Nurses need to view chronic Sorrow as a normal response to loss and, when it is triggered, provide support by fostering positive coping strategies and assuming roles that increase comfort.
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Chronic Sorrow in Women With Chronically Mentally Disabled Husbands
Journal of the American Psychiatric Nurses Association, 1995Co-Authors: Margaret A. Hainsworth, Georgene G. Eakes, Priscilla V. Busch, Mary L. BurkeAbstract:BACKGROUND: Chronic Sorrow was described by Olshansky (1962) to explain a perva sive, psychologic reaction that he observed in parents of mentally retarded children. He believed that the Sorrow was a normal, not a neurotic, response to their situation and relatedly, thought clinicians would intervene differently with these parents if they held a similar belief. The Nursing Consortium for Research on Chronic Sorrow (NCRCS), of which the authors are members, has conducted multiple studies to ex pand the understanding of chronic Sorrow as a normal state associated with chronic or life-threatening conditions, occurring both in the individual with the condition and in family members. These NCRCS investigators have provided evidence supporting the premise that chronic Sorrow is likely to occur in various chronic situations. OBJECTIVES: This study explored whether women with chronically mentally disabled husbands experienced feelings of chronic Sorrow in their lives.DESIGN: Using content analysis, the transcript...
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Chronic Sorrow: The lived experience of parents of chronically mentally ill individuals
Archives of psychiatric nursing, 1995Co-Authors: Georgene G. EakesAbstract:This study investigated the incidence of chronic Sorrow in parents of chronically mentally ill children. A convenience sample of 10 parents (four couples and two mothers) of adult children diagnosed with either schizophrenia or bipolar disorders were interviewed using the Burke/NCRCS Chronic Sorrow questionnaire (Caregiver Version). Findings showed that 8 out of 10 parents experienced chronic Sorrow. These grief-related feelings were most often triggered by the unending caregiving responsibilities parents described. Those who evidenced chronic Sorrow indicated that healthcare professionals could assist them by providing information about their child's illness and by involving them in the treatment process.
Mary L. Burke - One of the best experts on this subject based on the ideXlab platform.
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Milestones of Chronic Sorrow: Perspectives of Chronically III and Bereaved Persons and Family Caregivers
Journal of Family Nursing, 1999Co-Authors: Mary L. Burke, Georgene G. Eakes, Margaret A. HainsworthAbstract:Chronic Sorrow is the presence of pervasive grief-related feelings that have been found to occur periodically throughout the lives of individuals with chronic health conditions, their family caregivers, and the bereaved. These feelings emerge in response to an ongoing disparity that results from the loss of the anticipated “normal” lifestyle of these persons. Circumstances and situations shown to trigger chronic Sorrow in a variety of these populations are defined. Similarities and differences of the trigger events among groups and the implications for family nursing practice are discussed. Support that has been identified as helpful when life circumstances evoke chronic Sorrow is described.
-
middle range theory of chronic Sorrow
Journal of Nursing Scholarship, 1998Co-Authors: Georgene G. Eakes, Mary L. Burke, Margaret A. HainsworthAbstract:Purpose: To introduce a middle-range nursing theory of chronic Sorrow that presents this Sorrow as a normal response to ongoing disparity due to loss. Chronic Sorrow is the periodic recurrence of permanent, pervasive sadness or other grief related feelings associated with a significant loss. The theory provides a framework for understanding and working with people following a single or ongoing loss. Organizing framework: The model of chronic Sorrow includes antecedents, trigger events, and internal and external management methods. Scope: Theory is useful for analyzing individual responses of people experiencing ongoing disparity due to chronic illness, caregiving responsibilities, loss of the “perfect” child, or bereavement. Sources: The theory was developed using concept analysis, critical review of research, and validation in 10 qualitative studies of various loss situations. Conclusions: Chronic Sorrow has been shown to explain the experience of people across the lifespan who encounter ongoing disparity because of significant loss. Nurses need to view chronic Sorrow as a normal response to loss and, when it is triggered, provide support by fostering positive coping strategies and assuming roles that increase comfort.
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Middle‐Range Theory Of Chronic Sorrow
Image--the journal of nursing scholarship, 1998Co-Authors: Georgene G. Eakes, Mary L. Burke, Margaret A. HainsworthAbstract:Purpose: To introduce a middle-range nursing theory of chronic Sorrow that presents this Sorrow as a normal response to ongoing disparity due to loss. Chronic Sorrow is the periodic recurrence of permanent, pervasive sadness or other grief related feelings associated with a significant loss. The theory provides a framework for understanding and working with people following a single or ongoing loss. Organizing framework: The model of chronic Sorrow includes antecedents, trigger events, and internal and external management methods. Scope: Theory is useful for analyzing individual responses of people experiencing ongoing disparity due to chronic illness, caregiving responsibilities, loss of the “perfect” child, or bereavement. Sources: The theory was developed using concept analysis, critical review of research, and validation in 10 qualitative studies of various loss situations. Conclusions: Chronic Sorrow has been shown to explain the experience of people across the lifespan who encounter ongoing disparity because of significant loss. Nurses need to view chronic Sorrow as a normal response to loss and, when it is triggered, provide support by fostering positive coping strategies and assuming roles that increase comfort.
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Chronic Sorrow in Women With Chronically Mentally Disabled Husbands
Journal of the American Psychiatric Nurses Association, 1995Co-Authors: Margaret A. Hainsworth, Georgene G. Eakes, Priscilla V. Busch, Mary L. BurkeAbstract:BACKGROUND: Chronic Sorrow was described by Olshansky (1962) to explain a perva sive, psychologic reaction that he observed in parents of mentally retarded children. He believed that the Sorrow was a normal, not a neurotic, response to their situation and relatedly, thought clinicians would intervene differently with these parents if they held a similar belief. The Nursing Consortium for Research on Chronic Sorrow (NCRCS), of which the authors are members, has conducted multiple studies to ex pand the understanding of chronic Sorrow as a normal state associated with chronic or life-threatening conditions, occurring both in the individual with the condition and in family members. These NCRCS investigators have provided evidence supporting the premise that chronic Sorrow is likely to occur in various chronic situations. OBJECTIVES: This study explored whether women with chronically mentally disabled husbands experienced feelings of chronic Sorrow in their lives.DESIGN: Using content analysis, the transcript...
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Coping with Chronic Sorrow
Issues in mental health nursing, 1994Co-Authors: Margaret A. Hainsworth, Georgene G. Eakes, Mary L. BurkeAbstract:This qualitative study was designed to examine the presence of chronic Sorrow in diverse populations of individuals with chronic or life threatening conditions and to identify strategies for coping with feelings of chronic Sorrow. Chronic Sorrow was defined as a pervasive sadness that is permanent, periodic, and progressive in nature. The sample comprised 5 infertile couples, 10 individuals with long-term cancer, 10 individuals with multiple sclerosis, 6 individuals with Parkinson's disease, and 4 spouse care givers. Data were collected through audiotaped face-to-face or telephone interviews using the Burke/NCRCS Chronic Sorrow Questionnaire. The audiotapes were transcribed, entered into a computer analysis program, and collaboratively analyzed by the researchers. The findings indicate that 83% of the subjects experienced chronic Sorrow. The four coping strategies that were identified by the subjects as being helpful to their situation were categorized by the researchers as interpersonal, emotional, cogni...
Carolyn L. Lindgren - One of the best experts on this subject based on the ideXlab platform.
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Chronic Sorrow in persons with Parkinson's and their spouses.
Scholarly inquiry for nursing practice, 1996Co-Authors: Carolyn L. LindgrenAbstract:Chronic Sorrow is the grief experienced from continual loss during the trajectory of an illness or disability. The presence and nature of chronic Sorrow were determined in a sample of six persons with Parkinson's disease and four of their spouse caregivers using the Burke NCRCS Questionnaire. Four of the afflicted individuals and two of the spouse caregivers reported symptoms of chronic Sorrow that for half of them were more intense than at the time of diagnosis. Respondents used extensive problem-solving and emotive coping strategies to handle their Sorrow. Most of the respondents described themselves within the context of the illness and the care required. Losses triggering their Sorrow included loss of future plans, restricted social life, and inability to travel and participate in hobbies. Support from others was restricted mainly to physicians at the time of diagnosis and close family. Supportive nursing interventions for their grief are indicated.
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Chronic Sorrow in Persons With Parkinson's and Their Spouses
Research and Theory for Nursing Practice, 1996Co-Authors: Carolyn L. LindgrenAbstract:Chronic Sorrow is the grief experienced from continual loss during the trajectory of an illness or disability. The presence and nature of chronic Sorrow were determined in a sample of six persons with Parkinson' s disease and four of their spouse caregivers using the Burke NCRCS Questionnaire. Four
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Chronic Sorrow in multiple sclerosis. A case study.
Home healthcare nurse, 1993Co-Authors: M A Hainsworth, Carolyn L. LindgrenAbstract:Multiple sclerosis, one of the most common chronic disabilities among young adults, may potentiate the occurrence of chronic Sorrow. Chronic Sorrow differs from acute grief because it is permanent, periodic, and progressive in nature; it may be a normal component of chronic illness and disability. This study describes one woman's experience with multiple sclerosis, her chronic Sorrow about the trajectory of her disability, her progressive loss of bodily function, and the stigma of chronic illness. It also reports some of the feelings experienced by her husband, the primary caregiver.
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Current knowledge and research on chronic Sorrow: A foundation for inquiry
Death Studies, 1992Co-Authors: Mary L. Burke, Margaret A. Hainsworth, Georgene G. Eakes, Carolyn L. LindgrenAbstract:Abstract Research on the phenomenon of chronic Sorrow has been limited to samples of parents of children with disabilities. The Nursing Consortium for Research on Chronic Sorrow was formed to study this concept in individuals with chronic illness and their family caregivers across the life span. Although no research on this concept has focused on a life-span approach, the level and quantity of related research indicate that a qualitative method is most appropriate. A study of parents of children with spina bifida provided a usable instrument, the Chronic Sorrow Questionnaire. The purpose of additional study is to determine when chronic Sorrow occurs and what characteristics it displays in a variety of populations across the life span, how groups suffering from chronic Sorrow compare with parents of children with disabilities, whether chronic Sorrow is an inherent phenomenon in chronic illness situations, and how the major subconcepts of chronic Sorrow theory are linked.
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Chronic Sorrow: a lifespan concept.
Scholarly inquiry for nursing practice, 1992Co-Authors: Carolyn L. Lindgren, M A HainsworthAbstract:Losses are an integral part of chronic illness and disability. The term chronic Sorrow, has been used to describe the long-term periodic sadness the chronically ill and their caregivers experience in reaction to continual losses. In this conceptual analysis of chronic Sorrow, identified critical attributes are: cyclic sadness over time in a situation with no predictable end; external and internal stimuli triggering the feelings of loss, disappointment, and fear; and, progression and intensification of the sadness or Sorrow years after the initial disappointment or loss. Model, borderline, related, contrary, and illegitimate cases illustrate what the concept is and what it is not. The meaning of chronic Sorrow is compared to the meaning of unresolvable grief and depression. Chronic Sorrow in various stages of life is illustrated in descriptions of: the situation and feelings of parents of handicapped children; multiple sclerosis patients in the middle, productive years; and elderly caregivers of spouses with dementia. Implications for research include the need to study the concept in various populations to determine its prevalence and operation. Through research, the meaning of the concept can be further clarified. This is a beginning step toward developing nursing theory that will give direction for providing care to persons encountering sadness over long periods of time.
Rose Chalo Nabirye - One of the best experts on this subject based on the ideXlab platform.
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Existence, triggers, and coping with chronic Sorrow: a qualitative study of caretakers of children with sickle cell disease in a National Referral Hospital in Kampala, Uganda
BMC Psychology, 2018Co-Authors: Connie Olwit, Maureen Mugaba, Charles Peter Osingada, Rose Chalo NabiryeAbstract:Background Worldwide, sickle cell disease is recognized as one of the major causes of morbidity and mortality. Caregivers and patients with such chronic illnesses experience economic, physical, social and psychological distresses which may lead to chronic Sorrow. Chronic Sorrow is viewed as a normal reaction to loss, however it can progress to a pathological state such as depression if the coping styles are ineffective. Therefore, the aim of this study was to explore the existence of chronic Sorrow, triggers and coping with grief related feelings among caretakers of children with sickle cell disease. Methods A descriptive qualitative study was conducted. Twelve in-depth interviews were conducted with eligible participants who were purposively selected. Deductive thematic analysis methods were used for data analysis. Results Many (9 out of 12) of the caretakers experienced chronic Sorrow. The grief related feelings were triggered by health worker related, disease related and support related factors. Caretakers used both external and internal coping strategies. External support was derived from community, family and health facility. Internal coping strategies were behavioral and cognitive. Conclusion Caretakers of children with sickle cell disease experienced chronic Sorrow and employed both internal and external coping strategies to deal with it, which could be either effective or ineffective. This study recommends that health workers should routinely screen for chronic Sorrow among caretakers of children with sickle cell disease and assist caretakers to strengthen effective coping strategies to ameliorate the negative effects of chronic Sorrow.
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Existence, triggers, and coping with chronic Sorrow: a qualitative study of caretakers of children with sickle cell disease in a National Referral Hospital in Kampala, Uganda
BMC, 2018Co-Authors: Connie Olwit, Maureen Mugaba, Charles Peter Osingada, Rose Chalo NabiryeAbstract:Abstract Background Worldwide, sickle cell disease is recognized as one of the major causes of morbidity and mortality. Caregivers and patients with such chronic illnesses experience economic, physical, social and psychological distresses which may lead to chronic Sorrow. Chronic Sorrow is viewed as a normal reaction to loss, however it can progress to a pathological state such as depression if the coping styles are ineffective. Therefore, the aim of this study was to explore the existence of chronic Sorrow, triggers and coping with grief related feelings among caretakers of children with sickle cell disease. Methods A descriptive qualitative study was conducted. Twelve in-depth interviews were conducted with eligible participants who were purposively selected. Deductive thematic analysis methods were used for data analysis. Results Many (9 out of 12) of the caretakers experienced chronic Sorrow. The grief related feelings were triggered by health worker related, disease related and support related factors. Caretakers used both external and internal coping strategies. External support was derived from community, family and health facility. Internal coping strategies were behavioral and cognitive. Conclusion Caretakers of children with sickle cell disease experienced chronic Sorrow and employed both internal and external coping strategies to deal with it, which could be either effective or ineffective. This study recommends that health workers should routinely screen for chronic Sorrow among caretakers of children with sickle cell disease and assist caretakers to strengthen effective coping strategies to ameliorate the negative effects of chronic Sorrow
