The Experts below are selected from a list of 17559 Experts worldwide ranked by ideXlab platform
Til Wykes - One of the best experts on this subject based on the ideXlab platform.
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collaborative development of an electronic personal health record for people with severe and enduring mental health problems
BMC Psychiatry, 2014Co-Authors: Liam Ennis, Diana Rose, Dan Robotham, Mike Denis, Ninjeri Pandit, David Newton, Til WykesAbstract:Previous attempts to implement electronic Personal Health Records (ePHRs) underline the importance of stakeholder involvement. We describe the development of an ePHR for people with severe and enduring mental health problems, and provide a model of involving stakeholders throughout. There were three stages to the development of the ePHR. These were 1) identifying and responding to User and clinical needs; 2) preliminary testing; and 3) preliminary implementation. Stakeholder involvement was pervasive in all stages. We collaborated with 133 stakeholders in the first stage, 13 in the second, and 26 in the third. On the micro-level, a service User Researcher conducted much of the data collection and analysis. On the macro-level, a service User advisory group guided decisions throughout the project, and a service User was an active member of the project executive board and the implementation team. Service Users and clinicians preferred an interactive ePHR with features such as access to care plans and care notes, a mood tracker, patient reported outcomes feeding into the clinical record, and social networking features. Many of the above were constructed following consultation with the relevant professionals, however further consultation is required before building a social networking function or providing access to full care notes. Service Users positively rated the usability of the ePHR. Drop-in sessions helped service Users access technology and learn how to use the ePHR. We outline four considerations for future developers of ePHRs: appeal, construction, ease of use, and implementation. Success rests on implementation in routine practice, so ePHRs must be intuitive and useful for both service Users and staff. Continued involvement of end Users throughout the design and testing process can help to achieve this goal.
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Hearing the voices of service User Researchers in collaborative qualitative data analysis: the case for multiple coding.
Health expectations : an international journal of public participation in health care and health policy, 2012Co-Authors: Angela Sweeney, Til Wykes, Kathryn Greenwood, Sally Williams, Diana RoseAbstract:Background Health research is frequently conducted in multi-disciplinary teams, with these teams increasingly including service User Researchers. Whilst it is common for service User Researchers to be involved in data collection – most typically interviewing other service Users – it is less common for service User Researchers to be involved in data analysis and interpretation. This means that a unique and significant perspective on the data is absent. Aim This study aims to use an empirical report of a study on Cognitive Behavioural Therapy for psychosis (CBTp) to demonstrate the value of multiple coding in enabling service Users voices to be heard in team-based qualitative data analysis. Design The CBTp study employed multiple coding to analyse service Users’ discussions of CBT for psychosis (CBTp) from the perspectives of a service User Researcher, clinical Researcher and psychology assistant. Multiple coding was selected to enable multiple perspectives to analyse and interpret data, to understand and explore differences and to build multi-disciplinary consensus. Results Multiple coding enabled the team to understand where our views were commensurate and incommensurate and to discuss and debate differences. Through the process of multiple coding, we were able to build strong consensus about the data from multiple perspectives, including that of the service User Researcher. Discussion Multiple coding is an important method for understanding and exploring multiple perspectives on data and building team consensus. This can be contrasted with inter-rater reliability which is only appropriate in limited circumstances. Conclusion We conclude that multiple coding is an appropriate and important means of hearing service Users’ voices in qualitative data analysis.
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A Comparison of Participant Information Elicited by Service User and Non-Service User Researchers
Psychiatric services (Washington D.C.), 2011Co-Authors: Diana Rose, Morven Leese, Danielle Oliver, Rajinder Sidhu, Olive Bennewith, Stefan Priebe, Til WykesAbstract:Objective:The study examined whether data collected by Researchers who were service Users differed from data collected by non-service User Researchers in a study that measured perceived coercion. Methods:Over two years, 548 inpatients in England were interviewed during their first week of compulsory admission to a psychiatric bed at three regional mental health provider settings. Each site had one service User Researcher and one nonUser Researcher. The dependent variables were two measures of perceived coercion. Service Users disclosed their status, including past hospitalization, to 93 of the 242 (38%) patients they interviewed. Results:No differences were found on either variable between the three Researcher categories (nondisclosed User, disclosed User, and nonUser Researcher). An interaction with site was noted, and possible interpretations of this finding are discussed. Conclusions:Further research is needed to determine the conditions under which service User Researchers obtain information that diff...
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from passive subjects to equal partners qualitative review of User involvement in research
British Journal of Psychiatry, 2002Co-Authors: Premila Trivedi, Til WykesAbstract:Background The Department of Health and UK funding bodies have suggested that clinical academics work closely with mental health service Users in research projects. Although there are helpful guidelines on the issues that have to be dealt with, there have been few examples of how this partnership research might be undertaken. Aims To illustrate the challenges in joint research projects. Method We subjected the process of User involvement to ten questions which arose in the development of a joint research project. The answers are an amalgamation of the User and clinical Researcher considerations and are affected by hindsight. Results The involvement of the User-Researcher changed the focus of the study and its design and content. More attention was paid to the intervention itself and the way in which it was delivered. This process increased the amount of time taken to carry out and write up the project as well as incurring financial costs for User consultation payments and dissemination. Conclusions This experience has clarified the contribution that Users can make, for example by raising new research questions, by ensuring interventions are kept ‘User friendly’, and the selection of outcome measures.
Allison Druin - One of the best experts on this subject based on the ideXlab platform.
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mobile technology for children designing for interaction and learning
2009Co-Authors: Allison DruinAbstract:With the goal of improving the design of mobile technology for children, On the Move brings together contributions from HCI leaders in research, and industry, and technology and education based policy experts to analyze and evaluate and present solutions. To show readers how they can apply each design problem and case study to their HCI professional or academic work, each chapter will contain best practice advice. In HCI, social implications, in addition to interface design, usability, and performance, are all part of an informed design solution. Chauncey Wilson, Senior User Researcher, Autodesk, Inc., and forthcoming MK author, states, “The design of mobile devices is not an algorithmic process, it is must be considered in a social context that examines culture, changing trends, and other factors. This proposal provides a solid foundation of the social and cultural factors that are critical in the design of mobile products for children.” There are many technological solutions to consider, many contexts to explore User scenarios and many goals for supporting learning. It contains the work of 43 authors from 9 countries, each deeply invested in improving and analyzing design of childrens mobile products. These authors have diverse points of view, but it is a subject that deserves debate. The trends, design and use of these products has been both lauded and criticized, and the debate is far from over. The need has never been greater for an evaluation of the design and the affects of the design mobile technology as it pertains to children's products and learning – the good and the bad – especially for and by the people who conduct research, develop and design the products. *First book for HCI practitioners and Researchers to present a multitude of voices on the design, technology, and impact of mobile devices for children from global perspective *Features contributions from leading HCI academics, professionals, and childrens technology policy leaders from nine countries *Each contribution and case study is followed by a best practice overview to help readers improve future research and design and for a quick reference at a later date
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mobile technology for children designing for interaction and learning
2009Co-Authors: Allison DruinAbstract:With the goal of improving the design of mobile technology for children, On the Move brings together contributions from HCI leaders in research, and industry, and technology and education based policy experts to analyze and evaluate and present solutions. To show readers how they can apply each design problem and case study to their HCI professional or academic work, each chapter will contain best practice advice. In HCI, social implications, in addition to interface design, usability, and performance, are all part of an informed design solution. Chauncey Wilson, Senior User Researcher, Autodesk, Inc., and forthcoming MK author, states, “The design of mobile devices is not an algorithmic process, it is must be considered in a social context that examines culture, changing trends, and other factors. This proposal provides a solid foundation of the social and cultural factors that are critical in the design of mobile products for children.” There are many technological solutions to consider, many contexts to explore User scenarios and many goals for supporting learning. It contains the work of 43 authors from 9 countries, each deeply invested in improving and analyzing design of childrens mobile products. These authors have diverse points of view, but it is a subject that deserves debate. The trends, design and use of these products has been both lauded and criticized, and the debate is far from over. The need has never been greater for an evaluation of the design and the affects of the design mobile technology as it pertains to children's products and learning – the good and the bad – especially for and by the people who conduct research, develop and design the products. *First book for HCI practitioners and Researchers to present a multitude of voices on the design, technology, and impact of mobile devices for children from global perspective *Features contributions from leading HCI academics, professionals, and childrens technology policy leaders from nine countries *Each contribution and case study is followed by a best practice overview to help readers improve future research and design and for a quick reference at a later date
Bayard Roberts - One of the best experts on this subject based on the ideXlab platform.
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User and Researcher collaborations in mental health in low and middle income countries a case study of the empower project
BMC Research Notes, 2014Co-Authors: Esha Gupta, Bayard RobertsAbstract:Background: Increasing recognition has been given to the interaction of Users and Researchers in shaping the perspective and practice of mental health care. However, there remains very little evidence exploring how this interaction works, particularly in low and middle income countries. The aim of this study was to explore experiences of how Users and Researchers worked together to communicate research, using a case study of the EMPOWER project. Methods: The study followed a case-study approach. EMPOWER was a project that sought to strengthen the capacity of User organizations in India, Kenya, Nepal and Zambia by encouraging User-Researcher collaborations to communicate research findings in the four countries. A qualitative research method was applied for this study, with semi-structured interviews conducted with seven people: two Researchers, one communications developer, and four User group members (one from each of the four countries). Data were analyzed using thematic analysis. Results: The findings indicated positive perceptions of the collaboration between Researchers and Users. Key themes were partnership and support, the value of the personal experience of Users and their knowledge of the target audiences, and empowerment. Key challenges related to differences in levels of education and technical knowledge and the lack of payments to Users.
Joanna Fox - One of the best experts on this subject based on the ideXlab platform.
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experiences of User involvement in mental health research exploring reflections from a service User Researcher using auto ethnography
Mental Health Review Journal, 2020Co-Authors: Joanna FoxAbstract:Purpose: User involvement in research is entering the mainstream of traditional mental health research. In practice, there are diverse ways in which the process of involvement is experienced by mental health service User Researchers. This paper aims to explore two diverse experiences of involvement by the Researcher. Approach: Autoethnography is the research methodology employed in this study; it combines a process of reflective writing and critical analysis which enables me to explore my experiences of being both a service User and academic Researcher. Two accounts of my involvement in mental health research are presented: one which builds on a consultation model, and the other, based on co-production principles. Findings: Experiences of power-sharing and collaborative decision-making, alongside disempowerment are discussed; leading to exploration of the theoretical and practical processes for promoting participation of Users in research. Research limitations: The research is limited because it is undertaken by one individual in a local setting, and is therefore is not generalisable; however it provides useful insights into the diverse processes of involvement that many service Users experience. Practical implications: Recommendations are presented to support the involvement of service Users in research; with final remarks offered considering the possible future implementation of this still emerging tradition. Originality: This paper reflects on the experiences of one service User academic involved in research and highlights diverse experiences of both empowering and disempowering involvement, providing recommendations for best practice.
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experience of mental health recovery and the service User Researcher
Ethics and Social Welfare, 2007Co-Authors: Joanna FoxAbstract:In traditional research there was an emphasis on survey-based, positivist forms of research. It was undertaken on research subjects by professionals, academics, and Researchers. In the last decade ...
Diana Rose - One of the best experts on this subject based on the ideXlab platform.
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collaborative development of an electronic personal health record for people with severe and enduring mental health problems
BMC Psychiatry, 2014Co-Authors: Liam Ennis, Diana Rose, Dan Robotham, Mike Denis, Ninjeri Pandit, David Newton, Til WykesAbstract:Previous attempts to implement electronic Personal Health Records (ePHRs) underline the importance of stakeholder involvement. We describe the development of an ePHR for people with severe and enduring mental health problems, and provide a model of involving stakeholders throughout. There were three stages to the development of the ePHR. These were 1) identifying and responding to User and clinical needs; 2) preliminary testing; and 3) preliminary implementation. Stakeholder involvement was pervasive in all stages. We collaborated with 133 stakeholders in the first stage, 13 in the second, and 26 in the third. On the micro-level, a service User Researcher conducted much of the data collection and analysis. On the macro-level, a service User advisory group guided decisions throughout the project, and a service User was an active member of the project executive board and the implementation team. Service Users and clinicians preferred an interactive ePHR with features such as access to care plans and care notes, a mood tracker, patient reported outcomes feeding into the clinical record, and social networking features. Many of the above were constructed following consultation with the relevant professionals, however further consultation is required before building a social networking function or providing access to full care notes. Service Users positively rated the usability of the ePHR. Drop-in sessions helped service Users access technology and learn how to use the ePHR. We outline four considerations for future developers of ePHRs: appeal, construction, ease of use, and implementation. Success rests on implementation in routine practice, so ePHRs must be intuitive and useful for both service Users and staff. Continued involvement of end Users throughout the design and testing process can help to achieve this goal.
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Hearing the voices of service User Researchers in collaborative qualitative data analysis: the case for multiple coding.
Health expectations : an international journal of public participation in health care and health policy, 2012Co-Authors: Angela Sweeney, Til Wykes, Kathryn Greenwood, Sally Williams, Diana RoseAbstract:Background Health research is frequently conducted in multi-disciplinary teams, with these teams increasingly including service User Researchers. Whilst it is common for service User Researchers to be involved in data collection – most typically interviewing other service Users – it is less common for service User Researchers to be involved in data analysis and interpretation. This means that a unique and significant perspective on the data is absent. Aim This study aims to use an empirical report of a study on Cognitive Behavioural Therapy for psychosis (CBTp) to demonstrate the value of multiple coding in enabling service Users voices to be heard in team-based qualitative data analysis. Design The CBTp study employed multiple coding to analyse service Users’ discussions of CBT for psychosis (CBTp) from the perspectives of a service User Researcher, clinical Researcher and psychology assistant. Multiple coding was selected to enable multiple perspectives to analyse and interpret data, to understand and explore differences and to build multi-disciplinary consensus. Results Multiple coding enabled the team to understand where our views were commensurate and incommensurate and to discuss and debate differences. Through the process of multiple coding, we were able to build strong consensus about the data from multiple perspectives, including that of the service User Researcher. Discussion Multiple coding is an important method for understanding and exploring multiple perspectives on data and building team consensus. This can be contrasted with inter-rater reliability which is only appropriate in limited circumstances. Conclusion We conclude that multiple coding is an appropriate and important means of hearing service Users’ voices in qualitative data analysis.
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A Comparison of Participant Information Elicited by Service User and Non-Service User Researchers
Psychiatric services (Washington D.C.), 2011Co-Authors: Diana Rose, Morven Leese, Danielle Oliver, Rajinder Sidhu, Olive Bennewith, Stefan Priebe, Til WykesAbstract:Objective:The study examined whether data collected by Researchers who were service Users differed from data collected by non-service User Researchers in a study that measured perceived coercion. Methods:Over two years, 548 inpatients in England were interviewed during their first week of compulsory admission to a psychiatric bed at three regional mental health provider settings. Each site had one service User Researcher and one nonUser Researcher. The dependent variables were two measures of perceived coercion. Service Users disclosed their status, including past hospitalization, to 93 of the 242 (38%) patients they interviewed. Results:No differences were found on either variable between the three Researcher categories (nondisclosed User, disclosed User, and nonUser Researcher). An interaction with site was noted, and possible interpretations of this finding are discussed. Conclusions:Further research is needed to determine the conditions under which service User Researchers obtain information that diff...
