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Elisabet Mattsson - One of the best experts on this subject based on the ideXlab platform.

  • being involved in research as a collaborator with experience of a prenatal diagnosis of Congenital Heart Defect in the fetus a qualitative study
    Research Involvement and Engagement, 2020
    Co-Authors: Tommy Carlsson, Ulla Melander Marttala, Elisabet Mattsson
    Abstract:

    An increasing number of research projects are now collaborating with persons who have lived experience of a specific health-related situation, such as a prenatal diagnosis of Congenital Heart Defect. Such collaboration has the potential to provide valuable insights how to plan future studies, but little is known how these persons experience such involvement. The aim was to explore how persons with lived experience of a prenatal diagnosis perceived collaborating in a research project utilizing patient and public involvement to identify relevant research questions and develop suitable interventions. Persons with experience of a prenatal diagnosis of Congenital Heart Defect in the fetus were interviewed after their participation in a yearlong collaborative research project (n = 9) aiming to explore relevant research questions and develop interventions for expectant parents with a recent prenatal diagnosis. Interviews were analyzed with qualitative content analysis. Respondents acknowledged altruistic and personal value related to the collaboration. They valued the opportunity to contribute to future research so that the care of persons experiencing a prenatal diagnosis may be improved. Mixed feelings were described related to sharing and reliving experiences. While it had been emotionally difficult to relive a traumatic event, it also served as an opportunity to process experiences and psychologically adapt. Respondents with terminated pregnancies appreciated the possibility to meet peers, since it was difficult to find peers in everyday life and talk about their experiences with others. Researchers who plan to collaborate with persons who have experience of a prenatal diagnosis should be mindful of the potential associated emotional experiences. The appreciation related to meeting peers calls attention to the need for studies that explore peer support.

  • emotional and cognitive experiences during the time of diagnosis and decision making following a prenatal diagnosis a qualitative study of males presented with Congenital Heart Defect in the fetus carried by their pregnant partner
    BMC Pregnancy and Childbirth, 2018
    Co-Authors: Tommy Carlsson, Elisabet Mattsson
    Abstract:

    Expectant fathers consider the second-trimester obstetric ultrasound examination as an important step towards parenthood, but are ill prepared for a detection of a fetal anomaly. Inductive research is scarce concerning their experiences and needs for support. Consequently, the aim of this study was to explore the emotional and cognitive experiences, during the time of diagnosis and decision-making, among males presented with Congenital Heart Defect in the fetus carried by their pregnant partner. Twelve expectant fathers were consecutively recruited through two tertiary referral centers for fetal cardiology in Sweden, after they had been presented with a prenatal diagnosis of Congenital Heart Defect in the fetus carried by their pregnant partner. The respondents were interviewed via telephone, and the interviews were analyzed using inductive qualitative content analysis. The respondents experienced an intense emotional shock in connection with detection. However, they set their own needs aside to attend to the supportive needs of their pregnant partner, and stressed the importance of an informed joint decision regarding whether to continue or terminate the pregnancy. When terminating the pregnancy, they experienced a loss of a wanted child, an emotionally intense termination procedure, needs of support neglected by professionals, and worries about the risk of recurrence in future pregnancies. When continuing the pregnancy, they tried to keep a positive attitude about the coming birth, but were simultaneously worried about the postnatal situation. The findings illustrate the importance of inclusive care and adequate follow-up routines for both expectant parents following a prenatal diagnosis. This includes the initial emotional shock, the decisional process, and depending on decision reached, the termination or continuation of the pregnancy. Expectant fathers presented with a fetal anomaly need adequate follow-up routines to address worries about risk of recurrence in future pregnancies and worries about the postnatal situation.

  • Emotional and cognitive experiences during the time of diagnosis and decision-making following a prenatal diagnosis: a qualitative study of males presented with Congenital Heart Defect in the fetus carried by their pregnant partner
    BMC, 2018
    Co-Authors: Tommy Carlsson, Elisabet Mattsson
    Abstract:

    Abstract Background Expectant fathers consider the second-trimester obstetric ultrasound examination as an important step towards parenthood, but are ill prepared for a detection of a fetal anomaly. Inductive research is scarce concerning their experiences and needs for support. Consequently, the aim of this study was to explore the emotional and cognitive experiences, during the time of diagnosis and decision-making, among males presented with Congenital Heart Defect in the fetus carried by their pregnant partner. Methods Twelve expectant fathers were consecutively recruited through two tertiary referral centers for fetal cardiology in Sweden, after they had been presented with a prenatal diagnosis of Congenital Heart Defect in the fetus carried by their pregnant partner. The respondents were interviewed via telephone, and the interviews were analyzed using inductive qualitative content analysis. Results The respondents experienced an intense emotional shock in connection with detection. However, they set their own needs aside to attend to the supportive needs of their pregnant partner, and stressed the importance of an informed joint decision regarding whether to continue or terminate the pregnancy. When terminating the pregnancy, they experienced a loss of a wanted child, an emotionally intense termination procedure, needs of support neglected by professionals, and worries about the risk of recurrence in future pregnancies. When continuing the pregnancy, they tried to keep a positive attitude about the coming birth, but were simultaneously worried about the postnatal situation. Conclusions The findings illustrate the importance of inclusive care and adequate follow-up routines for both expectant parents following a prenatal diagnosis. This includes the initial emotional shock, the decisional process, and depending on decision reached, the termination or continuation of the pregnancy. Expectant fathers presented with a fetal anomaly need adequate follow-up routines to address worries about risk of recurrence in future pregnancies and worries about the postnatal situation

  • experiences of informational needs and received information following a prenatal diagnosis of Congenital Heart Defect
    Prenatal Diagnosis, 2016
    Co-Authors: Tommy Carlsson, Gunnar Bergman, Barbro Wadensten, Elisabet Mattsson
    Abstract:

    OBJECTIVE: To explore the need for information and what information was actually received following a prenatal diagnosis of a Congenital Heart Defect, in a country where termination of pregnancy be ...

Yinglong Liu - One of the best experts on this subject based on the ideXlab platform.

  • lung remodeling in a porcine model of cyanotic Congenital Heart Defect with decreased pulmonary blood flow
    Experimental Lung Research, 2012
    Co-Authors: Yinglong Liu, Lizhong Sun
    Abstract:

    ABSTRACTBackground: Hypoperfusion of the pulmonary vascular bed under the condition of Congenital cardiac malformations may lead to progressive pulmonary vascular disease. To improve the mechanistic understanding of this disease, we examined the biochemical and morphological changes of the lung in a relevant animal model and provided valuable insights into the underlying mechanisms of the pathogenesis of pulmonary hypotension. Materials and Methods: A model of Congenital Heart Defect with decreased pulmonary blood flow was implemented into 8 piglets (the cyanosis group). Another 8 piglets underwent a sham operation (the control group). Two months postoperatively, lung biopsy specimens were harvested for the measurement of the expression levels of MMP-2, MMP-9, TIMP-1, VEGF, and type I and type III collagens. Moreover, the light-microscopic morphology, morphometry, and ultrastructure of lobes were examined. Results: Compared to the controls, the histopathological changes of the pulmonary vasculature in the...

  • a novel hybrid method for creating a porcine model of cyanotic Congenital Heart Defect with decreased pulmonary blood flow
    Journal of Surgical Research, 2009
    Co-Authors: Yinglong Liu
    Abstract:

    Objective To create an experimental model of cyanotic Congenital Heart Defect with decreased pulmonary blood flow using a novel hybrid method. Methods A model of Congenital Heart Defect with decreased pulmonary blood flow and chronic cyanosis was produced surgically in eight piglets (mean, 2 mo old). An artificial atrial septal Defect was created followed by pulmonary artery banding to generate a systolic pressure gradient at 2 mo of ≥50 mm Hg (cyanotic group). Another eight piglets underwent a sham operation (control group). Results There were six long-term survivors in the cyanotic group. At a mean duration of 2 mo following the hybrid procedure, the resting gradient across the pulmonary artery band was 53.7 mm Hg. The Qp/Qs reached 0.54:1. The arterial oxygen tension, arterial oxygen saturation, hematocrit, and hemoglobin concentration were 52.9 mm Hg, 85.6%, 49.8%, and 16.6 g/dL in the cyanotic group versus 118.0 mm Hg, 98.0%, 37.9%, and 12.2 g/dL in the control group, respectively (all P Conclusions A porcine model of cyanotic Congenital Heart Defect with decreased pulmonary blood flow was established by a hybrid method. Application of this experimental design may enhance our understanding and possibly influence the treatment of patients who have cyanotic Heart disease with decreased pulmonary blood flow.

Samuel C. Siu - One of the best experts on this subject based on the ideXlab platform.

Tommy Carlsson - One of the best experts on this subject based on the ideXlab platform.

  • being involved in research as a collaborator with experience of a prenatal diagnosis of Congenital Heart Defect in the fetus a qualitative study
    Research Involvement and Engagement, 2020
    Co-Authors: Tommy Carlsson, Ulla Melander Marttala, Elisabet Mattsson
    Abstract:

    An increasing number of research projects are now collaborating with persons who have lived experience of a specific health-related situation, such as a prenatal diagnosis of Congenital Heart Defect. Such collaboration has the potential to provide valuable insights how to plan future studies, but little is known how these persons experience such involvement. The aim was to explore how persons with lived experience of a prenatal diagnosis perceived collaborating in a research project utilizing patient and public involvement to identify relevant research questions and develop suitable interventions. Persons with experience of a prenatal diagnosis of Congenital Heart Defect in the fetus were interviewed after their participation in a yearlong collaborative research project (n = 9) aiming to explore relevant research questions and develop interventions for expectant parents with a recent prenatal diagnosis. Interviews were analyzed with qualitative content analysis. Respondents acknowledged altruistic and personal value related to the collaboration. They valued the opportunity to contribute to future research so that the care of persons experiencing a prenatal diagnosis may be improved. Mixed feelings were described related to sharing and reliving experiences. While it had been emotionally difficult to relive a traumatic event, it also served as an opportunity to process experiences and psychologically adapt. Respondents with terminated pregnancies appreciated the possibility to meet peers, since it was difficult to find peers in everyday life and talk about their experiences with others. Researchers who plan to collaborate with persons who have experience of a prenatal diagnosis should be mindful of the potential associated emotional experiences. The appreciation related to meeting peers calls attention to the need for studies that explore peer support.

  • emotional and cognitive experiences during the time of diagnosis and decision making following a prenatal diagnosis a qualitative study of males presented with Congenital Heart Defect in the fetus carried by their pregnant partner
    BMC Pregnancy and Childbirth, 2018
    Co-Authors: Tommy Carlsson, Elisabet Mattsson
    Abstract:

    Expectant fathers consider the second-trimester obstetric ultrasound examination as an important step towards parenthood, but are ill prepared for a detection of a fetal anomaly. Inductive research is scarce concerning their experiences and needs for support. Consequently, the aim of this study was to explore the emotional and cognitive experiences, during the time of diagnosis and decision-making, among males presented with Congenital Heart Defect in the fetus carried by their pregnant partner. Twelve expectant fathers were consecutively recruited through two tertiary referral centers for fetal cardiology in Sweden, after they had been presented with a prenatal diagnosis of Congenital Heart Defect in the fetus carried by their pregnant partner. The respondents were interviewed via telephone, and the interviews were analyzed using inductive qualitative content analysis. The respondents experienced an intense emotional shock in connection with detection. However, they set their own needs aside to attend to the supportive needs of their pregnant partner, and stressed the importance of an informed joint decision regarding whether to continue or terminate the pregnancy. When terminating the pregnancy, they experienced a loss of a wanted child, an emotionally intense termination procedure, needs of support neglected by professionals, and worries about the risk of recurrence in future pregnancies. When continuing the pregnancy, they tried to keep a positive attitude about the coming birth, but were simultaneously worried about the postnatal situation. The findings illustrate the importance of inclusive care and adequate follow-up routines for both expectant parents following a prenatal diagnosis. This includes the initial emotional shock, the decisional process, and depending on decision reached, the termination or continuation of the pregnancy. Expectant fathers presented with a fetal anomaly need adequate follow-up routines to address worries about risk of recurrence in future pregnancies and worries about the postnatal situation.

  • Emotional and cognitive experiences during the time of diagnosis and decision-making following a prenatal diagnosis: a qualitative study of males presented with Congenital Heart Defect in the fetus carried by their pregnant partner
    BMC, 2018
    Co-Authors: Tommy Carlsson, Elisabet Mattsson
    Abstract:

    Abstract Background Expectant fathers consider the second-trimester obstetric ultrasound examination as an important step towards parenthood, but are ill prepared for a detection of a fetal anomaly. Inductive research is scarce concerning their experiences and needs for support. Consequently, the aim of this study was to explore the emotional and cognitive experiences, during the time of diagnosis and decision-making, among males presented with Congenital Heart Defect in the fetus carried by their pregnant partner. Methods Twelve expectant fathers were consecutively recruited through two tertiary referral centers for fetal cardiology in Sweden, after they had been presented with a prenatal diagnosis of Congenital Heart Defect in the fetus carried by their pregnant partner. The respondents were interviewed via telephone, and the interviews were analyzed using inductive qualitative content analysis. Results The respondents experienced an intense emotional shock in connection with detection. However, they set their own needs aside to attend to the supportive needs of their pregnant partner, and stressed the importance of an informed joint decision regarding whether to continue or terminate the pregnancy. When terminating the pregnancy, they experienced a loss of a wanted child, an emotionally intense termination procedure, needs of support neglected by professionals, and worries about the risk of recurrence in future pregnancies. When continuing the pregnancy, they tried to keep a positive attitude about the coming birth, but were simultaneously worried about the postnatal situation. Conclusions The findings illustrate the importance of inclusive care and adequate follow-up routines for both expectant parents following a prenatal diagnosis. This includes the initial emotional shock, the decisional process, and depending on decision reached, the termination or continuation of the pregnancy. Expectant fathers presented with a fetal anomaly need adequate follow-up routines to address worries about risk of recurrence in future pregnancies and worries about the postnatal situation

  • experiences and preferences of care among swedish immigrants following a prenatal diagnosis of Congenital Heart Defect in the fetus a qualitative interview study
    BMC Pregnancy and Childbirth, 2016
    Co-Authors: Tommy Carlsson, Ulla Melander Marttala, Elisabeth Mattsson, Anders Ringner
    Abstract:

    Immigrants experience significant challenges when in contact with healthcare and report less satisfaction with maternity care compared to native Swedes. Research that gives voice to pregnant immigrant women and their partners following a prenatal diagnosis of a fetal anomaly is scarce. Thus, the aim of this study was to explore experiences and preferences of care following a prenatal diagnosis of Congenital Heart Defect among Swedish immigrants. Pregnant immigrants and their partners were consecutively recruited following a prenatal diagnosis of a Congenital Heart Defect in the fetus. Nine respondents were interviewed in five interviews, four with the aid of a professional interpreter. The material was analyzed using manifest qualitative content analysis. The analysis resulted in five categories: 1) “Trustworthy information”, 2) “Language barriers”, 3) “Psychosocial situation”, 4) “Peer support”, and 5) “Religious positions”. The potential need for interpreter services, visual information, psychosocial support, coordination with welfare officers, and respect for religious positions about termination of pregnancy are all important aspects for health professionals to consider when consulting immigrants faced with a prenatal diagnosis of fetal anomaly in the fetus. Peer support within this context needs to be further explored in future studies.

  • experiences of informational needs and received information following a prenatal diagnosis of Congenital Heart Defect
    Prenatal Diagnosis, 2016
    Co-Authors: Tommy Carlsson, Gunnar Bergman, Barbro Wadensten, Elisabet Mattsson
    Abstract:

    OBJECTIVE: To explore the need for information and what information was actually received following a prenatal diagnosis of a Congenital Heart Defect, in a country where termination of pregnancy be ...

Subodh Verma - One of the best experts on this subject based on the ideXlab platform.