The Experts below are selected from a list of 17070 Experts worldwide ranked by ideXlab platform
A Chavuta - One of the best experts on this subject based on the ideXlab platform.
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how do carers of Disabled children cope the ugandan perspective
Child Care Health and Development, 2005Co-Authors: Sally Hartley, P Ojwang, A Baguwemu, M Ddamulira, A ChavutaAbstract:Background: Community-based rehabilitation (CBR) was recommended by the World Health Organization in 1989 as the strategy for improving the quality of life of Disabled people and their families, which should be built on local knowledge and practices. In Uganda, there is no documentation on how services relate to local knowledge. There is a need for increased knowledge and understanding of how family members cope with their Disabled children to provide the basis for future service development. Methods: A qualitative phenomenological design was used to develop an in-depth understanding of how Ugandan families cope with their Disabled children in their own communities. Data were collected from 52 families with children with disabilities from five impairment groups, through interviews and observations in three districts of Uganda, one urban, two rural. Results: There are many children with disabilities who are included, loved and cared for by their families. A lot of time and money is spent on seeking a cure. The extended family systems are breaking down and the main burden of caring for a Disabled family member generally falls on one, sometimes two, female carers. Male members act as gatekeepers, controlling the key decisions concerning the child and the associated resources. Conclusions: CBR should move the focus of their services away from the Disabled Individual towards the whole family. It is important to provide accurate information about causes and prevention of impairments, the realities of a cure, support and respite for the female carers, and opportunities for the involvement of fathers. This methodology is a practical mechanism for collecting data that have the potential to positively influence and guide the development of CBR practice in the locality. At a conceptual level the data support the philosophy of inclusion, social integration, the importance of trust and respect, and utilizing a holistic approach. These are eminently transferable to other settings.
Emily M Agree - One of the best experts on this subject based on the ideXlab platform.
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the influence of personal care and assistive devices on the measurement of disability
Social Science & Medicine, 1999Co-Authors: Emily M AgreeAbstract:The goal of all long-term care arrangements is to reduce the disabling effects of physical impairments and functional limitations. However, the means with which Individuals cope with disability may not be equivalent and these differences may influence self-reports of disability in surveys. This paper examines assistive devices and personal care as factors in the measurement of disability among persons aged 70 and older in the community using the 1994 Survey of Asset and Health Dynamics of the Oldest Old (AHEAD) in the US. The use of assistive technology differs from personal care on a fundamental level. It does not require the ongoing cooperation or coordination of other people and therefore increases the sense of independence with which a Disabled Individual can meet their long-term care needs. Results indicate that older Individuals can expect to spend most of their remaining years in good functional health, but up to two-thirds of Disabled years will be spent with unmet ADL needs. Among those who are Disabled, those who use only equipment and no personal care report less residual difficulty with mobility than those who use personal assistance (either alone or in combination with equipment) but the use of equipment alone is most effective for those with the least severe limitations.
Messmer M Uccelli - One of the best experts on this subject based on the ideXlab platform.
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an interdisciplinary approach to evaluating the need for assistive technology reduces equipment abandonment
Multiple Sclerosis Journal, 2006Co-Authors: R Verza, M Lopes L Carvalho, M A Battaglia, Messmer M UccelliAbstract:Assistive technology makes up a substantial portion of the direct cost of multiple sclerosis (MS). Equipment abandonment results in the needs of the Disabled Individual being unmet and places stress on the resources available for the funding of such equipment. The aim of the study was to demonstrate whether an interdisciplinary approach to evaluating and prescribing assistive technology reduces equipment abandonment in persons with MS. Data concerning assistive devices acquired by patients being followed at a rehabilitation centre in northern Italy from January 1997 to December 2002, were included in the study. Through December 1999, a physician in physical medicine and rehabilitation prescribed equipment based on a recommendation from the physical therapist. From 2000 to 2002, patients were evaluated following a standardized protocol implemented by an interdisciplinary team comprised of a physical therapist, occupational therapist, physician in physical medicine and rehabilitation and psychologist. Assis...
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an interdisciplinary approach to evaluating the need for assistive technology reduces equipment abandonment
Multiple Sclerosis Journal, 2006Co-Authors: R Verza, M Lopes L Carvalho, M A Battaglia, Messmer M UccelliAbstract:Assistive technology makes up a substantial portion of the direct cost of multiple sclerosis (MS). Equipment abandonment results in the needs of the Disabled Individual being unmet and places stress on the resources available for the funding of such equipment. The aim of the study was to demonstrate whether an interdisciplinary approach to evaluating and prescribing assistive technology reduces equipment abandonment in persons with MS. Data concerning assistive devices acquired by patients being followed at a rehabilitation centre in northern Italy from January 1997 to December 2002, were included in the study. Through December 1999, a physician in physical medicine and rehabilitation prescribed equipment based on a recommendation from the physical therapist. From 2000 to 2002, patients were evaluated following a standardized protocol implemented by an interdisciplinary team comprised of a physical therapist, occupational therapist, physician in physical medicine and rehabilitation and psychologist. Assistive technology obtained during the study period was divided into two datasets based on the year that the aid was obtained: pre-intervention (January 1997 to December 1999) and intervention (January 2000 to December 2002). The analysis included a comparison of the two datasets on number and types of equipment abandoned, timing of abandonment and reasons why devices were abandoned. Fifty-four subjects obtained 151 assistive devices during the study period, 67 devices during pre-intervention and 84 with the intervention. The majority of devices were abandoned immediately or within the first year following obtainment in both groups. A comparison of the number of devices obtained during pre-intervention with those obtained during the intervention showed that the rate of equipment abandonment decreased significantly from 37.3 to 9.5%. An interdisciplinary approach to evaluating assistive technology needs does decrease the risk of equipment abandonment, although it does not completely solve the problem.
Sally Hartley - One of the best experts on this subject based on the ideXlab platform.
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how do carers of Disabled children cope the ugandan perspective
Child Care Health and Development, 2005Co-Authors: Sally Hartley, P Ojwang, A Baguwemu, M Ddamulira, A ChavutaAbstract:Background: Community-based rehabilitation (CBR) was recommended by the World Health Organization in 1989 as the strategy for improving the quality of life of Disabled people and their families, which should be built on local knowledge and practices. In Uganda, there is no documentation on how services relate to local knowledge. There is a need for increased knowledge and understanding of how family members cope with their Disabled children to provide the basis for future service development. Methods: A qualitative phenomenological design was used to develop an in-depth understanding of how Ugandan families cope with their Disabled children in their own communities. Data were collected from 52 families with children with disabilities from five impairment groups, through interviews and observations in three districts of Uganda, one urban, two rural. Results: There are many children with disabilities who are included, loved and cared for by their families. A lot of time and money is spent on seeking a cure. The extended family systems are breaking down and the main burden of caring for a Disabled family member generally falls on one, sometimes two, female carers. Male members act as gatekeepers, controlling the key decisions concerning the child and the associated resources. Conclusions: CBR should move the focus of their services away from the Disabled Individual towards the whole family. It is important to provide accurate information about causes and prevention of impairments, the realities of a cure, support and respite for the female carers, and opportunities for the involvement of fathers. This methodology is a practical mechanism for collecting data that have the potential to positively influence and guide the development of CBR practice in the locality. At a conceptual level the data support the philosophy of inclusion, social integration, the importance of trust and respect, and utilizing a holistic approach. These are eminently transferable to other settings.
Patrick Fougeyrollas - One of the best experts on this subject based on the ideXlab platform.
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documenting environmental factors for preventing the handicap creation process quebec contributions relating to icidh and social participation of people with functional differences
Disability and Rehabilitation, 1995Co-Authors: Patrick FougeyrollasAbstract:SummaryThis article presents the conceptual origins and the usefulness of an holistic model, stressing the role of environmental determinants in the performance of day-to-day activities and the fulfilment of social roles by persons with disabilities. The Quebec Committee on ICIDH contribution to the development of knowledge on the clarification of the relationship of Disabled Individual-environment and the understanding of the handicap creation process in relation with ICIDH experimentations is presented. Finally, on the basis of anthropological social research conducted in Quebec, the article illustrates a methodology for environmental analysis of the handicap situations of Disabled clients in rehabilitation and social integration support programmes.