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Michaela Amering - One of the best experts on this subject based on the ideXlab platform.

  • O-91 Psychiatric advance directives as part of a rights-based approach to recovery
    BMJ Supportive & Palliative Care, 2015
    Co-Authors: Michaela Amering
    Abstract:

    Background English-speaking countries, such as USA, UK, Ireland, Australia, New Zealand, and Canada have embraced Recovery-orientation as a guiding principle of their Mental Health policy. The recent UN-Convention on the Rights of Persons with Disabilities (CRPD) – historically for the first time – explicitly includes persons with psychosocial disabilities. Aim Discuss how Psychiatric Advance Directives (PAD) can support Recovery-Orientation in times of new human rights legislation in Mental Health. Methods Non-systematic review of recovery concepts and data in view of current human rights development. Results The 2013 General Comment on Article 12 of the CRPD – Equal Recognition before the Law – by the UN Committee on the Rights of Persons with Disabilities includes a call for the immediate abolition of all substitute decision-making regimes. Research on means and meanings of recovery as well as on the lived experience of coercion underline the importance of choice, self-determination and empowerment for people struggling with Mental Health problems. Psychiatric advance directives support the realisation of these capacities in a rights-based relationship between persons with Mental Health problems and the Mental Health system built on the person’s experience-based expertise. Discussion Support and excitement about possible historical changes as well as confusion, indignation and essential worries have been discussed and formulated in the International Mental Health community in the light of new human rights challenges for Mental Health care. Conclusion Psychiatric Advance Directives could play a crucial bridging role for the controversial discourses between long-standing clinical traditions and requirements of currently evolving International human rights standards.

  • Partnerships for better Mental Health worldwide: WPA recommendations on best practices in working with service users and family carers
    World Psychiatry, 2011
    Co-Authors: Jan Wallcraft, Bhargavi Davar, Diane Froggatt, Sylvester Katontoka, Afzal Javed, Julian Freidin, Shoba Raja, Hussain Jafri, Michaela Amering, Solomon Rataemane
    Abstract:

    WPA President M. Maj established the Task Force on Best Practice in Working with Service Users and Carers in 2008, chaired by H. Herrman. The Task Force had the remit to create recommendations for the International Mental Health community on how to develop successful partnership working. The work began with a review of literature on service user and carer involvement and partnership. This set out a range of considerations for good practice, including choice of appropriate terminology, clarifying the partnership process and identifying and reducing barriers to partnership working. Based on the literature review and on the shared knowledge in the Task Force, a set of ten recommendations for good practice was developed. These recommendations were the basis for a worldwide consultation of stakeholders with expertise as service users, families and carers, and the WPA Board and Council. The results showed a strong consensus across the International Mental Health community on the ten recommendations, with the strongest agreement coming from service users and carers. This general consensus gives a basis for Task Force plans to seek support for activities to promote shared work worldwide to identify best practice examples and create a resource to assist others to begin successful collaboration.

K. Dambrauskienė - One of the best experts on this subject based on the ideXlab platform.

  • PW01-175 - Comparison of the quality of life of patients with schizophrenia in urban and rural districts
    European Psychiatry, 2010
    Co-Authors: V. Adomaitienė, V. Taranda, A. Jaras, K. Dambrauskienė, A. Lygnugarytė, L. Andriuškevičienė
    Abstract:

    Objective The goal of the study was to analyze and compare the quality of life of patients with schizophrenia who live in rural and in urban districts. Methods Our group was randomly selected and consisted of 123 urban and 116 rural patients. We used standardized International Mental Health quality of life scale (QOL-36) questionnaire implemented by Phillip W. Long (2003). Statistical analysis was conducted with SPSS 16.0 program. Results Social problems are equally common to both groups of respondents regardless their age and the length of the disease (p Conclusions The most frequent problems both in districts and in a city: unemployment, low income; cognitive disorders, physical fatigue, lack of interest/feelings; difficulties in communication with close friends. Problems are of different importance to urban and rural residents - sleep disorders (not important for rural residents), problems in sexual sphere (not important rural residents). The quality of life is estimated equally bad by the patients with schizophrenia, despite their age and the duration of the disease.

  • P03-17 - Nursing demands of patients with schizophrenia with long term maintenance treatment at home
    European Psychiatry, 2010
    Co-Authors: V. Adomaitienė, V. Taranda, A. Jaras, A. Lygnugarytė, L. Andriuškevičienė, K. Dambrauskienė
    Abstract:

    In the last seven years there has been an increase in the number of schizophrenia disease in Lithuania (in 2002-2369,5; in 2008-2795,65 to 100.000 residents). The length of treatment in residential care is getting shorter because of changing regulations. Objective The goal of the study to explore nursing demands in patients with schizophrenia disorders with long term maintenance treatment at home. Methods Research was carried out in four Kaunas primary Mental Health centers. We used standardized International Mental Health Quality Of Life Scale (QOL-36) questionnaire implemented by Phillip W. Long (2003). Our group was randomly selected and consisted of 123 patients with schizophrenia aging from 18 to 65 years. Results Several main problems were disclosed: 46% reduced everyday home activities, 68 % mentioned physical fatigue, apathy- 60%, sleep disorders- 81%, memory and attention disorders- 64%, communication problems- 76%. 25% of respondents had suicidal attempt. There were more suicidal attempts in younger patients than others (p Conclusions The most frequent nursing demands mentioned by patients are caused by memory and attention disorders, as well as sleep disorders. Those problems most frequently occur among older respondents.

V. Adomaitienė - One of the best experts on this subject based on the ideXlab platform.

  • PW01-175 - Comparison of the quality of life of patients with schizophrenia in urban and rural districts
    European Psychiatry, 2010
    Co-Authors: V. Adomaitienė, V. Taranda, A. Jaras, K. Dambrauskienė, A. Lygnugarytė, L. Andriuškevičienė
    Abstract:

    Objective The goal of the study was to analyze and compare the quality of life of patients with schizophrenia who live in rural and in urban districts. Methods Our group was randomly selected and consisted of 123 urban and 116 rural patients. We used standardized International Mental Health quality of life scale (QOL-36) questionnaire implemented by Phillip W. Long (2003). Statistical analysis was conducted with SPSS 16.0 program. Results Social problems are equally common to both groups of respondents regardless their age and the length of the disease (p Conclusions The most frequent problems both in districts and in a city: unemployment, low income; cognitive disorders, physical fatigue, lack of interest/feelings; difficulties in communication with close friends. Problems are of different importance to urban and rural residents - sleep disorders (not important for rural residents), problems in sexual sphere (not important rural residents). The quality of life is estimated equally bad by the patients with schizophrenia, despite their age and the duration of the disease.

  • P03-17 - Nursing demands of patients with schizophrenia with long term maintenance treatment at home
    European Psychiatry, 2010
    Co-Authors: V. Adomaitienė, V. Taranda, A. Jaras, A. Lygnugarytė, L. Andriuškevičienė, K. Dambrauskienė
    Abstract:

    In the last seven years there has been an increase in the number of schizophrenia disease in Lithuania (in 2002-2369,5; in 2008-2795,65 to 100.000 residents). The length of treatment in residential care is getting shorter because of changing regulations. Objective The goal of the study to explore nursing demands in patients with schizophrenia disorders with long term maintenance treatment at home. Methods Research was carried out in four Kaunas primary Mental Health centers. We used standardized International Mental Health Quality Of Life Scale (QOL-36) questionnaire implemented by Phillip W. Long (2003). Our group was randomly selected and consisted of 123 patients with schizophrenia aging from 18 to 65 years. Results Several main problems were disclosed: 46% reduced everyday home activities, 68 % mentioned physical fatigue, apathy- 60%, sleep disorders- 81%, memory and attention disorders- 64%, communication problems- 76%. 25% of respondents had suicidal attempt. There were more suicidal attempts in younger patients than others (p Conclusions The most frequent nursing demands mentioned by patients are caused by memory and attention disorders, as well as sleep disorders. Those problems most frequently occur among older respondents.

H. Herrman - One of the best experts on this subject based on the ideXlab platform.

  • S25-04 - World psychiatric association task force on best practice in working with service users and carers
    European Psychiatry, 2011
    Co-Authors: H. Herrman
    Abstract:

    The WPA has invited service users and family carers to join in its work as members of a taskforce, recognising their essential contribution to improving Mental Health in any country. WPA President Prof. Mario Maj established the project within the WPA Action Plan 2008 to 2011. The taskforce has prepared recommendations for the International Mental Health community on best practices in working with service users and carers. It has also worked with the WPA Standing Committee on Ethics to prepare a new paragraph for the WPA Declaration of Madrid. The WHO Department of Mental Health has offered its experience and advice. Ten recommendations are ready for dissemination after extensive consultation. Each country will need specific guidelines to apply these recommendations. The recommendations begin by declaration that respecting human rights is the basis of successful partnerships for Mental Health. The second recommendation is that legislation, policy and clinical practice relevant to the lives and care of people with Mental disorders need to be developed in collaboration with users and carers. The series continues with a recommendation that the best clinical care of any person in acute or rehabilitation situations is done in collaboration between the user, the carers and the clinicians. Education, research and quality improvement in Mental Health care also require this collaboration. The next step is developing a series of projects to apply these broad principles in each country and local communities. The WPA hopes to support partnership and participatory developments worldwide, and learn from these experiences.

Solomon Rataemane - One of the best experts on this subject based on the ideXlab platform.

  • Partnerships for better Mental Health worldwide: WPA recommendations on best practices in working with service users and family carers
    World Psychiatry, 2011
    Co-Authors: Jan Wallcraft, Bhargavi Davar, Diane Froggatt, Sylvester Katontoka, Afzal Javed, Julian Freidin, Shoba Raja, Hussain Jafri, Michaela Amering, Solomon Rataemane
    Abstract:

    WPA President M. Maj established the Task Force on Best Practice in Working with Service Users and Carers in 2008, chaired by H. Herrman. The Task Force had the remit to create recommendations for the International Mental Health community on how to develop successful partnership working. The work began with a review of literature on service user and carer involvement and partnership. This set out a range of considerations for good practice, including choice of appropriate terminology, clarifying the partnership process and identifying and reducing barriers to partnership working. Based on the literature review and on the shared knowledge in the Task Force, a set of ten recommendations for good practice was developed. These recommendations were the basis for a worldwide consultation of stakeholders with expertise as service users, families and carers, and the WPA Board and Council. The results showed a strong consensus across the International Mental Health community on the ten recommendations, with the strongest agreement coming from service users and carers. This general consensus gives a basis for Task Force plans to seek support for activities to promote shared work worldwide to identify best practice examples and create a resource to assist others to begin successful collaboration.