The Experts below are selected from a list of 89196 Experts worldwide ranked by ideXlab platform
Wanda Pratt - One of the best experts on this subject based on the ideXlab platform.
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sharing is caring but not error free transparency of granular controls for sharing Personal Health Information in social networks
2011Co-Authors: Andrea L Hartzler, Meredith M Skeels, Marlee Mukai, Christopher Powell, Predrag Klasnja, Wanda PrattAbstract:When patients share Personal Health Information with family and friends, their social networks become better equipped to help them through serious Health situations. Thus, patients need tools that enable granular control over what Personal Health Information is shared and with whom within social networks. Yet, we know little about how well such tools support patients' complex sharing needs. We report on a lab study in which we examined the transparency of sharing interfaces that display an overview and details of Information sharing with network connections in an internet-based Personal Health Information management tool called HealthWeaver. Although participants found the interfaces easy to use and were highly confident in their interpretation of the sharing controls, several participants made errors in determining what Information was shared with whom. Our findings point to the critical importance of future work that examines design of usable interfaces that offer transparent granularity in support of patients' complex Information sharing practices.
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Health weaver mobile designing a mobile tool for managing Personal Health Information during cancer care
2010Co-Authors: Predrag Klasnja, Christopher Powell, Andrea L Hartzler, Giovandy Phan, Wanda PrattAbstract:Cancer patients manage a great deal of Information to coordinate their care. Critical aspects of this work take place while patients are away from home or have diminished attention due to symptoms or side effects. We describe the design of HealthWeaver Mobile, a mobile phone application we developed to help patients manage care-related Information in such situations. We discuss findings from two participatory design groups with breast cancer patients and the design decisions made to implement functional requirements uncovered in those groups.
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Personal Health Information management
2006Co-Authors: Wanda Pratt, Kenton T Unruh, Andrea Civan, Meredith M SkeelsAbstract:Integrating Personal Health Information helps people manage their lives and actively participate in their own Health care.
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Personal Health Information management consumers perspectives
2006Co-Authors: Andrea Civan, Meredith M Skeels, Anna Stolyar, Wanda PrattAbstract:Personal Health Information management (PHIM) refers to activities that support consumers' access, integration, organization, and use of their Personal Health Information. We investigated PHIM in the Health consumer population using a focus group and participatory design. In collaboration with Health consumers, we identified PHIM activities and explored the design of new supportive technology. Our findings describe prominent PHIM activities such as monitoring and assessing Health, as well as Health-related decision making, planning, and action. We describe design principles our participants used during the participatory design of a PHIM tool. These include individual control, sharing, integration, security and flexibility. These findings provide new insights into emerging ideas in consumer Health informatics research and technology design. Understanding Health consumers' PHIM needs is an important step in creating technology to support these needs.
Andrea L Hartzler - One of the best experts on this subject based on the ideXlab platform.
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Personal Health Information management among Healthy older adults varying needs and approaches
2021Co-Authors: Anne M Turner, Andrea L Hartzler, Katie P Osterhage, Jean O Taylor, Alyssa L Bosold, Ian Painter, George DemirisAbstract:Objective With age, older adults experience a greater number of chronic diseases and medical visits, and an increased need to manage their Health Information. Technological advances in consumer Health Information technologies (HITs) help patients gather, track, and organize their Health Information within and outside of clinical settings. However, HITs have not focused on the needs of older adults and their caregivers. The goal of the SOARING (Studying Older Adults and Researching their Information Needs and Goals) Project was to understand older adult Personal Health Information management (PHIM) needs and practices to inform the design of HITs that support older adults. Materials and methods Drawing on the Work System Model, we took an ecological approach to investigate PHIM needs and practices of older adults in different residential settings. We conducted in-depth interviews and surveys with adults 60 years of age and older. Results We performed on-site in-person interview sessions with 88 generally Healthy older adults in various settings including independent housing, retirement communities, assisted living, and homelessness. Our analysis revealed 5 key PHIM activities that older adults engage in: seeking, tracking, organizing, sharing Health Information, and emergency planning. We identified 3 major themes influencing older adults' practice of PHIM: (1) older adults are most concerned with maintaining Health and preventing illness, (2) older adults frequently involve others in PHIM activities, and (3) older adults' approach to PHIM is situational and context-dependent. Discussion Older adults' approaches to PHIM are dynamic and sensitive to changes in Health, social networks, Personal habits, motivations, and goals. Conclusions PHIM tools that meet the needs of older adults should accommodate the dynamic nature of aging and variations in individual, organizational, and social contexts.
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Personal Health Information management practices of older adults one size does not fit all
2019Co-Authors: Anne M Turner, Andrea L Hartzler, Katie P Osterhage, Jean O Taylor, George DemirisAbstract:Older adults are the largest consumers of Health care, have the greatest number of chronic conditions, and generate the greatest amount of Health data. Yet, Information systems designed to aid Health Information management do not align with their needs and practices. We describe a process of identifying the Personal Health Information management (PHIM) activities and objectives of older adults (60 years and older) from different residential settings.
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monitoring for change the role of family and friends in helping older adults manage Personal Health Information
2018Co-Authors: Jean O Taylor, Andrea L Hartzler, Katie P Osterhage, George Demiris, Anne M TurnerAbstract:Objective Although family and friends (FF) often play a significant support role in the Health of older adults (OA), we know little about their role in Personal Health Information management (PHIM). To address this gap and inform the design of PHIM tools, we describe the work, needs, and barriers of FF in the context of PHIM for OAs. Methods We conducted semi-structured telephone interviews with 52 FF identified by OA as being important in their Health and PHIM. We analyzed interview transcripts for themes about FF Information work, barriers, and support needs. Results FF play a supportive role in OA Health maintenance, medical encounters, decision making, and daily activities. Monitoring, the ongoing process of seeking Information related to the OA status, emerged as a key activity comprised of 3 phases: detection, interpretation, and action. Barriers to monitoring included OA choices and constraints, FF constraints, and difficulty with technological tools, resources, Health Information exchange between providers, social network dynamics, and physical distance. Conclusions FF frequently monitor for change in OA well-being, seeking up-to-date Information to facilitate support of OA PHIM. Health Information technology tools designed for FF can support all phases of monitoring by providing: (1) timely and granular levels of access to OA Health Information as the OA ages; (2) tailored Health education for FF that is based on OA clinical data; and (3) networking platforms that integrate delegation, volunteering, and relevant resources, along with tools to facilitate support of OA appointment calendars and medication management. Such tools could reduce the burden of PHIM for OA and their loved ones.
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understanding views on everyday use of Personal Health Information insights from community dwelling older adults
2018Co-Authors: Andrea L Hartzler, Katie P Osterhage, George Demiris, Elizabeth A Phelan, S M Thielke, Anne M TurnerAbstract:ABSTRACTBackground: Older adults apply various strategies to pursue Healthy aging, but we know little about their views and use of Personal Health Information to accomplish those ends. Methods: As a first step in formulating the role of Personal Health Information management (PHIM) in Healthy aging, we explored the perspectives of older adults on Health and Health Information used in their everyday lives through four focus groups with 25 community-dwelling adults aged 60 and over. Results: We found that the concept of wellness–the holistic and multidimensional nature of Health and wellbeing–plays prominently in how older adults think about Health and Health Information. Participants expressed wellness from a position of Personal strength, rather than Health-related deficits, by focusing on wellness activities for staying Healthy through: (1) Personal Health practices, (2) social network support, and (3) residential community engagement. Conclusion: Although these themes involve Personal Health Information...
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use of patient portals for Personal Health Information management the older adult perspective
2015Co-Authors: Anne M Turner, Andrea L Hartzler, Katie P Osterhage, Jonathan Joe, Lorelei Lin, Natasha Kanagat, George DemirisAbstract:The Personal Health Information management (PHIM) practices and needs of older adults are poorly understood. We describe initial results from the UW SOARING project (Studying Older Adults & Researching Information Needs and Goals), a participatory design investigation of PHIM in older adults (60 years and older). We conducted in-depth interviews with older adults (n=74) living in a variety of residential settings about their management of Personal Health Information. A surprising 20% of participants report using patient portals and another 16% reported prior use or anticipated use of portals in the future. Participants cite ease of access to Health Information and direct communication with providers as valuable portal features. Barriers to the use of patient portals include a general lack of computer proficiency, high internet costs and security concerns. Design features based on consideration of needs and practices of older adults will facilitate appeal and maximize usability; both are elements critical to adoption of tools such as patient portals that can support older adults and PHIM.
Anne M Turner - One of the best experts on this subject based on the ideXlab platform.
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Personal Health Information management among Healthy older adults varying needs and approaches
2021Co-Authors: Anne M Turner, Andrea L Hartzler, Katie P Osterhage, Jean O Taylor, Alyssa L Bosold, Ian Painter, George DemirisAbstract:Objective With age, older adults experience a greater number of chronic diseases and medical visits, and an increased need to manage their Health Information. Technological advances in consumer Health Information technologies (HITs) help patients gather, track, and organize their Health Information within and outside of clinical settings. However, HITs have not focused on the needs of older adults and their caregivers. The goal of the SOARING (Studying Older Adults and Researching their Information Needs and Goals) Project was to understand older adult Personal Health Information management (PHIM) needs and practices to inform the design of HITs that support older adults. Materials and methods Drawing on the Work System Model, we took an ecological approach to investigate PHIM needs and practices of older adults in different residential settings. We conducted in-depth interviews and surveys with adults 60 years of age and older. Results We performed on-site in-person interview sessions with 88 generally Healthy older adults in various settings including independent housing, retirement communities, assisted living, and homelessness. Our analysis revealed 5 key PHIM activities that older adults engage in: seeking, tracking, organizing, sharing Health Information, and emergency planning. We identified 3 major themes influencing older adults' practice of PHIM: (1) older adults are most concerned with maintaining Health and preventing illness, (2) older adults frequently involve others in PHIM activities, and (3) older adults' approach to PHIM is situational and context-dependent. Discussion Older adults' approaches to PHIM are dynamic and sensitive to changes in Health, social networks, Personal habits, motivations, and goals. Conclusions PHIM tools that meet the needs of older adults should accommodate the dynamic nature of aging and variations in individual, organizational, and social contexts.
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Personal Health Information management practices of older adults one size does not fit all
2019Co-Authors: Anne M Turner, Andrea L Hartzler, Katie P Osterhage, Jean O Taylor, George DemirisAbstract:Older adults are the largest consumers of Health care, have the greatest number of chronic conditions, and generate the greatest amount of Health data. Yet, Information systems designed to aid Health Information management do not align with their needs and practices. We describe a process of identifying the Personal Health Information management (PHIM) activities and objectives of older adults (60 years and older) from different residential settings.
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the role of Personal Health Information management in promoting patient safety in the home a qualitative analysis
2019Co-Authors: George Demiris, Shihyin Lin, Anne M TurnerAbstract:Patient safety is a critical component of Health care services; however, it has beent mostly conceptualized for the hospital sector. As home Health care expands, it is important to examine the concept of patient safety in the home and identify opportunity for Personal Health Information management (PHIM) tools to support and maximize patient safety. The goal of this study is to explore how PHIM can be a facilitator for patient safety in the home. We explore a comprehensive framework of patient safety in the home and identify the role of PHIM in this context. We analyzed the coded transcripts of in-depth interviews with 88 older adults (60 year and older), 56 family members or informal caregivers and 27 clinicians. Findings demonstrate the physical, emotional, social and functional dimensions of patient safety in the home and concrete ways for informatics tools to maximize safety aspects.
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connected personas translating the complexity of older adult Personal Health Information management for designers of Health Information technologies
2019Co-Authors: Dawn K Sakaguchitang, Anne M Turner, Jean O Taylor, Julie A KientzAbstract:Human-centered design (HCD) can be used to communicate research study findings to designers of Health Information technologies (HIT). We used the HCD approach to develop personas, scenarios, and design guidelines for designers with the aim that it would lead to new HIT designs that support the autonomy and Health of older adults. The foundation of the personas, scenarios, and design guidelines was a study that focused on understanding how older adults manage their Health Information and the role that stakeholders play in that process. In this paper, we describe how we carried out a HCD approach and how it led us to expand the persona process to create a network of connected personas. The connected personas allowed us to show the complexities of Personal Health Information management for older adults and emphasize the importance of relationships with family, friends, and providers.
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monitoring for change the role of family and friends in helping older adults manage Personal Health Information
2018Co-Authors: Jean O Taylor, Andrea L Hartzler, Katie P Osterhage, George Demiris, Anne M TurnerAbstract:Objective Although family and friends (FF) often play a significant support role in the Health of older adults (OA), we know little about their role in Personal Health Information management (PHIM). To address this gap and inform the design of PHIM tools, we describe the work, needs, and barriers of FF in the context of PHIM for OAs. Methods We conducted semi-structured telephone interviews with 52 FF identified by OA as being important in their Health and PHIM. We analyzed interview transcripts for themes about FF Information work, barriers, and support needs. Results FF play a supportive role in OA Health maintenance, medical encounters, decision making, and daily activities. Monitoring, the ongoing process of seeking Information related to the OA status, emerged as a key activity comprised of 3 phases: detection, interpretation, and action. Barriers to monitoring included OA choices and constraints, FF constraints, and difficulty with technological tools, resources, Health Information exchange between providers, social network dynamics, and physical distance. Conclusions FF frequently monitor for change in OA well-being, seeking up-to-date Information to facilitate support of OA PHIM. Health Information technology tools designed for FF can support all phases of monitoring by providing: (1) timely and granular levels of access to OA Health Information as the OA ages; (2) tailored Health education for FF that is based on OA clinical data; and (3) networking platforms that integrate delegation, volunteering, and relevant resources, along with tools to facilitate support of OA appointment calendars and medication management. Such tools could reduce the burden of PHIM for OA and their loved ones.
George Demiris - One of the best experts on this subject based on the ideXlab platform.
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Personal Health Information management among Healthy older adults varying needs and approaches
2021Co-Authors: Anne M Turner, Andrea L Hartzler, Katie P Osterhage, Jean O Taylor, Alyssa L Bosold, Ian Painter, George DemirisAbstract:Objective With age, older adults experience a greater number of chronic diseases and medical visits, and an increased need to manage their Health Information. Technological advances in consumer Health Information technologies (HITs) help patients gather, track, and organize their Health Information within and outside of clinical settings. However, HITs have not focused on the needs of older adults and their caregivers. The goal of the SOARING (Studying Older Adults and Researching their Information Needs and Goals) Project was to understand older adult Personal Health Information management (PHIM) needs and practices to inform the design of HITs that support older adults. Materials and methods Drawing on the Work System Model, we took an ecological approach to investigate PHIM needs and practices of older adults in different residential settings. We conducted in-depth interviews and surveys with adults 60 years of age and older. Results We performed on-site in-person interview sessions with 88 generally Healthy older adults in various settings including independent housing, retirement communities, assisted living, and homelessness. Our analysis revealed 5 key PHIM activities that older adults engage in: seeking, tracking, organizing, sharing Health Information, and emergency planning. We identified 3 major themes influencing older adults' practice of PHIM: (1) older adults are most concerned with maintaining Health and preventing illness, (2) older adults frequently involve others in PHIM activities, and (3) older adults' approach to PHIM is situational and context-dependent. Discussion Older adults' approaches to PHIM are dynamic and sensitive to changes in Health, social networks, Personal habits, motivations, and goals. Conclusions PHIM tools that meet the needs of older adults should accommodate the dynamic nature of aging and variations in individual, organizational, and social contexts.
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Personal Health Information management practices of older adults one size does not fit all
2019Co-Authors: Anne M Turner, Andrea L Hartzler, Katie P Osterhage, Jean O Taylor, George DemirisAbstract:Older adults are the largest consumers of Health care, have the greatest number of chronic conditions, and generate the greatest amount of Health data. Yet, Information systems designed to aid Health Information management do not align with their needs and practices. We describe a process of identifying the Personal Health Information management (PHIM) activities and objectives of older adults (60 years and older) from different residential settings.
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the role of Personal Health Information management in promoting patient safety in the home a qualitative analysis
2019Co-Authors: George Demiris, Shihyin Lin, Anne M TurnerAbstract:Patient safety is a critical component of Health care services; however, it has beent mostly conceptualized for the hospital sector. As home Health care expands, it is important to examine the concept of patient safety in the home and identify opportunity for Personal Health Information management (PHIM) tools to support and maximize patient safety. The goal of this study is to explore how PHIM can be a facilitator for patient safety in the home. We explore a comprehensive framework of patient safety in the home and identify the role of PHIM in this context. We analyzed the coded transcripts of in-depth interviews with 88 older adults (60 year and older), 56 family members or informal caregivers and 27 clinicians. Findings demonstrate the physical, emotional, social and functional dimensions of patient safety in the home and concrete ways for informatics tools to maximize safety aspects.
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monitoring for change the role of family and friends in helping older adults manage Personal Health Information
2018Co-Authors: Jean O Taylor, Andrea L Hartzler, Katie P Osterhage, George Demiris, Anne M TurnerAbstract:Objective Although family and friends (FF) often play a significant support role in the Health of older adults (OA), we know little about their role in Personal Health Information management (PHIM). To address this gap and inform the design of PHIM tools, we describe the work, needs, and barriers of FF in the context of PHIM for OAs. Methods We conducted semi-structured telephone interviews with 52 FF identified by OA as being important in their Health and PHIM. We analyzed interview transcripts for themes about FF Information work, barriers, and support needs. Results FF play a supportive role in OA Health maintenance, medical encounters, decision making, and daily activities. Monitoring, the ongoing process of seeking Information related to the OA status, emerged as a key activity comprised of 3 phases: detection, interpretation, and action. Barriers to monitoring included OA choices and constraints, FF constraints, and difficulty with technological tools, resources, Health Information exchange between providers, social network dynamics, and physical distance. Conclusions FF frequently monitor for change in OA well-being, seeking up-to-date Information to facilitate support of OA PHIM. Health Information technology tools designed for FF can support all phases of monitoring by providing: (1) timely and granular levels of access to OA Health Information as the OA ages; (2) tailored Health education for FF that is based on OA clinical data; and (3) networking platforms that integrate delegation, volunteering, and relevant resources, along with tools to facilitate support of OA appointment calendars and medication management. Such tools could reduce the burden of PHIM for OA and their loved ones.
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understanding views on everyday use of Personal Health Information insights from community dwelling older adults
2018Co-Authors: Andrea L Hartzler, Katie P Osterhage, George Demiris, Elizabeth A Phelan, S M Thielke, Anne M TurnerAbstract:ABSTRACTBackground: Older adults apply various strategies to pursue Healthy aging, but we know little about their views and use of Personal Health Information to accomplish those ends. Methods: As a first step in formulating the role of Personal Health Information management (PHIM) in Healthy aging, we explored the perspectives of older adults on Health and Health Information used in their everyday lives through four focus groups with 25 community-dwelling adults aged 60 and over. Results: We found that the concept of wellness–the holistic and multidimensional nature of Health and wellbeing–plays prominently in how older adults think about Health and Health Information. Participants expressed wellness from a position of Personal strength, rather than Health-related deficits, by focusing on wellness activities for staying Healthy through: (1) Personal Health practices, (2) social network support, and (3) residential community engagement. Conclusion: Although these themes involve Personal Health Information...
Meredith M Skeels - One of the best experts on this subject based on the ideXlab platform.
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sharing is caring but not error free transparency of granular controls for sharing Personal Health Information in social networks
2011Co-Authors: Andrea L Hartzler, Meredith M Skeels, Marlee Mukai, Christopher Powell, Predrag Klasnja, Wanda PrattAbstract:When patients share Personal Health Information with family and friends, their social networks become better equipped to help them through serious Health situations. Thus, patients need tools that enable granular control over what Personal Health Information is shared and with whom within social networks. Yet, we know little about how well such tools support patients' complex sharing needs. We report on a lab study in which we examined the transparency of sharing interfaces that display an overview and details of Information sharing with network connections in an internet-based Personal Health Information management tool called HealthWeaver. Although participants found the interfaces easy to use and were highly confident in their interpretation of the sharing controls, several participants made errors in determining what Information was shared with whom. Our findings point to the critical importance of future work that examines design of usable interfaces that offer transparent granularity in support of patients' complex Information sharing practices.
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Personal Health Information management
2006Co-Authors: Wanda Pratt, Kenton T Unruh, Andrea Civan, Meredith M SkeelsAbstract:Integrating Personal Health Information helps people manage their lives and actively participate in their own Health care.
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Personal Health Information management consumers perspectives
2006Co-Authors: Andrea Civan, Meredith M Skeels, Anna Stolyar, Wanda PrattAbstract:Personal Health Information management (PHIM) refers to activities that support consumers' access, integration, organization, and use of their Personal Health Information. We investigated PHIM in the Health consumer population using a focus group and participatory design. In collaboration with Health consumers, we identified PHIM activities and explored the design of new supportive technology. Our findings describe prominent PHIM activities such as monitoring and assessing Health, as well as Health-related decision making, planning, and action. We describe design principles our participants used during the participatory design of a PHIM tool. These include individual control, sharing, integration, security and flexibility. These findings provide new insights into emerging ideas in consumer Health informatics research and technology design. Understanding Health consumers' PHIM needs is an important step in creating technology to support these needs.